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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I'm Really Confused!
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12 posts in this topic

Hi everyone!! I have been feeling really lousy for about a month, where at first I would get very sick just a few minutes after eating supper foods, but mostly pasta, and have to run to the washroom. Then my stomach is so irritated after eating many foods I didn't know what to do. So I went to the doctor, and he immediently thought it was Celiac Disease. I had blood tests takes two days ago, and also stool samples. Since they had to be sent away to the nearest city, I have to wait at least a week. I feel so gross, and I haven't been able to keep anything down so I am tired and weak :( Would anyone be able to help me with whether or not they think that it is Celiac Disease, and PLEASE give me ANY tips for foods that may make me feel okay after eating (which seems very impossible as my stomach didn't even want Soup Broth), or tips of what I can do to just feel better. I appreciate all of this as I am just a teen and it's all so confusing for me!!

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I can't give you an answer on whether you have celiac disease, but given your complaints, it sounds very possible. :(

As far as safe foods go, when i was really sick, the foods that worked for me were

jello

plain rice, maybe with some homemade (or any gluten free) chicken broth

tea

hot rice ceral with a little honey (like cream o' rice, just make sure the ingredients don't include wheat, oats, barley or gluten)

more tea

apple sauce

with ANY thing, if you suspect celiac, make sure it is gluten free.

good luck honey, keep posting. I know this board has been a warm hearth in a dark night for every one of us.

Libby

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Libby,

Thanks so much for your reply! Since I posted my message today, I was wondering if ANYONE would respond! I went out to the movie tonight and it was the first time I've been out of the house since Tuesday afternoon, and I was feeling fine until I got to the theater and my boyfriend got me to eat a little since I've barely eaten all week.

I was so hungry at supper that I cut up fresh strawberries, kiwi, oranges and pineapple and ate that. I managed to eat a little before I was scared to continue. It's just been really tough these past weeks, and I've never wanted to have something stop so quickly. I keep thinking about if I have Celiac...it's gonna drive me crazy to give up my favorite foods!!

This next week is gonna be the hardest of my life and I don't know how I'm gonna get through it! My boyfriend has been great, but I know it's boring for him to stay inside with me day after day since I feel too yucky to go out!

I've also been extremely tired because I can't sleep either because I'm owrried or because I'm running to the bathroom 8 times a night. Also on my mind...what if it's not Celiac?? Then what? I know that something is REALLY wrong with me and I'm worried that they won't be able to find out what it is!

I've been stressed enough the past year, and this isn't helping one little bit! The week has been okay not having to worry about school (a few days off) but going back to school Monday is gonna be so hard. I'm also supposed to go to Cancun with my boyfriend for Easter, and I'm stressed about not feeling better! I just feel AGGGHH! PLEASE help!!

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Daisy-

Not sure i have any wise words for you, excpet we have all been there. :rolleyes: I know how scary it is to not know what is wrong with you, and feel so crummy. Are you able to keep foods in you at all? Even basic ones? How did eating the fruit go? I can imagine all that fuit being really acidic on a tender tummy.

I know the thought of giving up favorite foods is hard. for me, I am grateful that mine disease got SO bad all of a sudden. Like an alcoholic, I have truly hit bottom. I went from a vibrant, strong (if nearly always nauseaus) happy 23 year old, to a weak, vomiting, passing out miserable kitten. Overnight. Two trips to the emergency room and a night in the hospital later, I was truly ready to embrace WHATEVER treatment there was.

We (my family) are all pretty sure my older sister has it, but since her version is more chronic, and les acute than mine, she is less than vigorous with the diet. <_< I have no doubt, and so have no ambiguity in my diet. I am still making mistakes, but having "hit bottom" there is NO cheating for me. I know where that goes, and I HATE being helpless.

I think it is pretty natural that you feel stressed out. When you feel crappy, it is stressful, and when life is stressful, you feel crappy. Vicious cycle, eh?

Good luck in school! Having to function when feeling crummy is so hard. sometimes it makes me feel worse, but sometimes it is good, takes my mind off of things. How long until easter? damn. Again, good luck.

peace

Libby

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Libby,

Thanks again for your advice. Easter break is in about a month, and I'm looking forward to it because it will be nice to get away, but also not, because I'm worried that I might not feel better.

The fruit was a little hard on my stomach, but it was better than anything else. I'll try some tea today, and see how that helps my stomach. I'm one day closer to knowing, which is great. I'll let you know how things go!

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how long do you have to wait for your test results? Is your family supportive? Nothing like being really sick for a longer than a day to let you know how people really feel.

Peace to your belly

Libby

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The test results should be back late in the week. I have family problems, so I do not recieve a lot of support so that makes it even harder, but my boyfriend and his mom are really good to me!! Instead of me pushing away food, she always has fresh fruit and she's making me tea.

I'm really ancy about the results, and I hope they find out what's wrong soon, because I really want to be healed :(

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when i get gluten i take promethizine i have no idea how to spell that it settles the stomach enough so you can get some fluids in and it will stop the diahreah and vomiting

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Thanks! Is that something I can just get from the pharmacy, or does it take a prescription???

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the stuff I have is prescription....

Disturbed

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Hi Libby.

I just wanted to let you know that my mom called the hospital yesterday and they still haven't recieved my results back yet. It's frustrating because it hasn't been a good week, and I can't wait to get this confusion over with.

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Lame. I think it helps to keep calling, and asking and saying hello and remindeing them you exist. they don't let time go by onp urpose, but I got the fastest action when my dad (very nicely) harrased the hospital people, to keep my name on the top of the pile. hold in there.

Lib

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