• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Source Of Dh Other Than Gluten?
0

12 posts in this topic

Does anyone know what else can cause DH besides gluten?

I have been on a gluten-free diet for 7-8 years. I take Dapsone daily. As long as I take Dapsone, I am generally fine. If I miss taking it for a few days, I get DH around my joints, eyes, clothing pressure areas.

Has anybody gone through this?

Thoughts????

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Iodone can trigger attacks but I thought that stopped after you had been gluten-free for a while. You can try cutting out iodine.

richard

0

Share this post


Link to post
Share on other sites

Iodine.....I haven't been eating any shrimp lately.

What else has iodine??

0

Share this post


Link to post
Share on other sites

Do you use iodized salt? That is a biggie. Do your vitamins contain iodine?

Also something that I read recently is that sun exposure can trigger an outbreak. I wouldn't have believed it except that I have been having problems lately and it all started with being out in the sun more. I normally work the night shift (11p-7:30a) but one of my co-irkers was ill so I was coming in 4a-4(or 5)p to cover both shifts. I work outside a majority of the day as well. Before the shift change, my DH was doing great it was really going away. The night after my first day shift it started to get worse, and it has been just awful this whole week. The only thing that changed was my sun exposure. I know this is anecdotal at best, but you may want to experiment and see what happens.

0

Share this post


Link to post
Share on other sites

Although I have been gluten-free for over a year, I sometimes get DH outbreaks after using anti-inflamatories (ibuprofen, aleve). I also get the breakouts when it is warm, especially where elastic contacts my body. Try sea salt intead of iodized salt. Also look at processed foods you are eating, like potato chips which may be salty. Good Luck

0

Share this post


Link to post
Share on other sites
Ads by Google:


I was at the GIG conference in Chicago this weekend and there was a talk on DH...here are some of the basics:

- How long you had the rash prior to diagnosis will affect how long it takes you to recover...if you had it only for a few weeks, then it might take only a few days to clear up, but if you had it for years, it might takes months or years to fully clear up.

- You will not get dh unless you're getting gluten in some amount. It may not be enough to cause intestinal damage, but it will still give you the rash.

- Like Richard said, iodine can be problematic. Small amounts, such as that in salt, shouldn't be enough to produce a reaction, but multivitamins in particular could be problematic.

0

Share this post


Link to post
Share on other sites

I just met with a Gastro doc and he said that the biopsied rash and the bloodwork showing antibodies prove with 99% accuracy that I have dh - indicative of celiac disease. According to the dermatologist, GI and dietician, gluten is the only thing that I could be allergic to. I've done a lot of reading and have never seen iodine mentioned. But then again, I'm new at this!

0

Share this post


Link to post
Share on other sites




Check out Clan Thompson's Celiac Site http://www.clanthompson.com for good info about DH. Your doctors are right. The "allergy" (actually more of an intolerance than an allergy) is to Gluten. BUt people on this board with DH are speaking from experience. Iodine is a TRIGGER for DH and you may find that it can trigger yours. If you are gluten free, your DH should go away.

0

Share this post


Link to post
Share on other sites

hmmmmmmmmmm, I take a gluten-free multi-vitamin every morning..... I would hate to give that up...

0

Share this post


Link to post
Share on other sites

GNC makes a gluten-free multi with no iodine, that's what I take.

0

Share this post


Link to post
Share on other sites




When I was reading about the DH testing, it said that an iodine patch could be used to create the rash if the patient was unwilling to ingest gluten. Then the biopsy would be taken. Is this another medical mistake?

Laura

0

Share this post


Link to post
Share on other sites

I have read about the iodine patch test too, I think that it works sometimes but it's not totally reliable because it doesn't work for everyone (at least that's what I've gathered from my reading). I was tempted to experiment on myself, but do I really want to itch in the name of science?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,315
    • Total Posts
      935,444
  • Member Statistics

    • Total Members
      64,972
    • Most Online
      3,093

    Newest Member
    Rebelliott
    Joined
  • Popular Now

  • Topics

  • Posts

    • http://www.newburnbakehouse.com/gluten-free-artisan-bread I had no idea they now have artisan breads and now I am upset because these look amazing.  Is it possible that people emigrate to other countries because of the bread?    The wraps they have are really, really good. They roll without splitting and cracking.  OMG...they even have crumpets.  I really may have to move there.......... http://www.justglutenfree.co.uk/#Section2 We bought this at Whole Foods in London and the bread is quite good.  It makes delicious toast!  The rolls are very good also.
    • I agree JMG, in fact I've never bothered with the prescription because I hoped by not having it I'd be saving the NHS some money.  I imagine this will put a burden on some people though. I can't say I've found a gluten free bread I really like yet in the UK, though, although there was a loaf at a wedding the other day that was as near to the real thing as I have tasted in years - but it wasn't clear where it came from (which is a bit of a worry, perhaps it was real bread after all!).   Do you have a favourite? I think Genius is probably my favourite, best toasted, but M&S produce a seeded loaf that actually  is so convincing that when my sister made a batch of cheese and pickle sarnies with it no-one noticed! I think the seeds were a distraction. I had some amazing artisan gluten-free focaccia once but no idea where that came from either - probably the real thing too! No wonder I've got 'gastritis'! I have considered buying a bread making machine but not because I'd make bread with it - what I really miss is those iced currant buns with cherries on the top.  
    • You have the best sense of humor! 
    • Hello folks.   I don't really know what to say, really. My anxiety is really up and down and I just feel a little ... Lost at the minute.   Well, here goes. I should be almost 2 months gluten free but I'm not, as a rice drink I was drinking was glutening me. Yeah, that annoyed me and messed me up a but. Well, lesson learned.  I'm coming up to just over two weeks gluten free but since being "gluten light," and now completely free, the weight just keeps coming off and its a bit concerning (although it does seem like its tapering off.) I only eat whole foods now that I prepare myself as I have a lot of other intolerances  - the usual suspects soy/egg/diary/corn - I also cannot handle fat well. I have seen some improvement, my BM are no longer pale and floating although I still have constipation. My headaches seem to have also cleared, which is a plus. Still fighting the fatigue though. Up and down days it seems, and my pharmacy doesn't have any folic acid which I am low in without lactose! They offered me a liquid solution chocked full of parabens, not too keen on it if I'm honest. The things I'm worrying about is the weight loss, and lingering nausea which comes and goes, and often swings between nausea and being ravenously hungry. I know this is a journey, has anyone else had a similar experience to mine? Also my personal products are all safe. Oh I'm a dude by the way. 26 from the U.K   Sorry for the ramble. Happy healing to everybody   R  
    • What you can do is get follow-up testing.  This might help in determining if you are gluten-free diet compliant.   http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/
  • Upcoming Events