• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can A Child "outgrow" Celiac?
0

15 posts in this topic

Ads by Google:
Ads by Google:


No. It's as simple as that. Like you said, people can have silent, latent, or asymptomatic Celiacs

0

Share this post


Link to post
Share on other sites

Can a child

0

Share this post


Link to post
Share on other sites

You should encourage him to at least get the blood test done. There may actually be health issues you are not aware of as not all are comfortable discussing health issues with others. Also some people think the stomach issues that often come with celiac are 'normal for them'. Celiac can impact any organ so it isn't just tummy issues that are seen. Headaches, moodiness, joint and muscle pain, and much more can be part of the celiac picture. I should mention that since he was diagnosed as a young child you and all his first degree relatives should be screened also.

0

Share this post


Link to post
Share on other sites

ALL EXCELLENT points above AND TRUE!!!

one does NOT outgrow Celiac, period. & YES, even if it is not affecting his gut, it can be destroying another part of his body, like his brain or heart, etc, etc

and maybe it's possible that he was misdiagnosed 50 years ago...

0

Share this post


Link to post
Share on other sites
Ads by Google:


One can't outgrow celiac disease, no.

I would guess the test was accurate considering that your son improved on a celiac diet. And there is definitely a chance of some severe problems at this point.

My father had no gut symptoms, but his hips deteriorated, his spine developed arthritis, his lungs had problems, etc...

It also increases his chances of having more serious complications to diseases and illnesses because he'll be immuno-compromised.

This is a website with 300 symptoms/signs of celiac disease that might help you and your son look at his health and decide if he should get tested again, or simply readopt the gluten free diet.

Can a child

0

Share this post


Link to post
Share on other sites

Yes, celiac disease CAN be outgrown. People around here think of celiac as permanent but it's not always the case. I'm a little frustrated because I can't seem to turn up the research article I read recently showing remission in some childhood celiacs.

Thing is, celiac remission is relatively rare, while "silent" celiac is more common. "Silent celiac" is where a person has no symptoms, but does have musocal damage and malabsorption. Osteoporosis is common, as are deficiencies in B vitamins that can lead to neurological disorders. If I were you, I would press him to get the testing done, because the consequences of silent celiac can be so severe.

0

Share this post


Link to post
Share on other sites




Renission refers to the response of the treatment. It does not mean that the disease/condition is cured.

I believe this to be true because unfortunately, as in the case of my MIL, she is being treated for the third time for cancer. Her first was in the 80's, then early 2000, and now. The cancer is being found in the same area and has now moved to her bone. In between these times she was being tested to make sure she was in remission and she was. Yes,I know cancer is different from celiac.

0

Share this post


Link to post
Share on other sites

Yes, celiac disease CAN be outgrown. People around here think of celiac as permanent but it's not always the case. I'm a little frustrated because I can't seem to turn up the research article I read recently showing remission in some childhood celiacs.

Thing is, celiac remission is relatively rare, while "silent" celiac is more common. "Silent celiac" is where a person has no symptoms, but does have musocal damage and malabsorption. Osteoporosis is common, as are deficiencies in B vitamins that can lead to neurological disorders. If I were you, I would press him to get the testing done, because the consequences of silent celiac can be so severe.

While remission can occur, doctors refer to it as a 'honeymoon' period, damage is still being done. This remission was the reason why doctors years ago commonly thought that celiac was a childhood disease and that children could outgrow it. It can take a long time for symptoms to reoccur and they are not always the GI symptoms that are usually thought of but can be damage to others organs.

0

Share this post


Link to post
Share on other sites

Back 50 years ago gluten sensitivity was usually diagnosed by eliminating wheat, barley and rye from the diet and noticing the improvement. Your son may have had a wheat allergy and this may have cleared up as he got older. He may have had non-celiac sprue (Leaky Gut Syndrome) which cleared up on the gluten free diet, especially if he was gluten-free at 5 months when the intestinal wall matures and prevents food antigens from entering the body. If he had autoimmune Celiac Disease it may have become silent but there may have been some continuing damage to his small intestine even tho he had no symptoms.

I suggest having him tested by the genetic DNA tests which would tell if he is predisposed to developing Celiac Disease and Leaky Gut Syndrome. Also the Molecular Serology test (Prometheus Labs) could give the same information. There are several labs online which can do the DNA tests, I used Enterolab.com. The serology test is ordered by Drs.

