• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Chakra2

Diagnosis After Age 60

Rate this topic

Recommended Posts

I read on an NIH webpage that GI symptoms are more common in childhood celiacs, while non-GI symptoms are more common in adult celiacs. I have a parent investigating celiac disease and that trend would fit. Would anyone diagnosed after age 60 be willing to share what your symptoms were? Since my parent doesn't have noticeable GI symptoms he or she (who doesn't trust Internet annonymity!) is wondering about whether or not celiac disease could really be an issue.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I read on an NIH webpage that GI symptoms are more common in childhood celiacs, while non-GI symptoms are more common in adult celiacs. I have a parent investigating celiac disease and that trend would fit. Would anyone diagnosed after age 60 be willing to share what your symptoms were? Since my parent doesn't have noticeable GI symptoms he or she (who doesn't trust Internet annonymity!) is wondering about whether or not celiac disease could really be an issue.

If I would have waited for a doctor's official diagnosis, I probably would have been in my 60s, when I was diagnosed. However, I self-diagnosed at age 56. Then I did the Enterolab test panel which diagnosed gluten intolerance, casein intolerance, soy intolerance, positive Ttg (consistent with intestinal inflammation) and one of the main celiac genes. When I finally found a celiac naturopath, he agreed with my Elab results and 'officially' diagnosed me 2 years later.

Nevertheless, my self-diagnosis came after years when my symptoms were misdiagnosed as 'gastritis', IBS, malabsorption syndrome and even bulimia! So I suspect I had obvious celiac symptoms at least since age 52 after abdominal surgery, but I had lots of gastrointestinal symptoms, which were misdiagnosed for about 20 years before that.

So I think people can be diagnosed after age 60, especially if they find a doctor who recognizes their symptoms as celiac and will test them. However, many doctors still think celiac disease is a childhood disease and dismiss those symptoms as 'ibs' in middle aged people.

Share this post


Link to post
Share on other sites

You will see from my signature that I was over 60 when diagnosed (by me, not by a doctor - they had missed it all these years) and once I found out about the gluten I found out about all the other things. Previous generations have put so much faith in doctors; I had not put my faith in doctors and knew they were misdiagnosing me, I just didn't know what the diagnosis was :angry:

Share this post


Link to post
Share on other sites

My father had DH but virtually nothing else in the way of symptoms. Yet he was highly positive at age 70.

richard

Share this post


Link to post
Share on other sites

I work with a lady whose husband was just diagnosed about 6 months ago and he is mid 60's. However she said he has had symptoms for at least the past 30 years and was misdiagnosed with everything but celiac. He missed out on alot of school functions and trips because of his debilitating diarrhea. He was a truck driver and always kept plastic bags and a bucket with him on the road. He went in for another EGD and the doctor didn't like how his bowel looked so the took biopsy samples and then sent him for blood work. Both were off the charts positive. What I would like to see is that when people go in for an EGD that a small biopsy becomes standard. As of right now for the most part it isn't unless there is concern from the start. If that was the case he probably would have been diagnosed alot sooner. SAD, but now he is doing great and enjoying trips to visit the grandchildren without bathroom fears according to his wife. Also I suspect my father has it, but according to his doctor his blood tests are normal. He has a very distended abdomen despite his weight, has been on protonix for longer than I can remember, had an operation when I was about 8 for some bowel that twisted and became gangrenous, low vitamin D and phosphorus, neuropathy in his feet, and below normal low cholesterol. He takes so many various "pills" to fix all the "problems". He is almost 64. My mom's doctor (same one as dad) is sending her in for a 72 hour stool fat test because something was wonky on her last blood work. I mentioned to her to get retested (blood) for celiac too. She has arthritis and osteoporosis bad and it is progressing because she can't take any of the medications for it because of bad reactions. She is the same age as dad. My dad has had previous EGD's but no biopsy and mom has never had one. I think they both should get it done with biopsy. I suspect at least my dad's would be positive.

