• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Long Time No Posts....
0

9 posts in this topic

It's been a few months since I have posted on anything here...so I thought I might write up an update...even if no one reads it...it will chronicle my successes...

If you all remember, my boyfriend moved out shortly after I was diagnosed with Celiac..after about 8 months alone, I met a guy who was kind and understanding of my illness..I got my hopes up, but after a month, my "high maintenance" got to be to much for him and he left. Well, single life isn't so bad right??? So I resigned myself to a life alone....

My mom and I went on a Carnival cruise where I thought I would starve to death...but it turned out that they were AWESOME!! I ate every meal in the dinning room, the hostess came to me every night and helped me pick out my meals for the following day...even if they didn't have something I really liked or wanted, the chef would prepare special meals for me with gluten free sauces, pastas, he made me an incredible corn salsa and a raspberry sauce that made me want to propose marriage!! If you all are gonna cruise, pick Carnival..they took excellent care of me and I didn't starve, I ate like a queen with no touch of illness.

Right before I left on this cruise, I met a guy named Tim. I met him on a dating website where I fully disclosed in my profile my illness and dietary limitations...he was fully informed of what he was getting into and still messaged me. We went on two dates before I left and he made me pine for more the entire time I was sailing in the Caribbean.

When I got home, he asked me out again....we had dinner...and here's the best part...he ordered what I ordered!! He wants to understand....he wants to know how I feel, and what I have to do. He isn't going to go completely gluten free as we looked into it and it doesn't seem overly healthy for a person who isn't Celiac...but he is completely fine with living in a gluten free household and will get his "wheat fix" while at work! I am totally in love.

I feel sometimes that I am jumping in to fast....but I have talked it over with my pals, and they all say...when it's right, it's right...it's not like we are getting married tomorrow or anything, but i do see us expanding our relationship and in my dreams at night...we will eventually marry and live happily ever after.....

feeling good...and crying happy tears.....FINALLY!!!

1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Glad to see everything is going so well. I am a bit jealous of that cruise and the new boyfriend too for that matter.

Does he have an older brother? :D:D:D

1

Share this post


Link to post
Share on other sites

Does he have an older brother? :D:D:D

.....several......?

1

Share this post


Link to post
Share on other sites

Yeah Kaki!

1

Share this post


Link to post
Share on other sites

I am so happy for you! :) The cruise sounds awesome and so does the new guy! Congratulations. :)

1

Share this post


Link to post
Share on other sites
Ads by Google:


That's fabulous! I'm so glad to hear that your cruise was such a positive experience. And as for the new boyfriend: I knew within a month that I would marry my husband if he asked. We got engaged after dating for only seven months. We've been married for 7.5 happy years now and he's been my best support since I went gluten-free nine months ago (in fact, it was his idea to make the kitchen gluten-free). When it's right, it's right. :)

2

Share this post


Link to post
Share on other sites

That's fabulous! I'm so glad to hear that your cruise was such a positive experience. And as for the new boyfriend: I knew within a month that I would marry my husband if he asked. We got engaged after dating for only seven months. We've been married for 7.5 happy years now and he's been my best support since I went gluten-free nine months ago (in fact, it was his idea to make the kitchen gluten-free). When it's right, it's right. :)

I-Geek....this reply made me tear up a little...tonight I am returning home after attending my friend's bachlorette party..it was suppose to be all girls and one guy that we work with who is a great friend to all of us girls...he didn't want to be the only guy..so I invited Tim to come along as well. I knew he didn't want to...but he did..turns out...work guy didn't show so Tim was the only guy.......how can I not love a man who comes to a bachlorette party when he knows no one??? and is the only guy....i don't know if I can wait 7 more months :) Thank you for letting me know that quick romances really work out...and in my head...fairy tales do come true!

0

Share this post


Link to post
Share on other sites

Wonderful update! I'm so happy for you :D

0

Share this post


Link to post
Share on other sites

I-Geek....this reply made me tear up a little...tonight I am returning home after attending my friend's bachlorette party..it was suppose to be all girls and one guy that we work with who is a great friend to all of us girls...he didn't want to be the only guy..so I invited Tim to come along as well. I knew he didn't want to...but he did..turns out...work guy didn't show so Tim was the only guy.......how can I not love a man who comes to a bachlorette party when he knows no one??? and is the only guy....i don't know if I can wait 7 more months :) Thank you for letting me know that quick romances really work out...and in my head...fairy tales do come true!

