Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

What Exactly Does This Mean?


dhiltonlittle

Recommended Posts

dhiltonlittle Contributor

"mild chronic duodenitis with focal scalloping, shortening and blunting of villi without intraepithelial lymphocytosis; inconclusive for a definite diagnosis of celiac disease. follow up and clinical correlation with serologic findings/antibody testing suggested."

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

It means that you have some inflammation of the duodenum of longstanding, and that your have some damage to your villi in the small intestine with no white blood cells present. Based on these findings the doctor is not prepared to make a diagnosis of celiac and recommends that the findings be followed up with celiac blood testing.

Link to comment
Share on other sites
dhiltonlittle Contributor

It means that you have some inflammation of the duodenum of longstanding, and that your have some damage to your villi in the small intestine with no white blood cells present. Based on these findings the doctor is not prepared to make a diagnosis of celiac and recommends that the findings be followed up with celiac blood testing.

thanks, that makes a lot more sense!

i do have elevated antigliadin antibodies (39 with cut off <11). all other blood test were in normal range. also, am hypothyroid. what other things can cause damage to the small intestine like this that i should look into? i went to the celiac center at columbia who are also running some test but i don't go back for another 6 weeks or so....

Link to comment
Share on other sites
Simona19 Collaborator

It means that you have some inflammation of the duodenum of longstanding, and that your have some damage to your villi in the small intestine with no white blood cells present. Based on these findings the doctor is not prepared to make a diagnosis of celiac and recommends that the findings be followed up with celiac blood testing.

Hi! I'm very surpriced that you knew what the doctor was writing about. Can you help me with this? What it mean?

Duodenum, biopsy: Small bowel mucosa with focal epithelial infiltration by lymphocytes (>40 lymphocytes/100 enterocytes). The villous architecture is preserved. No crypt hyperplasia identified. The findings are nonspecific and are associated with early celiac disease (MarshI). Correlation with clinical findings and serology suggested.

Link to comment
Share on other sites
ravenwoodglass Mentor

thanks, that makes a lot more sense!

i do have elevated antigliadin antibodies (39 with cut off <11). all other blood test were in normal range. also, am hypothyroid. what other things can cause damage to the small intestine like this that i should look into? i went to the celiac center at columbia who are also running some test but i don't go back for another 6 weeks or so....

Those biopsy finding combined with a postive blood test mean you are likely celiac. Have you started the diet yet? Since you are done with blood work and biopsy a dietary trial is your next step and should take care of the issues you are having. You don't need to wait for the doctors appointment to get started.

Link to comment
Share on other sites
dhiltonlittle Contributor

Those biopsy finding combined with a postive blood test mean you are likely celiac. Have you started the diet yet? Since you are done with blood work and biopsy a dietary trial is your next step and should take care of the issues you are having. You don't need to wait for the doctors appointment to get started.

yeah i've been gluten free for about 4 months now and have seen a lot of improvement since. not sure if it's the diet, time passing/healing, or the thyroid meds but i have seen some improvement over the last few months. the positive blood test that i had they said is very non specific and could be elevated for other reasons. me and my current doctor seem to be at a stand still with it which is why i went to columbia to get their input. curious what they have to say after looking over all of my old results and the tests that they are running as well.

Link to comment
Share on other sites
Simona19 Collaborator

My tests are also confusing, but I'm staying on the gluten free diet. Everybody here gave me a very good advice, and I'm feeling much better. :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,056
    • Most Online (within 30 mins)
      7,748

    paulaglover
    Newest Member
    paulaglover
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Moodiefoodie
      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
    • Spacepanther
      thank you knitty kitty I don't have a vitamin deficiency and I supplement omegas.  Are there other more mild symptoms that co-occur with your joint pain as well @Moodiefoodie? I am suspicious my own joint pain could be related to another autoimmune issue. I am wondering if it is Crohn's or something similar because I've continued to experience some issues despite having normal celiac antibody levels. What have you considered?
    • Scott Adams
      Here are some more publications on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fertility-pregnancy-miscarriage-and-celiac-disease/ 
×
×
  • Create New...