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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

"But You Can Eat Whole Wheat, Right?"
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cassP    175

I liked when I went into starbucks right by me and explained that I couldn't have gluten, and I wanted a carmel apple cider. Could they help me look at the ingredients and determine if it was safe? She picks up the bottle of carmel sauce and reads off the ingredients, and pauses after "natural and artificial flavors." "Well, natural flavors are at least ok!" she offers brightly. "Wheat is very natural." I respond back just as brightly (and slightly sarcasticly). I settled for a cup of tea.

im new to the 100% gluten free... question- do we ALWAYS have to avoid "natural flavors" & "artificial flavors" ?? it's EVERYWHERE :( still confused on that one.

and.. LOVE David Sedaris :D

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ravenwoodglass    1,214

im new to the 100% gluten free... question- do we ALWAYS have to avoid "natural flavors" & "artificial flavors" ?? it's EVERYWHERE :( still confused on that one.

and.. LOVE David Sedaris :D

Artifical flavors are not ususally a concern. I always check with natural flavors to be on the safe side.

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butterfl8    9

Turns out the syrups (at that time) at Starbucks were ok. But now thier frappaccinos are no longer safe. At least the regular ones, not sure about the light, but the risk of CC there? Scary! I ban them now on principle.

Shelly Case's book, Gluten Free Diet, is an amazing resource for questions on ingredients, grains, nutrition, and quite frankly, sanity. My support group was lucky enough to have her come in and speak to us, which happened to be when I was about 4 months post diagnoses. After that, I felt like I could handle this. (she's on facebook too)

And yes, David Sedaris is GREAT!!! :P

I LOVE this thread!

-Daisy

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psawyer    687

While "natural flavors" can contain gluten, they very rarely actually do. The most likely source would be barley malt, and that is a relatively expensive ingredient, so it is usually explicitly declared as "malt flavor."

If there were wheat in it, in the US it would be required by law to be disclosed as just that, "wheat."

Shelly Case on flavorings:

It would be rare to find a "natural or artificial flavoring" containing gluten (a) because hydrolyzed wheat protein cannot be hidden under the term "flavor." and (B) barley malt extract is almost always declared as "barley malt extract" or "barley malt flavoring." For this reason, most experts do not restrict natural and artificial flavorings in the gluten-free diet.

Gluten-Free Diet - A Comprehensive Resource Guide, published 2008, page 46

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cassP    175

thanku everyone for the info!

daisy- i called Starbucks recently- the LIGHT frapps have Gluten in the ingredients.... the REG frapps do not- BUT she said: "made in a facility that also processes wheat"-

i got a green tea frap yesterday... but cant always digest milk... was not a good idea :(

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thanku everyone for the info!

daisy- i called Starbucks recently- the LIGHT frapps have Gluten in the ingredients.... the REG frapps do not- BUT she said: "made in a facility that also processes wheat"-

i got a green tea frap yesterday... but cant always digest milk... was not a good idea :(

Even if the regular frapps were processed in a gluten free facility I would recommend avoiding them. I used to work at a coffee house and we did not wash the blenders thoroughly in between customers. We just rinsed them well and went on to the next drink. So if the person before you got a LIGHT Frapp and you got regular, there could be residue from the light frapp still in the blender blades or any scratches in the plastic blender base.

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Aphreal    26

These are great LOL.

The one that upset me the most was when we were at Football. I bring my own food. Usually tuna or watermelon, my trusty rice crisps.... Ok so the coaches wife looks at me and says.."Everytime I see you, your eating something!" It really hurt my feelings. What I typically do is feed the family then bring my own fruit and crackers to the practice. What is funny is she is twice my size and she is talking to ME about overeating? I asked her if she actually paid attention to what I am eating which is all healthy stuff.

Others...

I asked about gluten in something and after much reading, I was told yes, it had gluten because it had 'corn syrup' in it.

Went to marble slab and asked if the SF yogurt had gluten or gluten containing fillers. "No mam, it's sugar free." I said..."sugar is not wheat" and he responded..."oh well umm, whats that?"

