• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
ninakacz

Itching Shins.. Dh?

Rate this topic

Recommended Posts

Hi everyone,

I'm pretty new to this whole thing, but just want to get this question out there.. it's driving me nuts! And doctors just think I'm crazy. I've been gluten free for about 6 months, and have had this terrible itch along my shins for a few years (since my symptoms of celiac started.) There is barely any kind of rash, only tiny little bumps when it's really bad. For some reason it gets way worse at night. Cortizone and anti-itch creams don't seem to do much. I have no idea if it's related to celiac but would love to know if anyone else has this strange condition! hellllp :)

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


How's your b-12?

Not sure.. should I be worried about that? I also have anemia, but I think that's gotten better with a gluten free diet.

Share this post


Link to post
Share on other sites

Both iron and b-12 anemia will cause this kind of itching. I had this terribly for YEARS. I lived near the ocean and people told me crazy stories about sea lice. :rolleyes: But I still had it when I moved inland. It didn't resolve until I got my iron and b-12 up. I don't think it's DH--at least mine wasn't. There wasn't any real rash, just an unbearable itching on my shins only.

Work on improving your anemia and maybe try a sublingual b-12. Maybe ask for your b-12 to be checked next time you are in the drs office. Lots of folks with celiac have low b-12.

Good luck!

Share this post


Link to post
Share on other sites

My son gets eczema on his calves. No rash until he itches it, then more like tiny broken little bumps. He was a big itcher in his sleep-not during the day. Dietary elimination of gluten made it go away. Now, after allergy testing pos. for beans(amoung many other things) and doing an elimination, then re-inroduction, we discovered that beans made it come back-he got very itchy right away. Original allergy testing showed wheat reaction so that's why we initially eliminated gluten.

Share this post


Link to post
Share on other sites
Ads by Google:


thank you so much for your responses- I'll definitely get tested for that. I never thought it could be another food other than gluten contamination but that's also something I could look into. I just want it to go away!!

Share this post


Link to post
Share on other sites

My shins (and sometimes my ankles) have itched for years! I have celiac and have been gluten free for the past 6-1/2 years, but the darned shins itch almost every evening. It's a mystery to me, too.

Share this post


Link to post
Share on other sites

Count me in! I scratch my shins till they start to bleed sometimes. Like others, it's much worse in the evenings. And, it happens every day--with some days worse than others. About 2 months ago I went for skin prick testing thinking I must have a true allergy to something. Turns out I have a lot of true allergies, but an elimination diet didn't cure the itching. Darn.

I'll up my B vitamins and see if that helps.

Jillian

Share this post


Link to post
Share on other sites

Hi - I have Dermatitis Herpetiformis too - mainly on my shins and back of my knees. It was horrible when I was eating gluten foods (before d/x) and is healing on a gluten-free diet but there's still some patches that will itch and have little bumps if I accidentally eat gluten or maltodextrin...

Some supplements that helped with the healing were zinc, selenium, vitamin E, vitamin C and lots of omega oils (I use YES Oils). For the itching, coal tar ointment helped but darkens the skin if used over a prolonged period. Also, watch out for lotions, shampoos, conditioners and body wash containing wheat germ oil or wheat protein. I use Dr. Bronner's castille soap now.

Jo

Share this post


Link to post
Share on other sites

I'm a celiac who experienced the same thing. Crazy itching on my shins, right next to the bone itself, that I simply couldn't stop scratching, but no real rash.

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,966
    • Total Posts
      943,698
  • Member Statistics

    • Total Members
      67,278
    • Most Online
      3,093

    Newest Member
    Grainge
    Joined
  • Popular Now

  • Topics

  • Posts

    • Me too. I still get transient lower back pain occasionally when my bladder or colon is full. It goes away immediately on voiding. Regardless of anything other diseases you may have, being wheat free gives you relief so even if not Celiac you are Non Celiac Wheat Sensitive. There are over 200 symptoms that are improved with GFD gluten free diet. Google it. It is an impressive list. In any case, while it is good to have a diagnosis, there is only one treatment, do not eat wheat and deal with the inevitable malnutrition damage.(think Biafra babies 1970.) Most will improve over time. Whatever doesn't improve should be investigated to be safe, but realize that recovery may take years. Wheat flour used should be limited to Paper Mache sculpture and library paste.  
    • Here is a partial list of what I no longer suffer from as a result of not eating wheat. Some like the sleep apnea and gerd and back pain and addiction to alcohol were almost immediate. The foot pain is improved to just numbness sometimes. My long term depression went away when I added vitamin D 10,000 iu a day for a year, but the improvement started almost immediately. Muscle tone and energy improved when I added iodine. one sheet sushi seaweed a day. My Fibromyalgia is controlled with 15 mg oral Prednisone a day. I remember as a kid waking up and having to pick the dried mucuos off the roof of my mouth. That is gone and for the first time in my life I am a nose breather. Drink lots of water to help with the mucous if it is thick. Some mornings mine is like rubber cement. I need to quit smoking now.  You can improve have faith, but healing takes time. Stay the course. A Romaine lettuce salad everyday helped the gut pain. Gerd shortness of breath sleep apnea back pain snoring prostrate hypertrophy contact lens protein buildup night vision improved cataracts reduced head hair growth foot pain sleeping no more than 2 hours at a stretch slow healing no energy. Pretty much bed ridden. 
    • Celiac Disease is damage to the nooks and crannies in our intestines leading to malnutrition, vitamin deficiencies with all the various symptoms that make it so hard to diagnose. Then you add years of the antacids, antibiotics, Tylenol, opioids, alcohol, etc., each with their own particular side effects and damage. Now you've got a toxic environment that kills off the beneficial bacteria increasing malnutrition. Theoretically you can eat anything except gluten. But wheat is so ubiquitous in our diet and economy there are unlimited opportunities for cross contamination. So read the label. Use common sense. If there isn't a label it doesn't have wheat so you can eat. Big Food likes to add wheat to everything because it is addictive and helps them ensure you can't eat just one. Why on earth else would Campbells Tomato Soup have wheat listed as an ingredient? Meantime your body is in distress from malnutrition so you need to be sure to replenish D3, and Iodine for starters and treat and support any other symptoms while you heal. Good nutrition without wheat is the only way to stop progression. And just like chewing paint chips made with lead is bad, so is food with wheat.   well said, doesn't need a label.
    • We use pure cherry juice with our snow cone machine. Makes for a nice dessert after dinner.
    • Hi Kurasz, How's it going?  Any change for the amazingly better?  Or slightly better?  
      If not, hang in there, and keep praying! :)
  • Upcoming Events