• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Allergin Training Law
0

Rate this topic

7 posts in this topic

Recommended Posts

Yesterday I was in Manhattan near Wall Street with my wife's friend and I had a bad experience with a supposedly semi gluten free place. We were walking around at about 10:30 AM and we passed a place called Five Guys. A while back I read that they were supposed to have some gluten-free options. I walked in and it was not open but the staff was standing around talking, they said they would open at 11:00. I decided instead of waiting there or going back that I would ask if they had any gluten-free food. The response: What do you want free? What is gluten? They could barely say gluten. I tried to explain in English then I tried in Spanish and that didn't work so the guy asked me to speak English again and that didn't work. Finally someone that worked there asked if I wanted healthy food. Long before this I was embarrased and angry and wanted to leave. They didn't understand what the heck wheat, barely or malt is in English or Spanish. I said yes, healthy food. They said they don't have that just hamburgers, hotdogs, fries, etc. They said try POM, which is a health drink. They said there might be a store nearby. I said ok and left.

I don't know if this has been brought up before or not but I would like to propose an idea. It is not just because of this incident but many like it. I feel that the Celiac community is too silent on this and that we need to creat more of an awareness. I propose that anyone that opens any type of food store/restaurant has to be trained in allergins and that anyone that works there has to be trained. We should not have to carry around cards in Spanish, Chinese, Japanese, etc to explain it to everyone or have to verbally explain it to people who still give some blank stare and ask what.Having our own line of foods is nice but we should also have the option of going into a restaurant and order a gluten-free version of something without needing to explain it to 10 different people. I also make a point of this in asian restaurants in particular. My wife is Korean and when we go out to eat Korean food I almost always have sushi, especially if the waitstaff is looking at us like she is speaking Greek and not Korean to them. They could have a gluten-free soy sauce, that would be a lot better, we also bring gluten-free soy sauce but they already have the sauce on it sometimes if it's meat. Restaurants should also have things labeled as to what allergins are in foods and which can be removed. I don't just say this for gluten-free only I say it for anyone with any problem. Does anyone know of any such initiative by any group or individual?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I was talking to the manager of our local Smashburger which is not gluten-free. She said that they do not have an allergen menu. If they did, they would train the kitchen staff in it and she would have to make sure they were following the protocols at all times. She said they did not know the ingredients on everything they cook. She isn't being lazy, that is just what that company has chosen to do. I appreciated that she would be honest about this.

Five Guys does list an allergy menu. Some other places do too. But I know that sometimes the people that work in these minimum wage jobs are not interested, unhappy, uneducated, non-English speaking, etc. I think you just have to let it go if you can't make yourself understood. Email the company with your complaint. Some companies will want to fix the problem.

Share this post


Link to post
Share on other sites

I would love this!

My parents (in Toronto) went to a restaurant the other day called Joey's. Apparently their menu had little "G"s beside everything on the menu that was gluten-free, "V"s for things that were vegan, etc.

Because they are not gluten-free, they didn't eat anything and test for cc, but at least the menus are labeled clearly.

I'm sorry you had such a rotten experience. I too feel that many "mainstream" restaurants don't cater to gluten-free eaters, but also don't make it clear that they don't. I don't have a problem with a restaurant choosing not to be gluten-free (that's their choice, just like it's my choice to eat there or not) but they can't be wishy-washy about it. Some places will give you the allergen list and say they can accommodate, and then you get glutened. (I like to call that the Casey's Effect.) I would rather a restaurant say "Sorry, we can't guarantee anything" than get glutened.

If you are going to claim gluten-free options, actually do it gluten-free: have space in your kitchen that's separate, and have staff in your kitchen who are trained in allergins and know what gluten-free actually means.

Kareng got it right on: many restaurant employees are untrained or don't have the language capacity to fully understand what's going on, or they simply don't care.

I love the idea of having everyone trained about allergens - agreed, not just gluten, but also shellfish, eggs, milk, nuts, etc etc.

I think, at least for myself, the biggest problem is the confusion in restaurants and the chances for cc because people don't really know what they're doing. :(

Share this post


Link to post
Share on other sites

my daughter started working at ruby tuesdays in our town - I'm excited! she has been training all week and I am impressed with this company so far. yesterday they were educated in food allergens! I knew they had gluten free options but am still waiting to hear if they have separate cooking station b/c of cc. if they do, there's a place i'll eat and my waitress will be the most careful one on planet earth :))) she (and another of our daugters) also works at sonic. NOT celiac friendly lol. awesome binge food, though. when hubby needs a good dose of coney dog tots or whatever the krap they are... 'gimme some heart-stopping sauce w/that, would ya?' lol

I wish I had $$ I would open a totally dedicated gluten-free restaurant :) I wonder how far anyone would travel to eat w/o worrying about getting sick? we are 40 miles from the 'city' ...

