• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Guest ~wAvE WeT sAnD~

Grrrr....

Rate this topic

Recommended Posts

I have enjoyed reading this! I feel so "unalone"! :D

I know, me too :D

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


And the worst comment I get over and over again is well, that "diet" you are on sounds healthy! You wont ever have a weight problem!! I should really try that

Thats the one that i get most often and it is so annoying, mostly because i havent lost weight since being gluten-free, except for the post-bloat water weight.

Also people keep telling me that if i eat a little gluten, then my body may get used to it. Oh yeah, like 24 years of eating it helped up to this point.

And then there is the ever popular, maybe you will just grow out of it. I am 24, how much more growing out of things am i going to do.

Share this post


Link to post
Share on other sites
I'm going into town on Friday, so I coulld get you the name of the company, perhaps they have a website.

THANK YOU SHIRLEY!! I WILL CROSS MY FINGERS!! YIPPEE!!

Share this post


Link to post
Share on other sites
And then there is the ever popular, maybe you will just grow out of it. I am 24, how much more growing out of things am i going to do.

UGH!! :angry: I have gotten that one too! I wish there was a way to educate the public a little bit more. I am thinking about renting a billboard for a couple of months. Maybe my picture and a saying something along the lines of I'm Gluten Free - Don't offer me food, just your ear so I can tell you about Celiac Disease. :lol: What do ya think? :lol::lol:

Share this post


Link to post
Share on other sites
Guest Viola

:lol: I love the Billboard idea Britt!

I've put gluten free licorice on my grocery list so I don't forget. Will post again Friday evening ... West coast time :D

Share this post


Link to post
Share on other sites

One of Joshua's wedding showers was a covered dish affair given by a Sunday School class at the bride's church. I, as usual, took several of my own dishes to ensure that I would have something to eat. It was interesting to hear all the comments about how healthy my diet was. Most of my food was gone at the end of the evening as well.

Share this post


Link to post
Share on other sites
And the worst comment I get over and over again is well, that "diet" you are on sounds healthy! You wont ever have a weight problem!! I should really try that. ARE YOU KIDDING ME??? I'm still in the I feel lost, I feel like a part of my life has died stage and I get those comments? No I cant eat it, no I cant cheat, no its not temporary......Take your bakers dozen doughnuts and LEAVE ME ALONE!! 

Oh, that irks me too!! I had a co-worker actually say to me that she wished she could get celiac disease for a little while just to slim down. I felt like screaming at her that you can see my ribs only because my body is not absorbing nutrients thanks to the evil grain. Then adding, oh, by the way, have you noticed how much work I miss, that's not vacation time. I'm pretty mild mannered, so I just said that she would change her mind after about five minutes.

My mom also tried to compare it to how hard it was to stay on the South Beach Diet (that she cheats on all the time). I love that I have to respond to comments like all the ones you guys have mentioned while I am still unused to the diet and still feeling irritable from all the damage the gluten did :angry: Lessons in patience...

Plus, at nights I work in an italian restaraunt. Wow, is it ever good for training myself to resist temptation!!

Share this post


Link to post
Share on other sites

I know...the comparing thing bothers me. I have a grandmother who likes to be the center of attention and always think that she has it the worst (even though she has no serious health problems). She once compared my avoiding gluten to her avoiding certain foods due to acid reflux... :angry:

Share this post


Link to post
Share on other sites

I SO agree with Michelle.

When people are eating Twinkies or cake or whatever and rubbing it in my face I usually allude to the fact that I don't need the extra fat and that I like to eat healthy. It's an awesome feeling, because most people don't have the willpower to eat like this AND to be honest most of them are overweight in the first place because of willpower issues.

I'm a size 4 and have lost weight since going gluten-free. I actually have some people at work trying to do the diet now b/c they have seen the changes in my body!! Guess my technique worked....

in any case I get the last laugh because I am healthier, regardless, and I look better:):)

Hope I don't come off as snotty..I only do this when people really rub it in my face.....repeatedly.

Share this post


Link to post
Share on other sites

Heather--

Can't believe you had someone say they wish they had celiac disease !! I have a pre-diabetic coworker who told me a few months ago "What you have is a lot easier than what I have. I have to work really hard, yours isn't such a big deal." Let's just say he proved his ignorance on the topic ! PS--He is like pre type-II, his doctor says he doesn't even need insulin yet...

Share this post


Link to post
Share on other sites
Guest gfinnebraska

I have had people come up to me and ask, "Are you still doing that wheat thing??"

