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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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tennisman

Potato Intolerance

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Does anyone have a Potato Intolerance ? I have been getting stomach pain for maybe the last year and a half , I stick to the gluten-free diet properly and my doctor said the problem is not connected to being gluten-free . He did some tests to see if I had accidentally eaten gluten and the tests came back saying I had not had any gluten, don't know how the test works but it seems cool lol. But last weekend I had potato friday , saturday , sunday and a little potato on monday and I had pain a lot worse them days. I made a food diary earlier this year and the days my pain was worse I had eaten potatoes the same day or the day before. So i'm thinking the pain could be down to a potato Intolerance. But when I asked my doctor about food Intolerances and allergy's he said it's unlikely I have an allergy or Intolerance as they cause face swellings and rashes more than stomach pain ???? I did send a blood sample to a food Intolerance test company and they said I have Intolerances but need to pay

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What your doctor said is simply not true. When I eat soy, my stomach cramps up and bloats. When I eat corn, my GI symptoms also return and my neuropathy increases.

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I have a Potato intolerance....didnt used to have it! the symptoms manifest after several hours and are-pain in the liver/gallbladder area.....frequent urination and waking up sweating.....and to top all this off a general feeling of Anxiety.You can become sensitized to any substance....unfortunately :angry:

take care

steve

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I too am intolerant of potatoes. I have found that the manifestations of intolerance take many forms. For me the intolerance has changed from formerly intense itching to now bloating and erratic heartbeats. One can never judge one's own reactions to something by how someone else reacts.

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Some of us get intolerances to nightshades. Like I can't eat potatoes, tomatoes, or peppers, which are all nightshades. You can do what's called an elimination diet. just do a search on here using the search forum tool near the top left of the screen. Search on "elimination diet" and you will find lots of threads about them.

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Lucia

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Thanks for the advice mushroom .

Cool thanks for the elimination diet advice I will look into it GFinDC.

Lucia

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Is your doctor a GastroInterologist or a family doctor? Family doctors are generally not trained to know very much about diet.

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Bennie my doctor is gastro same doctor I have been seeing since I was diagnosed with celiac disease in 2003.

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Is your doctor a GastroInterologist or a family doctor? Family doctors are generally not trained to know very much about diet.

Sadly, most gastroenterologists are not very well informed either :( .

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3/4 times when I ate potatoes (sneaking my husband's fries, mashed potatoes, etc) I reacted. So I determined that I am potato intolerant. I did a test to be sure I was, by not eating any potatoes for a couple of weeks, then eating some very simple, bland foods (rice, bananas, gluten-free bread, etc) for a couple days to calm my system down. Then I threw some potatoes into the mix. I just used plain, skinned, boiled potatoes, mashed up, and definitely reacted to them!

It sucks to give them up, and while this is not really a "substitute" for potatoes, I have discovered that I really enjoy sweet potatoes. They don't taste much like regular ol' spuds, but they're a good sub in some dishes.

I think I might have a lectin intolerance...looking into that next.

I think for most of us, we've had to do the detective work on our own. Doctors just want to diagnose what they recognize, and if it's too hard to figure out, they pin a label on it that makes no sense. My philosophy is to listen to your body, it knows what it can and can't handle better than any doctor.

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Thanks for the reply Sweetfudge , the test sounds like a great idea to prove it I will try it sometime. Thanks for the information on sweet potatoes that's really cool as I didn't know if they were alright lol , I ate a lot of sweet potatoes in the past there great.

It's a shame about the doctor's and it's really annoying they don't go out of what they recognise to help get patients better , the impression I get from my doctor's is we don't no what's wrong and really we don't care or can be bothered to do other tests. But it feels good if you finally work out a possible intolerance what has been causing problems without the doctor's help lol. I like your philosophy about listening to your body.

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I have an intolerance to nightshades, Potatoes used to be my worse, but I have noticed I am not reacting as much, I have been taking alot of supplements over the past 16 months which I believe have helped this, although tomatoes and Paprika still cause terrible stomach pain and bloating.

I never realized it was nightshades, always thought it was just potatoes, amazing when you really get to know your body what you learn.

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oh my gosh I am glad I am not the only one. I've been able to eat potatoes for 46 years and I love potatoes! Recently, I've been getting bloat and diarrhea, and I know I'm lactose intolerant so I gave up butter and milk, and had them plain with a little sprinkle of pepper on top. Boo hoo, can't even have it that way. I tried just eating the white and not the skins, or just the skins and not the white and it makes no difference. How could we have an intolerance to potatoes? They come from the ground and are not processed.

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I have an intolerance to nightshades, Potatoes used to be my worse, but I have noticed I am not reacting as much, I have been taking alot of supplements over the past 16 months which I believe have helped this, although tomatoes and Paprika still cause terrible stomach pain and bloating.

I never realized it was nightshades, always thought it was just potatoes, amazing when you really get to know your body what you learn.

