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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Night Sweats
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Do you have night sweats?   139 members have voted

  1. 1. Do you have night sweats?

    • Yes, all the time.
      79
    • Only when glutened.
      40
    • No.
      17

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151 posts in this topic

One post mentioned a previous post about mold, but I couldn't find it. I wanted to mention, though that peanuts are high in mold content. I'm slightly allergic to mold and have to watch both how much peanut butter I eat and fruit juice. They don't use all the pretty fruit for juice.

I only have night sweats related to glutenings.

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OK- This is REALLY weird. I sat down with my food journal last night and casually went through it and it looks like peanut butter might be the culprit???? I need to do a more methodical chart or something but how weird is that??

Peanut butter :lol::lol:

Well it's something to start with anyway. It's so good too. Wouldn't that be something if eliminating peanut butter makes a difference for you?!?!

One post mentioned a previous post about mold, but I couldn't find it. I wanted to mention, though that peanuts are high in mold content. I'm slightly allergic to mold and have to watch both how much peanut butter I eat and fruit juice. They don't use all the pretty fruit for juice.

I only have night sweats related to glutenings.

I had read something very interesting some time ago about peanuts and their high mold content and that people who have severe allergies to peanuts (the ones who can die if they eat peanuts) are actually reacting to the mold than the peanut itself. It apperently is a very very toxic mold.

But you can just about read anything about everything anymore, who knows if it's true.

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Patti- You are BRILLIANT!!!!!!!!! I didn't realize they were both legumes. It explains a lot. Yesterday I aate a Bumble Bar and felt funky after. Now, it has no soy or gluten, but it does have PEANUTS! I sweat like mad last night- I even soaked my husband's side of the bed. And today my gas is exceptionally smelly and my joints ache! I bet that's what it is. I'm going to do some research and post in the Related Disorders section to see what people know. Thank you, thank you thank you!

Regarding the mold- I have far less night sweats when I sleep somewhere other than our apartment so we think there's a mold connection so maybe I am reacting to the mold in peanuts. It would be nice if I didn't have to cut out ALL legumes because I like beans, chickpeas, etc.

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Bev--I'm glad that the legume thing struck a chord--the legumes are what took me the longest to figure out! I love peanut butter, and was bound and determined not to give that up, too! But on the days I ate it, I would get the bad gas :ph34r: and the sweatiness. The gas was so bad, I literally was afraid to be around anyone--seriously! Add to that, I was also eating green beans *every darn day* on my salad :angry: ! (I didn't realize they WERE legumes until I checked to make sure) When I finally cut out the legumes, it was like the "last piece of the puzzle" for me. I hope it will be for you, too! :)

I also want to add that I just turned 50, and had my hormone levels checked last month. I am right on the border (according to my Gyn) of where it would indicate menopause. I don't get night sweats anymore--and I used to get them often, and had since my 30's. At that time, I used to eat a ton of beans--for a while back then, I toyed with vegitarianism and ate beans and rice, chick peas, etc, often. Interesting how all this stuff fits together.

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Patti- You rock! I just went back over my food journal with a fine tooth comb and it's peanuts for sure. And soy. I don't eat a lot of chickpeas and lately, I just haven't been craving hummus as much as I used to (strange, eh?). The last time I ate chili I felt really sick and I thought it was because I didn't cook the beans well enough. but now I wonder.

I don't eat green beans a lot but I LOVE them. Oh well.... nothing is worth soaking a bed (well maybe an occasional peanut butter indlgence here and there :ph34r: ).

What are other legumes so I know what else to avoid? Have you tried any other nut butters? THANK YOU SO MUCH!!!!!

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Patti- You rock! I just went back over my food journal with a fine tooth comb and it's peanuts for sure. And soy. I don't eat a lot of chickpeas and lately, I just haven't been craving hummus as much as I used to (strange, eh?). The last time I ate chili I felt really sick and I thought it was because I didn't cook the beans well enough. but now I wonder.

I don't eat green beans a lot but I LOVE them. Oh well.... nothing is worth soaking a bed (well maybe an occasional peanut butter indlgence here and there :ph34r: ).

What are other legumes so I know what else to avoid? Have you tried any other nut butters? THANK YOU SO MUCH!!!!!

Legumes are all the beans, soy, kidney, black, pinto, etc. and peas, and then green beans (thanks to jersey, I didn't know this either), lentils, peanuts, that's all I can think of.

Probably includes wax beans too.

Almond butter is great, I am not doing so well with nuts for the time being so I avoid it, but I love it. I've also tried cashew butter and I like it as well.

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Bev--Julie listed the legumes--and yes, wax beans are legumes. :( Chick peas and split peas, also. :angry: As far as nuts, I can do almonds--but right now, almond butter is too concentrated for me. I stick to the smaller amount in say, a Lara Bar or a few plain almonds. I don't want to rock the boat!! :D But I do miss nut butter with apple slices...