Share this post


Link to post
Share on other sites
Ads by Google:


I am not 60 or even close (I'm 35), but I have no GI symptoms at all (except I have always been gassy- esp when I eat junk food).

My main symptom was that I had this nagging pain in my left upper quadrant near the lower left ribs. I was dx'd with costochondritis after having CT scans, XRAYS, and ultrasounds which all were normal. After the pain seemed to be getting worse I kept going to different Dr's (I've never even heard of celiac) and last week my rheumatologist did some random testing and it came back positive for celiac. Another symptom I missed- I have been iron def anemic for a while and never really knew why, I would take iron and it would go up, but the iron related levels (RDW, HCT, MCV, etc) would always be off, they never all went up to normal and my ferritin was very low (5). I had no clue this was all related. The rheum told me I needed to go to a GI Dr to have an endoscopy for get the official diagnosis.

I had my appt with him this morning. He told me that many celiac's don't get diagnosed until they are in their 50's or 60's.

What symptoms is she having? Is she anemic? I guess that is a biggy.

Share this post


Link to post
Share on other sites

I was 60 when diagnosed with celiac. I went to the dermatologist as I had a really wired rash. The Dermo biopsied the rash and called me and referred me to mayo to check for celiac. I could not believe it. So I have been eating gluten free and reading whatever I can get my hands on. Oh btw sure enough after lots of blood work and an endoscope I have celiac.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,932
    • Total Posts
      943,581
  • Member Statistics

    • Total Members
      67,246
    • Most Online
      3,093

    Newest Member
    Melissa Keipert
    Joined
  • Popular Now

  • Topics

  • Posts

    • In Austin, Wildwood Bakehouse and Wilder Wood Restaurant are totally gluten free.  I had the chicken fried steak and gravy and onion rings!!!  Awesome!!!  
    • Hi there I have this exact same thing.. however I don’t have celiac that I know of.. I found this when google searching for what the heck is wrong with my face.  I was wondering if you ever found out.. or if it just went away. Thanks
    • I have read the newbie 101 and have been careful about reading labels. I'm the only one that's gluten free in my household, so they could be contaminating me. I was eating gluten for 6 weeks after my blood test because it took that long to get an official diagnosis and my GP told me to still be eating it for the tests to be accurate. It was probably too soon to retest, but the test was accidentally ordered by the lab. I have been having an increase in joint pain over the last couple months and my rheumatologist ordered lab work. The lab saw the celiac panel had been ordered, but didn't see results so they added it on because they thought it still needed done.  My gut issues are starting to get better, but I'm thinking the joint pain might have been from the celiacs because all of the rheumatoid tests came back normal for the first time in twenty years.
    • Hi and Welcome to the Forum.  I am glad that you are here! As with a lot of things in life, try not to compare yourself to other people. You are trying to be the best version of yourself - not Jill, Annie, or Maya.  People make a lot of foolish decisions in the world and it does not mean that you should do it too.  Also, many people are gluten free for a lot of reasons that aren't celiac. One of my best friends has gluten sensitivity but not celiac.  He eats a lot of food that I won't touch due to possible cross contamination which he doesn't worry about too much.  Be true to yourself and keep your self healthy.  It is so hard, but it's better than getting sick! I hate not being able to partake in yummy food at parties, but I have learned what junk food I can eat.  I will make sure to buy some tortilla chips or Fritos for picnics.  I freeze gluten-free cupcakes to eat when we celebrate birthday parties (I can just take one out of the freezer and go).  I make sure to take a dish to share to potlucks.  I ask permission at restaurants and parties to bring my own food - no one has ever said no, and when there is a time to celebrate, I splurge on something I really like.  Fortunately, there are a lot of gluten-free foods that I really like. Do i miss pizza and really good burger? YES! And sometimes, I still feel awkward, but life is so much more than food.
    • If Small was going to get rid of anything in a takeaway meal, it would be the bread with all its dreaded gluten. However, many scientists and nutritionists argue gluten is not a problem for people who do not have celiac disease or who are not "gluten-sensitive". Massey University senior lecturer in food ... View the full article
  • Upcoming Events