Share this post


Link to post
Share on other sites

Here' a scary restaurant factoid that has nothing to do with gluten. In college, I worked in a pizza place. The county required everyone that worked there to take a 2-3 hr class on health codes and issues in a restaurant. That's great! I had not worked in a restaurant before, so I learned a lot. The scary part is that not all states or counties require any training for restaurant workers.

Share this post


Link to post
Share on other sites
Ads by Google:


I wish I had $$ I would open a totally dedicated gluten-free restaurant :) I wonder how far anyone would travel to eat w/o worrying about getting sick? we are 40 miles from the 'city' ...

I had the same conversation with my boyfriend this week, out of pure frustration - "Let's just open a totally gluten-free restaurant and tell everyone else to #@%^ off!" LOL :P

It would be nice to have more gluten-free options, but I'm happy to say that more and more gluten-free places (or at least gluten-free-friendly places) are opening up in Toronto. I hate having to worry about cc though.

As a side note: anyone in the GTA (or willing to drive) should hit up The Magic Oven. I ate there on the weekend (warily, following a glutening at Casey's) and it was awesome. The staff was incredibly knowledgeable, pretty much their whole menu is gluten-free (or with options, like swapping out the pasta or pizza crust) and the gluten-free food actually tastes like FOOD.

Share this post


Link to post
Share on other sites

I ate at a Five Guys outside Media PA and they were wonderful.

They have a dedicated fryer as all they have are FF in peanut oil.

Potatoes are shipped in fresh and cut there each day

They knew about no bun etc. It is my understanding that they assemble the burgers on a counter we can watch and they would use fresh gloves for my order. Buns toasted on one grill and burgers cooked alone.

BUT as we know, each restaurant is only as good as trained employees.

I got a Red Robbin Manager and actually trained him about gluten-free and gave him one of my Thompson cards.

He ordered a set and had them hanging in the kitchen for employees

He even bought some olive oil for me to do FF in as i couldn't use the oil as it had soy. He would cook and watch the pan as the corporate wouldn't let him really use b/c of the high cooking point. Guess there is some risk there so he would do it himself.

So, if you like a place and like the manager and he/she is open to this it can work. I also did this at a neat place in Cape May NJ. They started ordering gluten-free bread after we moved to CA in October

I know that there are allergy guild lines out there but whether or not a establishment follow them is really up for grabs. At least there are many more restaurants and people who are aware of gluten allergies now than when I started this journey 6 years ago. I've seen alot of encouraging progress.

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,146
    • Total Posts
      939,919
  • Member Statistics

