• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gallbladder Issues Anyone...?
0

26 posts in this topic

So I'm interested in hearing about anyone else's experience with gallbladder issues. For the last two week I have been having some pains in my right side and in the last week it has localized to under the rib cage. I called my doc yesterday but he was leaving out of town so I made an appointment for Monday...but this morning the pain was really bad, as was the nausea so I went to emerg. Doc ran blood tests and there is no infection (no appendicitis or pancreatitis or liver issues). He thinks it's either a stone trying to get out of my gallbladder or a very spastic colon. Well, this is pain like I have never had before - stabbing and it comes in waves. So I'm sitting here on tylenol 3 and buscopan, eating light, low fat, and bland. Most of us here are pretty familiar with spastic colon issues and I gotta say this is way more painful & localized than anything I've ever had before.

Is there a relationship between gallstones & celiac ? Gallbladder problems ? Anyone have any stories to share ?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


im not an expert on stones.. they would have to do an xray/mri/or catscan to see if you had stones, right?

you might be interested in looking in to liver flushes.. ive done several. they're a real pain in the a to do tho- if they're not gonna be productive. ive done 4 or 5 of them, and i only had 1 flush where i got out like 200-300 stones- so that was well worth the effort. but the last few ive only gotten 3-10 out.. not worth the effort at all.

i imagine that Celiac can include issues with liver and gall bladder- it's not a "classic" symptom, but our digestive systems have been taxed, and that can put a strain on other organs.

anyways...i had more luck with the flushes when i prepared the month prior with Chinese Tinctures & Gold Coin Grass ( www.sensiblehealth.com )

im not sure if i'll ever do another flush- but i still on occasion take the above tinctures.

the Chinese Tinctures help to detoxify the liver

& the Gold coin Grass is supposed to soften and eventually break up the gall stones

if you end up doing either (flushes &/or tinctures), make sure you understand all the rules so u do them right, otherwise it can make u sick or be too hard on your liver.

IF you're hesitant to any of the above suggestions, and IF you're intestines are up for it-> u might consider eating light one day and then doing an Epsom Salt Laxative drink- it'll give u "D", but it will also open up those ducts a little, so maybe if a couple of stones were stuck they might be able to come out better.

0

Share this post


Link to post
Share on other sites

I had the same thing. It took the doctors way to long to figure it out but I knew it was my gallbladder. No stones, and they did the hidda scan told me it was fine. It wasn't. I had to have the doctor specifically ask for the hidda scan with CCK contrast. This will show how hard or not the gallbladder is working. So, if you don't have stones and still have pain ask for this test. My gallbladder was working at 13%! Luckly they found out just as I started throwing up bile. So it was BAD BAD.

Good luck and I hope they resolve it quickly, I know it hurts. *comforts*

Salax

0

Share this post


Link to post
Share on other sites

My gallbladder litterly died because of celiac. About a year before I was diagnosed

0

Share this post


Link to post
Share on other sites

An ER doc diagnosed me with "gallbladder spasms" after they couldn't find anything on an ultrasound for my excruciating pain. I'm like, gallbladdeer spasms huh, you think so? Duh, of course the thing is in spasms! But what was causing the spasms??? To me his diagnosis was just another way of saying "we have no idea". He gave me pills and sent me on my way but I never filled them.....

I had these pains for 12 years to the point of lying on the floor for hours and just waiting it out in horrible agony. Sad but I kind of learned to just live with it. Since going gluten free 6 months ago I haven't had any episodes (knock wood!)

Good luck!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Some people are able to dislodge stuck stones by fasting followed by a dose of epsom salts and then taking one 300 mg Magnesium oxide capsule each day. some experts advise drinking 5 glasses of water a day, no coffee/tea or high sugar drinks or foods which are dehydrating. Magnesium relaxes the bile ducts. I also eat fresh grapefruit which has a similar effect. I have been doing liver flushes for about 20 years and in a program which also kills intestinal parasites, improves kidney function and dissolves hard calcium stones in the gall bladder and bile tubes in the liver. (some people use organic apple juice or malic acid to soften hard gallstones). I passed thousands of stones. After 5 years gluten-free I'm making very few gallstones. Sludge can also clog the gall bladder and bile system and I read that Drs advise using a high fiber diet to help with that problem so I included either hemp seed meal or gluten-free oat bran with meals. Other have found rice bran easier to tolerate.