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thank you both so much!!!!! I'm looking forward to being legume free. Maybe it's the last piece of the puzzle for me (i hope). Hugs, B

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thank you both so much!!!!! I'm looking forward to being legume free. Maybe it's the last piece of the puzzle for me (i hope). Hugs, B

I hope so too! Keep us posted as to how it goes :)

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Well- last night wascertainly better than the night before! Much lighter night sweats.

Bought some organic almond butter today but I'm goin to hold off trying it for a bit. Hugs, Beverly

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I began having night sweats at the same time that I developed gastrointestinal symptoms of Celiac a month ago. Sweating is a way the body gets rid of toxins, so perhaps this is a good thing, though annoying. I often need to change my undershirt once a night, but the sheets stay mostly dry, so I don't have them as bad as some here have reported.

As a side note, I was a celia baby starting at age 11 months. I was put on a carb-free diet for two years and then gradually reintroduced to normal foods. For my entire life I ate everything. Aside form some bloating when I ate a lot of hard pretzels, I never had any GI symptoms. At age 56 I began having all the symptoms again. This followed a series of very stressful events over the past two years.

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Very interesting...I've been attributing my night sweats to perimenopause...sure would be nice if they'd improve after going gluten-free!

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Please see your gyno, I started perimenopause at about your age and by 41 my periods had stopped. I was told it (the peri) was 'in my head', just like my IBS, fibromyalgia and incontinence. Everything has resolved in the 2 years since diagnosis and my gyno told me he sees signs my periods may start again. (at 48!) Stay gluten-free and talk to your doctor.

I am blown away by what you wrote. I sometimes have night sweats, though not often. I am having serious itching down there, but embarrassingly have had all VD tests recently, even though I and my husband have been monogamaus for 7 1/2 years, and have had 2 kids (4 & 1 1/2). All cultures come back normal: I know I am not my "norm". I don't get it.

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Never used to get night sweats until a couple years ago, when I started getting them a few days before my period would start. Then got them when I was pregnant, and the regular postpartum sweats...only thing is, my baby is 4 months old now, and it hadn't gone away. I haven't had night sweats since I went gluten free though!

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After I went down with Celiac in 2005 (but was misdiagnosed as Crohn's) I had night sweats really, really bad. Five t-shirts a night and a couple of towels was the norm. After I went gluten free in 2009 the night sweats tapered off and now they are rare. Instead I have really, really bad insomnia, up 4 - 6 times a night. Will be visiting the insomnia thread soon.

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I am blown away by what you wrote. I sometimes have night sweats, though not often. I am having serious itching down there, but embarrassingly have had all VD tests recently, even though I and my husband have been monogamaus for 7 1/2 years, and have had 2 kids (4 & 1 1/2). All cultures come back normal: I know I am not my "norm". I don't get it.

I have night sweats too. Not severe, but enough to wake me up and toss off the blankets.

If you have been tested for yeast infection and STDs and are ok..apply coconut oil topically. It stops the burn and itch immediately.

It contains caprylic acid which knocks out those itchies.

I took some of the coconut oil that I use for cooking and put it in a small container which I keep in the bathroom to apply as needed. Makes a good lubricant too. ;)

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ITA this is really a good post! I wake up all sweaty and froze to the bone... My bottom sheet, hair and pillow are wet...

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yep but having with my estrogen pills I am taking .. could be gluten but dont know yet

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I had it really bad for a few months after starting to go gluten free! I'm 21 and was 20 at the time so it's obviously not menopause, and while it's not as bad anymore more I still think I'm having some. The AC in my apartment can be really funky sometimes so it may be that but I'll keep my AC below 70 degrees at night and I'm too skinny so I'm almost always cold. I'll falls asleep covered in blankets, wake up drenched freezing and burning up at the same time, and then wake up again usually right before I have to get up once again freezing. I think now it's a combo of my body and my AC hating me at the same time, but I'm moving soon and I'll have a roommate to help me figure out if its me or our house!

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This is the number two difference I notice with my daughter when she gets gluten. Sleeps way more than usual (12 plus hrs) and sweats when she naps or sleeps.

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I am one of those people who always want to know WHY things happen. I have been getting night sweats when glutened. Does anyone know why we get this?

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No. never had night sweats in 30 years of GFD. Night sweats is listed as a GABA deficiency physical symptom. It is a brain chemical (gamma-aminobutyric acid) which controls anxiety/panic. Also, nervious stomach, IBS, muscle tension/aches,headache, dry mouth, diarrhea, etc(42 in all).

I have sleep apnea but quit using cpap/full mask treatment. never could get use to sleeping with it. The worst two months ever. Poor sleep, It wasn't for me.