0

Share this post


Link to post
Share on other sites




Back 50 years ago gluten sensitivity was usually diagnosed by eliminating wheat, barley and rye from the diet and noticing the improvement. Your son may have had a wheat allergy and this may have cleared up as he got older. He may have had non-celiac sprue (Leaky Gut Syndrome) which cleared up on the gluten free diet, especially if he was gluten-free at 5 months when the intestinal wall matures and prevents food antigens from entering the body. If he had autoimmune Celiac Disease it may have become silent but there may have been some continuing damage to his small intestine even tho he had no symptoms.

Probably not a wheat allergy. He was hospitalized the first time for dehydration at one month of age. I had tried nursing him but didn't have enough milk, so he was on whatever formula we used back then. I have no idea what was in it.

At six months he was anemic so the Dr. gave me a liquid iron supplement to try. One-fourth of a teaspoonful was enough to give him diarrhea. Again, I don't know what was in it. Back then you didn't ask questions of your Dr. and you didn't get copies of lab work. You just followed orders.

Last night I gave him copies of a few pages from Dr. Green's book to read. Since he is very health conscious, he will probably go to his Dr. for a celiac panel. At least I hope so.

0

Share this post


Link to post
Share on other sites

Yes, celiac disease CAN be outgrown. People around here think of celiac as permanent but it's not always the case. I'm a little frustrated because I can't seem to turn up the research article I read recently showing remission in some childhood celiacs.

Thing is, celiac remission is relatively rare, while "silent" celiac is more common. "Silent celiac" is where a person has no symptoms, but does have musocal damage and malabsorption. Osteoporosis is common, as are deficiencies in B vitamins that can lead to neurological disorders. If I were you, I would press him to get the testing done, because the consequences of silent celiac can be so severe.

If you're in remission you haven't outgrown it. It's just lurking in the shadows and you don't know when it will come back. We patients report so many non GI issues that cleared up with gluten free diet, so it's likely that the "remission" is just for GI symptoms and the person can be presenting with other things the docs aren't linking to celiac.

Allergy is a whole different game. Allergy is a histamine response. With allergy shots you can condition your body not to react to an allergen and yes allergies can be outgrown. Celiac is autoimmune and you cannot outgrow it even if it does go in remission.

I had it my whole life and got diagnosed at 40. There were times I felt good though and I believe it was in remission. But it always reared its ugly head again.

As for the OP's son, I would like to know his entire health picture. Does he stumble or bump into things? Does he have asthma, allergies or sinus infections? Anxiety? Joint pain? There are so many non GI symptoms of celiac.

1

Share this post


Link to post
Share on other sites

I see that it has been a year since I started this thread. In June my son did EnteroLab testing which showed him to gluten and casein sensitive. With his personality type, I think he will be able to maintain a gluten-free diet even though he doesn

0

Share this post


Link to post
Share on other sites

Ha ha I never looked at the original date! Glad he's doing better and has answers.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,339
    • Total Posts
      935,566
  • Member Statistics

    • Total Members
      64,999
    • Most Online
      3,093

    Newest Member
    Con Smith
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yes you are correct. Interestingly my genes in the US are thought to be more associated with RA. Which is something they thought I had prediagnosis. In the Middle and far East they are more likely to be associated with celiac and they are rare genes in Caucasians which I am according to my parents known heritage. I always caution folks not to take the gene tests as absolute proof they can't have celiac because I had one child who had positive blood and biopsy, did well on the diet, then got genes tested in young adulthood and was told they could never be celiac. Of course that resulted in her abandoning the diet. I worry but hope someday doctors will realise we still have a lot to learn about the genetics of this disease. PS While I still have some deformity in my hands my joint pain resolved after a few months on the diet.
    • It seems like you really need a concrete or near concrete answer so I would say maybe you ought to get the gene testing. Then you can decide on the gluten challenge.   Thanks! I am convinced our dogs are there waiting for us. Meanwhile they are playing, running, laughing, barking & chasing. I have another favorite quote dealing with dogs: "If a dog will not come to you after having looked you in the face, you should go home & examine your conscience."  ~~~ Woodrow Wilson ~~~
    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
    • Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA alleles mentioned above. Results are reported as permissive, nonpermissive, or equivocal gene pairs. From: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/88906  
    • This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven?  My point is, that getting the gene testing is not an absolute determination either way.
  • Upcoming Events