• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Can't Pinpoint What Is Causing My Joint Pain
0

15 posts in this topic

One of my symptoms that I manage through a gluten free diet is arthritis. I also do yoga to alleviate joint pain.

For the past week my pain has been pretty bad and I can't figure out what is triggering it. I don't think it's gluten because I'm not having GI issues and my head is clear. I am having some fatigue but honestly that could be the time of year with our days getting shorter and colder.

So, here's what I do know: A week ago I moved my daughter to a gluten/dairy free diet. Because I was trying to make gluten free meals she would eat, like pasta, rice dishes etc...I too have been eating a lot more grains than usual. Also, I bought her orange juice with calcium and almond milk (which is labeled gluten-free btw) for her cereal. So, I've also been drinking oj and almond milk and I do have a slight allergy to the almonds.

I have tried to return to a low grain diet, and drop anything with almonds and citrus. I also cut out coffee, which may be contributing to some of the fatigue. And I've taken a break from yoga and exercise just in case that was causing the pain. So this morning I woke up stiffer than ever. I can't tell if I'm still doing something to set off the arthritis or if it's just going to take a few days to get back to normal.

As one last note I did hear on the radio that MInnesota (where I am) just recorded it's second lowest barometric pressure ever (since they started keeping records). Could that explain this morning's aches and pains?

I really hate feeling this way? Could it be the additional grains (mostly rice)? Orange juice? Coffee? Any thoughts?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I have joint pain and some arthritis too. I know that I can attribute most of my left knee pain to 6 surgeries and the right is beat up from years of compensating. But some of the things that pop up don't seem related to that history like excessive nerve pain/discomfort. Sure, those surgeries did some damage, but not this much and not to the right knee. I cannot pin down whether there's a food correlation. So far it's just a frustrating nuisance so, honestly, I am not trying to hard to figure it out. I eat a lot of rice- and corn-based products so grain is a potential carpet, but living in a dorm it would be difficult to cut those things out.

I am also in Minnesota and have noticed changes in the past with pressure and humidity fluctuations. I have some arthritis in my fingers because I have jammed, sprained or broken at least 8 of them, some 2-5 times. They don't give me any problems until there's a change in weather. This week they are a little stiff.

I quit drinking coffee in the spring, but I did notice before I stopped that if I had an excessive amount of caffeine in one day (i.e. more than 2 cups of coffee, more than 16 oz or so of soda) I would feel a little sore and stiff that night and into the morning. I would suggest keeping an eye on your intake.

Have you tried Tylenol Arthritis? Sometimes a few tablets of that help get me moving in the morning.

0

Share this post


Link to post
Share on other sites

I have joint pain and some arthritis too. I know that I can attribute most of my left knee pain to 6 surgeries and the right is beat up from years of compensating. But some of the things that pop up don't seem related to that history like excessive nerve pain/discomfort. Sure, those surgeries did some damage, but not this much and not to the right knee. I cannot pin down whether there's a food correlation. So far it's just a frustrating nuisance so, honestly, I am not trying to hard to figure it out. I eat a lot of rice- and corn-based products so grain is a potential carpet, but living in a dorm it would be difficult to cut those things out.

I am also in Minnesota and have noticed changes in the past with pressure and humidity fluctuations. I have some arthritis in my fingers because I have jammed, sprained or broken at least 8 of them, some 2-5 times. They don't give me any problems until there's a change in weather. This week they are a little stiff.

I quit drinking coffee in the spring, but I did notice before I stopped that if I had an excessive amount of caffeine in one day (i.e. more than 2 cups of coffee, more than 16 oz or so of soda) I would feel a little sore and stiff that night and into the morning. I would suggest keeping an eye on your intake.

Have you tried Tylenol Arthritis? Sometimes a few tablets of that help get me moving in the morning.

I took some advil. I'm wondering if a course of advil over the next couple of days will get the inflammation down and keep it down. I don't want to rely on it permanently though. Since you're in MN too, are you feeling more achy today? I thought the low barometric pressure thing was very interesting.

0

Share this post


Link to post
Share on other sites

I took some advil. I'm wondering if a course of advil over the next couple of days will get the inflammation down and keep it down. I don't want to rely on it permanently though. Since you're in MN too, are you feeling more achy today? I thought the low barometric pressure thing was very interesting.

Yes to the aches. Everything is a little sore today, like every muscle I've pulled in the last 6 months is coming back to haunt me.

0

Share this post


Link to post
Share on other sites

Grains , nuts, coffee and many more foods are acid-forming foods and you may get considerable relief if you learn to balance your diet with alkaline forming foods. (also called acid ash and alkaline ash foods) Our bodies are normally slightly alkaline - the more acid we become the more problems are likely to develop. Rigid and cramping muscles, deposits of minerals in joints, decreasing kidney function are only a few. One test is to use a pH strip on your saliva first thing in the morning. One of my books says using 1 teaspoon baking soda in water just before going to bed will help but this is not a cure.

Be careful about using advil. My brother was taking too much and it clogged up his kidneys so he spent a month or so on dialysis to regain kidney function. I heard that other pain meds can cause this problem.