I met my DH on a dating website. We were married 13 months after we met. It will be 5 years this New Year's eve. He is a wonderful support as well when I went gluten-free 2 months ago. He loves my baking and we always eat the same meals (at least at home). Dinners out are at places that offer gluten-free menus. There are lots of great men out there that don't mind if things have to be a little more "stuctured" (I refuse to say high maintenance as it's not a choice, it a need.) When it's right, it's right. You deserve happiness!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,808
    • Total Posts
      932,595
  • Member Statistics

    • Total Members
      64,302
    • Most Online
      3,093

    Newest Member
    AnLi
    Joined
  • Popular Now

  • Topics

  • Posts

    • Update: for most accurate results, I am eating one piece of white wheat bread a day and am hating the symptoms. Less than two weeks until the endoscopy so I'm hanging in there.
    • Gaerty, I am glad to hear that you've ruled out the worst stuff. That at least helps clear any anxiety or worry you might have. I know that would clear up mine. I have good news! About three days ago my splinter hemorrhages cleared up 100%! The one that was on my right thumb was long and was there for about 2 to 3 months. I started taking this Vitamin C supplement 1000 mg once a day about 3 weeks ago. Whats crazy is that on the day I started the Vitamin C I noticed a small hemorrhage cropping up on my left thumb. It was very small. By day 7 of taking the vitamin C the one on the left thumb started growing out. By the second week I noticed the one on the right thumb shrunk drastically and by the end of week 3 they were all gone. By day 10 I also started taking 25mg of iron because all my muscles keep twitching. My B's and Magnesium came back good 5 months ago. I heard low iron can cause that symptom as well. So thought I'd give it a try.  I am not sure if it was a combo of the C and Iron or just the C that helped clear the splinter hemorrhages but for sure it was one of those things because they are the only things I have changed recently with supplements in the past 30 days.  
    • The nasal spray is safe, per the 2017 gluten-free drug list, but check the list as there are a few different manufacturers.   http://www.glutenfreedrugs.com/newlist.htm Claritin is fine.   Get a Nedi pot.  Helps tremendously.  It is safe.....100% gluten free.  Just use pre-boiled and the cooled water.  
    • Thanks Ravenswood. I need the strength and encouragement to keep going. The last sessions fall out was 4 days of my body revolting on a nervous system level.  I'll look into your acupressure book suggestion. I have done sinus acupressure for myself and my daughter for years but did not explore more.  In the past when gluten-free my fibromyalgia symptoms improved but since they come back the concern is it might be actual fibromyalgia.  After 2016 I found out I have Barrett s esophagus, fibromyalgia, additional food intolerance plus the gluten. I had in my head I was ncgs and it was all related to  that and leaky gut that occurred after my challenge., So I wasn't prepared to digest all the above. Pun intended. Thanks for the encouragement Awol
    • So I'll try to keep this short and sweet.  I'm a 25yo male and have had GI issues for about 7 years. Through many years and many doctors visits, I've gotten potential diagnoses of IBS, post-infectious IBS (d/t a Giardia infection in 2014), small intestine bacterial overgrowth, GERD, and even a strong suspicion of inflammatory bowel disease (Crohn's/Ulcerative Colitis). I've had two colonoscopies (no biopsies taken) and one EGD (biopsies only taken of STOMACH which showed chronic gastritis, not small intestine). Pretty much all of my tests have come back "normal."  I'll start by saying that back in 2014ish my blood results for Celiac were negative. My GI symptoms vary and fluctuate greatly... When I'm really struggling, I'll have chronic diarrhea, debilitating reflux, hours of burping after eating anything, epigastric and lower right quadrant abdominal pain, severe fatigue (nearly passing out), migraines, awful brain fog / depression, unilateral eye pain and photophobia, mouth ulcers, glossitis (tongue inflammation), and occasional bloody mucus in my stool if I'm extremely flared.   So my GP recommended I try a gluten-free diet after my IBD panel came back as negative. I reluctantly gave it a shot. I was gluten-free for about 2 months - slowly but surely, my chronic diarrhea relented, fatigue lifted, and my reflux nearly disappeared (to the point of considering stopping my omeprazole). Since eating gluten-free is so difficult, I decided to try a 3-day gluten challenge to see if gluten truly was the culprit. I ate gluten products 2-3 times/day for 3 days. It made my reflux a bit worse and gave me some pain, but nothing severe. My tongue however started progressively burning/stinging that week.  The BAD symptoms came about 2 weeks after my first gluten exposure... My acid reflux became MUCH MUCH worse, despite medication. I lost about 7 pounds over 3 weeks from not wanting to eat. I had much more abdominal pain. My tongue became very inflamed and sensitive to eating/drinking. I got mouth ulcers. I became very depressed, irritable, and brain-fogged out of NOWHERE. I was nauseous and having headaches. It was NOT fun. That's when I thought, "Ok, I am definitely more sensitive to gluten than I thought." That was about 6 weeks ago and my stomach is still feeling the effects of those 3 days. So, my questions: Has anyone experienced a similar story? Has anyone had lower GI bleeding with celiac? For those who have Celiac, are your symptoms typically delayed like that (2-3 weeks)? I know NCGS is supposed to have much more immediate symptom-onset. Has anyone tested negative to blood work, but positive on small intestine biopsies?   
  • Upcoming Events