Ok never mind lol. And Marble slab is supposed to hae a gluten-free list. Even the manager had no clue what I was talking about.

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I just read the above post about eggs not being dairy too and was asking myself this same question! I won't think of eggs as dairy anymore though, now that I have a visual of a big cow laying an egg.... It's funny. I don't even know why I thought eggs were dairy. :blink: At least I know that wheat is wheat, and bread is made of wheat!

I'm going to go ahead and blame it on the vegans, (don't eat dairy, eggs, wear wool...) and really, who eats eggs without some dairy in them... the two belong together...

I was vegan for a VERY brief while and was often asked if I could wear cotton. My responses generally involved a lot of blink and a slow smile while I waited for them to figure it out...and often they didn't. :blink:

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mushroom    1,205

I think this is the reason people roll their eyes :rolleyes: , when other people have carried things to ignorant extremes and screwed up the pitch for the rest of us who do, perhaps, know what we are talking about. To not wear wool when it is shorn from a sheep which does not hurt it at all (and which incidentally needs to get rid of all that wool), or for people to think that we shouldn't pick the cotton.... it just doesn't even bear thinking about. But I do like the cows laying eggs analogy :lol: . Now if you really want to be an ovolactovegetarian, go ahead, but let's keep things straight; you can even be a pescatarian if that's what floats your boat, but does a pescatarian wear wool??? :blink: I can see not wearing fish scales or chicken feathers - but do you have to rest your head on a polyester pillow?

Sorry, it is late at night and the brain tends to run away a little...... Hope I have not offended anyone with these ramblings. Not intended.

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I was wondering about a store sample once. It was yogurt on which they put granola. The yogurt was gluten-free, but the granola wasn't. The guy said that it couldn't contain gluten because it was organic. Then I pointed out the wheat on the label. Then he told me that the gluten wouldn't harm me because it hadn't developed. Why would someone say something like that? What if I had listened to him and ate it anyway?

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i-geek    56

I was wondering about a store sample once. It was yogurt on which they put granola. The yogurt was gluten-free, but the granola wasn't. The guy said that it couldn't contain gluten because it was organic. Then I pointed out the wheat on the label. Then he told me that the gluten wouldn't harm me because it hadn't developed. Why would someone say something like that? What if I had listened to him and ate it anyway?

In my experience, the people handing out samples usually don't have a clue what they're handing out beyond the name of the product, a couple of descriptions of the taste, and basic prep instructions. Likely that guy had never heard of gluten before you brought it up and probably assumed it was an artificial additive. I'm betting his manager would have been just as clueless. *sigh* Why are such ignorant people allowed to control our food supply?

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sandiz    8

I have a couple of ones that make the eyes roll every time.

My co workers and hubby's co workers, "that must be awful, I couldn't live without bread." or "must be hard to find something to eat"

Family members, "once you are better you can eat bread again right?"

Gets tiring telling people what I eat. Rice, potato, veg, steak, prawns, chicken etc. They are amazed that it is gluten free.

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notme!    287

These are great LOL.

The one that upset me the most was when we were at Football. I bring my own food. Usually tuna or watermelon, my trusty rice crisps.... Ok so the coaches wife looks at me and says.."Everytime I see you, your eating something!"

some people are so insensitive! after years spent not eating ever, I think I would say, 'thank you. and how are you doing on YOUR diet?' and look very concerned :) probly hard to do with a straight face :D

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ravenwoodglass    1,214

some people are so insensitive! after years spent not eating ever, I think I would say, 'thank you. and how are you doing on YOUR diet?' and look very concerned :) probly hard to do with a straight face :D

After the description of the aforementioned person I think that is a perfect response. :D

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I went to IHOP with a friend who is supposed to be on a gluten-free/cf diet for her daughter, who has mild Autism and is still nursing. On the way there we were talking about the evils of wheat and I showed her the DH breakout I was having on my arm on the way to our table. The waitress saw it and said OMG what's wrong? I told her it was an allergic reaction to wheat. "Well I guess you shouldn't eat the whole wheat pancakes!"

