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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Itching Shins.. Dh?
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10 posts in this topic

Hi everyone,

I'm pretty new to this whole thing, but just want to get this question out there.. it's driving me nuts! And doctors just think I'm crazy. I've been gluten free for about 6 months, and have had this terrible itch along my shins for a few years (since my symptoms of celiac started.) There is barely any kind of rash, only tiny little bumps when it's really bad. For some reason it gets way worse at night. Cortizone and anti-itch creams don't seem to do much. I have no idea if it's related to celiac but would love to know if anyone else has this strange condition! hellllp :)

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How's your b-12?

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How's your b-12?

Not sure.. should I be worried about that? I also have anemia, but I think that's gotten better with a gluten free diet.

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Both iron and b-12 anemia will cause this kind of itching. I had this terribly for YEARS. I lived near the ocean and people told me crazy stories about sea lice. :rolleyes: But I still had it when I moved inland. It didn't resolve until I got my iron and b-12 up. I don't think it's DH--at least mine wasn't. There wasn't any real rash, just an unbearable itching on my shins only.

Work on improving your anemia and maybe try a sublingual b-12. Maybe ask for your b-12 to be checked next time you are in the drs office. Lots of folks with celiac have low b-12.

Good luck!

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My son gets eczema on his calves. No rash until he itches it, then more like tiny broken little bumps. He was a big itcher in his sleep-not during the day. Dietary elimination of gluten made it go away. Now, after allergy testing pos. for beans(amoung many other things) and doing an elimination, then re-inroduction, we discovered that beans made it come back-he got very itchy right away. Original allergy testing showed wheat reaction so that's why we initially eliminated gluten.

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thank you so much for your responses- I'll definitely get tested for that. I never thought it could be another food other than gluten contamination but that's also something I could look into. I just want it to go away!!

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My shins (and sometimes my ankles) have itched for years! I have celiac and have been gluten free for the past 6-1/2 years, but the darned shins itch almost every evening. It's a mystery to me, too.

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Count me in! I scratch my shins till they start to bleed sometimes. Like others, it's much worse in the evenings. And, it happens every day--with some days worse than others. About 2 months ago I went for skin prick testing thinking I must have a true allergy to something. Turns out I have a lot of true allergies, but an elimination diet didn't cure the itching. Darn.

I'll up my B vitamins and see if that helps.

Jillian

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Hi - I have Dermatitis Herpetiformis too - mainly on my shins and back of my knees. It was horrible when I was eating gluten foods (before d/x) and is healing on a gluten-free diet but there's still some patches that will itch and have little bumps if I accidentally eat gluten or maltodextrin...

Some supplements that helped with the healing were zinc, selenium, vitamin E, vitamin C and lots of omega oils (I use YES Oils). For the itching, coal tar ointment helped but darkens the skin if used over a prolonged period. Also, watch out for lotions, shampoos, conditioners and body wash containing wheat germ oil or wheat protein. I use Dr. Bronner's castille soap now.

Jo

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I'm a celiac who experienced the same thing. Crazy itching on my shins, right next to the bone itself, that I simply couldn't stop scratching, but no real rash.

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