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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Peeing Like Crazy During The Night
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I've read some of the other threads about needing to pee a lot during the night. I've always had this problem, too. However, in the last few nights, I've been peeing excessively. I have a bed pot (so I don't have to walk to the bathroom) and last night I peed 1 1/2 quarts (6 cups). A few nights ago, I peed nearly 2 quarts (8 cups). The weird thing is I just returned home after a trip abroad to Iceland, Finland and Estonia. There, I encountered few problems and slept well most of the nights. But now that I'm back, I'm just constantly waking up and having to pee a lot.

I haven't been drinking excessive amounts of liquids (in fact, I probably don't drink enough liquid), so this is really puzzling. I've been on the gluten-free diet for 2 1/2 months, but this issue has never gotten to this extent until now. Also, I'm having a lot of breast pain (and it's not right before my period) in the last week. Each day it seems to get worse. I have no idea what's going on with me right now.

Fortunately, I will see a GI on Tuesday and maybe she will have some ideas. I welcome anyone's imput on this.

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Did you have a fun trip?

Maybe you eat more salt/sodium at home. Could be retaining water and then during the night "unretaining" . Might explain breast pain, too. Right at the beginning of pregnancy you tend to pee a lot and have breast pain. Maybe you had too much fun on your trip. :P

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Did you have a fun trip?

Maybe you eat more salt/sodium at home. Could be retaining water and then during the night "unretaining" . Might explain breast pain, too. Right at the beginning of pregnancy you tend to pee a lot and have breast pain. Maybe you had too much fun on your trip. :P

I had a great time on my trip. There is no way that I'm pregnant (I've not been dating anyone for nearly 2 years) so I can rule that out. Also, I've been tested for diabetes several times and all the tests have come back negative.

I did notice when I got back I had gained about 3-4 pounds. But now I seem to be losing some of that weight (1-2 pounds lost) since returning. I do think that there is probably a lot of excess fluid in my breasts right now. They seem larger than usual.

This is all so strange...

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I did notice when I got back I had gained about 3-4 pounds. But now I seem to be losing some of that weight (1-2 pounds lost) since returning. I do think that there is probably a lot of excess fluid in my breasts right now. They seem larger than usual.

This is all so strange...

Sounds like fluid retention. Bigger boobs wouldn't be bad if they didn't hurt. Maybe a hormone issue, too? They can get off kilter at any age.

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I am just reading your post tonight and wondering if the GI doctor had anything good to say? How upsetting! It sounds like fluid retention but then at night its almost like you're taking a diuretic! Strange?!

Well, I hope you found an answer. Do tell!

:)

I welcome anyone's imput on this.

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the GI thinks that it's fluid retention from my recent trip overseas. I'm not peeing so much now at night. However, I do wake up several times still :(

I'm seeing another doc today about the sore breasts.

The GI I saw thinks that my Celiac is mild and that many of my symptoms (fatigue, insomnia, restless legs, acid reflux, yeast infections, sinus pressure, depression ,anxiety, bruising, frequent nose bleeds, etc) are not related to my Celiac and may not go away. I don't necessarly agree with her about this. I mean, some of these things probably won't go away, but I'm sure that some must be related to my Celiac!

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Honestly, what you write is a lot of classic pregnancy symptoms. Assuming you know you can't be pregnant, I would consider seeing an endocrinologist, to check on what the hormones are doing.

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I've read some of the other threads about needing to pee a lot during the night. I've always had this problem, too. However, in the last few nights, I've been peeing excessively. I have a bed pot (so I don't have to walk to the bathroom) and last night I peed 1 1/2 quarts (6 cups). A few nights ago, I peed nearly 2 quarts (8 cups). The weird thing is I just returned home after a trip abroad to Iceland, Finland and Estonia. There, I encountered few problems and slept well most of the nights. But now that I'm back, I'm just constantly waking up and having to pee a lot.

I haven't been drinking excessive amounts of liquids (in fact, I probably don't drink enough liquid), so this is really puzzling. I've been on the gluten-free diet for 2 1/2 months, but this issue has never gotten to this extent until now. Also, I'm having a lot of breast pain (and it's not right before my period) in the last week. Each day it seems to get worse. I have no idea what's going on with me right now.

Fortunately, I will see a GI on Tuesday and maybe she will have some ideas. I welcome anyone's imput on this.

Excessive urination can be a symptom of diabetes.

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I just got blood tested for diabetes today. I've had several diabetes tests in the past, all have come out negative. Fortunately, I've been peeing much less at night now. But the sore breasts aren't going away. I've also been scheduled to do a follow up sonogram (I had one back in April for the same reason). Some fibroids were found in my left breast but the doctors assured me that they were harmless.

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I just got blood tested for diabetes today. I've had several diabetes tests in the past, all have come out negative. Fortunately, I've been peeing much less at night now. But the sore breasts aren't going away. I've also been scheduled to do a follow up sonogram (I had one back in April for the same reason). Some fibroids were found in my left breast but the doctors assured me that they were harmless.

Hey! Get the doc to explain why they think they are "fibroids" and nothing more serious. If the explanation isn't complete, keep asking or take the x-rays for a second opinion. I'm a little older (ok a lot) than you but I know many women and a man who's concerns were pushed aside the first time and should not have been. I don't want to scare you needlessly, but I want you to be treated if needed. Keep me informed.

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I just got blood tested for diabetes today. I've had several diabetes tests in the past, all have come out negative. Fortunately, I've been peeing much less at night now. But the sore breasts aren't going away. I've also been scheduled to do a follow up sonogram (I had one back in April for the same reason). Some fibroids were found in my left breast but the doctors assured me that they were harmless.

FYI to anyone reading this:

It's better to know your numbers and not just accept "negative". Diabetes/blood sugar issues are a spectrum. Know where you fall on that spectrum. A fasting blood sugar is not a good indication of overall blood sugar. My fasting BG can be within the normal range and it was on testing day. I was DX by the OGTT, and my BG went up so high so fast I was shaking uncontrollably the first half hour. If the doc. had gone by fasting blood sugar only, I would have gone undiagnosed. Any one-time blood sugar check is not a good measure. An A1C-a measure of average blood sugar is better.

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Well, yesterday I got a call and was told that I have a urinary tract infection. I said that I didn't notice a lot of pain when passing urine, but they said that wasn't always a symptom. i've also had a hard time emptying completely, which is another symptom of a UTI. Anyhow, I'm on medication now and the peeing has gotten much better under control.

I was spotting a little today and had slight cramps, so I may just be starting my period early this month. My last one started July 3, so it's only been 20 days since the last one started. But I know that some women have menstrual irregularities as a symptom of Celiac? Most of my periods are very evenly spaced out, but occasionally they come really early or late.

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