• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Need Advice With Thyroid Problems
0

10 posts in this topic

Recommended Posts

mygfworld    1

I have celiac and now hashimotos. The dr is still doing testing to see bow much it is growing and cancer etc. I've been on Synthroid for over a year now. I still have significant pressure and discomfort on my neck. Is this normal? One possibility is to have the thyroid removed or "killedoff". Has anyone had either done? Any long term problems with having the thyroid removed? Voice problems?

Any advice would be appreciated.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


georgie    12

Have you thought of using another type of Thyroid medication like Erfa Thyroid ( from Canada) or adding Cytomel to the Synthroid ?

Synthroid is T4 only.

Cytomel is T3 only

Erfa and other Natural Dessicated Thyroid medications ( Armour, Naturethyroid) are T4,T3,T2,T1

When our thyroid work they make T4,T3,T2,T1

Most old fashioned Drs and Endos say that a T4 is still OK as it 'converts' once you take it.

Modern progressive Drs and Endos say we need both T4 and T3 etc

My Goitre and thyroid nodules completely disppeared on Armour Thyroid. No surgery was necessary. How are your blood tests lately ? What are the levels of your Free T4, Free T3 and Thyroid Antibodies?

Check our Dr T Friedman - Endo - website. Lots of info there. Sounds like the Synthroid you are taking is not doing it all - a very common problem . Easily fixable once you find the right Dr.

Share this post


Link to post
Share on other sites
oliv    0

I was diagnosed with Hashimoto's in 2005 (prior to a diagnosis of celiac sprue in 2009) and was prescribed synthroid alone until 2007, followed by synthroid plus cytomel until last year, when I started natural thyroid. While on synthroid, with or without cytomel, I regularly had goiter pain and swelling that would not resolve. The Dr. could only tell me that my thyroid would become inflamed "because it wants to". Hmmm.

Out of frustration with my continuing symptoms (and ill-informed Dr.), and after reading the very useful information at Stop The Thyroid Madness (http://www.stopthethyroidmadness.com/), I switched to Nature-throid, with no regrets.

Another complicating factor is that synthroid is no longer guaranteed to be gluten free (www.glutenfreedrugs.com), though the generics, cytomel, and most natural dessicated thyroid preparations are safe.

Share this post


Link to post
Share on other sites
twe0708    7

My daughter is 16 and takes 10 mg once a day of methimazole for hyperthyroidism. She's been the on meds for 7 years and now the doctor wants to kill her thyroid off. I am concerned about this because I have read about some horrible side effects, but I also know she can't stay on the medicine for the rest of her life. Anyone else have their thyroid killed off and have any side effects?

Share this post


Link to post
Share on other sites
kimann79    1

My daughter is 16 and takes 10 mg once a day of methimazole for hyperthyroidism. She's been the on meds for 7 years and now the doctor wants to kill her thyroid off. I am concerned about this because I have read about some horrible side effects, but I also know she can't stay on the medicine for the rest of her life. Anyone else have their thyroid killed off and have any side effects?

I was diagnosed with Graves disease at fifteen and my thyroid was irradiated. It's been AWFUL. I can't even tell you how many years I spent dealing with the fallout from that and, at thirty, am just beginning to get a handle on it. I'm not sure what the other options are but I would look into them.

In answer to the OP question...I had great luck turning from Synthroid to Cynomel (I am getting ready to switch to desiccated but I needed to deal with a reverse T3 problem.) I second checking out stopthethyroidmadness.com. It's chock full of awesome relevant, up to the minute information. I'll personally never go back on Synthroid.

Share this post


Link to post
Share on other sites
Ads by Google:


Skylark    935

I read something in another thread about timed release T3. Does anyone have any info on it?

Share this post


Link to post
Share on other sites
twe0708    7

I have celiac and now hashimotos. The dr is still doing testing to see bow much it is growing and cancer etc. I've been on Synthroid for over a year now. I still have significant pressure and discomfort on my neck. Is this normal? One possibility is to have the thyroid removed or "killedoff". Has anyone had either done? Any long term problems with having the thyroid removed? Voice problems?

Any advice would be appreciated.

Did you ever have your thyroid killed off? My daughter's doctor still wants to kill hers off. I guess as a female you can't be on the medicine for over active thyroids while having kids, so he said she needs to have it taken care of soon. Are all of these other medicine options that are being recommended safe to take while having kids?