I have read that in some people with celiac disease that have gall bladder problems clear up naturally so it could be that the swelling and inflamation in the small intestine is hindering bile flow and when the reaction subsides the stones formed in the bile system come out naturally as they do in a normal person.

0

Share this post


Link to post
Share on other sites

Yes, I had my gallbladder taken out about three years prior to getting diagnosed. I was having tummy gas and intestinal pains so the docs tested my gallbladder with a HIDA scan. I ended having only 11% ejection fraction. The docs thought that would cure my gas and intestinal issues. It wasn't until another 3 years of pain did I get diagnosed with celiac. I truly believe both are related.

0

Share this post


Link to post
Share on other sites

I had localized pain under my right rib cage. The best way I could explain it was someone's fist was under my rib cage. I saw my Dr. who ordered ultrasound and then a HIDA scan. When the HIDA scan was negative, they sent me to the GI dr. My GI doc asked if the HIDA scan reproduced my pain, which it did. He believed it was my gallbladder, but ordered an upper and lower scope to rule out anything else. It was this rule out biopsy which found my celiac. (Biopsy was positive, and they did the blood test to confirm) They still took out my gallbladder. From what I have read, gallbladder issues are common with celiacs. I don't know if that answers your questions...but that was my experience. :unsure:

0

Share this post


Link to post
Share on other sites

I to had my gallbladder removed about a year before realizing I have problems with gluten. My gallbladder completely died, I was in severe pain and throwing up over 18 hours when I finally was taken to the hospital. After a year of research on Celiac and Gluten issues this seems to be a common occurrence. In one article it was speculated that about 80% of gallbladder problems are related to gluten.

On the lighter side, I will have to come up with lyrics for this adventure as I lost my gallbladder on vacation to Corpus Christi, Texas, just sounds like a county western song begging to be sung. Hang in there and bright blessings in your quest.

0

Share this post


Link to post
Share on other sites

hey- have any of you with GB issues- did you ever have "referred pain" to the ab muscles right above the GB- like severe sharp Ab Muscle spasms???

i KNOW my pain attack the other day was my muscles- i DO have alot of muscle and fascia issues from my job & posture- but it was so excruciating.... and im trying to solve my problems so that i dont have the pain again.

the doc gave me muscle relaxers- which help to a degree. i also read that the GB is in fact a muscle.. (maybe an organ comprised of smooth muscle).

anyways, i know the GB pain is more deep and inside, but i have been reading that organ issues can "refer" to the nearby muscles... so i was wondering if any of you had the same problem

0

Share this post


Link to post
Share on other sites

My gallbladder stopped functioning about 5 years ago, confirmed by a HIDA scan w/ cck. After having it removed I continued to have less severe right rib cage pain until I quit eating gluten. I think gluten issues and gallbladder problems are definately connected.

0

Share this post


Link to post
Share on other sites

My gallbladder hemorrhaged about 7 years ago. I had to have emergency surgery to remove it and I also had to get stones removed from the duct.

So let's back up 12 years. I was pregnant and having what felt like heartburn from hell or maybe a heart attack. I was given an Ultrasound and you could see the stones.

I refused surgery because I was PG. The pain was excrutiating. I lay in hot water as waves and waves of pain washed over me. This was my treatment for years. I was either Pregnant, nursing or something and did not want to get surgery. Diets did not help.

So on that faithful night, I woke and I just knew I was having a heart attack. The pain was on the right side, under my ribs and in my back. This time was different so DH took me to the ER. They put me on some strong medication and did an emergency ultrasound. The stones had gotten so bad, they had turned into a thick sludge. The gallbladder ruptured and started to bleed out. The sludge going into the bile ducts. I had it removed the next morning. Well I say next morning. It was about 4 when I got there, had a bunch of procedures and tests and it was about 10 when I had it removed.

I do not know if this is related to my bowel issue but it's not something you want to just let go. I could have developed sepsis and died from this. I let it go and go and go. I would keep a real close eye on this and make sure they do a GB US to see if there is anything in there.

