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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

TreSemme Gluten-Free Products
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Hi all,

I contacted TreSemme about a specific product to see if it was gluten-free. Although it's gluten-free, it is not made in a gluten-free facility. Has anyone had experience with using these type of gluten-free TreSemme Products, or other hair products that are gluten-free but not made in a gluten-free facility?

Thanks!

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Hi all,

I contacted TreSemme about a specific product to see if it was gluten-free. Although it's gluten-free, it is not made in a gluten-free facility. Has anyone had experience with using these type of gluten-free TreSemme Products, or other hair products that are gluten-free but not made in a gluten-free facility?

Thanks!

I've used both a TreSemme shampoo and conditioner without any problems. But I have no idea if either one is gluten free. Sorry...I'm afraid I'm not much help.

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If you're not eating it, then I really wouldn't worry about cross contamination.

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If you're not eating it, then I really wouldn't worry about cross contamination.

It's actually quite hard to be 100% sure that shampoo will not enter your mouth while washing your hair. It's not just cross contamination, most people have some shampoo enter their mouth when it runs down their face in the shower so it's best to be sure about these products!

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It's actually quite hard to be 100% sure that shampoo will not enter your mouth while washing your hair. It's not just cross contamination, most people have some shampoo enter their mouth when it runs down their face in the shower so it's best to be sure about these products!

I checked my hair products for gluten...but really? I've been washing my own (hip-length) hair since I was seven years old and have never gotten shampoo in my mouth. :) I think I'd be more concerned with it getting in my eyes.

I did find, however, that using a conditioner with hydrolyzed wheat protein made me itch. I was fine once I stopped using it but I certainly didn't ingest any of it.

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My kids frequently get shampoo in their mouths. If I use hair spray or gel with gluten in it, run my hands thru my hair-which I do frequently-then I put them at risk for CC. Lots of crazy things to think about :)

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Any product that can get on your hands can get in your mouth. I wash my hands a lot especially before I touch any food. I am tired of washing my hands so much but I am slowly using up my gluten personal care supplies and then I will go completely gluten free just so I don't have to wash my hands as often. If you think of gluten as a germ than touching it puts it on your hands. I am sure not everyone feels they have to be so careful and it is a personal decision.

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Let's be realistic here - think about the percentage of the shampoo that is made up of wheat... maybe 1 or 2% of the final product, but probably much less? Then let's think about how much shampoo you actually use for your hair in the shower. Then let's think about how much could POSSIBLY get into your mouth. You are probably looking at more risk from eating Tostitos that could be cross contaminated from equipment that handle wheat products. I'm not saying that my word is the "end all" of the conversation, but I'm saying that everyone is in charge of the risk that they are willing to take, and it's better to not cause mass hysteria on this site by telling people that using shampoo with wheat at the bottom of the ingredients will make them very sick. I've been gluten-free for 3 years and I have used on and off the Paul Mitchell Tea Tree Shampoo that has wheat in the ingredients. It doesn't make me sick because I don't eat it by the spoonful.

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I am sure not everyone feels they have to be so careful and it is a personal decision.

I agree with you 100%, it is always a very personal decision - and honestly, there are enough personal care products out there that don't have gluten in them, so it is easy to avoid. But if you are really stuck on one particular shampoo, then only you can decide.

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Thanks, Joe, for the balanced perspective and helpful insight. I have used it to make a decision and not be paranoid every time I use this particular hair product and I haven't had any problems with using the product.

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And thank you, everyone else, for your helpful info as well. Everything that was posted was good and useful in some way! :)

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If you don't have your mouth closed the whole time you wash your hair you get it in your mouth. I never paid that much attention to that either until I made it a point to. I can't breathe under the shower with my mouth closed. :). I am in chronic pain 24/7 for 4 years straight with nerve damage from Celiacs Disease undiagnosed for 20 years and I am not taking any chances on what might not get into my body. I never had a reaction inside that lead me to believe anything was damaging me until I finally got a diagnose. I have severe nerve damage from Gluten. It is a personal choice absolutely!! I'm not taking any chances :). If one entire bread crumb can make me sick why can't bubbles. I wish I could make a choice :(.

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Let's be realistic here - think about the percentage of the shampoo that is made up of wheat... maybe 1 or 2% of the final product, but probably much less? Then let's think about how much shampoo you actually use for your hair in the shower. Then let's think about how much could POSSIBLY get into your mouth. You are probably looking at more risk from eating Tostitos that could be cross contaminated from equipment that handle wheat products.

I'm staying away from gluten free shampoos/conditioners/styling products not because I'm afraid I'll eat some but because I'm worried that they're damaging my hair. I have extremely fine hair and as I've aged, I've started shedding a lot. I now have a very thin patch in the front where my scalp shows through. While guys can get away with shaving all their hair and promoting their "solar sex panel," we girls have it a bit rougher when it comes to hair loss. (Unless we look like Demi Moor in GI Jane. Unfortunately I do not.)

My stylist already has me taking Biotin to help with the hair loss. And she mentioned that your diet can really affect your hair. Yet it never occurred to me about there being wheat in my hair products until I started getting diagnosed with Celiac and did some searching on the internet. Sure enough, my shampoo (Tresseme), conditioner (Aveda, I think) and styling product (Sunsilk) all had wheat in them. I've switched to gluten-free products and I am hoping that will made a difference. It's only been a couple of weeks, so it's hard to really tell yet.