1

Share this post


Link to post
Share on other sites
Ads by Google:


As one last note I did hear on the radio that MInnesota (where I am) just recorded it's second lowest barometric pressure ever (since they started keeping records). Could that explain this morning's aches and pains?

I can definitely tell when the weather is changing and the barometric pressure drops. Sometimes my head will hurt, or my knees, feet/toes, hands/fingers. It is different everytime. Today it is my hands/fingers and feet/toes. Yesterday it was my knees.

0

Share this post


Link to post
Share on other sites

I get joint pain (etc) from soy. So I don't eat soy. I don't know if it affects others like that though.

0

Share this post


Link to post
Share on other sites

And I've taken a break from yoga and exercise just in case that was causing the pain. So this morning I woke up stiffer than ever. I can't tell if I'm still doing something to set off the arthritis or if it's just going to take a few days to get back to normal.

Avoiding exercise is likely to make you stiffer, because you're not moving your body. Joints need movement to circulate synovial fluid. (Even non-synovial joints need movement to pump nutrients through the joint.) It could be that you need a different type of movement for now, however. (My two cents as a yoga teacher - any given yoga practice can be great for your body and mind. But exactly what your body and mind needs changes - from day to day, with the seasons, with other aspects of life. It could be that it's time to make some changes, if it's been a fairly static practice for a while.)

0

Share this post


Link to post
Share on other sites

I'm just giving up yoga for the week. I can't bear the thought of a life without yoga. I think you're right that the inertia is making this worse. Maybe just some walks for the next few days and head back to the studio next week.

0

Share this post


Link to post
Share on other sites

With eating more pasta, does that mean more tomatoes? I have heard of people having issues with arthritis when eating the "nightshade" vegetables. :blink: I do have arthritis pain this week, too. I know I was glutened over the weekend as have had GI issues the last couple of days. But since I am in Wisconsin your pressure issues are headed this way, so I'm not sure which is to blame.

1

Share this post


Link to post
Share on other sites

With eating more pasta, does that mean more tomatoes?

Only if you must have tomatoes with pasta. Pasta tastes perfectly good with pesto, with olive oil and garlic, with a stew type sauce over it, in mac and cheese. It is also possible to have pizza without tomato - I do all time. Again, pesto and parmesan, brie and cranberry, veggies and garlic w/ olive oil, shrimp and avocado, ....you get the idea.

Oh, and by the way, lasagna with bechamel sauce, spinach, mushrooms, onions and cheese is fab.

0

Share this post


Link to post
Share on other sites

Have you checked for hyperparathyroidism? There is a good site at www.parathyroid.com that explains the symptoms. You especially need ionised calcium checked and PTH and ON THE SAME DAY.

After 4 years mine is nearly dxed. I have had terrible bone pain this year.

0

Share this post


Link to post
Share on other sites

Have you checked for hyperparathyroidism? There is a good site at www.parathyroid.com that explains the symptoms. You especially need ionised calcium checked and PTH and ON THE SAME DAY.

After 4 years mine is nearly dxed. I have had terrible bone pain this year.

was reading your signature- and wanted to know what your symptoms for adrenal fatigue were? and what kind of treatment you got... i have Celiac, & just got dx w/ Hypothyroid (havent had hashi test yet), just started Synthroid... but i am worried i may also have adrenal issues- only because my thyroid i think has been hypo since 2006 & im always hot & anxious... (never cold)

0

Share this post


Link to post
Share on other sites

From the perspective of someone who is very sensitive to low levels of cc, I would say that grains, coffee and O.J. could all be causing you problems. I don't drink OJ, coffee, I wash the beans first, grains I sort and wash. Why don't you try cutting them all out for a couple of weeks and then adding them back one a week and see what happens.

0

Share this post


Link to post
Share on other sites

I get joint pain (etc) from soy. So I don't eat soy. I don't know if it affects others like that though.

Soy gives me joint pain as well. OP should check to see if the gluten-free items have soy in them. Many gluten-free subs do use soy.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,460
    • Total Posts
      930,678
  • Member Statistics