    • Total Members
      66,132
    • Most Online
      3,093

    Newest Member
    Whhyyy
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yes I eliminated high glycemic foods. Eating only small amounts of carbs. No fruits, added sugars, starchy grains. Eating lots of fibrous veggies. Eating olive oil, as I don’t seem to tolerate the saturated fats or MCT oil. Allergic to nuts and seeds unfortunately.
    • Just wondering if you have an update at all? Going through the same thing at the the moment with my type 1 14 yr old. I would be interested to know what your gi said and how your daughters doing now? xx
    • Please check the date on post, you just responded and tried talking to a person from 7 years ago. On consideration to the subject Poatoes are a huge flare factor for my UC and cause my blood sugar to sky rocket...I am not even diabetic but for some reason potatoes (hash browns) that I tried a few months ago with some eggs shot it up over 400. not even a control test with table sugar managed that.
    • Have you tried eliminating high glycemic foods? Fruits, added sugars, starchy grains, potatoes. etc? Also adding in slow digesting fibers and fats can prevent insulin spikes, MCT oil is also known to help and protein. Many find consuming nuts and seeds higher in fiber early on in the meal or before a meal can slow down insulin responses and prevent spikes. I always tend to eat a hand full of whole shell pumpkin seeds, hemp seeds, cocoa nibs, etc. while fixing my food, this gets me starting to feel fuller sooner, and seems to help in over all down the road. I know I had some references somewhere to these. I know I read somewhere about the antioxidants in in whole shell seeds like pumpkin and hemp also helped the body regulate insulin levels.
    • Dear AWOL Cast Iron Stomach, Your husband is right bread is bad for you. Of course it's more than bread and gluten, until now it was amateur hour trying to self diagnose and tame this "lion". However they let you down. You slipped through the cracks over and over again it is not your fault your not the Dr. You made mistakes and errors acting like a celiac , not knowing for sure you were, and not feeling like you could fully claim to be or reach out for support . Now you know your husband was closer than any Dr. up until now to determine your illness. Now something is in your record, now hopefully you will be dismissed less,respected more, maybe they will realize its an actual condition going on- not all in your head. Will they? Who knows! Do you care? This is now official, now explained, you not only have to give up gluten, but milk, and corn. In fact give up 98% of processed anything. The cluster of lifetime symptoms were not  "just you", "in your head", "you are not a difficult patient", "when the Dr or nurse looks at you like a nut job you don't have to feel the dismissiveness and condescension. It's an illness and nothing to be shameful of  what is shameful is they and their colleagues missed you failed you. In fact being missed for 4 decades is unjust to you. You were missed time and time again from age 5 to 43, decade after decade after decade, symptom after symptom. It's not that you didn't try from the 5 year old begging to go to the Dr, to the 20 going to the hospital again for another bout of gastroenteritis hoping to get an IV, to the thirty year old saying something is wrong why is this happening, to the forty something a restaurant fed me gluten when I asked for gluten-free, I have been gluten free for 3 1/2 years ,  I have more symptoms and pain than before . I felt so good for those gluten-free years- please help me-make it stop. So many things explained it makes you experience a range of emotions. Grateful: Relief and gratefulness someone finally agreed to send you to someone to test you. She saw past the other diagnosis' and the albatross IBS diagnosis. All the ages and stages of symptoms are explained they all fit. Everyone of them! Someone else also has had them. You are not alone. Read the forum-you fit like a glove. Anger: Anger for the way you have been treated by the medical community, family, some ex boyfriends, friends and coworkers. Anger for the length of time you endured this. Hurt: Hurt for the times people said unkind things to you when you were symptomatic or flaring . you are experiencing symptoms that change your body people are rude to congratulate you on a "pregnancy" you didn't announce or ask why you are not slim when you hardly eat. you are not over emotional -  you are suffering from neuro symptoms, you are not making this up for attention Sad & Guilty: Can I work again? Do I want to work again? What kind of work can I do now? Can I find a job and work PT from home? You didn't envision this your husband having to be sole bread winner now what? I am overwhelmed thinking about this-stop? You now have closure and know how and why you lost your first pregnancy. You now know why you were high risk, complications,  with your children in Pregnancy & Delivery that they couldn't be explained back then It explains why in pregnancy you lost weight and why your morning sickness was extreme and seemed to last longer than anyone you knew,  that your Puppp rash was likely misdiagnosed DH It is not your fault none of it. Please forgive yourself for what you did not know. Your children forgive you. Believe them when they say its not your fault. You can cry, but you can no longer blame yourself. You are a good mother just one with an illness your children will learn to accept. Withdrawn: Why are you withdrawing from your husband? Should you ask him if he wants a divorce? Should you push him away? You didn't know before marriage what was happening you knew something autoimmune was brewing shortly after, but nothing showed on tests. Was this unfair to do to him? Doesn't he deserve someone better? Someone well? Now you can't retire and travel the world as society retirement cliché dictates. Can you afford this illness ? How will this financially impact your spouse, your family?. Why did you do this to this poor man? You are so selfish, you wanted marriage and kids, but was this fair to them? Don't your kids deserve a healthier mom? How will this impact them? Oh my gosh are they going to get this too? Will they grow to resent you? Your illness and diet has taken over their lives! Oh gosh no one say hi to me-please. I hate people and I am too sick to pretend and be fake friendly today. I don't want to tell you I am ill. I don't want to talk about this. I have to absorb this. I hate you people for being healthy. Don't tell me I don't look well. I will snap, I don't want to snap, I am irritable ,and don't feel well. Just keep giving off the unapproachable vibe keep them away.  Am I strong enough to do this? Acceptance: Calm down the inflammation, lack of nutrients, and GI damage is messing with your head. Your husband said for better for worse. Your kids have no choice you are their mother and you are a good mom -you have always been, always will be even on your worst day. If they get this they will be ok. You are strong enough to do this you are just ill and most importantly you must remain here in case they get this so you can guide them and be there for them. Got it? Go on the forum you are not alone it will be ok. You will get this lion back in the cage and manage it. It will be ok. If you can't travel in retirement one day you will find other hobbies or things to occupy your time. He's not going to leave you over this. If he does it will be ok. You'll manage-you always do. You have an answer, you knew it was coming, keep reading, learning, seeking support, and one day it will all work out. You will process all this and will be at peace-until then keep going and above all AVOID GLUTEN!    
  • Upcoming Events