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I'm staying away from gluten free shampoos/conditioners/styling products not because I'm afraid I'll eat some but because I'm worried that they're damaging my hair. I have extremely fine hair and as I've aged, I've started shedding a lot. I now have a very thin patch in the front where my scalp shows through. While guys can get away with shaving all their hair and promoting their "solar sex panel," we girls have it a bit rougher when it comes to hair loss. (Unless we look like Demi Moor in GI Jane. Unfortunately I do not.)

My stylist already has me taking Biotin to help with the hair loss. And she mentioned that your diet can really affect your hair. Yet it never occurred to me about there being wheat in my hair products until I started getting diagnosed with Celiac and did some searching on the internet. Sure enough, my shampoo (Tresseme), conditioner (Aveda, I think) and styling product (Sunsilk) all had wheat in them. I've switched to gluten-free products and I am hoping that will made a difference. It's only been a couple of weeks, so it's hard to really tell yet.

Have you had your thyroid levels tested recently? Hair loss was my only symptom when my thyroid was off.

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Have you had your thyroid levels tested recently? Hair loss was my only symptom when my thyroid was off.

Not yet. That's on the list when I go to visit the doctor next week. But I didn't think about it for hair loss, I was thinking for other reasons (metabolism, being cold all the time, etc.) Thanks for bringing it up. That will motivate me even more to make sure the doctor tests me.

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I am generally not totally crazy about my beauty products being gluten free but when I switched shampoo and conditioner to a gluten free brand, I noticed that my scalp felt better, my hair was thicker and it was noticably less dry. I am not 100% sure it is the fact the brand was gluten free but I do know for sure that I have serious psoriasis that came with my Celiac disease and if all my beauty products as well as my diet are gluten free, my psoriasis is non-existant. There has to be some correlation.

 

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Hi all,

I contacted TreSemme about a specific product to see if it was gluten-free. Although it's gluten-free, it is not made in a gluten-free facility. Has anyone had experience with using these type of gluten-free TreSemme Products, or other hair products that are gluten-free but not made in a gluten-free facility?

Thanks!

I don't blame you for being careful. I break out in hives EVERYWHERE when I topically use non-gluten free products. It is absolutely terrible, plus it makes my eczema flare up. I once had to leave the house with a huge hive on my forehead, my lip swollen, and hives down my back because of a shampoo. I since started using "Everyone" shampoo, conditioner, and soap. It is gluten free (certified), cruelty free, vegan, and made with no sulfates, harsh chemicals, or parabens. I get it on Amazon.com. I hope this helps!

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I don't blame you for being careful. I break out in hives EVERYWHERE when I topically use non-gluten free products. It is absolutely terrible, plus it makes my eczema flare up. I once had to leave the house with a huge hive on my forehead, my lip swollen, and hives down my back because of a shampoo. I since started using "Everyone" shampoo, conditioner, and soap. It is gluten free (certified), cruelty free, vegan, and made with no sulfates, harsh chemicals, or parabens. I get it on (Company Name Removed - They Spammed This Forum and are Banned). I hope this helps!

Amazon (the big company that starts with an A, where you can get stuff mailed to you through Prime lol)

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On 02/11/2010 at 6:53 PM, njbeachbum said:

Let's be realistic here - think about the percentage of the shampoo that is made up of wheat... maybe 1 or 2% of the final product, but probably much less? Then let's think about how much shampoo you actually use for your hair in the shower. Then let's think about how much could POSSIBLY get into your mouth. You are probably looking at more risk from eating Tostitos that could be cross contaminated from equipment that handle wheat products. I'm not saying that my word is the "end all" of the conversation, but I'm saying that everyone is in charge of the risk that they are willing to take, and it's better to not cause mass hysteria on this site by telling people that using shampoo with wheat at the bottom of the ingredients will make them very sick. I've been gluten-free for 3 years and I have used on and off the Paul Mitchell Tea Tree Shampoo that has wheat in the ingredients. It doesn't make me sick because I don't eat it by the spoonful.

Hey beachbum, some coeliacs are blessed with being able to tolerate traces of gluten and perhaps you are one of them.  I am unable to eat frozen vegetables from a particular supermarket because they produce them on a line handling barley and I got really sick.  I also got really sick twice after doing the laundry and discovered I had used the new detergent I had bought contains gluten.  I was so ill I couldn't leave the house for four days.  A crumb might as well be a pizza for some coeliacs.

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23 hours ago, Peaceflower said:

Hey beachbum, some coeliacs are blessed with being able to tolerate traces of gluten and perhaps you are one of them.  I am unable to eat frozen vegetables from a particular supermarket because they produce them on a line handling barley and I got really sick.  I also got really sick twice after doing the laundry and discovered I had used the new detergent I had bought contains gluten.  I was so ill I couldn't leave the house for four days.  A crumb might as well be a pizza for some coeliacs.

This thread is 6 years.  The product info may have changed in that time.  Also, most posters don't stick around for 6 years.... :)

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