    • Total Members
      63,884
    • Most Online
      3,093

    Newest Member
    Mato Sapa
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi Steph and welcome I'm yet another Brit, funny how the alcohol threads flush us out I don't drink now but after a big night I used to get truly savage all day hangovers, much worse than those of my friends. They could include splitting headaches, vomiting, nausea, a 'fuzziness' in my head, sweats etc.  After I put the pieces together and went gluten free I had a 'big night' on cider only and the next day was a revelation. What I'd thought was a 'normal' hangover was, for me at least, anything but. With gluten out of the equation hangovers were a breeze! The difference was mind blowing and just one more example of how gluten had been messing with me over the years. So when I read your post my first thought was that there was some trace gluten contamination going on. However: Obviously you've been at the diet for some considerable time now and know the score. I know Coeliac UK are firmly of the opinion that all spirits are safe but some (note some this a contentious one :D) members here will tell you they react to gluten based grain spirits for instance which distillation should render safe.  Then there's the dangers of shared lines if you're drinking say Strongbow in a pub as alluded to above. Lastly it its wine, there's the often cited but maybe apocryphal these days 'flour to seal the casks' possibility. Finally there's bar snacks, maybe a brand of nuts etc that you snack on that may have changed their production process? I'm sure you've thought of these already, but it may be useful if you post your alcoholic drink choices / bar snack of choice up here maybe someone will have some input?.   The second thing which leapt out was: Would you class yourself as super sensitive to cross contamination etc? Firstly that would make the cross contamination theory more compelling. You could test that out by having a drink at home under controlled circumstances to see whether the same issue arises? That could also answer the quantity question. Does one safe drink trigger it, two, three etc? Finally, and this is one that I find difficult, knowing you have the gluten issue may lead you to assume it's that when it could be something else. I tend to attribute EVERYTHING in the world to gluten these days due to it being able to affect me in so many different ways. Crisis in Korea? Gluten. Russian tanks massing on the Ukrainian border? Check their wheat intake. Global warming? etc. So it may make sense to pursue some other ideas at the same time. Try:  http://goaskalice.columbia.edu/answered-questions/suddenly-drinking-alcohol-makes-me-sick http://www.steadyhealth.com/topics/very-abnormal-hangovers-thinking-it-could-be-allergy-to-alcohol Cheers Sorry, best of luck! Matt  
    • Similarly, I've been vegetarian for 25+ years.  A 2015 Nature study connecting emulsifiers with microbiome changes has me wondering about the processed foods that I ate in the past, and I wonder about the wisdom of eating as much seitan as I did.  I mostly prefer my post-diagnosis diet since it forces me to consider every ingredient and to cook from scratch more.
    • LOL, that might put it into perspective if I explain it that way. 
    • I am very interested in this too. My daughter tested negative for celiac, but has terrible primarily neurological symptoms. Because she tested positive for SIBO at the time and was having some GI symptoms, I was told it was just a Fodmap issue.  I knew better and we have been gluten free for 2 years.  Fast forward to this February. She had a SIBO recurrence that I treated at home with diet and herbal antibiotics because I couldn't get the insurance referral. She was doing great. Then stupid me brought in gluten containing chick feed for the new baby chicks we got.   Feed dust everywhere. Total mess.  Really, no GI symptoms (she was SIBO free by then)...but the neurological symptoms! my daughter couldn't walk for three days. Burning down one leg, nerve pain in the foot. Also heaviness of limbs, headache and fatigue. Better after three days. But unfortunately she had a TINY gluten exposure at that three day mark and had another severe reaction: loss of balance, loss of feeling in her back and arms, couldn't see for a few seconds, and three days of hand numbness, fatigue, concentration problems.  Well, I actually contacted Dr. Hadjivassilou by email and he confirmed that the symptoms are consistent with gluten ataxia but any testing would require a gluten challenge. Even with these exposures, antibodies would not be high enough.  His suggestion was maintain vigilance gluten free.  I just saw my daughter's GI at U of C and she really only recognizes celiac disease and neurological complications of that. But my impression is that gluten ataxia is another branch in the autoimmune side of things (with celiac and DH being the other two).   At this point, I know a diagnosis is important. But I don't know how to get there. We homeschool right now so I can give her time to heal when she is accidentally glutened, I can keep my home safe for her (ugh, that I didn't think of the chicken feed!)  But at some point, she is going to be in college, needing to take exams, and totally incapacitated because of an exposure.  And doctors state side that are worth seeing?  Who is looking at gluten ataxia in the US?
    • Caro..............monitoring only the TSH to gauge thyroid function is what endo's do who don' t do a good job of managing thyroid disease.  They should do the full panel and check the actual thyroid hormone numbers.........T3 and T4. The importance of the TSH comes second to hormone levels. In order to track how severely the thyroid is under attack, you need to track antibody levels.......not the TSH. I did not stay with endocrinologists because I found they did not do a very good job and found much greater help and results with a functional medicine MD.  You should not have a goiter if your thyroid is functioning well and your TSH is "normal".  Maybe they should do a full panel? Going gluten free can have a profound affect for the better on thyroid function and that is something that is becoming more and more accepted today.  Ask most people with Celiac and thyroid disease and they will tell you that. My thyroid never functioned well or was under control under after I discovered I had Celiac and went gluten free.  It was the only way I got my antibody numbers back down close to normal and they were around 1200 when it was diagnosed with Celiac.  I was diagnosed with Hashi's long before the Celiac diagnosis.  I am not sure Vitamin D has anything to do with thyroid antibodies but who knows?  Maybe it does have an affect for the better. It is really hard to get Vitmain D levels up, depending on where you live. Mine are going up, slowly, even after 12 years gluten-free but I live in the Northeast in the US and we don't have sun levels like they do in the South.  I take 5,000 IU daily and that is a safe level to take, believe it or not.  I get no sun on my job so the large dose it is! Having Celiac Disease should not stop you from being able to travel, especially S. America. I travel, although I do agree that some countries might be very difficult to be gluten free in. You can be a foodie and travel with Celiac so no worries on that front. You may not be able to sample from someone else's plate, unless they are eating gluten-free too but I have had awesome experiences with food when traveling so you can too!
  • Upcoming Events