• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Annoying Mouth Problems
0

16 posts in this topic

Hey Everyone!

I am having annoying problems with mouth sores...what I would call a canker sore or an ulcer. I know this can be associated with Celiac disease (which I have)... To my point--- I am just curious to find out if you all get sores in different places in your mouths or do they tend to happen in just one part of your mouth, i.e., inside of lips, cheeks, or tongue. Mine always tend to be on the sides on tongue and I am wondering if this is weird or not?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hey Everyone!

I am having annoying problems with mouth sores...what I would call a canker sore or an ulcer. I know this can be associated with Celiac disease (which I have)... To my point--- I am just curious to find out if you all get sores in different places in your mouths or do they tend to happen in just one part of your mouth, i.e., inside of lips, cheeks, or tongue. Mine always tend to be on the sides on tongue and I am wondering if this is weird or not?

I don't get them as often now but would mostly get them on my tongue and around the sides of my tongue which as you know made it very painful to eat. Before my celiac diagnosis I got them all the time, now just once in awhile. Very acidic stuff like Franks hot sauce, pineapples, limes ect will sometimes cause them for me as well.

0

Share this post


Link to post
Share on other sites

Hey Everyone!

I am having annoying problems with mouth sores...what I would call a canker sore or an ulcer. I know this can be associated with Celiac disease (which I have)... To my point--- I am just curious to find out if you all get sores in different places in your mouths or do they tend to happen in just one part of your mouth, i.e., inside of lips, cheeks, or tongue. Mine always tend to be on the sides on tongue and I am wondering if this is weird or not?

Nope...not weird at all! I got them on the sides of my mouth and on the sides of my tongue also. My dentist actually freaked out and thought I had mouth cancer because one of them would not heal. That was right before I was diagnosed and when I went gluten-free, all sores disappeared, never to return. The dentist, along with myself, got quite an education and I told her not to assume that a mouth sore=cancer and scare the crap out of people. Now, when she see's other patients with the problems I had, she talks to them about Celiac Disease first.

0

Share this post


Link to post
Share on other sites

Hey Everyone!

I am having annoying problems with mouth sores...what I would call a canker sore or an ulcer. I know this can be associated with Celiac disease (which I have)... To my point--- I am just curious to find out if you all get sores in different places in your mouths or do they tend to happen in just one part of your mouth, i.e., inside of lips, cheeks, or tongue. Mine always tend to be on the sides on tongue and I am wondering if this is weird or not?

I used to get them at least once a month but haven't had any since I have been gluten free...so 20 years.

0

Share this post


Link to post
Share on other sites

I used to get them often--mostly on the inside of my cheeks. Now, if I get into cross contamination, they reoccur.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I got them most often on the inside of my lower lip, or the inside of my cheeks where my teeth can catch. They went away after I was gluten-free for a while. It's so weird to bite the inside of my mouth and have it heal normally! If I eat gluten I'll often get one again.

0

Share this post


Link to post
Share on other sites

Thanks for all the comments everyone! I was under the impression most people got them on the inside of their lower lip. I am glad to hear I'm not the only one with tongue problems. I used to get them more often than I do now, but I have a huge one on the side of my tongue now and it's really bothering me. I get them whenever I bite myself as well and sometimes it seems like they pop up for no reason, those are always on the sides of my tongue. Not fun.

0

Share this post


Link to post
Share on other sites

Mine are always on the sides of the tongue, right where my tongue bumps up against my molars. They're pretty much gone after 7 months gluten-free but flare up a bit if I'm CCed.

0

Share this post


Link to post
Share on other sites

I've gotten them regularly since I was five. All over my tongue, my cheeks, inside my lips and sometimes down my throat. Very painful. I would miss school because of it.

I found that eliminating caffeine and artificial sweeteners reduced my outbreaks but I still get them fairly often- about once or twice a month. Right now my cheeks are a mess and I have a couple on the back of my tongue. My husband thinks I'm addicted to Chloraseptic (is that gluten free? I should check.)

0

Share this post


Link to post
Share on other sites

Get your dentist to give you liquid dexamethasone. It works wonders! If I swab it a few times a day, mine will generally be gone in 1-2 days.

0

Share this post


Link to post
Share on other sites

yep, I get them too, along the side of my tongue...soooo painful. Got one now after getting cc'd...argh not fun. Thought it was weird but clearly its not. Thanks for helping me feel a little more normal :)

0

Share this post


Link to post
Share on other sites

Mine seemed to pop up pretty much anywhere, sides of my tongue, side of my mouth where there is a crease and behind my lips or on my gums over my teeth.

My ulcers always seemed to come in clusters, but I never gave it much thought as the doctors and dentists were never interested. Hadn't had one for quite a while - but after my first month of being gluten free I ate some gluten crackers this week - and voila I now have 2 beauties behind my lower lip!!

0

Share this post


Link to post
Share on other sites

My daughter has a major canker sore problem. Her physician finally sent her to Mayo Clinic for evaluation. They diagnosed her as having an iron absorbtion problem. As long as she can keep her iron levels up (difficult to do) she is free of canker sores. But I wonder if she actually has a gluten problem which is interferring with her iron absorbtion.

0

Share this post


Link to post
Share on other sites

I have had a lifelong problem with mouth sores. I even get them on my throat and soft palate. Last year, I read an article stating that over 90% of sufferers no longer had mouth sores after taking 1000mcg B12 sublingually. I started taking it and rarely ever have a mouth sore now.

I think mine were/are related to B12 deficiency most likely celiac related. I have had other neuro symptoms that have improved as well.

0

Share this post


Link to post
Share on other sites

I had really bad mouth sores before going wheat-free. I'd have 5-7 at a time, usually on the roof of my mouth, or on the same side of my tongue. When it got really bad, I'd even find a painful few in my nostrils, and even more painful ones, well, on (okay inside) my butt (hole). D:

Two days after going wheat free, I stopped getting new sores, and within a week all the sores healed completely.