0

Share this post


Link to post
Share on other sites

I am not sure if this helps but i had my GB out after an excruciating attack one week after delivering my son in 1999. doc said there was sludge but not stones. I was diagnosed with celiac 10 years later. Had intermittent attacks under rib cage. i would feel like I cannot breath. Went to Er first time but after that i "rode it out" at home. Once I went on the gluten-free diet, I thought I was in the clear but, low and behold, I had an attack last week after being gluten-free for 2 years. I am not sure what is going on but there must be a coorelation between the two. It is crazy when we sit here and talk about our histories and realize that sometimes "hindsight is 20/20"

God bless you in your struggles.

0

Share this post


Link to post
Share on other sites

Shortly after having my gallbladder removed last May, the gluten intolerance became apparent. Everyone blamed my intestinal and bowel issues on my lack of a gallbladder. Now that I am gluten-free, I don't have those issues at all.

0

Share this post


Link to post
Share on other sites

I had my Gallbladder out as well about a year before my diagnosis. I didn't have any stones either, but it was functioning around 10%.

0

Share this post


Link to post
Share on other sites

I was experiencing a lot of side pain but it was overshadowed by the undiagnosed celiac symptoms. The doc ordered a HIDA scan and told me my gallbladder was working at 11% ejection fraction. He thought for sure it would relieve my other symptoms...it did not. It wasn't for another 3 years did I finally learn I had celiac disease. I believe my gallbladder problems was due to celiac disease.

0

Share this post


Link to post
Share on other sites

An ER doc diagnosed me with "gallbladder spasms" after they couldn't find anything on an ultrasound for my excruciating pain. I'm like, gallbladdeer spasms huh, you think so? Duh, of course the thing is in spasms! But what was causing the spasms??? To me his diagnosis was just another way of saying "we have no idea". He gave me pills and sent me on my way but I never filled them.....

I had these pains for 12 years to the point of lying on the floor for hours and just waiting it out in horrible agony. Sad but I kind of learned to just live with it. Since going gluten free 6 months ago I haven't had any episodes (knock wood!)

Good luck!

I too have been one of those sufferers, although my issues have been all over from bone, muscles, organs, neurolgical...I just learned to live with it every day like you say. Crazy how we become so tolerant to living in pain.

I know i was just recently diagnosed with celiacs and also other various organ problems, my gall bladder being one; they found i have pollups in my gall bladder. I would certainly have that looked into. Good luck to you.

0

Share this post


Link to post
Share on other sites

I actually just had my gall bladder taken out four days ago and when they did all the testing that's when I found out I had Celiac's. I've read several articles about gallbladder and celiac disease bieng connected especially when there are no stones, I think the medical community believes there is a connection all though they haven't proved it yet. I didn't have stones but my gallbladder was had a ejection fraction of 13% and I was nautious everytime I ate for about four months not to mention the pain in on the right side just under my ribcage. Definately have the HIDA Scan, they didn't see anything on my Ultrasound.

0

Share this post


Link to post
Share on other sites

Same thing here. Just had my gallbladder out in jan. No stones but was only at 35% function...not as bad as some others but the surgeon said it was best to remove it.

I also had "gallbladder spasms" several hours after eating(usually at bedtime) id get them and i could feel it gurgling.

I was on t3's for a few months and realized after stopping them that they actually made my pain worse.

My original surgeon in regina never thought i had gallbladder issues and did an endoscopy to ceck for ulcers and other things. In the drs report it said possible celiac. Im still trying to locate the biopsy results(the surgeon moved shortly after i did).

0

Share this post


Link to post
Share on other sites

I am a 25 (will be 26 next week) year old mother of 4 (ages 7, 5, 4 & almost 3). I was self-diagnosed with Celiac Disease in Febuary 2011 and have been Gluten Free since April 2011. I have had a few accidental glutenings and it is like being poisoned. In December 2010, I went to the family doctor, desperate for an answer. I was in pain all the time. No energy, bloating, gas pains, back pain, nausia, etc. They sent me to the hospital to have a HIDA scan, showed I had gallbladder disfunction, and a few other things (sorry I cannot remember) Anyway here is my interesting story....

