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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Simona19    24

Hi everybody!

Yesterday I just got my results from blood work, CT and MRI. WOW!!!

I have vitamin D, magnesium, and iron deficiency. The doctor prescribed heavy doses of the vitamins for me. I should take them for three months and after he would check the blood again.

I also received very good news: I don't have Cancer!! I'm happy.

I found out that I have a new small white lesion in my brain which wasn't there last year. The cyst in the left maxillary sinus still there, but didn't change which is very good.

I have a small kidney stone on the left side and on the right ovary 2,5 cm cyst.

I also have something with my lungs, but I don't understand what it is. I will just post it, and maybe somebody will know what it means.

"Focal peripheral interstitial changes are seen in the right lung base anteriorly with minimal scaring. There is no focal area of consolidation or pleural effusion." I have asthma. It's related to that? I don't know. I'm afraid because my father died at 54. of the lung cancer.

The doctor also gave me the enzymes for the pancreas. I can't eat fat because I will have an instant pain on the left side of my stomach. It looks like my pancreas isn't working.

My allergist send the report to my doctor from skin tests: "Imediate reaction to skin test was negative; however, there was a delayed reaction to wheat which lasted for over 24 hours. Considering the positive biopsy report and a delayed reaction to wheat, it is likely that the patient does have celiac disease." I also tested positive for milk allergy.

And one last thing: I posted early that I'm always having the feeling that I will faint any second, that I'm very weak, dizzy and that I'm having black outs. I thought that it was relayed to widrawal from the gluten. I was wrong. I have something wrong with my heart. I need to see cardiologist. I need tests: ECHO, 24 Hr Holter ( I will have some device attached to my heart for 24 hours)and stress test. I'm just 34, and I have many health issues. Wow!! :blink::blink::blink:

It's finally means that I have celiac disease, even if my blood work , genetic ( I have only half of the DQ2- DQA*05) and regular screening for celiac disease, came back negative? I tested positive for celiac disease on the biopsy (Marshl) and on the skin test for the wheat allergy, but my two gastroenterologist told me that I don't have it, and I should try to eat everything. :huh: They also look at me like I came from the other planet. Many of us are having the same responds over and over. What is wrong with the world that nobody wants to listen to us?

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Gerri    0

Hi everybody!

Yesterday I just got my results from blood work, CT and MRI. WOW!!!

I have vitamin D, magnesium, and iron deficiency. The doctor prescribed heavy doses of the vitamins for me. I should take them for three months and after he would check the blood again.

I also received very good news: I don't have Cancer!! I'm happy.

I also found out that I have a new small white lesion in my brain which wasn't there last year. The cycst in the left maxillary sinus still there, but didn't change which is very good.

I have also a small kidney stone on the left side and on the right ovarie 2,5 cm cyst.

I also have something with my lungs, but I don't understand what it is. I will just post it, and maybe somebody will know what it means.

"Focal peripheral interstitial changes are seen in the right lung base anteriorly with minimal scaring. There is no focal area of consolidation or pleural effusion." I have astma. It's realated to that? I don't know. I'm afraid because my father died at 54. of the lung cancer.

The doctor also gave me the enzymes for the pancreas. I can't eat fat because I will have an instant pain on the left side of my stomach. It looks like my pancreas isn't working.

My allergologist send the report to my doctor from skin tests: "Imediate reaction to skin test was negative; however, there was a delayed reaction to wheat which lasted for over 24 hours. Considering the positive biopsy report and a delayed reaction to wheat, it is likely that the patient does have celiac disease." I also tested positive for the milk allergy.

And one last thing: I posted early that I'm always having the feeling that I will faint any second, that I'm very weak, dizzy and that I'm having black outs when I will change the positions. I thougt that it was realited to widrawal from the gluten. I was wrong. I have something wrong with my heart. I need to see cardiologist. I need tests: ECHO, 24 Hr Holter ( I will have some device attached to my heart for 24 hours)and stress test. I'm just 34, and I have many health issues. Wow!! :blink::blink::blink:

It's finaly means that I have celiac disease, even if my blood work , genetic ( I have only half of the DQ2- DQA*05) and regular screaning for celiac dissease, came back negative? I tested possitive for celiac disease on the biopsy (Marshl) and on the skin test for the wheat allergy, but my two gastroenterologist told me that I don't have it, and I should try to eat everything. :huh: They also look at me like I came from the other planet. Many of us are having the same responds over and over. What is wrong with the world that nobody wants to listen to us?

Hi Simon,

Until your doctors tell you have something to worry about with your lungs, don't panic. I have scar tissue on my lungs as well. I was told the scar tissue was likely resulted from Bronchial Asthma, and pneumonia as a baby. I am 56 this year. The doctors will continue to monitor. I was told I can't have NSAIDs because of the bronchial asthma, because they will cause further damage to the lungs.

I was told to follow the Celiac diet for the rest of my life. My test results was low Celiac. The Gluten challenge landed me in the hospital 3 times. Dr. gave me note saying that I am to follow the Celiac diet. I have other autoimmune diseases, so what is one more.

Take care

Gerri

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Simona19    24

Hi Simon,

Until your doctors tell you have something to worry about with your lungs, don't panic. I have scar tissue on my lungs as well. I was told the scar tissue was likely resulted from Bronchial Asthma, and pneumonia as a baby. I am 56 this year. The doctors will continue to monitor. I was told I can't have NSAIDs because of the bronchial asthma, because they will cause further damage to the lungs.

I was told to follow the Celiac diet for the rest of my life. My test results was low Celiac. The Gluten challenge landed me in the hospital 3 times. Dr. gave me note saying that I am to follow the Celiac diet. I have other autoimmune diseases, so what is one more.

Take care

Gerri

Thank you so much for your respond. 4 months ago I had just "few" health issues, but now I do feel like an every part of my body is refusing to cooperate with me. I need to wait for another tests and results, but I hope that everything would be ok. :)

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ravenwoodglass    1,218

"I found out that I have a new small white lesion in my brain which wasn't there last year."

Are you having any balance or movement issues? If you are you may have gluten ataxia. This lesion sounds like what doctors call a UBO or unidentified bright object. In some countries that is considered diagnostic of celiac that is attacking the brain. My neuro was clueless when a number of these were found on my MRI. I had severe ataxia which progressed to the point where I couldn't walk unaided before I finally got diagnosed. I have recovered to a great extent after I was finally diagnosed.

Please don't panic about the heart symptoms. It may turn out that the testing shows all is okay. Both my DD and I had similar symptoms and both have had heart testing including the holter monitor for her. In the end all tests were in normal ranges and I hope they are for you also.

Hopefully you are either on the diet or will be as soon as your testing is done.

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