• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Different "glutening" Different Symptoms? And How To Deal When Someone You Love Is Trying To Kill You With Gluten?
0

12 posts in this topic

So, To make things simple: I have a family member who likes glutening me, and then explaining it away as something else.

Two weeks ago, he added soy sauce to a recipe, without telling me. I just got really bloated and had severe stomach cramps for about 48 hours. I had low energy working out, but that might have been more related to the whole pooping-my-brains-out thing.

four nights ago, he rinced his pasta in a colandar, and then threw my gluten-free pasta in, after using the same wooden spoon to stir both pots. since then, i've been slow, achey, depressed, and I get bloated every time I eat (I do get hungry, though). stomach cramps aren't really happening this time.

The former experience is more typical for me... but I realized that most glutening in my life comes from soy sauce, and this is the first time that the effects have lasted so long and are so mild/un explainable.

Two issues here:

Do other people get different symptoms when glutened in different ways? I know that things in which the gluten source is likely to be at least partially fermented (like soy sauce or beer), I feel somewhat differently than when I get glutened by straight up wheat. That being said, I'm always glutened via sauces or cross-contamination --- I don't eat anything that would likely contain any amount of gluten that could be measured by a kitchen utensil.

Also, this person doesn't believe I have a problem, keeps giving me gluten, and then gets pissed because I get sick, but explains it as something else. I figured he'd eventually figure it out, but he's not, and I feel like poop at least once a week from inadvertant or purposeful glutening. I realized after 3 weeks of going gluten free on my then-doc's suggestion that I felt better than I had in 4 years -- my joint pain and constant athletic injuries were greatly reduced or gone and I had more energy and was more active. I haven't had the blood test / biopsy. Without those tests he won't believe that this is gluten related -- [i started going to yoga after my joints stopped hurting so much, and he thinks yoga stopped all my bodily pains]. How do I convince someone that I actually am sick from being glutened -- by him!! I know eventually, I'll have to get the tests to prove it, but health care is expensive and I'm currently uninsured and live in rural america.... but it seems stupid to get a test that is considerably less reliable than the results of eating gluten-free for over a year, now.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Depending on how much gluten you get I do think you can have different reactions. If I ate a piece of wheat bread, I would feel horrible immediately. But if I used the same colander to rinse my pasta or got CC'd with a spoon, It would take a little longer. Soy sauce? Instant bathroom run. CC'd gluten-free crackers? Takes me a few days.

I have to say, my husband kept cc'ing me to "test it" when I first got sick. It took about 3 weeks (and MANY angry posts on this board lol) for him to finally "get it". I bought a book for him too. Once he saw how much healthier I was he hopped on board. Now he is INCREDIBLY supportive, and even protective of me when other people ask stupid questions. He just had to have it click. Some people are like that.

I am so sorry you had to deal with this, and I hope it gets better soon. I suggest making your own meals and not letting the food offender near your food.

0

Share this post


Link to post
Share on other sites

I would throw all the gluten containing food away or donate it to someone and then replace with gluten free items.

0

Share this post


Link to post
Share on other sites

Probably you should fix your own food, and refuse to touch ANYTHING prepared by this person. Do you live with him? Your health is non-negotiable - let him know that and calmly take whatever steps are necessary to protect yourself. Tell him you are sorry you cannot trust him to respect your needs but since that is the case, you will not be eating anything he has touched. Please don't let anyone poison you or make you feel guilty for doing what you need to do!

0

Share this post


Link to post
Share on other sites

Sounds like you live with him. Consider not living with him if he cares so little for you that he purposefully is trying to hurt you. If he was hitting you, I hope you wouldn't keep him around. He is poisoning you.

If you think he will come around or is worth keeping for some reason, then I would not let him cook for you. I might even consider locking up your food and pans & colanders, etc.

I would think that fact that the doctor told you to try this diet would be official enough.

1

Share this post


Link to post
Share on other sites
Ads by Google:


I ended an 8 yr relationship a couple of months ago because he kept cross contaminating me. He believed I couldn't eat it but he just couldn't get the fact that cross contamination was an issue. Also, it woke me up to the fact that he had control issues. I didn't realize or kept myself in denial because of that and I was miserable for a long time.

