• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Symptoms Better On Nexium?!?!
0

8 posts in this topic

Hi there. I have been on a gluten challenge for almost a month now (after being gluten-free for about 2 years). I'm being biopsied on Tuesday.

When I first started the challenge I had all the usual symptoms (although on a surprisingly lesser scale). But then I started taking Nexium (which my gastro perscribed) and since taking it, my intestinal symptoms to gluten seem to have almost disappeared!!! With the big exceptions of severe bloating (looking 5 months pregnant), fatigue, irritability, brain fog, under-eye circles and just not looking "well".

So what gives?? Can Nexium help with symtpoms. I am more confused than ever and am at a loss to what the biopsy will show....

Thanks!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Many GI drugs can help with the symptoms from eating gluten. If your stomach and duodenum are irritated from gluten, a proton pump inhibitor lowers the amount of acid and helps relieve the irritation. A lot of celiacs get diagnosed with IBS and prescribed antispasmodics too. I used bentyl for a long time and it did help. Immodium did too. Unfortunately, the helpful GI drugs mask the symptoms of celiac and then people don't get the right diagnosis.

Even if your biopsy is negative, I imagine the bloating, fatigue, brain fog, and all your other symptoms is enough to make you disinclined to keep eating gluten.

By the way, has your doctor seen people who were gluten-free for two years have a positive biopsy after only a month? That seems like a really short challenge for biopsy. I thought it was a month for bloodwork and 2-3 months for biopsy?

1

Share this post


Link to post
Share on other sites

Thanks for the info! That is great!

I did doubt when he said "a month should be enough time". He wanted to do an endoscopy anyhow and said it was up to me if I wanted to reintroduce gluten. At first I was very hesitant, but then decided to do it in the hopes of finally getting some answers.

I say I've been gluten-free for 2 years, but unfortunately i bet a good part of that time was hidden gluten. Really I would say for the past 6-8 months I've been very strict (my own cooking utensils, not eating out etc...)

when I first stated the challenge, I dind't think I'd make it a week. Now that I'm intestinally feeling better...maybe I could go longer.

So you think 2-3 months is the norm? That seems rough to consider.

Many GI drugs can help with the symptoms from eating gluten. If your stomach and duodenum are irritated from gluten, a proton pump inhibitor lowers the amount of acid and helps relieve the irritation. A lot of celiacs get diagnosed with IBS and prescribed antispasmodics too. I used bentyl for a long time and it did help. Immodium did too. Unfortunately, the helpful GI drugs mask the symptoms of celiac and then people don't get the right diagnosis.

Even if your biopsy is negative, I imagine the bloating, fatigue, brain fog, and all your other symptoms is enough to make you disinclined to keep eating gluten.

By the way, has your doctor seen people who were gluten-free for two years have a positive biopsy after only a month? That seems like a really short challenge for biopsy. I thought it was a month for bloodwork and 2-3 months for biopsy?

0

Share this post


Link to post
Share on other sites

I know 2-3 months sounds rough. That is why I've never gone back and challenged.

You got me curious. I'm linking abstracts for you, as they're publicly available but I checked full text for two of the papers as the challenge time length wasn't in the abstract.

Here is an article showing median time to relapse in children with gluten challenge with a low amount of gluten is 13 weeks.

http://www.ncbi.nlm.nih.gov/pubmed/11753160

This paper used three months with a standardized amount of gluten to challenge, mentioned in the text.

http://www.ncbi.nlm.nih.gov/pubmed/19367182

I checked this paper, and people on gluten challenge had eaten gluten from 1.5-4 months, with an average of three months eating about 3 slices of bread a day.

http://www.ncbi.nlm.nih.gov/pubmed/11782578

So, researchers are not challenging for only a month. It looks to me like three months is a more typical time to get a relapse. It's a shame your doctor has not gone to the trouble to read the literature make a better recommendation for you. You might ask your doctor about getting an anti-EMA or anti-deamidated gliadin peptide test run at this point. If either of those is positive you are almost certainly celiac.

0

Share this post


Link to post
Share on other sites

Wow! Awesome info! i will read up on all that!

i am going for blood work monday for Tissue Transglutaminase and Endonsyial AB ( I think thats what the scripts says)....

For me, I can't do the 2-3 month challenge. i know I don't react well to gluten so i'll be off it come monday anyhow. And he wanted to do an endoscopy anyway to check for other things....

I know 2-3 months sounds rough. That is why I've never gone back and challenged.

You got me curious. I'm linking abstracts for you, as they're publicly available but I checked full text for two of the papers as the challenge time length wasn't in the abstract.

