• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Celiac And Seizures
0

4 posts in this topic

Recommended Posts

sugarsue    4

My 7 yr old dd has seizures that we believe are caused by gluten. She's been gluten free for over a year and has not had a seizure since.

I used to know within 10 minutes whether she had gluten (very bad BM's) but now things have changed and I can't tell any more. So I got a little lax on checking every ingredient. So she had a seizure this week. I have tracked back and I know where she got some good doses of gluten.

So of course I am getting the diet back under tight wraps. But this has me thinking. We don't have a celiac diagnosis but we do have a gluten intolerant diagnosis since the tests have been inconclusive. Does anyone know if seizures caused by gluten implies celiac? Or can non-celiac gluten intolerance cause seizures too. I think it is just splitting hairs since if gluten is causing her seizures, she can't eat any gluten.

Thanks.

Susan

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


mushroom    1,205

My 7 yr old dd has seizures that we believe are caused by gluten. She's been gluten free for over a year and has not had a seizure since.

I used to know within 10 minutes whether she had gluten (very bad BM's) but now things have changed and I can't tell any more. So I got a little lax on checking every ingredient. So she had a seizure this week. I have tracked back and I know where she got some good doses of gluten.

So of course I am getting the diet back under tight wraps. But this has me thinking. We don't have a celiac diagnosis but we do have a gluten intolerant diagnosis since the tests have been inconclusive. Does anyone know if seizures caused by gluten implies celiac? Or can non-celiac gluten intolerance cause seizures too. I think it is just splitting hairs since if gluten is causing her seizures, she can't eat any gluten.

Thanks.

Susan

The only experience I have with seizures is with my brother. He developed them late in life, and we come from a suspected total celiac family, although none of us has been tested. My sister and I are gluten free and my sister's daughter is diagnosed celiac. My brother was born with eczema all over his body, always had multiple issues including failure to thrive, digestive problems, and then the seizures wich were labelled petit mal but I don't think anyone ever did a thorough workup on him before he died (of seizure-related complications). I wish someone had thought to take him off gluten, because we were a mjaor gluten-eating family. But not much was known about celiac then. I don't know if I am celiac or gluten intolerant - I just don't eat gluten, period. As you say, it really doesn't make much difference, but there is a definite hereditary pattern in our family on both my mother's and father's side.

Share this post


Link to post
Share on other sites
Skylark    935

That's wonderful that you figured out the cause of your daughter's seizures!

As you realize, the phrases we use to describe gluten intolerance are not as well-defined as one would like. There can be autoimmune reactions in the nervous system that are initiated by gluten and stop when gluten is removed from the diet, just like intestinal celiac sprue. They seem to involve a different transglutaminase enzyme and possibly are more associated with HLA-DQ1 gene subtypes. Some of the people with nervous system autoimmunity do not have the intestinal antibodies doctors look for when they diagnose celiac disease, and they may not have any GI symptoms from eating wheat. Strictly your daughter would not be "celiac" but in ten or twenty years the semantics may totally change.

Share this post


Link to post
Share on other sites
sugarsue    4

Thank you both for your responses. I have seen a few other things that could possibly have been a seizure since that day but nothing like the first one I saw last week. Hopefully tightening her diet back up will take care of it. I have noticed her tummy hurting 1-2 days after a glutening. I think I just need to learn her new signs and of course start to be more careful again.

Susan

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,917
    • Total Posts
      938,669
  • Member Statistics

    • Total Members
      65,841
    • Most Online
      3,093

    Newest Member
    Jon baker
    Joined
  • Popular Now

  • Topics

  • Posts

    • It doesn't change DH, but it always makes me smile thinking someone means Dear Husband instead of the rash.
    • It's done this since I started on here, many years ago.  Kind of funny when people type g f meaning girlfriend...... 😄
    • First were you tested for celiac? IS this rash DH? In case of a DH rash they have to take a biopsy from a clear spot next to one of the lesions. Those with DH sometimes do not show up on other celiac test,

      Other thoughts what about your shampoo? Body wash? Did you have any recent work done in the house with plaster or drywall? Is this a allergic reactions or directly linked to celiac? Your concerns about diabetic friendly gluten-free options confuse me. I am ketogenic gluten free. Meaning I do not eat carbs, or sugar. It is quite easy, while many gluten free processed foods do are really high in starches, there are plenty that are low carb and diabetic friendly. Miracle Noodles makes, noodles, rice, pasta, ready to eat meals all gluten free and low-zero carb. Julian Bakery makes a low carb, gluten free bread. Califlour makes low carb pizza crust, and I know of several companies other then my bakery that makes low carb ketogenic muffins, cookies, and cakes that are diabetic safe.
    • There seems to be a new auto word change that changes all instances of  "gluten-free" to gluten-free in case it does it to this post G F without a space gets changed to gluten-free. I was trying to reference a brand name and it kept on changing it to this and messing me up and drove my OCD mad. If your here and do not know what G F means then you probably do not belong here.
    • ....OK ADMIN just delete this one just another slap in the face article. " After demand from the neighborhood, they will soon add gluten-free options, though these crepes will be prepared on the same griddle, so they're intended for those with mild celiac disease or those who just prefer to eat gluten-free. " 

      Sorry Numskull but "mild celiac" FFS there is no such thing, bloody residue smaller then crumbs and you get months of heighten antibodies an damage. This is very misleading and can lead to people newly diagnosed hurting themselves. NOW if you have no problem with gluten free oats, you can make a crepe like batter very easy, it is a bit fluffier like a hybrid between pancakes and crepes but try this one.
      I used to use gluten-free Harvest oat flour to make these but as I have adverse reactions to any kind of oats I gave this up. 50g Oat Flour
      1/4 tsp Salt
      1/2 tsp Cinnamon
      1 tbsp Maple syrup
      1/2 cup water
      2 tbsp applesauce
      Mix all ingredients togehter then let sit for 10mins for the it to thicken up before pouring in the pan. I used to cook them like pancakes but can be used for crepes due to the texture.
  • Upcoming Events