Then the kicker! My friend asks the waitress, "Do the regular pancakes have ww flour in them or just white flour?" I jokingly reminded her that white flour has wheat in it too, and she said "Oh really? OMG I didn't even think about that." She then ordered and ate pancakes.

We also had a brief discussion about hidden wheat (IHOP uses pancake mix in their scrambled eggs to make them fluffy) and cross contamination, which she'd never heard of.

To her credit, her daughter is doing much better on the diet even with the apparent occasional wheat exposure. :)

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kayo    37

I walked into Sephora to read some labels on products I had at home but no longer had the packaging for. Unfortunately the print was so small I couldn't read the ingredients anyways. :(

Knowing I would probably not get accurate information I asked the manager which of the products were gluten free. I was curious how the question would be handled and if there would be a modicum of accurate information dispensed. Without acknowledging me or looking up from her task she said, all of the X items (I forget the brand she said) are all natural and therefore gluten free. I turned and walked out of the store.

I have since bought a credit card shaped magnifying 'glass' that fits in my wallet so I can read the small print myself.

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I walked into Sephora ...Without acknowledging me or looking up from her task she said, all of the X items (I forget the brand she said) are all natural and therefore gluten free. I turned and walked out of the store. I have since bought a credit card shaped magnifying 'glass' that fits in my wallet so I can read the small print myself.

This just irks me! In this economy, the fact that stores like Sephora are even still alive is amazing to me! They are expensive, and then to add bad service on top....who would buy their stuff? I feel like bad customer service is like a disease lately in retail. I am a struggling new teacher, who can't find a job in this terrible economy. The school districts are laying off teachers and increasing class sizes, not taking a chance on a fresh newly minted excited history teacher who is ready to school the teenagers of the United States with the utmost enthusiasm. The fact that anyone has a job is something to celebrate! I don't know, that's just my two cents. :0)

I'm sorry you had this experience. I too have learned to just help myself in any retail environment. Asking for help is simply not going to get you anywhere. Of course, if I could afford to shop at places like Nordstroms, perhaps someone would kiss my booty and help me, but I can't afford that, so I have to stick to the Ross and Target's of the world! This turned into a rant. Sorry ... LOL! I'm not usually this negative, I swear!

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Marz    42

The one that upset me the most was when we were at Football. I bring my own food. Usually tuna or watermelon, my trusty rice crisps.... Ok so the coaches wife looks at me and says.."Everytime I see you, your eating something!" It really hurt my feelings.

Well you're probably making her feel guilty eating her unhealthy donuts and hotdogs :P I find a lot of hurtful comments are from people feeling insecure about their own dietary choices and perhaps lack of willpower in cutting down on the carbs ;)

Don't feel bad, I bring a lunchbox to work and snack the *whole* day, I'm continuously hungry nowadays. Beats having zero appetite pre-gluten-free! :D

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precious831    32

Here's one from my neighbor's mom:

Her: Oh here's a sandwich for your little girl(who is gluten-intolerant, not sure if she has celiac).

Me: Oh no thanks she can't have wheat. She's allergic(I say that because it's easier to understand, or so I thought).

Her: Oh it's ok this got no wheat.

Me: yes it does.

Her: It's bread, no wheat.

Me: Ummm(trying to be polite), wheat is in the bread! The flour used is wheat, unless it says gluten-free.

So then her eyes glazed over. Probably no clue what gluten is).

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Juliebove    93

I was wondering about a store sample once. It was yogurt on which they put granola. The yogurt was gluten-free, but the granola wasn't. The guy said that it couldn't contain gluten because it was organic. Then I pointed out the wheat on the label. Then he told me that the gluten wouldn't harm me because it hadn't developed. Why would someone say something like that? What if I had listened to him and ate it anyway?

I was told by a celiac health food owner that sprouted wheat was okay. Why? It was sprouted so it was now something else. This was when my daughter was first diagnosed. I bought something with sprouted wheat. Can't remember now if it was tortillas or bread. Soon after eating the stuff, daughter got sick.

