This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
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I find it amusing I brought this up to point out that discrimination is not something that should happen to those of us with this disease and if handled well we can compromise by bringing our own food where allowed and calling and contacting places prior to going explaining and setting things up. In this way we do not end up feeling out of place and can try to live a more normal life with social interactions and gatherings if all is handled well. I am unsure if this goal was met or blown out of the water .
One point I think this applies also and has for me so far it seems, is theme parks. Places like Six Flags where your stuck in their grounds, and they can not guarantee food safety. I found that with my celiac diagnoses I can talk to them and be allowed to bring my own food into the park. This not only allows me to head out and eat but also saves me a ton of money >.< as expensive as gluten-free food is theme park food is like another 3x that. They just put a medical sticker on my cooler and I store it in a locker in the park and go back to it for snacks and food. Odd thing from years past.....I have a life time member ship to Six Flags, But I can not go unless someone else is with me for when I get anemic, or sick so I go once a year if even that (not gone this year or last year). My other option is to book a hotel near by or sleep in my car. (I get deathly tired at night and pass out around 9pm). There is also the lines I have to buy a flash pass to skip the lines, or I have panic attacks being unable to move for hours waiting for a ride.
I lived in Okinawa for 4 years prior to diagnosis. My son however tried to go gluten free during that time. His school had no idea what I was trying to say and could do nothing for him. Everyone eats school lunch. Period. It was difficult. If I went back I would eat the percooked hard boiled eggs from Lawson's or your nearest convenient store. You may feel more comfortable rinsing them before eating them. I would also eat the plain rice onigri. If you know the contents of the mayo you could eat mayo/fish onigri. Stay away from the ones that use soy sauce. Maybe look at tins of fish while you are there to see if they contain soy sauce.
The other idea is to connect you with someone on a base. They have great American grocery stores with lots of options and American doctors and hospital. They deal with American insurance companies. I looked into that for my father in law who came to visit while terminal. He had postal insurance and was 100% covered in Okinawa on base. Do you have military connections there? Camp Foster or Kadena grocery stores are the big ones with the best selection. The others may be too small for your needs.
Sounded like it's against the law in that state to bring in outside food to any restaurant. A simple phone call to the tavern would have told them that. Prior planning is exactly what was needed here. We don't have the right to break laws, and outside of school and jail, (with the correct paperwork), we don't have the right to have gluten-free food everywhere we go. I'm shaking my head at the parents and how they dropped the ball here.
Thought I would bring up my most recent addiction. I always loved and had MAD cravings for chocolate. Not the sweet stuff, the powder is always what I craved, the darker the better. This was in part due to extreme anemia, and huge issues with getting enough iron due to internal bleeding issues with UC (I got cravings for dirt and chocolate but would just eat the cocoa). But I used to have a love hate issues with it, if I ate too much like more then 2 tbsp in a sitting in anything I would get sick and I would do this often eating 1/4 in mixed recipes like a sauce, mixed with egg whites, almond butter, into quick cakes, or in icecream or shakes.. I still am unsure what this was, but the processed gluten-free labeled Hershey Special Dark was the main thing I consumed back then (around this time they did not have the plain Hershey or any other cocoa on the gluten-free list). This went on for a few years and then I moved on to RAW cocoa from Big Tree Farms and this lessened the nausea and sick feeling and enabled me to eat more but I still avoided it when I was not craving it due to it making me sick. This year funny enough I got my anemia under control with upped vitamin C and finding out what triggered my bleeding flare ups was sugars from fruit, grain carbs, and starches, I found Crio Bru. Crio Bru is a coffee replacement, but it is actually just pure cocoa nibs/beans ground up like coffee ground, they come from different origin sourced beans with different roast levels, from a smokey dark french to lighter ones with smooth or floral notes. These, these I can sit down and grind up in almond milk or in shakes, sprinkle over deserts, mix in trail mixes, eat by the handful....and I DO NOT GET SICK. I can eat over a cup of them and be very satisfied, they are very high in fiber and saturated healthy fats, antioxidants. and various other nutrients, and smash my binge eats faster then coconut or almonds. I only wish I had found them earlier, but this brought up some other thoughts. Why does the processed cocoa bother me SO much more then these? Is it the alkalinity of them? The dry powder like state causing them to neutralize to much acid or absorb to much liquid? Or something added in the processing? Perhaps the processed cocoa just has a much much higher histamine level, I do not know but the fact these are so much better and finally my new best friend for putting on weight is amazing.
Anyone else have a chocolate issues, chocolate loves, or addictions? Or perhaps thoughts on these?