Share this post


Link to post
Share on other sites


Ads by Google:


georgie    12

I found it didn't work as well for me due to malabsorption. If there was a gut flare ( for whatever reason) you ran low on thyroid as well....

I read something in another thread about timed release T3. Does anyone have any info on it?

Share this post


Link to post
Share on other sites
georgie    12

Just be really really careful that it is Graves Disease and not Hashimotos Disease. Hashimotos can cycle up and down/ resemble Graves and does not need to be 'killed off'. It just needs a good thyroid medication and treatment plan.

Did you ever have your thyroid killed off? My daughter's doctor still wants to kill hers off. I guess as a female you can't be on the medicine for over active thyroids while having kids, so he said she needs to have it taken care of soon. Are all of these other medicine options that are being recommended safe to take while having kids?

Share this post


Link to post
Share on other sites
beefree11    2

My daughter had her right lobe removed in 2005 after nodules were found. There was no cancer. Her blood tests revealed Hashimoto's and thyroiditis, so she was placed on T4 only-Synthroid.

Her doses were changed constantly with each new blood test. Until 2009, when her new doctor placed her on Cytomel too. She has been doing very well. He also found that she is gluten intolerant, allergic to wheat, casein/cow milk, soy, corn/maize and eggs. She still has her left lobe. She is also on a very small amount of Iodoral iodine, and feels pretty good in comparison to when she was on the T4 only regimen.

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,919
    • Total Posts
      938,683
  • Member Statistics

    • Total Members
      65,843
    • Most Online
      3,093

    Newest Member
    SherriLynn
    Joined
  • Popular Now

  • Topics

  • Posts

    • This - I agree with all of this. I have also twigged that if oats are a problem then certified processed gluten free food is out. And I got really sick from drywall. It's such a relief to hear this as there was a time when I was feeling like an alien for thinking these things. Well I agree 99.9%. I had a skin problem, possibly DH, which got better when I gave up gluten, improved further when I gave up processed foods but it wasn't until I stopped eating dry beans that I stopped getting any flares. I am also sensitive to egg though (although that does something different to my skin) so I'm a bit a skin-reactive person. Could be worth cutting it out just to see if that helps?
    • Hi Celiac4762, The carbs I eat are sweet potato, parsnip and squash plus loads of fruit. With rice I'm ok if it's from a reputable source. If I ever get glutened by something then I steer clear of it for a month to give myself an extra break and then go back to it in smallish quantities. I have carbs once a day rather than every meal to save time. I can hear in your tone this tired, fed up tone that I recognise so well from when I get glutened. I know what it's like to dream of living in a far away gluten free bubble. I felt like that but after a couple of months (which were a hard adjustment) I got to a stage of knowing what I needed to do. Your medical background will help you methodically work out what you need to cut out and what is safe and you will get there. Stick with college. Don't let this crappy stage take that away.   The thing that saved me though over everything was finding this article: https://bmcgastroenterol.biomedcentral.com/articles/10.1186/1471-230X-13-40
    • Thanks to both of you. Ok, so I was feeling not great and went grain free for 5 weeks. Then slowly started to introduce grains. All seemed ok, then I had an issue after 3 weeks, with blood in my stool. Celiac wasn't on my radar. In fact, rice and oats are what seem to bother me most. But the Dr added on the celiac test and it was indeterminate. So I was sent for endoscopy and colonoscopy. I consumed gluten for just over two weeks, then went back to my grain free, dairy free diet. I saw my Dr this am and she said my bowels were healthy, that the Dr had taken 'several' samples and that all is well on both ends.  (No celiac, but also not H Pylori, crohn's, etc). She is running all kinds of other bloodwork, because I am still feeling terrible, and obviously the assumption I had made was that it was celiac. I'm going to stay off gluten for now, in hopes that I'll start to feel better. My GI symptoms are worse this week than they have been in ages...so something is up, but apparently I'm healthy??! I am pretty sure my Dr. would not refer me to another GI. She's not the best, but it's very hard to find another Dr. here, especially if you already have a Dr. (Canada) I am going to ask her for a copy of the report though, as well as the rest of the bloodwork she's sending me for. 
    • This is exactly what I'm wondering also.
  • Upcoming Events