When I was 4, I was diagnosed with Lactose Intolerance. I could not eat any lactose at all- though when I was about 10 or so, we discovered the "dairy pills" and I was fine as long as I took that with the food. When I was about 22, I had a saliva test done (forgive me I do not remember the name for this) and she told me that I had low bile, low vitamin B5, low adrenal, and a couple other things I can not remember. I asked about my lactose intolerance and she said it did not show that. I was shocked! I slowly started eating dairy products without taking the lactose pills, and nothing happened. I thought it was a miracle! Everything was great until one day in March of 2009, I started having the worst pain of my life, it was coming in waves, and I knew it was my intestines or something of the like. I had severe diarrhea which lead to severe bloody diarreha and eventually just blood. My husband took me to the ER and they did a CT scan and it showed I had Colitis. They gave me some pain pills and sent me home. 3 hours later, I was pretty much begging for death, so we went back to the ER, a different dr looked at my CT scan results, and he was shocked that they sent me home. They admitted me, had to put me on Hydro Morphin on an automatic drip through my IV. After 5 days of being there, they discovered I had E. Coli. (side note- I sent in another saliva test after getting home from the hospital, and she concluded that the E Coli was from a hamburger. I no longer eat beef.)

I lost 11 lbs in that week. I went down to 125 and I am now at 120 lbs, when I am sick I'll weigh around 116. I was never the same after the E. Coli. I was sick all the time. I started getting Acupuncture which did help but I was still sick a lot and felt like I couldn't eat anything. In the beginning of this year, she suggested I try a Gluten Free diet. That is when I started experimenting with low gluten, to eventually NO gluten at all- and I have been gluten free ever since. I could still eat dairy just fine until about a month ago. Now even the smallest amount makes me sick.

I chose not to have my gallbladder removed. As long as I didn't eat Gluten I was ok. I didn't have the classic gallbladder "symptoms" it was more of celiac symptoms. Now, I can't eat anything. I am sick no matter what especially after eating pork (we love pork- we raise our own pig every year) and eggs (we also love eggs and have our own laying hens) and now I can't drink my beloved coffee. After just half a cup, I'll be running to the bathroom and be in terrible pain. I get bad pain in my upper back between my shoulder blades and in my shoulder. I know it's my gallbladder and I've decided it's time to have it removed. I have an appt in two weeks. I really hope it helps. I will continue to stay gluten and lactose free, but I hope I can go back to my eggs, pork and coffee.

0

Share this post


Link to post
Share on other sites

-raises hand-

Yep yep. I've had ultrasounds and bloodtests done on mine. It showed NOTHING. Go in to have a HIDA scan (my new doctor had a hunch due to my pain and nonstop indigestion), and lo and behold i find out my gallbladder is only working at 5% of what it should be (low normal is 30%).

I meet tommorow with the surgon who's gonna take the blasted thing out of me. Hopefully i feel better after that.

0

Share this post


Link to post
Share on other sites

So it sounds like everyone had severe symptoms before calling? I tend to "over-think" any medical suggestions so I'm just looking for feedback on the following. I realize this initial post was old, but any suggestions would be great.

I've had a friend who recently had an emergency gall-bladder surgery. So now her, and other people have been recommending that I get tested (simply because they know I've had minor "stomach" pain for year, and was diagnoses with celiac's in August 2011. I've still had some minor symptoms after going gluten free (but i've been told that this could be "normal" in the first year while healing).

I have had random mild pain on my lower back- right side (exactly where everyone above has described). one time over the summer this was consistent enough that I did call my doctor. but it was just consistent for a day or so-- no severe. My doctor told me just to take advil and call back if it got worse; it didn't. I'm generally fine other than feeling this minor pain now and then (I should also note that I feel it right now, as I'm thinking about it recently-- but haven't noticed it that much when it was not suggested to me :) I do have a lot of other family/life stress right now just in fitting in appointments so it is really not a good time to just go as a "prevantative"...but obviously, I want to take my health seriously....

ok, so my question is: what to watch for? would you call a doc now, or wait for it to get worse (i know that sounds bad)...

