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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Brand New Member From Canada
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Hey all,

I'm brand new to this site and also brand new to this gluten allergy. I have suffered from horrible chronic digestive disorders for a few decades. Of course I was told I had "IBS" and that I would just have to live with it. I had seen countless doctors and specialists, had various tests and colonoscopies and tried tons of different things to eliminate my sysmptoms but they never stopped. Blood tests always tested negative for celiac so I never bothered eliminating it from my diet.

2 weeks ago I did some new tests with a Naturopath who specializes in digestive issues. She told me that from samples I had sent that I was severely inflammed in the colon and had horrible malabsorption and that I potentially had a gluten allergy (she said not all celiac blood tests are 100% accurate). Anyways, she told me to completely eliminate gluten from my diet. I said I would but I was very skeptical and uninspired that anything would change, as chronic "IBS" symptoms have been the story of my life without any improvement. Anyways, the first 3 days I didn't notice any difference, then all of a sudden on day 4 I felt like a new person. 1 solid bowel movement a day and that was it. No colon spasms or pain. Minimal bloating. Today is day 6 and I still feel really great.

My question is will this last? I don't want to get too excited as it may be placebo but I can't help but feel completely happy and excited that this may be the answer to my life long problem. Is this really it? Is gluten that bad and eliminating almost instantaneously made me feel better??

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Welcome to the board from a fellow Canadian.

Yes, in many cases the symptomatic relief is very quick, and permanent.

In my own case, although I felt improvement immediately, it took some time for my symptoms to go away. I had severe atrophy of my villi, and they don't regenerate overnight.

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Thanks for the quick reply. And thanks to everyone who participates on this forum, it is such a helpful venue. I guess Celiac or wheat intolerance in my case is a blessing as it seems to be the answer to my chronic problem. Of course it limits me in many ways and makes day to day life more challenging, however the alternative, my previous symptoms were an absolute nightmare. It has only been 3 days of relief versus 20 years of suffering but i have a good feeling about this. I hope I can finally find some relief. Who knew?

Anyone else out there suffer for years with "IBS" symptoms and tried everything with no relief only to go non-gluten and find that it changed you for the better dramatically?

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Yep. I did. I had stomachaches all my life and diagnoses of "gastritis" and "IBS" along with a bunch of other health problems including borderline anemia, canker sores, and psych problems. I felt better within a week on an elimination diet and eventually narrowed the problem to gluten. My stomach functions pretty much normally now.

The diet is a pain, but it beats drugs and still feeling crummy!

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Thanks for the quick reply. And thanks to everyone who participates on this forum, it is such a helpful venue. I guess Celiac or wheat intolerance in my case is a blessing as it seems to be the answer to my chronic problem. Of course it limits me in many ways and makes day to day life more challenging, however the alternative, my previous symptoms were an absolute nightmare. It has only been 3 days of relief versus 20 years of suffering but i have a good feeling about this. I hope I can finally find some relief. Who knew?

Anyone else out there suffer for years with "IBS" symptoms and tried everything with no relief only to go non-gluten and find that it changed you for the better dramatically?

yes, it's permanent. I've been doing it for 20 years and was just happy it didn't require meds. Haven' found it all that difficult and these days it is even easier with more products available in regular markets. Never had much of a problem in restaurants sticking with grilled or roasted things. No fried with breading or sauces.

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Welcome to the site Wing! Lots of people actually have the symptoms for years before being diagnosed. That's actually one of the common grouches around here that the doctors are so clueless seeming and slow to suggest celiac or gluten intolerance.

In my case I felt better within a few days but also still had months of learning to do (set backs) before I really understood how to eat gluten free. Gluten hides in lots of places and it takes some serious effort to eliminate it. There is also the possibility of developing additional food intolerances over time, and that is not rare according to what I read on this board. So don't be surprised if you seem to go backwards sometimes, as it is not unusual.

Anyway, stick around and read, read, read. We all have our stories to tell and axes to grind and we can all help each other by sharing.

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Wow thanks everyone for the positive replies. I will def keep an eye out for any new "intolerances" that may appear. I can't begin to express in words what a relief the last 72 hours have been vs the last 15 years. I'm dying for a slice of pizza and a pint of beer! but the fact that i know now it will make me sick makes staying away from it all that easier. I'll take your advice and continue to read read read as much as I can and learn from everyone here who has been at this longer than me. Wow, again, I hope this actually is permanent. I dreamed of a day like this for so long.

I think all my doctors and the last 4 gastrointestinal specialists I've seen should have a conversation with my Naturopath - they may learn something!

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I'm dying for a slice of pizza and a pint of beer!

You can have both of those. Gluten-free pizza is available at some outlets, and there is gluten-free beer as well. It is late. I will post details tomorrow. :)

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You can have both of those. Gluten-free pizza is available at some outlets, and there is gluten-free beer as well. It is late. I will post details tomorrow. :)

Thanks psawyer - looking forward to it. I live in Toronto and am in Markham often for work, so any suggestions would be very much appreciated.

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I live in Markham (Unionville), but own a business in North Toronto (Yonge/Lawrence area).

There are three gluten-free beers available in Ontario, although I have yet to find a restaurant/bar which stocks any of them. I usually drink wine when dining out.

Two are made by a microbrewery in Quebec and the other by a brewery in Wisconsin. All three are listed at the LCBO, but inventory varies by location. Use their web locater, or you can order at any store.

Messagere from Nouvelle-France The red ale is available in selected Beer Store locations.

New Grist from Lakefront Brewery

You can get gluten-free pizza from Pizza Pizza and Pizza Nova in medium size, and from Boston Pizza in personal size. Il Fornello is a chain in the Toronto area that has gluten-free pizza and pasta. In every case, the pizza crusts are made elsewhere and delivered to the pizzeria ready to bake.

We make our own pizza crusts from the Gluten Free Pantry mix and love them.

You can have beer and pizza while on the gluten-free diet.

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I think all my doctors and the last 4 gastrointestinal specialists I've seen should have a conversation with my Naturopath - they may learn something!

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Yup..I've been up and down with the gluten elimination...but more up which is great. I know this will just take time as I have been eating gluten for 31 years so I know it will take a bit to get completely better. Patience.

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