You constantly being glutened is causing depression as well as other issues. I finally decided my health was more important than keeping him happy. I'll love that man until the day I die but I can't live with him anymore.

All, I can say is try to get some facts for him to read but from I have read here, it's not gonna do any good. He has his thoughts and there's no changing them. Just my opinion mind you.

I hope you start feeling better.

Vicky

1

Share this post


Link to post
Share on other sites

I have had different reactions depending on the amount of gluten. I don't know about the different forms. If it's something that is heavily laced with gluten I will get nauseous and throw up about 30 minutes to an hour after I eat it. If it's just CC, then I don't throw up and my symptoms last for much longer (up to a week).

As far as your family situation, how old are you? Are you still living at home? If this is your brother or dad or someone that you can't just cut out of your life, then you may need to get testing to prove to them that you can't eat gluten. You can be super careful and try to make all your own food, but if this person doesn't believe they may try to sabotage your gluten-free food. If I were in that situation I would try to be careful and save up money for an Enterolab test. There is controversy on this board on whether they are too sensitive of a test, but from what I understand you don't have to be on gluten to get a positive test result. So you can get that and show the results to your skeptical family member if you really need to.

0

Share this post


Link to post
Share on other sites




Yes, glutenings can feel different. I get any random combination of stomach ache, diarrhea, anxiety, fatigue, and canker sores. Roll the dice, pick at least two. :lol:

There is an element of malice in your description which is troublesome. There is a difference between living with someone who just doesn't believe you but humors you (been there, done that) and someone who is actively trying to poison you. You could try giving him articles on all the problems gluten can cause for people. Be sure you include some on the celiac-related intestinal cancers. (The cancers are actually rather rare but the scare factor is useful.)

Moving out so you can have a completely gluten-free kitchen would be the best solution. If you are in circumstances where you can't get away, you need to put your foot down and stop eating anything he cooks. If someone had put rat poison in food, you wouldn't ever trust their food again. This is essentially the same thing.

Also, as far as diagnosis if you don't need one for yourself, I wouldn't recommend the gluten challenge. As you say, it's stupid to get a test that is less reliable than the diet. I totally agree and was never tested myself. My current doctor agrees as well. He says he wishes more people would just try the diet instead of wanting unreliable tests. Besides, you have to eat four slices of bread worth of gluten for 4-6 weeks to have a shot at a positive result. If you go on gluten for a month it sounds like you risk athletic injuries. Torn ligaments can give you a lifetime of trouble.

0

Share this post


Link to post
Share on other sites

I am going to agree with everyone who said to make your own food. Only eat what you make yourself. Why trust someone who doesn't get it?

0

Share this post


Link to post
Share on other sites

The fact is......you feel better when you don't eat these things. That is all that should manner. You don't/should not have to prove your diagnosis! My husband is a bit the same....I have psoriatic arthritis and take injections twice a week....he seems to think that good old exercise and a few of his twigs and berry pills will fix it. What I keep telling him...is that the medication STOPS the progression of the disease. He has finally shut up about it. I've got news for him...I am waiting for my biopsy results from my endoscopy I had on Friday. If it shows Celiac...he will be gluten free also. I never have to worry about him poisening me because he NEVER cooks. Luckily he understands food issues...as our child is allergic to soy, wheat, oats, corn, dairy, eggs and peanuts. It can be very severe and cause death. Now I know that allergies and Celiac are different...but regardless...it still makes you sick. Ask him/her....wouldn't you rather have me feeling good and being happy? Who does the grocery shopping? In our house it's me...and I do all the cooking too. Definately cook your own food and consider getting rid of all products that contain gluten.

0

Share this post


Link to post
Share on other sites




I had one more thought. What is it with people? Do they seriously think that Celiac is a disease you WANT to have? It would be easier if they had a pill you could take to counteract the gluten...it's much harder to go gluten-free. And I can't think of anyone that WANTS to have this diagnosis. But...it is what it is....if you get sick eating the stuff...you have to stop.