0

Share this post


Link to post
Share on other sites

I definitely agree the two are connected. My doctor can't agree with me because there isn't research to back it up, but I didn't have all that many Celiac symptoms before my gallbladder was removed after 2 major attacks (a few months apart, oddly enough). Post-surgery, though I began experience any and every symptom of Celiac. I'm not sure how, but having my gallbladder taken out definitely triggered the emergence of my Celiac disease.

0

Share this post


Link to post
Share on other sites

I do have pain that I believe is my gall bladder. It is often below the rib cage and on my right side. My Mother had her gall bladder removed, and she talked about her symptoms --so I know from her the location and kind of pain.

It helped me to read your descriptions of what the pain feels like too.

I do not have the pain so often that I have pushed for the doctor to investigate, but after reading this thread I plan to spend more time telling my doc about this.

I do not know about having your gall bladder out causing the emergence of celiac disease. I now believe that I have had celiac disease or gluten intolerance for over 30 years, at least at some level. In 1979 I had a long period of gastro-intestinal distress, not bad enough to be hospitalized, but I was quite uncomfortable for a very long time. The doctor called it irritable bowel syndrome and advised me to drink mylanta twice a day, which I did for a couple of months --until I felt better. I have always been prone to diarhhea and have struggled with that at various times in my life. At one point, around 1991, I had chronic diarhhea but no health insurance. I did not see a doctor, I did research and learned that acidophilus was a great help to me. I also cut back on my bread consumption, which made the symptoms virtually go away for a few years. What I call gastric distress has been a constant for a long time.

In 2011 I decided to get a colonoscopy, being at an age where that is recommended. The result was the gastroenterologist saying "we think you have celiac disease". Well, that did not really surprise me, given my history and my own knowledge of gastro-intestinal disorders.

I have now been gluten free since January 1, 2012 and I do feel better.

I just don't think that celiac disease is triggered 'over night' by one event, like having your gall bladder removed. I think the celiac disease may have been present, but not at a level that was recognized as yet.

0

Share this post


Link to post
Share on other sites

I'm just reading this, and I'm starting to wonder about my gallbladder surgery. Sorry if this is long, but I'll start at the beginning. Also, sorry if this post would be better on another board... it was just the gallbladder topic that got me thinking!

A few years back, when I was pregnant, I woke up with excruciating pain in my ribcage area. I went to the ER, and they found stones with an ultrasound. The pain went away, and the ER doc suggested I just hold off on pursuing it as I may never have another attack.

Fast forward about two years. I was having abdominal pain and went to my primary. The pain was totally different from my gallbladder attack, which I explained to the primary and surgeon. I had another ultrasound, and based on that the primary referred me to a surgeon to have my gallbladder removed. In talking with the surgeon, I told him the pain was different and that it seemed to be better when I cut WAY back on the fiber in my diet. His response? "Fiber? Don't you mean fat?" No. I meant fiber... I know the difference! Anyway, I had my gallbladder out.

Last summer, I was EXTREMELY iron deficient, and was sent to a hematologist. She tested (through blood test) for Celiac, and said it was negative and assured me that iron deficiency wasn't uncommon in women my age, particularly postpartum. She told me to take iron and to follow up in six months.

But reading this board, a lot of pieces are coming together. My iron deficiency has been there since I was a little kid... doctors then told my mom that I wasn't responding to supplements, but that it was probably because I had some sort of Mediterranean anemia (which the hematologist refuted). Now, my 15 month old DD is in the midst of the testing process for Celiac, and I'm wondering if maybe I had a false negative? I still have occasional abdominal pain, sometimes it feels like menstrual cramps but in the wrong areas. I would say I have a very little bit of D each day or every other, but not crisis level (sorry for the detail). Has a false positive ever happened anyone?

