• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Bleeding
0

17 posts in this topic

I was diagnosed years ago with IBS and gastritis but have often wondered if I really have celiac disease. I have multiple markers for having it, but the gluten antibody test was negative, and even though my gastro-doc scoped me everywhere, he never bothered doing biopsies.

Now, my PCP has sent me to another gastro-doc (supposedly a better one) because he's convinced that my symptoms actually come from something autoimmune. This is because we've discovered that a number of medications have triggered prolonged and significant (but painless) rectal bleeding.

I'm going to undergo scopes next week, and the doc is planning on doing multiple biopsies throughout my GI tract, but I wondered if anybody here has ever had this bleeding problem?

Judy

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


That sounds more like colitis to me than a symptom of celiac disease. I think some people here have probably experienced this b/c a lot of us have other GI disorder, but I don't think this is a symptom of celiac disease.

0

Share this post


Link to post
Share on other sites
This is because we've discovered that a number of medications have triggered prolonged and significant (but painless) rectal bleeding.

The bleeding may be due to a number of things such as hemroids, ulcerative colitis, chron's, and I think some meds may cause bleeding. I believe that I experienced bleeding while taking one of the many exciting medications I got to try. I think the bleeding was one of the many reasons I stopped taking it.

If you are celiac it will show up in the biopsies. Make sure they take at least 4-5!

0

Share this post


Link to post
Share on other sites

If I get glutened pretty badly and have a lot of diarrhea, I have the bleeding problem. Once things settle back down again, it goes away. Mine is always bright and not black so it is not coming from too far up the pipes. It is also a family problem, so I am not certain if it is celiac disease or some other issue.

0

Share this post


Link to post
Share on other sites

I think I've finally found a really thorough, caring doctor. She says she's going to take multiple biopsies along the entire GI tract. She also sent blood off to Prometheus Labs in San Diego, which do much more extensive IBD and celiac screenings than are available locally. Have any of you had experience with them? Anyway, she's considered the best in the area I live in, so I feel like if this is due to some organic problem I have, she's the one that will figure it out!

I already have been diagnosed with osteoporosis, hypothyroid, and mitral valve prolapse, so I already have conditions that frequently come with celiac disease. However, it sounds like you guys don't think that having it would predispose a person to rectal bleeding in itself, so I'm curious about the other co-existing GI conditions that others have. For example, is it more common for people with gluten intolerance to also have Crohn's?

Thank you all so much for your feedback!

Judy

0

Share this post


Link to post
Share on other sites
Ads by Google:


Judy:

I did not say that I don't think the celiac disease has anything to do with the bleeding, just that it does not seem to automatically go with it. There are many other gi problems that seem to occur more often in celiac disease patients. I am glad you have a doc who seems to be caring and thorough. Maybe she will figure out which ones impact you. The bleeding can be a scary symptom.

I do not have experience with that particular lab. Some are definitely better than others.

Hopefully you will find that many of your other issues mediate over time after going gluten-free. My osteopenia has stabilized well as have my FMS, hypothyroidism, and neuropathy. I no longer have massive sinus and ear infections regularly either. The female stuff has leveled out also. It is almost as though my body was screaming for help from every direction. I have been gluten-free for two years now and am not "well" because of all the damage, but it is much better than it has been for a decade.

0

Share this post


Link to post
Share on other sites

Donna,

Thanks for the moral support. It sounds like going gluten-free is working for you, and no matter what happens with my diagnosis, I'm going to give it a trial myself. I'll let you know what happens after the test results come in.

Judy

0

Share this post


Link to post
Share on other sites




My husband used to suffer from bleeding before diagnosis of celiac disease.We now think it was made worse by the 'nsaids' (non-steriodal anti inflammatories)he was taking for rheumatoid arthritis.Avoids them now.

There are people out there with chron's and coeliac disease.Once you got one auto-immune disease,your more likely to develop another .Chron's tends to occur more in the large bowel(commonest symptom bleeding and pain)whereas coeliac is in the small bowel.

Hope you get some answers soon.Good luck!

0

Share this post


Link to post
Share on other sites

Thank you all for your feedback and support! It sounds like celiac disease could make a person more susceptible both to other gastro disorders and to the effects of medication. I would just so much like for this to be celiac and not Crohn's! Hopefully I'll have some test results within the next couple of weeks to share.

Thank you all again!

Judy

0

Share this post


Link to post
Share on other sites
I would just so much like for this to be celiac and not Crohn's!
at least with celiac you won't have to be on any nasty meds. I know someone with chron's and the med's sound worse than the disease :blink:

I just recently read that celiac can lead to intestinal hemorraging, which could be the cause of blood.

0

Share this post


Link to post
Share on other sites




Ohmigosh, Carrie! Where did you read it? I would be so happy if this were celiac and not an IBD! Of course, I guess it could end up being "none of the above". I'm trying to be patient!

I had my scopes yesterday, and they took a bunch of biopsies. It sounds like at least 7, from the whole gastrointestinal tract. The doc definitely saw GERD this time; last time I had an upper it was gastritis, but not this time.. So it's back to taking Aciphex for awhile. Sigh. I don't know if celiac people have more of these stomach acid things. Does anybody else know?