The Dr. who diagnosed her actually told me to give her spelt instead of wheat. Same thing happened. She got sick! I now know that not only is spelt a form of wheat but that she is allergic to both things.

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Juliebove    93

I have a couple of ones that make the eyes roll every time.

My co workers and hubby's co workers, "that must be awful, I couldn't live without bread." or "must be hard to find something to eat"

Family members, "once you are better you can eat bread again right?"

Gets tiring telling people what I eat. Rice, potato, veg, steak, prawns, chicken etc. They are amazed that it is gluten free.

The other day on one of the newsgroups I frequent, a woman who always acts like she is an expert on everything said that celiac can go away. I asked her for a cite. As I thought, she posted no cite. I don't think there is one.

But I too get sick of the comments about "What *can* you eat?" Or, "I could never follow that diet!"

I can remember getting upset when daughter was first diagnosed. She had two back to back dance recitals to be in with about an hour break in between. At that point we hadn't yet found a gluten-free bread that she liked. Or really even found good meals that she liked. I commented to one of the other mothers that I didn't know what I could bring her for lunch. She told me that they just sent out for pizza. When I told her she couldn't eat pizza because she was allergic to wheat, gluten and dairy, she replied... "Couldn't you make an exception just this once?"

I then replied to her... "Yeah. If I don't want her to dance. Cuz if I did that she'd spend the next hour or more in the bathroom getting sick!" I later found out that this person is a kindergarten teacher. Scary!

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kareng    1,992

I went in one of those "discount" hair care products store to find a new shampoo. The company of the shampoo had sent me some suggestions but I wanted to read the ingredients just to be sure. The price tag was stuck on the ingredients on every bottle. I got a manager and said I needed to read the ingredients to see if I could have it. Asked me what I couldn't have and I said wheat. She pulled the sticker off, read it in her head and said, " this should be fine. No wheat.". And started to take it to the register for me to pay. I said I wanted to look at the ingredients and she looked at me like I was nuts. The shampoo was fine buy still... I have been in stores where they will read the ingredients out loud so I can make a decision.

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celiac-mommy    79

This just irks me! In this economy, the fact that stores like Sephora are even still alive is amazing to me! They are expensive, and then to add bad service on top....who would buy their stuff?

I've only been to Sephora once, but the gal working asked my dd if she wanted to try some makeup on. I told her no, because of gluten, blah, blah, blah... She said, "Oh, let me show you all the gluten-free stuff we have!" I was shocked! Her SIL happened to have celiac as well, so she knew everything about all the products, and dd was more than happy to be her guinea pig ;) Soooooo, if you're ever at the Vancouver (Washington) mall, check it out :)

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I've only been to Sephora once, but the gal working asked my dd if she wanted to try some makeup on. I told her no, because of gluten, blah, blah, blah... She said, "Oh, let me show you all the gluten-free stuff we have!" I was shocked! Her SIL happened to have celiac as well, so she knew everything about all the products, and dd was more than happy to be her guinea pig ;) Soooooo, if you're ever at the Vancouver (Washington) mall, check it out :)

So glad you had a good experience! I have noticed that you will find the occasional "island" where someone has a "friend, family member, etc" who has Celiac. I got very lucky and my DOCTOR was one of those rare islands! His daughter has Celiac, so instead of knowing little and/or being ignorant on the subject, he had a wealth of information! He went into this whole thing about how they were about to go on vacation in Hawaii, and he and his wife had been calling around to local restaurants to see if they can accommodate gluten free! I mean, this guy knew his stuff! I love my doctor! Yay me! But unfortunately, more often than not, I get the deer in the headlights look when I say gluten free or allergic to wheat. Hopefully all of the press that the Clinton daughter is giving the disease will bring it into the spotlight. Fingers crossed. :)

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danaf617    2

I love Sephora! Just went this week for a gluten-free lip gloss. (As well as paraben-free, sulfate-free, petro-chemical-free, fragrance-free, free of pthalates, no GMO's, no PPG's, no MEA, DEA, TEA's, formaldehyde-free, and triclosan-free.)

Got some natural deodorant too. :)

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