Thanks!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,467
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi! I've just been recently diagnosed as Celiac through the whole biopsy-shebang, and I have a little bit of insight on the whole diagnosis thing and how I was eventually diagnosed, and my advice for you. Brace yourself, this might be a bit long, but it might be worth the read and I promise I will eventually get to the point. If you don't want the huge story, skip to the long line of capital As: I first saw my doctor when I had a few problems swallowing. I've compared it to when you're nervous and you feel like you have a lump in your throat - but after I eat and (sometimes) drink. I just mentioned briefly it to my family doctor when I was addressing another issue, but right away he referred me to a gastroenterologist and ordered a barium swallow x-ray test. The x-ray came back completely normal, and so the g.e. then suspected GERD, put me on acid blockers to see if they would work, no harm done sort of thing. The only thing I got out of the acid blockers were the side effects, so it was back to square 1. The g.e. said that the next test he could do was an upper endoscopy with biopsies. (hint: the celiac test!) Wanting to find a solution to my problems, the endoscopy was scheduled. Pretty painless, I was in and out in a day, but the results took much much longer. Biopsies, or the little pieces of my esophagus, stomach, and small intestine, were sent to the lab, and they came back clean. I didn't really go back to the g.e. for a whole year after that because life became busy, I wasn't prompted to follow up, and I just dismissed the swallowing problems the best I could and went on my way. Now, I've never been huge on the gluten, big bread-y sandwiches or croissants or pies were never foods that I super "enjoyed". I wouldn't feel bad after eating them, I just didn't like the taste of bread so much, but I loved cookies, cake and a lot of other things that do have gluten in them. I lead a lowish gluten life but I wasn't really monitoring it that way. Everything changed when I got really nasty (systemic) poison ivy. My eyes were swollen shut, and the rash was everywhere. I almost went to the hospital, but cooped out at the family doctor's place and got a script for prednisone (a steroid). But, I found that after I had tapered off the steroids, I had magically become lactose intolerant. So back to the family doctor again probably because I broke my toe or something, but we also got to talk about this magical lactose intolerance business (because I love anything dairy and it was indeed devastating). He was surprised as there is literally no correlation between steroids and becoming lactose intolerant. He asked me if I still had the swallowing problems, which I did, and so it was back to the g.e. for round 3. because my family doctor "does not believe in coincidences". Meeting with the G.E., he mainly addressed the swallowing problems telling me that he had done what he could to diagnose with the technology that we had at the highly specialized hospital that we were at, and I would have to travel about 3 hours away to see a different doctor who would do some tests involving the muscles in the esophagus. But right before I was about to leave, we started talking about lactose intolerance. He brought up other foods that I was avoiding (if any), and then the conversation went to gluten. I mentioned that I had an aunt that was gluten-sensitive. He advised that I do the blood test that can show an indication of celiac whenever in the future. I decided to do it that day. At this point in time, I was not eating much gluten because of the fact that it was personal preference. The normal range for values in this test is from 0 to 20. A few weeks later, I learned that I scored a 35. A second upper endoscopy with biopsies was scheduled, but this time I was told to eat a moderate amount of gluten everyday before the procedure. I ate about two slices of bread per day, which is more than I normally would. I was normal for the first two-three weeks of the gluten plus diet, but then I became really sick. I started getting the normal celiac symptoms, like diarrhea and extreme tiredness. Near the end, I had debilitating stomach pain and I was 2 times more asleep than awake each day. I couldn't do the 2 pieces of bread a day some days, but the pain was still there. I knew that I wouldn't ever have to force myself to eat bread for a test ever again. I was called a few days before my endoscopy telling me that a kid in a worse state than me had to take the OR during my time. I forced myself to eat more bread for another month and a half. The day finally came. I was diagnosed celiac, which I have concluded to be initiated by (1) the steroids/poison ivy and (2) the gluten binge fest.  AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA Celiac Disease isn't completely understood yet. Most of the time if you weren't showing symptoms when you were a baby (so your case) it means that celiac was/could be triggered by an event in your life that causes stress on the body (like stress, physical injury, etc.).  