Here is an article showing median time to relapse in children with gluten challenge with a low amount of gluten is 13 weeks.

http://www.ncbi.nlm.nih.gov/pubmed/11753160

This paper used three months with a standardized amount of gluten to challenge, mentioned in the text.

http://www.ncbi.nlm.nih.gov/pubmed/19367182

I checked this paper, and people on gluten challenge had eaten gluten from 1.5-4 months, with an average of three months eating about 3 slices of bread a day.

http://www.ncbi.nlm.nih.gov/pubmed/11782578

So, researchers are not challenging for only a month. It looks to me like three months is a more typical time to get a relapse. It's a shame your doctor has not gone to the trouble to read the literature make a better recommendation for you. You might ask your doctor about getting an anti-EMA or anti-deamidated gliadin peptide test run at this point. If either of those is positive you are almost certainly celiac.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Wow! Awesome info! i will read up on all that!

i am going for blood work monday for Tissue Transglutaminase and Endonsyial AB ( I think thats what the scripts says)....

For me, I can't do the 2-3 month challenge. i know I don't react well to gluten so i'll be off it come monday anyhow. And he wanted to do an endoscopy anyway to check for other things....

Good luck. I hope the endoscopy is normal other than the possible celiac!

0

Share this post


Link to post
Share on other sites

Can we get an update kpryan? Did you have the endoscopy? How long were you back on gluten and how much gluten were you eating? Did you test positive for celiac? I am going through a challenge now and am interested in as many anecdotal reports as possible.

Thanks!

0

Share this post


Link to post
Share on other sites




Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,332
    • Total Posts
      935,537
  • Member Statistics

    • Total Members
      64,994
    • Most Online
      3,093

    Newest Member
    Daisy Charlize
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you for your reply.  I did make sure to keep eating gluten before getting tested. I'm still unsure whether or not I should ask my doctor to run the rest of the tests in the celiac panel.  
    • LOL, re: trousers vs. pants.   Here in the US, trousers are a specific kind of pants/slacks, with a looser fit and often with pleats in the front.   I also read that Vit D helps digestion;  can't recall the links, but likely within Gundry's writings about lectin.   My Dr. just told me to resume 2000 IU per day, and I do think it's made a slight difference. Have also read that bone broth is helpful, its gelatinous nature supposedly coats the stomach.   I know bone broth has not been formally studied much, but again, probably can't hurt and might help.
    • I'd try the gluten free diet for a few months to see if that helps at all. Can't hurt. If it doesn't help I'd try a low FODMAP meat and veggies diet.
    • A good amount of the neurological effects from celiac are also related to nutrient deficiencies caused by malabsorbtion from damaged intestines and the fact that most gluten-free foods are not fortified and your net eating many grains. You sound good about the CC and everything and seem to be taking percations goods, I still use freezer paper for a clean safe work surface even in my gluten free home lol. Anyway top things to look for and consider are magnesium and B vitamin deficiencies . I take my in a drink to avoid pills and the sublingual forms are more easily absorbed by the body. I normally suggest 2 brand or forms of magnesium and you need to find the one that works for you there. They are Natural Vitality Calm, a magnesium citrate in a powder, you add it to a warm drink let it fizz and drink it. Magnesium citrate can be a bit harsh on some peoples guts, I suggest you start off with 1/4 tsp and work your way up to the full dose over a week, if you get D then your taking too much and need to back down or the citrate version might be too rough for you. In which case I suggest Doctors Best, bit more off tasting and mixes best with a juice but with the powdered form of it you do not have to worry about digestion issues, I just found the citrate to seem to help with my nerve issues more. B Vitamins, I take Liquid Health Stress & Energy and the Neurological Support, I take 1 tbsp of each 2-3 times a day before meals. Really helps with everything and being in liquid forms I just add to tea and drink it. There are many other vitamins to look into and we each have ones we have issues with more then others, getting tested might help, NOTE magnesium and B vitamins sometimes show normal but you will still find you need supplementation...bit of a odd thing I found. Yeah the neurological effects are  huge thing with me as my issues with this disease cause my immune system to attack my nervous system and brain....accumulated brain and nerve damage over the years. Had a whole mental trauma issues with them, my gastro issues back then were mostly just constipation. NOW days I get the Vomiting, D, gas, bloat, and then constipation for a week along with neurological issues which NOW if I get exposed to eating straight gluten (happened twice in 3 years to this extent) I loose motor control and collapse unable to move, normally while vomiting violently to the point of blood coming up (this was what happened last June 2016 after eating out).  
    • Started thinking the only cereal I allow in my house is Vans, they have a cinnamon one that is like a captain crunch with cinnamon, and a strawberry O type that I keep in stock for a friend that comes over sometimes and for my cousins littler girls who I end up babysitting sometimes. There was a coconut flake (corn flake knock) off I used to eat, but the company discontued it. There is a stuff called progranola from julians bakery made without grains that looks great but is a bit expensive at $9 a bag.
  • Upcoming Events