I started (Dec.17,2012 on my own) taking GABA, 750mg, 2x/day and I fall asleep faster, Feel less tense during the day, less headache (also a symptom of celiac disease), With my headache came sever eye pain w/tearing & burning. I don't believe it's allergies. I could not read, use computer or think well. The eye pain has now diminished and I function better during the day. Headeache remains but less pain.

GABA is an OTC supplement. Found mainly in the brain(also in the gut's enteric nervous system) and eyes. Suggested use; 1-3/day. "Best taken without protein." To date, I don't why? I wait 30 minutes before eating. Probably some absorption issue. Have no side effects.

Try it, might help you.

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I am a male 82 yrs old and I do get some bad night sweats but have been without them for 2 months. I also have movement disorder and use crutches and wheelchair, I am plagued by spasms in my neck area that twist my head and causes a lot of pain. Doctor put me on a muscle relaxer and I ended up in the emergency room. my main problem at this minute is my appetite seems very bad and I fight with my wife who thinks I just don't like her cooking so she wont cook for me anymore. I eat eggs fried and have peanut butter on toast every morning. it seems like he only things that I tolerate now. I want to try to see if gluten free will help at all and going to give it a try. I have had cancer of the neck about 12 years ago and think a lot of my problems started about that time.   Jerry

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Gelu65, I'm so sorry to hear that you are having such a hard time right now.  I hope you can find yourself a great family practice doctor or geriatrician - someone that will really listen to you. I don't think it's wrong to try a gluten free diet, but there are many causes of night sweats including thyroid problems, medications, low testosterone, and even cancer. The best way to find a good cure is to find the right diagnosis!

Best of luck.....

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2 hours ago, gelu65 said:

I am a male 82 yrs old and I do get some bad night sweats but have been without them for 2 months. I also have movement disorder and use crutches and wheelchair, I am plagued by spasms in my neck area that twist my head and causes a lot of pain. Doctor put me on a muscle relaxer and I ended up in the emergency room. my main problem at this minute is my appetite seems very bad and I fight with my wife who thinks I just don't like her cooking so she wont cook for me anymore. I eat eggs fried and have peanut butter on toast every morning. it seems like he only things that I tolerate now. I want to try to see if gluten free will help at all and going to give it a try. I have had cancer of the neck about 12 years ago and think a lot of my problems started about that time.   Jerry

Hi Jerry,

We try and encourage people to get tested for celiac disease before starting the GF diet because it is much easier to be tested then.  Going off gluten reduces the antibodie levels in the blood stream so testing won't be accurate after being gf.  Some people don't want to bother with testing though or have some reasons they don't want to do it.  That's ok , it's but it's good to know that it is harder to be tested later and possibly  more painful later.

Going gf is basically changing to much healthier diet if you do it right IMHO.  Doing it right means avoiding all processed foods, dairy, and sugar and carbs.  Instead eat meats, veggies, nuts and eggs.  These are all whole foods that don't usually have much in the way of added ingredients.  So it is pretty simple to know you are staying completely gf if you eat whole foods.

If you do have celiac disease, even the slightest little bit of gluten (wheat, rye and barley) can irritate your system and increase the immune response.  The immune response can last weeks to months, so its very different from a simple upset stomach.  Celiac disease can affect any part of the body, including the gut, nerves, brain, joints, skin, reproductive, hair etc. One of the possible affects is gluten ataxia which is when the immune system attacks cells in the brain/  It can even cause something called UBO's (unidentified bright objects) that will sometimes show up in in MRI's of the head.  Gluten ataxia makes it hard to coordinate muscles and walking can be difficult.  Nerve effects seem to take longer to improve than some other affects.

Welcome to the forum gelu65 :)

There is a Newbie 101 thread in the Coping with section that has getting started tips.

 

 

 