UGH!!! "Thing"????? Sigh...

The public just doesn't get it...

Share this post


Link to post
Share on other sites

Yea someone asked me if I had went finished my "phase" of not eating gluten yet.

Share this post


Link to post
Share on other sites

I have been asked, "Why don't you just go get the shots so you can eat it?"

"I had a co-worker actually say to me that she wished she could get celiac disease for a little while just to slim down." HAH! <_< ! I didn't lose weight, neither did my sisters. We just kept getting fatter and fatter, even on 1500 cals a day! It is >not< a guaranteed weight loss plan!

Share this post


Link to post
Share on other sites
Plus, at nights I work in an italian restaraunt. Wow, is it ever good for training myself to resist temptation!!

Italian food is my favorite!! Now that is self control!! Good for you! I would'nt be able to resist!!! :blink:

Share this post


Link to post
Share on other sites
PS--He is like pre type-II, his doctor says he doesn't even need insulin yet...

:angry: What a jerk!! I have been "pre diabetic" / hypoglycemic for the last 8 years.....Or at least that is what 2 doctors told me...Hmmmm what do you want to bet it was Celiac.... B)

Share this post


Link to post
Share on other sites

Hi,

I've also had people say the "oh, maybe I should have celiac disease too, so I can lose weight", like someone else said, I point out that you could see my ribs (not to mention most of the rest of my skeleton too) and that I spent most of my time on the toilet, and that I was dx with arthritis in my early 20's, and anemia, and...

I don't get mad when people accidently/forgetfully offer me food. We all forget/can't know everyone's life story. But the things that irk me are the intentional or lack of compassion comments.

My Grandma, who I love dearly, told me that the reason I have celiac disease is because I became a vegetarian as a teenager. During that first post-dx visit she also baked tons of gluten baked goods for me and held them in front of me and told me to eat them. I tried to explain genetics to her, but it fell on deaf ears. Eventually my aunts and mom worked on her and she came around. The last time that I visited she made me crustless raspberry glace pies and she recently told me I need to start my own gluten-free bakery--I'm glad she changed because her first reaction really hurt.

I'm glad we have this safe place to vent here (it means I can be nicer to the gluten filled world).

Thanks, Have a Good Day!

Share this post


Link to post
Share on other sites
My Grandma, who I love dearly, told me that the reason I have celiac disease is because I became a vegetarian as a teenager

Share this post


Link to post
Share on other sites
Guest Lindam
:angry: What I really love is when we are having our quarterly luncheon at work and I ask what has been ordered, and the answer always is, "Does it matter? You can't have any anyway." That's nice, make me feel real wanted. So now I have stopped going to the luncheons/meetings. Maybe someone/someday will get the hint.

Share this post


Link to post
Share on other sites

Britt-

Yeah--wouldn't that be ironic if my coworker turned out to have celiac disease ! Why do the docs keep telling you you're pre type II ?

Share this post


Link to post
Share on other sites

I have an extended family member who tends not to consider the needs of others when he makes a decision. His decision to take us all to an Italian restaurant (which assured me they could feed me safely) wound up taking 8 months of my life and costing almost $20,000 in hospital and doctor bills. Needless to say, he gets glares from the entire family if he even mentions that place as an option now.

Share this post


Link to post
Share on other sites

Wow Donna--that is awful !! Its a good reminder that we should always make the decision we're comfortable with. Like if someone says "I made this for you...and its gluten-free...", and I don't feel comfortable, I shouldn't worry about making them feel bad, and say "No thank you" ! That's my philosophy anyway :)

Share this post


Link to post
Share on other sites
Guest Viola
Oh annnnnd does anyone know where I can find wheat free licorish?

Hi Britt, I just got back from town and will do a separate post on Licorice :P

Share this post


Link to post
Share on other sites
Guest Viola
:lol: I see someone else posted on licorice, so I just added to it. Mmmm these licorice bears are good, they are very much like tiny gummy bears with strong licorice flovour :rolleyes:

Share this post


Link to post
Share on other sites

Hi all,

I sure enjoyed your replies on this question! It helps me to remember that we are all really in the same boat. An Italian restaurant, eh? I just have to share again how I worked 2 jobs at the same time last year, one at a bakery, and one at an ice cream parlor, though I was intolerant of everything in both places. Going through a divorce at the time, I think it was my way of reaffirming just where I've come from and how far I've traveled, because I would never cheat on this wonderful gluten free diet. This diet has carried me to places of which I never dreamed, allowing me to be healthy, energetic, and full of joy. Thanks to everyone for sharing your stories! Welda Lou