The positive result that you got from the blood test doesn't automatically mean celiac, but it could. Here's some options: Talk to your doctor (or a different doctor) or even a specialist gastroenterologist (you can get a referral from a family doctor (general physician)) and see if you can do the blood test again, you have to have some kind of gluten for this to work in advance, so if you don't want to break your gluten-free streak, than don't really invest in this option. If you feel comfortable, you could even ask to do this test under a few scenarios (no gluten (now) and after a gluten binge, compare results). If you do this test and your indication is low off gluten and then high after gluten, I'd probably skip the biopsy. That's a strong enough sign that you don't need to put yourself through the painful-gluten binge. Maybe this is what that first doctor just assumed. But having that test when you haven't had any gluten could make the difference - it acts as a control. Go straight to the biopsy. You could do this, but I'd probably do the blood test first. I went through a lot of stress with the gluten-binge that you have to do to get an accurate result, you would also be breaking your gluten-free diet that may/may not be helping you right now. Do nothing, stay on your gluten free diet hoping that it is helping you. But if you are not celiac or gluten-sensitive (celiac before it starts to wreck your small intestine), going gluten free isn't healthy - you can do some research on this if it interests you. If you feel bad/unhealthy after going gluten free it's probably a sign. Good luck, also know that you might come to a point of stress in your life that can start celiac's destructive path. Ultimately, it is your body, and you should not feel forced or hesitate to act on health issues that impact you.
    • I'm sorry that life is so hard right now. Really.  I can't imagine working 3 jobs and trying to manage this terrible illness.  I think about American society and their obsession with food often.  Whenever you look at the internet, there are all these fabulous gluten-free recipes, but when you don't have time or money to cook these things, a simple gluten-free lifestyle is just that - simple. There isn't a lot of variety, so it's kind of boring. But, I guess I have gotten used to being boring. I just eat corn chex and fruit or yogurt for breakfast. I eat a lot of eggs, beans, rice, corn tortillas, nuts, chicken, fruit and veggies.  A loaf of gluten-free bread will last me 4-6 months in the freezer.  I buy a bag of dried beans for $1.29, I soak them overnight, and put them in the crockpot the next day. I add different spices, sometimes chicken and Voila! - dinner is ready when I get home from a long day. Family gatherings are miserable and I haven't quite figured out the best way to deal yet. If my grandmother were still alive, I imagine she would be a lot like yours - well-meaning but not really able to understand the nitty-gritty.   I just reassure my family that I am fine and that they really shouldn't do anything special for me. I bring a bag of Hershey's kisses or other gluten-free candy I can nibble on along with my meal and then I try to treat myself to a nicer home cooked meal later in the week when I have time to cook - because who has time to cook during Christmas???? And, I agree with knitty knitty. If someone else in your family/friends were gluten-free for medical reasons, it would make socializing a bit easier. One of my husband's good friends is NCGS. When we get together as a group, we can make each other special dishes and it helps to feel less isolated.  Good luck!  
    • Hi!  Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too.  Gall bladder problems are often associated with Celiac Disease.  Your diagnosis might save your whole family from further medical problems as they age and the disease progresses... You need to set a good example if relatives are similarly diagnosed.... and then everybody will have to eat gluten free at family gatherings....  
    • That's what I thought!  My father has gluten sensitivity and I almost regret telling the doctor that because I feel that made her jump to conclusions because of that.  He never had the biopsy either.  I feel like doctors think it's just easier to say it's celiac when they show a gluten sensitivity to avoid additional testing, even if that diagnosis doesn't make any sense at all.  My doctor didn't even offer the biopsy, and said the blood work was enough.  Should I seek a third opinion?  I mean, I've been gluten free for 9 months...
    • It will prolong your life....celiac is a autoimmune disease that  causes your own immune system to attack you. The longer your eating gluten the worse it gets, I mean all kinds of other autoimmune disease, food allergies, food intolances. One day you could lose the ablity to eat carbs, or sugars, or become randomly allergic to tomatoes or corn all cause you decided not to be on road to healing I am not kidding here. I am allergic to corn, can not process meats, have another autoimmune disease that makes it so I can not eat dairy or CARBS/SUGARS.   I wish I could go back in time and go on a gluten-free diet a decade ago. Worse that could happen you could develop cancer or other complications and yes we have had this happen to a member before on our forums. Think of it like this your just changing brand here I will give you some links to some gluten-free foods, and how to order them, You can even order alot of them online this should help simplify it for you. I suggest thrive, amazon, or one of hte other links from there, Many you can order from the manufacture. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/  
  • Upcoming Events