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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Back To Eating Wheat

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Does anyone know if you are diganosed with celiac and went back to eating wheat wouldnt you start having problems again with diarrhea? I went back to eating wheat because i had 2 different doctors and 1 said yes i have this and 1 said no, have been eating wheat for 3 months and no diarrhea but have problems with sores in mouth?

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If a doctor told you that you had it then I would say you have it. Doctors don't just diagnose celiac. Alot of doctors don't know what they should either so I think I would believe the one that said you have it.

You don't have to have symptoms with celiac and they do not necessarily have to come back. The point is the damage that it is doing will eventually catch up with you whether you feel the symptoms or not.

What tests did you have done that caused the doctor to diagnose you with celiac?

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I had the endoscopy and colonscopy done and the biopsy on one of these tests came back Celiac disease, i cant recall which test said postive. After the doc retired that said i had celiac disease i went to a new doc, he gave me blood tests and these came back negative for Celiac so the new doc told me that i dont have it! I have been eating what i want since March but dont have diarrhea like i did when i was diagnosed, but i continue to have sores in the mouth.

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If you had a endoscopy done and that was positive then you have celiac. Even if you had symptoms before and don't now that does not matter. Symptoms or not and when they appear or don't appear does not tell anything about celiac. You still are getting damage. I think that this doctor may not know as much about celiac...you were diagnosed because they found damage caused from gluten in your intestines. That doesn't change with time...gluten will always do that to a celiac.

Were you ever gluten-free at a point? That can interfere with results of tests. You could have been IgA defiecient and that could have cause blood results to come back negative when they otherwise would be positive.

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I have to agree with Kaiti. It sounds like you have celiac if the biopsy was positive. The blood tests were probably negative because you weren't eating wheat at the time maybe, but it is still doing damage.

If I were you I would maybe even contact the place you were first diagnosed to see what your medical history says and what tests were done. Then I would also read alot of research on celiac on the computer so you can be aware of the disease. I have heard mouth sores are a symptom. Maybe someone else can be more help in that department.

Good luck,


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My uncle does not specifically get mouth sores, nor does he get diarhea. However, within 8 hours of eating wheat, rye or barley, his face and arms break out in a rash of blisters.

Diarrhea and stomach pain are not the only signs of celiac. The mouth sores you have could well be the dermatitis symptom.

If the new blood tests were for the antibodies, you very well could have tested negative, because your time being gluten-free had allowed your body to heal.

I had the blood test done last fall, and my test came back negative, it would be real easy to tell myself see the test was negative I don't have Celiac. But the truth of the matter is, the intestinal problems I was having before the test had diminished significantly in the months just before the test, when my gluten intake had been diminished. And the week before the blood test, I ate gluten at every meal to test the theory, and by the time I went in for the blood work, I couldn't sit in the waiting room for more than 15 minutes without a trip to the bathroom.

When I showed the family doc the info about Celiac, he agreed to run the blood test, but he told me before I left the office, "The food challenge has already given you the answer. Your body cannot tolerate gluten, and it thrives when you eliminate gluten." So, I don't have a 100% iron clad diagnosis of Celiac, but I know my family history, grandmother couldn't eat wheat, uncle has Celiac, Dad has faced the fact that he has it to some degree, and we suspect many others in the family have it but won't admit it. I have a 1 in 20 chance of having the Celiac genes....and I have the symptoms. I have Celiac, I just don't have to pay $300 for a DNA test for it.


I'm in a special club in my family

I have Celiac

what a heritage.

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    • All the above plus, "oh, so you can't eat bread".  And being oblivious to undiagnosed celiac disease causing myriad organ/nerve damage.  
    • Might help with ease of digestion, and there is studies that show it helps in the breaking down of carbohydrates so it helps reduce gas, bloating, and indigestion, But not really helping much your immune system attacking your intestines trying to kill the gluten, Still going to get damage and stuff in the background.  I use it in making dairy free cheese, and sauces to give it that "bite" I also use it in baking in combination with baking soda subs and baking powder for rising gluten free and yeast free baked goods.

    • If flying I do not know, I normally take a car or train. And I bring chef kit with a griddle, and nordicware cookware. My thoughts, bring meal replacement shakes, jars of nut butters, and protein/nut bars, Perhaps crackers? I know they make some gluten free ones (I can not consume most as I can not have carbs or grains). I honestly make Nut meal/butter porridge out of coconut and almond flour with almond butter. I add extracts and stevia for flavor and sweetener. Other thoughts for cooking in your hotel room. Noridicware makes microwave cookware, grill sheets, steamers, omelette makers (know you can not), rice cookers. etc. You can bring these in your luggage easier and just use the microwave or request one in your room. This way you can say have steamed fish and veggies, bacon, rice, porridge, etc. and fix it safely right in your room.
    • If you are celiac you HAVE to be gluten free no matter how inconvienent it may seem to you.  Your body is clearly telling you to stop cheating on the gluten free lifestyle. If you need help with identifying where you can improve we are here to help in any way we can. You need to go and read the Newbie 101 thread at the top of the Coping section. It has a lot of valuable info for you. I hope your pain resolves soon but be aware that for some repeat glutenings can lead to the development of other autoimmune problems and for some the pain of each repeat glutening can increase as well.
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      It is quite hard at first, but once you get it down it becomes second nature. there are many gluten free alternatives now days to make it easier. Now with your severe amount of issues and pain ignoring it. You probably already developed other food intolerance issues, and will probably have a very limited diet for awhile til you heal somewhat.

      https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ https://www.celiac.com/gluten-free/topic/119661-gluten-free-food-alternative-list-2017/
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