0

Share this post


Link to post
Share on other sites

So sad to hear that people just don't understand. My daughter is allergic to gluten and my mother in law insists I have her on a fad diet.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,392
    • Total Posts
      935,839
  • Member Statistics

    • Total Members
      65,077
    • Most Online
      3,093

    Newest Member
    MayonnaisePlease
    Joined
  • Popular Now

  • Topics

  • Posts

    • It's no secret that nearly all traditionally brewed beers contain barley. The flavor and body barley imparts on traditional beers is partly responsible for their rich, full taste. Finding alternatives to barley that are suitable for brewing gluten-free beer has been a challenge. One solution has been to brew beers with traditional barley ingredients, and then use a combination of enzyme action and filtration to render a final product that test below 20ppm gluten required for gluten-free products. View the full article
    • First have you been tested for celiac disease? Any doctor can do the blood test but you have to be eating gluten on a daily basis for the test to work, nut much just a half slice of bread a day. You should get this tested, the high constipation, coughing stuff up was very common for me before diagnosis. The coughing stuff up for me was from a allergy that developed I did not know of, the mucus was draining down my throat and choking me at times, and was constantly running a fever and night sweats. I was constipated for 4-10 days average back then and drinking plenty of liquids did not help in the least. Your gut rumbling could be many things, celiac is one, SIBO is another especially with the bad breath. in your case it could be related to constipation causing rotting, fermenting, and bacterial overgrowth of the waste in your system. Now to deal with the immediate symptoms, your constipation is also a sign of magnesium deficiency, I imagine you might have noticed some other symptoms from these. Now normally I would suggest either the Natural Vitality Calm or Doctors Best which is easier on the stomach. In your case I straight up suggest the Natural Vitality Calm it is a Magnesium Citrate and works a bit like a laxative. Start with 1/4 tsp twice a day in a beverage, I like the orange or the cherry in a hot green tea or you can try it in a juice. Up the dose slowly over a periods of a week to the full dose or perhaps a little more til you get a bit looser stool.     You mentioned the mucus in the stool 2 things cause this normally. Undigested fats, and inflammation/irritation causing the body to produce the mucus to help defend itself and purge the irritants. A doctor can probably tell you more but I might suggest a digestive enzyme in the mean time. I like to use a super papaya enzyme before and after a meal, find them on amazon. Jarrow also makes full enzyme complex that can help. Other thoughts if your on dairy, stop, with the constipation, and other issues this is a equation for trouble and you can reintroduce it in a few months when you clear up and see if it bothers you then. The bad breath can be a sign of lactose intolerance/digestive issues with dairy also. If it comes you you have celiac then you would have your explanation here as the villi which produce the enzymes to break down lactose are damaged/destroyed first causing most to develop a temporary lactose intolerance which for some goes away after a few months of healing. B-vitamin folic acid, and niacin will be a huge help also with some things. but will we get into that a bit later feel free to look up Liquid Health Stress & Energy if you thing it might be relevant at this point it is what I use 3 times a day with another blend they have.
    • Some of your symptoms sound like my ulcers.  I take carafate before every meal now and they are much better.  I have 3 ulcers possibly caused by taking iron supplements.  They are worse when I eat spicy food and dairy. I might be wrong but for your sake I hope it's just ulcers.  They were found by endoscopy.
    • The yellow is probably fat you are not absorbing.  The pain could be from your intestines being inflamed.  Go see the gastroenterologist.  The ER did not help me with any of those symptoms.  Good thing it's clear so you know it's not your appendix or any other vital organ.  It takes time but probiotics, bone broth and  vitamin D and b 12 help. My pain was mainly my muscles giving out from the malabsorption.
    • Hi, this has been a postcode lottery for some time, some health authorities support it others don't. The govt has recently indicated that doctors should no longer prescribe food to celiacs, you should check with your local GP to see if they are still doing this or not. if you want some advice on where to shop just ask  
  • Upcoming Events