This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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Hi Michael and welcome
The celiac diagnosis process can be a little confusing. Some time ago I tried to put together some info and links that may be of help:
The key point would be to stay on gluten until you and your doctors are satisfied that celiac has been excluded. In your case that may include another test with a more complete panel as CyclingLady says above. If you go gluten free independently during this time you risk invalidating the results and adding to uncertainty.
The second suggestion would be that should you succeed in eliminating celiac as a diagnosis then you have nothing to lose from trying the gluten free diet. I tested negative on blood and endoscopy, but removing gluten resolved or greatly improved a whole load of symptoms including anxiety, depression and that feeling of not being right that you outline above. I say greatly improved because I can still suffer from anxiety or depression, as anyone can, but if I do, they're nowhere near as severe as they were when I was consuming gluten.
In the meantime, one thing you could do is to keep a food journal to see if you can track any relation between what you eat and how you feel. It's good practice for if you later try the gluten free diet and you never know what you may learn.
This is a good site full of friendly help and advice. I hope you get the help you need
Good advice Ennis! I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out. Be sure to read our Newbie 101 tips under the coping section of the forum. Cross contamination is a big issue, If the house is not gluten free, make sure everyone is in board with kitchen procedures.
Hopefully, your GI talked about the fact that this AI issue is genetic.
Get tested (and your TD1 child). TD1 is strongly linked to celiac disease. About 10% of TD1's develop celiac disease and vice versa. Get tested even if you do not display any symptoms.
What does weak mean? Like you squat down and and you can not get back up? Or are you fatigued? When you said blood panel, was your thyroid tested? Antibodies for thyroid should be checked if you have celiac. So many of us have thyroid issues.
We are not doctors, but based on the results you provided, you tested negative on the celiac screening test. You could ask for the entire celiac blood panel to help rule out celiac disease. The other IgA that was high? It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid). In your case, the TTG IgA test works. Outside of celiac disease, you might have some infection. Discuss this with your doctor as he has access to your entire medical file. I would not worry about it though over the weekend!