• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Could I Have Dh
0

3 posts in this topic

I was diagnosed with Coeliac at the end of 2009 and I had the classic gastro-intestinal issues. I never had any issues with rashes.

But over the last few months I have developed an itchy rash on my scalp that flares and recedes but never entirely seems to go away. It's a bit like eczema. I get little bubbles of fluids that are really itchy and I end up scratching them until they burst and my scalp bleeds and then gets all scabby. I've had a bit on my elbows occasionally too but my scalp is the main location.

I figured it couldn't be DH because I never had a rash prior to diagnosis. So why would I get it know when I am strictly following a gluten free diet?

However, I haven't gotten better on a gluten free diet. I went and saw my specialist and he re-did the blood tests and gastroscopy. These showed that I still have active coeliac disease and that I'm not getting better like I should. He suspects I am still accidentally ingesting gluten so I am trying to track that down now. So I probably have been eating small amounts of gluten over the last six months or so.

So, do my symptoms sound like DH? And is it possible to develop DH after diagnosis if I've never had it before? Or is it something else?

I have tried changing hair products, etc but nothing seems to help.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hows the scalp now?

I wanted to say that I too had the itchy scalp for years and year, only at the base of the back of my neck but into the hair, not on the neck. Drove me crazy and once in a while it happens again, but I started using Horsehair shampoo, and it's gone. After years of itching. You can find it in the normal walgreens type store in the shampoo isle. good luck on this.

0

Share this post


Link to post
Share on other sites

But over the last few months I have developed an itchy rash on my scalp that flares and recedes but never entirely seems to go away. It's a bit like eczema. I get little bubbles of fluids that are really itchy and I end up scratching them until they burst and my scalp bleeds and then gets all scabby. I've had a bit on my elbows occasionally too but my scalp is the main location.

I have heard that DH can flare once you start a gluten-free diet...it did for me reaaaaaly bad. My breakouts worsened before they got better, I eventually went on dapsone to clear things up (note; NASTY drug). Make sure you're watching your iodine intake and stay away from NSAIDs for awhile. Don't eat out AT ALL for awhile. Don't just read labels, check web sites of everything you eat. No TV dinners, packaged foods, or take out for awhile. Check your medications, in the US they don't have to label them with allergens, so you may be ingesting some there. DH is nasty and can take time to go away. Good luck!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,362
    • Total Posts
      935,691
  • Member Statistics

    • Total Members
      65,039
    • Most Online
      3,093

    Newest Member
    Alii
    Joined
  • Popular Now

  • Topics

  • Posts

    • Sorry to hear about your no meat, Ennis. It sucks his celiac disease messes with people in different ways. Matt I was living on sweet potatoes but now they bloat me, which is odd. Avocado's would be to much fat, I think. I'm three weeks in today, and the past few days my C has improved. So that's some good news. I do know I need to stop worrying about the weight loss. So easy to Google and worry. If I could get back to lifting weights and reclaim my shoulders I'd be more calm and less stressed. For now I'll just have to get used to being lean. Anyone up for a symptom swap. My off on fatigue has shown up. I will swap for headaches brain fog. R Be well all
    • I hope you don't have to wait too long for the results. A false negative is always possible since we have a lot of intestine but it sounds like you have a good doctor who took lots of biopsies.  Since she had a high positive it would be a good idea for her to do the diet strictly for a few months no matter the results. I hope you get some clear answers and that she is feeling better soon.
    • I did not see anyone give ideas about milk-based gravies or sauces yet, but I found a great solution by trial and error because so many recipes I love call for "cream of mushroom" or "cream of chicken" soup. Just melt a little butter with diced onion and put in some rice flour with a bit of milk and heat until bubbly. Add more milk (or chicken/beef stock) a little at a time until you have the amount you need. Salt/pepper as desired. Green bean casserole is still possible! Yay! Crush up some potato chips or those gluten free french fried onions that Aldi sells and it's just like old times before gluten free days:) There's really nothing else to it but if you feel like you need to watch someone do it before you are confident enough to try it on your own, you can see our family's simple little recipe here. Nothing fancy, just some free encouragement...  
    • So my type 1 daughter had her biopsy today and the gi afterwards noticed some redness/inflammation (gastritis?) but also saw the villi.  I guess I was expecting that with her blood test result of her transglutinminase ttg iga of over 100 that she would definitely see some damage.  Her symptoms seem to be ramping up as well.  She took multiple biopsies in several locations and now we wait.  Do you think that there is a chance that with a very positive blood test result she could have a negative biopsy?  My daughter was saying that she would like the positive biopsy to know for sure and to make it easier to stick to being gluten free forever.    This is really hard waiting
    • Avocados are packed with good fats. Aldi and Lidl often have them on offer.  You may be able to tolerate sweet potatos if you're looking for a carb. They're better for you than potatoes, lower glycaemic index and more nutrients. Ask the pharmacy if they can order in the folic acid variant your after or order it online? All the best! Matt
  • Upcoming Events