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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Are Your Symptoms?
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SuperMolly    4

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!

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cassP    175

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!

my symptoms TOTALLY vary with gluten!! years (and even just months ago)- it seemed to just be cumulative intestinal pain and constipation & strange bms, plus random skin issues, and anxiety, and oversleeping, and decreased foot padding, etc, etc, etc, but the last few times ive had tachycardia, nausea, and overheating

and yes- many of us, and maybe u too, have additional intolerances. sometimes dairy gives me intestinal issues and some "D". and too much Fructose and Fructans gives me PAINFUL gas and bloating.

ya, its a learning experience for sure. you'll find a lot of info on here, good luck :)

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twe0708    7

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!

I usually know within about 45 minutes to an hour. It's usually to the bathroom within 45 minutes and then I am good or my stomach blows up with a sharp pain on my right side. So far after about a half hour of the stomach bloating I am fine - except for what I am not feeling with what it's doing to my insides, I did make the wrong choice of eating a donut about 4 months ago at work and within 45 minutes I was very sick and dry heaving at work. Had to leave and on my way home I knew I would toss so I had a bag ready just in case and of course had to use it. Tossed again when I got home and was in bed for about the next 3 hours. I will never do that again! Have found that if I was to eat full on wheat like bread, pizza and of course a donut you have a really bad reaction, but if it's just a crumb then it's just the bloating or a quick trip to the bathroom and it's over.

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revenant    24

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!

I have a few symptoms that are always present after gluten/lactose consumption, and some that vary.

My "always" immediate symptoms: Heavy brain fog, vision distortion (things get very bright and dreamlike, distance distortion, things go slower or things start in one place and end up in the other without me seeing how.), sound distortion, crying/depression, self harm, anxiety, aggression and hatred, ataxia and balance problems, body odour, thrush, very easily distracted and very easily absorbed into things (I could stare at a white wall and be entertained for hours), joint pains, sweating, increased heart rate, feeling of nerve damage in my left knee my lips, neck, stomach, and legs bloat up and my eyes cannot focus>constant eye squinting, and fatigue, diarrhea.

There are odd symptoms that come and go, as you said. I am not sure if this is from other food intolerances. I had one panic attack, and it was from something I ate. I also had a few seizures. My amenorrhea went on and off but that could have been related to the amount I was taking in, or how long I have been without it and the severity of the reaction. I have discovered that my head tightness was from gluten and lactose, but the head-aches and migraines, also my very rare case of vomiting after food, is caused by eggs. I have also discovered that my mouth sores and itchiness in and around my mouth was caused by tomatoes. There was some bloating caused by nightshades.

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ElseB    48

For me, it actually takes a few days for symptoms to kick in. I actually wish I was one of those people that immediately started vomiting so that I'd know right away! If its just a small dose (e.g. from cross contamination) I have a stomach ache anytime I eat, and that lasts for about a week. If its a bigger dose (i.e. I eat something with gluten as an ingredient - never intentional) its a stomach ache, constant gut gurgling right below my belly button (really weird I know!), and constipation. This all lasts at least a month. And before I got diagnosed, no gastro symptoms. Only low iron and irregular menstruation.

I"m also intolerant to raw apples (but okay if cooked). Precisely 12 hours after eating a raw apple I get bloating and gas.

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lsmly9    1

It's funny how my symptoms vary from those with a gluten intolerance. I have a wheat allergy, I have only been free of wheat (and gluten due to the two going hand-in-hand) for a few days now, and after eliminating it from my diet, felt drastically better almost (within two days) immediately. Last night while at work I unknowingly ingested wheat - found out after the fact. As I was eating, my lips began to burn and my tongue began to hurt (weird huh?)45 minutes later during my drive home, I started experiencing sharp shooting pains in my stomach, my muscles began to stiffen up and ache, I started to ITCH LIKE CRAZY, and worst of all, my throat and face began to swell. All of these symptoms I have encountered in moderation before being diagnosed, though nothing like this, not all of them at once and never so intense. By the time I arrived home I was in a fog like state with a major migraine, I literally ran inside and took some benadryl. My allergy-like symptoms dissipated after 20 minutes or so, but the stomach cramps remained. I never ever want to experience such a reaction again, though it's bound to happen. I made sure to stick a few benadryl tablets in my purse & I will definitely be bringing my own meals to work from now on.

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    • It might generate based on traffic searches  or posts etc. My guess. I read them and respond because I wasn't on here as a member in 2012. I only use to visit then. So it's new to me V. happy friday   😋  
    • Just saying her TTg was 0 & her IgA was 27 doesn't tell us anything. Every lab can have different values so we need the reference ranges not just the results. Can you look back at the lab report & get those & post them please? Did they tell you she MUST be eating gluten every single day until all testing is done? Don't make a fatal mistake & take her off of gluten yet.
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