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    • Former lifeguard and competitive swimmer here. There could be some potential issues, but I think it's pretty unlikely. Here's why I think that: 1. The water volume in a standard 25m pool is enormous (hundreds of thousands of liters). Assuming there are people swimming in the pool, any hot spots are likely to get dissipated pretty fast, so you'd have to swallow a lot of water to get a serious gluten hit. 2. By law (at least in Canada), the water inflow and outflow rates must be such that the volume of water that makes up the pool must be replaced every 24 hours in public pools. There are always some dust bunnies, bandaids and whatnot trapped in the corners at the bottom of the pool, but the main volume you're interacting with gets replaced regularly, so no build-up. Public pools are also vacuumed on a regular basis. For cleaning agents, typically on bleach and baking soda are used in my experience. Private pools are another story and there no guarantees. 3. Most public pools prohibit food on deck due to public health regulations and/or wanting to avoid cleaning up messes. This limits potential sources of gluten to personal care products on other people's skin. Considering the volume of a pool, I'm having trouble imagining this resulting in a significant exposure, but I have also swam in packed outdoor pools that taste like sunblock, so who knows. I would definitely worry if people were eating hot dogs or shotgunning beers in the pool though (definitely a thing at backyard pool parties). 4. Pool chlorine can be either tablet based, liquid based or gas based depending on the pool. Either way, it is bleach-based (sometimes literal bleach gets dumped in smaller volume bodies like hot tubs when the chlorine is off). The pool I worked at, which was newer used liquid injection, and I would imagine this is true of most newer facilities (gas is undesirable as it can leak and kill people because it is odourless - some older pools still have this set-up though). Tablets are more common in backyard pools, and it's possible that these might contain gluten in some form (I have no idea and have never checked).  For reference, the concentration of chlorine in a swimming pool should be between 0.5-5 ppm, depending on the pool temperature and your region (lower for colder pools, higher for hot tubs).  So, I guess my opinion would be that a public pool is most likely pretty safe from a gluten perspective. Chlorine (or rather, the volatile gases resulting from the reaction of chlorine with biological waste in the pool) is an irritant though - occupational asthma rates in lifeguards and swimmers is quite high. Some people are more sensitive to this than others. My dad cannot swim anymore because he becomes ill for a week with severe upper respiratory symptoms (open water swimming is ok). I get similar, but less severe symptoms (part of the reason I don't swim anymore, sadly). Not sure what symptoms you experienced, but something to consider. http://www.ncceh.ca/documents/practice-scenario/pool-chlorination-and-closure-guidelines
    • I look back at photos from a few years ago now and can see the inflammation in my face. I spent decades with my body fighting constantly without my really being aware. Freaked me out when I realised! Few things to think about: If up to 1% of pop are celiac, at much as 6% could be NCGS - further reading here: https://www.celiac.com/gluten-free/topic/117969-non-celiac-gluten-sensitivity-a-resource/ NCGS can present in the same varied ways as celiac - Not just or even primarily gastro related. I get back pain, chest pain, skin problems, eyesight problems, anxiety, depression, balance issues, nerve tremors and twitches etc. etc Try to treat these next months as a special case. Dial your diet back and eat really basic and simple. I lived on omelettes filled with veggies, huge green salads with olive oil and cider vinegar as dressing and a very simple evening meal with maybe some meat and rice. I ate as little processed foods as I possibly could. So try and avoid sauces, anything in a box really.  Your aiming to help your body heal and to reduce the amount of ingredients going in to the basic safest foods. Eat clean and healthy and avoid any possible gluten source. Spend a bit of time learning about hidden sources of gluten too. This thread will help:  https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/   Final point. You may like me eventually have to live life without gluten and without the comfort of a diagnosis that says precisely why. This is not always easy, but what you learn about your body in the next 3 months of this trial could help you to do this. Keep the diary, note your reactions and hopefully when you see the Rheum in 3 months you'll have conducted your own science experiment and have the data you need to make a good decision. Best of luck Matt  
    • Newly diagnosed, who do I tell? I'm not talking friends & family. I am normally private about health matters but I feel it seems I need to tell so many people. Does anyone have a list? Some are obvious like doctor and dentist but one came up for me the other day when my massage therapist asked if I'd had any changes in my health and I said no but halfway through the session realized that, "Duh I should have mentioned Celiac! Clearly the lotion used could be an issue." So who is on your list to tell? Here's who I have so far: Doctor(s) Dentist Restaurant Servers Massage Therapists Hair Stylist Babysitters, Petsitters or Housesitters (anyone who might bring or prepare food in my home)      
    • Hey, I am learning also...make sure you are taking a good multi-vitamin...gluten-free of course.  I have had a few "charlie horse" pains in my thighs and am taking an extra B12 tablet...If you have an ALDI grocery store nearby they have lots of gluten-free items snacks and frozen.  Vitamins will help...you are not getting enough nutrients with what you are eating.
    • I feel the same way! Newly diagnosed (gluten-free since July 1) and never had major GI symptoms mostly neurological issues and other very random stuff. So no red flags to tell me, "You just glutened yourself!" Or at least I haven't identified them yet. I'm not sure if I'm feeling better or not yet. I do have more energy but lots of anxiety and random symptoms that might be celiac related... but who knows. I'm just not sure if this is what "feeling better" is yet. I can't imagine what that is like... or will be like. And I keep reading about people "getting sick" when they are glutened but that is so vague. For me, I'm not sure I'll know if I've actually been glutened or not. I feel like I'm extremely careful but I'm not sure if I'm being over the top, or if I'm doing it right, or not enough and need to do more. I'd just like to get to a nice gluten-free baseline and note what that is like so that I can compare how I used to feel and how I might feel if glutened so that I'll know! Sorry, didn't mean to hijack your thread and provide no answers. I can just relate, that's all.
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