Hi Lisa , How did you find out about having an intolerance to nightshades by an elimination diet or did you work it out yourself or something ? I really hope I can get to know my body properly soon lol.

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oh my gosh I am glad I am not the only one. I've been able to eat potatoes for 46 years and I love potatoes! Recently, I've been getting bloat and diarrhea, and I know I'm lactose intolerant so I gave up butter and milk, and had them plain with a little sprinkle of pepper on top. Boo hoo, can't even have it that way. I tried just eating the white and not the skins, or just the skins and not the white and it makes no difference. How could we have an intolerance to potatoes? They come from the ground and are not processed.

Hi sweeeeet , how did you find out you had a potato intolerance ? Yeh it's hard to understand how we could have potato intolerance it sucks.

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Tennisman, I did not do an elimination diet to figure out my intolerances, but it certainly is the easiest and quickest way. Narrow your food choices way down to things you know don't bother you, and then one at a time, every 3-4 days, add in something that you think could be a problem. If you react, take it out and test it again some other time. Reaction twice and you know for sure. For myself, I started noticing a pattern in my reactions. I couldn't really figure potatoes for quite a while because I had this itching that wouldn't go away when I stopped eating potatoes. But then I realized that the flour mixes in the breads I was eating all contained potato starch (slaps forehead!). Once I stopped eating those breads the itching went away. :P

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How could we have an intolerance to potatoes? They come from the ground and are not processed.

The potatoe comes from the nightshade family. The plants were found to have toxins in them that were used as poisons back in the dark ages. For some of us we react to those toxins. For me it causes my arthritis to flare. Causes inflamation and swelling in my joints as well as a lot of bone pain along with stomach upset and just a general unwell feeling.

The nightshade family largely consists of potatoes, tomatoes, eggplant, all bell peppers and I think okra. Someone correct me if i'm wrong about the okra, but by process of elimination okra does the same thing to me.

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Tennisman, I did not do an elimination diet to figure out my intolerances, but it certainly is the easiest and quickest way. Narrow your food choices way down to things you know don't bother you, and then one at a time, every 3-4 days, add in something that you think could be a problem. If you react, take it out and test it again some other time. Reaction twice and you know for sure. For myself, I started noticing a pattern in my reactions. I couldn't really figure potatoes for quite a while because I had this itching that wouldn't go away when I stopped eating potatoes. But then I realized that the flour mixes in the breads I was eating all contained potato starch (slaps forehead!). Once I stopped eating those breads the itching went away. :P

Thanks for the advice Mushroom , I have been to see a dietician a few times. I had to do a food and symptoms diary , he checked the food diary for anything obvious but didn't notice anything. He said he will study the food diary properly and see if he can find anything. But in the mean time I have to avoid potatoes for 3 weeks and than if the pain goes away I have to do a challenge. I have avoided potato for a week already and still getting pain so i'm thinking maybe it's not potatoes after all so confusing lol. That's good you managed to stop the itching . It's annoying potato is in breads, biscuits etc. My Mum who is also Gluten Free recently bought a Gluten Free breadmaker for us , and it's really awesome makes very nice bread :D But like you said a lot of Gluten Free bread mixes have potato in , it's so frustrating lol

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hi, hope this helps... 

I recently had an intolerant test as I've had psoriasis for over 28 years and pain in my stomach and bowels for over 5 years. Tbh I knew what the results were going to be before I got the results (but I didn't tell him) I think we have a sense.

as well as all dairy (the one i knew), bananas and strawberries it showed I was intolerant to potatoes, but luckily only one kind not the entire family. So that maybe something to consider, you may have cut out out potatoes but still eating another item from the same family. I have tried to upload photos but it won't let me. However, other items in potatoes family inc, tomato, aubergine, chilli, cayenne pepper, paprika, peppers, belladonna, gooseberry, tobacco and huckleberry.

 hope this helps

Edited by Whhyyy
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4 hours ago, Whhyyy said:

hi, hope this helps... 

I recently had an intolerant test as I've had psoriasis for over 28 years and pain in my stomach and bowels for over 5 years. Tbh I knew what the results were going to be before I got the results (but I didn't tell him) I think we have a sense.

as well as all dairy (the one i knew), bananas and strawberries it showed I was intolerant to potatoes, but luckily only one kind not the entire family. So that maybe something to consider, you may have cut out out potatoes but still eating another item from the same family. I have tried to upload photos but it won't let me. However, other items in potatoes family inc, tomato, aubergine, chilli, cayenne pepper, paprika, peppers, belladonna, gooseberry, tobacco and huckleberry.

 hope this helps

Please check the date on post, you just responded and tried talking to a person from 7 years ago. On consideration to the subject Poatoes are a huge flare factor for my UC and cause my blood sugar to sky rocket...I am not even diabetic but for some reason potatoes (hash browns) that I tried a few months ago with some eggs shot it up over 400. -_- not even a control test with table sugar managed that.

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