Judy

0

Share this post


Link to post
Share on other sites

I read it in Wheat Free Worry Free by Danna Korn on page 34.

"internal hemorrhaging" is on a list of atypical symtoms and associated conditions of celiac disease.

0

Share this post


Link to post
Share on other sites

I had the bleeding, too. After going glutenfree it never showed up anymore. I'm so happy :D . I hope they find out, what it is with you.

0

Share this post


Link to post
Share on other sites

Thank everybody so much! I'm going to check out that book, Carrie, and good luck with your tournament, Stef! I'm glad your hub is doing better without the gluten, Nikki. Y'all are giving me hope that maybe it'll work for me.

I'll let you all know when I get the path and blood test reports. Also, I'm scheduled to see a hematologist Monday, so maybe he'll be able to give some insights into it also.

No matter what the test results say, though, I'm going to give gluten free a trial and see if it makes a difference..

Judy

0

Share this post


Link to post
Share on other sites

Just thought I ought to let you guys know that my celiac panel came out negative. I'm going to try going gluten-free for a time to see if I feel better anyway, but my doc says the tests are 97% accurate, and it doesn't look like gluten is the source of the bleed. Thanks to everyone for the support and helping me to keep my anxiety level under control for a few days!

Judy

0

Share this post


Link to post
Share on other sites

I hope you feel better soon and get the right diagnosis... and yes the gluten-free diet is worth a try. You may be sensitive to gluten or wheat.

B)

0

Share this post


Link to post
Share on other sites

I'd definitely try going glutenfree. It might still help you, cause my oppinion is, that wheat isn't good for humans anyway. Just because manufacturers say it's good, we shouldn't believe it. They just say it's good, cause they can earn a lot of money with wheat. It's cheap!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,332
    • Total Posts
      935,537
  • Member Statistics

    • Total Members
      64,994
    • Most Online
      3,093

    Newest Member
    Daisy Charlize
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you for your reply.  I did make sure to keep eating gluten before getting tested. I'm still unsure whether or not I should ask my doctor to run the rest of the tests in the celiac panel.  
    • LOL, re: trousers vs. pants.   Here in the US, trousers are a specific kind of pants/slacks, with a looser fit and often with pleats in the front.   I also read that Vit D helps digestion;  can't recall the links, but likely within Gundry's writings about lectin.   My Dr. just told me to resume 2000 IU per day, and I do think it's made a slight difference. Have also read that bone broth is helpful, its gelatinous nature supposedly coats the stomach.   I know bone broth has not been formally studied much, but again, probably can't hurt and might help.
    • I'd try the gluten free diet for a few months to see if that helps at all. Can't hurt. If it doesn't help I'd try a low FODMAP meat and veggies diet.
    • A good amount of the neurological effects from celiac are also related to nutrient deficiencies caused by malabsorbtion from damaged intestines and the fact that most gluten-free foods are not fortified and your net eating many grains. You sound good about the CC and everything and seem to be taking percations goods, I still use freezer paper for a clean safe work surface even in my gluten free home lol. Anyway top things to look for and consider are magnesium and B vitamin deficiencies . I take my in a drink to avoid pills and the sublingual forms are more easily absorbed by the body. I normally suggest 2 brand or forms of magnesium and you need to find the one that works for you there. They are Natural Vitality Calm, a magnesium citrate in a powder, you add it to a warm drink let it fizz and drink it. Magnesium citrate can be a bit harsh on some peoples guts, I suggest you start off with 1/4 tsp and work your way up to the full dose over a week, if you get D then your taking too much and need to back down or the citrate version might be too rough for you. In which case I suggest Doctors Best, bit more off tasting and mixes best with a juice but with the powdered form of it you do not have to worry about digestion issues, I just found the citrate to seem to help with my nerve issues more. B Vitamins, I take Liquid Health Stress & Energy and the Neurological Support, I take 1 tbsp of each 2-3 times a day before meals. Really helps with everything and being in liquid forms I just add to tea and drink it. There are many other vitamins to look into and we each have ones we have issues with more then others, getting tested might help, NOTE magnesium and B vitamins sometimes show normal but you will still find you need supplementation...bit of a odd thing I found. Yeah the neurological effects are  huge thing with me as my issues with this disease cause my immune system to attack my nervous system and brain....accumulated brain and nerve damage over the years. Had a whole mental trauma issues with them, my gastro issues back then were mostly just constipation. NOW days I get the Vomiting, D, gas, bloat, and then constipation for a week along with neurological issues which NOW if I get exposed to eating straight gluten (happened twice in 3 years to this extent) I loose motor control and collapse unable to move, normally while vomiting violently to the point of blood coming up (this was what happened last June 2016 after eating out).  
    • Started thinking the only cereal I allow in my house is Vans, they have a cinnamon one that is like a captain crunch with cinnamon, and a strawberry O type that I keep in stock for a friend that comes over sometimes and for my cousins littler girls who I end up babysitting sometimes. There was a coconut flake (corn flake knock) off I used to eat, but the company discontued it. There is a stuff called progranola from julians bakery made without grains that looks great but is a bit expensive at $9 a bag.
  • Upcoming Events