Share this post


Link to post
Share on other sites

Speaking of things people shouldn't say. I experienced a great revenge situation. On Friday someone brought in a truckload of donuts and one of my coworkers said "HaHa, you can't have one." This is a coworker that I have never gotten along with. I then noticed his protruding gut and his wife who also works there was standing next to him. I lifted up the front of my shirt and displayed my emerging six pack abs and said "I can't have a donut but your gut doesn't look like this." His wife them elbowed him in the gut causing him to spit out a mouth full of jelly donut and said "That's the last donut you're ever eating buddy." :lol: He then spent the remainder of the day giving me dirty looks. Today he had to have a lunch of fruit and vegetables instead of his usual Twinkies, Pop Tarts and Coke. He spent all day giving me dirty looks and will probably do that for weeks. I have heard it said that living well is the best revenge and I think that may be true.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,910
    • Total Posts
      943,451
  • Member Statistics

    • Total Members
      67,046
    • Most Online
      3,093

    Newest Member
    Lesa Marie
    Joined
  • Popular Now

  • Topics

  • Posts

    • https://www.twinings.co.uk/hot-chocolate-coffee-other-drinks/hot-chocolate-and-malt-drinks/twinings-swiss-chocolate-drink Have discovered this drink - it's great, labelled gluten free and is also fortified.   I can't drink too much milk as I get bloated, but find it tastes really nice even made mostly with hot water and just a small amount of milk.  Thank you Twinings.
    • Ennis_TX, thank you for your response! I will take heed of all your nutritional pieces of advice, one by one. And yes, I am aware that a gluten marathon is on the horizon soon.   Before doing the test, however, I shall try to fortify my diet with the nutrients you mentioned, and report back in a week or two.   I think adding some iron supplement is wise too.    
    • Yeah I thought that rant might make me look like a queer after reading it a bit later.....I am straight btw I just have very long and fine hair...that yeah it blows everywhere and gets in my mouth sometimes, and always pushing it with my hands or having to tie it up.  I blew up because it sometimes feels like I am talking to a bunch jocks with buzz cuts when it comes to hair....like people that do not understand no matter what you do....it is going to end up in your mouth and you have to keep messing it and working with it when the stuff runs like 4-6" past your shoulders.
      >.< thing is some times with the way your hair is.....you do not rinse it all out...some conditioners I have used in the past used to b ones you would not rinse all the way out....it sort of does become a issue that is very easily avoided. There are many more options for gluten free shampoos now days and many companies have taken the allergy/gluten concern to heart and removed them/used alternatives to boost sales to a larger demographic. Point is while yes I did blow up about it...and honestly in many cases the "hydrolyzed wheat protein" thing is a hit and miss on if it really contained gluten, but better safe then sorry is my bet and with tons of options....why chance it?


       
    • B-vitamins...most gluten and processed foods are enriched...your basically eating a multivitamin every time you have a slice of bread etc. Look for a full spectrum B-vitamin supplement, others can be magnesium, iron, vitamin d, folate, etc. You mention plenty of greens and fruit so ruling out vitamin A,C,K, and a few others. Hmm did you drop off your carbs too much? If your carb dependent you need more complex carbs from like sweet potatoes, rice etc. And what about fat and protein? I am a keto dieter, my body burns fat instead of carbs for energy so I can say it is quite important to have plenty of fats and protein in your diet. Try snacking on nuts/seeds between meals or making up a protein shake with almond butter in it between meals (again going but what you said you eat vs what you might be missing)

      I use Liquid Health for my spectrum B vitamins and vitamin D. Might look into them, being in liquid form you can just add it to a beverage. Might see about magnesium also, huge issue with many with this disease.

      On other after thought, your probably already very aware of...but you mention your not "diagnosed yet" you will have to do a gluten challenge of eating gluten for a extended amount of time daily prior to getting tested. http://www.cureceliacdisease.org/screening/
    • Thanks guys! I have an endoscopy/colonoscopy  feb 5th, so we will see. I have had digestive issues for the past like 10 years. GERD, migraines, lactose intolerant, dizziness on and off starting last year. My test just always show chronic inflammation, I thought they tested for celiac last time but it was only H. pylori samples. As much as I don’t want to have celiac I’m hoping this could be the root of my problem! My doctor said I should probably go gluten free after the test regardless of the results. You guys have been so helpful!! 
  • Upcoming Events