I think its pretty common to get sores in the same area. Not sure why. I'd suggest tea tree oil or salt water to treat them ^^

0

Share this post


Link to post
Share on other sites

My 11 year old son gets these mouth sores an awful lot, and I just put him on the Celiac diet last week...suspecting he got his Mom/Grandpa's genetics, and has it too. I chose to not "get him officially tested", as false negatives are just too frequent, and why put the kid through anything potentially traumatic and unnecessary?!

My little man has a severe heart defect and has had 2 open heart surgeries. He continues to struggle with heart problems and has to go through a sedated cardiac MRI this Thursday at Stanford hospital in Palo Alto, CA, to plan the timing of his next surgery to replace a cow valve that was placed in 2006 and is now non-functioning. So you see why putting him through even a simple blood draw and/or an upper GI test is not high on my list of things to do!

Anyway, I had no idea that his canker sores were Celiac related. This is just another symptom that makes me feel more comfortable in my decision to just put him on the diet, without any official testing. So another thank you is in order here. Thanks! :0)

He is doing great btw, and I even managed to get my ex-husband (we share 50/50 custody of our kids) on board with the diet for him. He went out yesterday and bought him some gluten-free food at the local grocery store that has an awesome health food/gluten-free section. I am supplying Dad with homemade bread to give to him, since I bake it 4 loaves at a time anyway and it's my son's favorite. His D and bad gas is slowly going away, and he feels like a million bucks! Yay!

Again I'll say it, gluten is terrible stuff! (At least for many members of my family!)

Hey Everyone!

I am having annoying problems with mouth sores...what I would call a canker sore or an ulcer. I know this can be associated with Celiac disease (which I have)... To my point--- I am just curious to find out if you all get sores in different places in your mouths or do they tend to happen in just one part of your mouth, i.e., inside of lips, cheeks, or tongue. Mine always tend to be on the sides on tongue and I am wondering if this is weird or not?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,396
    • Total Posts
      930,324
  • Member Statistics

    • Total Members
      63,814
    • Most Online
      3,093

    Newest Member
    MH0730
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thanks to both of you for your replies. I wasn't so much concerned about the arsenic (although that is an additional consideration) as I was about the glycemic level. I don't bake enough to make blending my own flour blends worthwhile, so I will definitely check out the links you provided, Ennis_TX. So far I'm tolerating oats and my gastro doc says I can keep eating them as long as they're certified GT. I just looked at some crackers I have for hummus and noticed their main ingredient is rice. I should probably just eat the hummus with veggies!
    • I agree with Ennis.  It sounds like she is getting access to gluten way too often to expect healing.   I had some pretty severe patches of intestinal damage when I was diagnosed.  Anemia was my symptom and I had no gut issues then.  So, just because she injests gluten and does not have some major symptoms right away, does not mean she is not building up antibodies.  Have those antibodies been re-tested to see if they are in the normal ranges now?  Missing patches of damage in the small intestine is possible.  Heck, the small intestine is the size of a tennis court (goggle it).  So easy to miss.  Also, your GI should have taken more than four samples?  How many were taken? (Forgive me, if I have forgotten.) Cross contamination in your house is real, especially if you have kids in the house.  Member Jebby, a preemie doctor who has celiac disease, was not getting well.  Turns out her four small and adorable children were glutening her.  She made her house gluten free.  Just something to consider.   You mentioned she had access to gluten at a party.  So, does that mean she caves in and eats it?  She needs to become a stakeholder in this diet.  
    • I think that if you soaked in the paddle in vinegar and scrubbed it a few times, you will be fine.  But if in doubt, just set the mixer aside for a while until your family's health has improved.  In the meantime, use your arm to mix dough!  My grandma never had a mixer!   I bought a bunch of new stuff because I had been married for 25 years when diagnosed.  It was time for new things!   Everyone is different in their response to gluten.  Science has given us a good estimate, but we know that nothing is "one size fits all".  You just have to figure out what is best for you and your family.   My anemia resolved within months of being gluten free (ferritin levels).  I still have Thalassemia, but it is mild and my body has adapted.  It is most likely the one reason that I never made the Olympic team!  😆 BTW, family and friends are not allowed to bring in gluten into our house with the exception of beer.  They can contribute to a potluck by bringing beverages, uncut fruit and veggies, new condiments, tableware, and ice cream ......etc.
    • Thank you so much. It's so nice to have such friendly and helpful people to talk to while I await my answers.  I had an interesting experience yesterday... I ate a bowl of Kraft mac n cheese... then passed out for 4 hours and woke up vomiting. I've had a lot of experiences like that after eating over the past 2 years, but I never put those pieces together because celiac disease was totally off my radar. Just found it very interesting.  I've been pushing down lots of gluten-y foods just to make sure my tests will come out right. So tired of waiting! Really, if this isn't the answer to my 40 lb mysterious weight loss, fatigue, and painful gas/bloating... then what's left? Cancer doesn't seem likely in a 33 year old, but I am really scared.  Thanks for helping me through this. Anyone who stumbles accross this place is lucky to find such supportive and kind, helpful people!
    • Hello and welcome I don't have an answer, like you I'm eating rice in processed foods as well as a side dish so I'm also wondering if I'm eating too much. If the rice is in a product like flour there's no way to tell how its prepared etc However for this: You can pre soak and rinse the rice in advance and change the way you cook it to reduce your exposure by up to 80% Details: http://www.bbc.co.uk/programmes/articles/2F1MDzyW55pg97Tdpp7gqLN/should-i-be-concerned-about-arsenic-in-my-rice    
  • Upcoming Events