• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

HI ALL!!

I need a little help....I have had upper left abdominal pain for 2 months now...I also have left flank pain. I have loose stool often in the morning...but not diharrea. other then that I am not extreamly tired considering I have 2 kids 3 year old. No skin conditions I have really bad seasonal allergies so I have a runny nose and itchy eyes. My blood work was normal but it was just checking my blood cell count and my urine was normal. I had a ultra sound last week and an upper GI series done. The doctor said everything is normal but during the upper GI the barium drink went through my small intestine in 10 minutes rather then 2 hours. She has said that people who have there gallbladder removed experience this or people with a wheat intolerance. I have been wheat free for only 3 days and the pain is mild. I ate ice cram yesturday and I found I got the pain in my stomach and felt bloated and had ALOT of gas. I guess my question is are my symptoms typical of celiac??? Please let me know I would GREATLY appreciate it. :)

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Yes, they sound like they could be celiac. It's hard to say though because over 200 symptoms can come with celiac and some people do not get any. Have you had a full celiac panel of bloodwork done? That includes the following:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

The tTG, EMA, and total serum IgA are the most important to have done.

If all testing, including biopsy, shows negative then you may just have a gluten intolerance and not full blown celiac yet. That can develop into celiac if you continue to eat it.

Or there could be another problem

Gallbladder complications are connected with celiac as well.

Also, going gluten free includes eliminating wheat,rye,barley, and oats.

There is stuff it can be hidden under as well so if you go gluten free this is a great site to get info of what you need to look for. There is a list you can print out of forbidden and safe ingredients and foods.

Also, with celiac, people at first can have a problem with dairy until damage to the intestine heals.

Good luck :D

Share this post


Link to post
Share on other sites
I guess my question is are my symptoms typical of celiac???

Some people have many symptoms and others have none at all. Your symtoms could be celiac. I also get the upper abdominal pain. I think it would be worth your time to go and get the celiac blood test panel (the ones that Kaiti mentioned), if that's is what you want of course ;) Although you may get a false negative result if you are gluten free for too long.

* I also have major issues with dairy *

Share this post


Link to post
Share on other sites
Although you may get a false negative result if you are gluten free for too long.

yea, I forgot to mention....don't go gluten free before testing...that will make the results useless

Share this post


Link to post
Share on other sites

Thanks!

I had asked my doctor it there were any testing for this problem and she said that elimination is the way to go. I have felt better being away from gluten. I would like to have the biopsy done to see for sure if it is celiac. Is there a difference between celiac and just a wheat intolerance? I have also read that the blood test could give you a false negative anyways, is that true? I also find that when I lay on my stomach or bend over I get a pain in my abdomin, is this characteristic of Celiac? Thanks for the info!

Share this post


Link to post
Share on other sites
Ads by Google:


That can be a symptom of celiac but it also may be correlated with something else.

Blood tests can give you a false negative when if you are off of gluten during testing.

You should get a full panel done. The tTG is the best test...it is the most sensitive and is probably going to take the place of biopsy in kids for diagnosis in the near futrue. The other good tests are EMA and total serum IGA. If all the good tests come back negative the liklihood of you having celiac really drops. If you want to get a biopsy as well as blood tests that's fine too :D The Anti Gliadin IgA can come back a false negative if a celiac has IgA defiency which can come in celiacs.

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Total Serum IgA

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,929
    • Total Posts
      943,567
  • Member Statistics

    • Total Members
      67,201
    • Most Online
      3,093

    Newest Member
    GemD
    Joined
  • Popular Now

  • Topics

  • Posts

    • There was a study where they checked 2 weeks on a gluten-free diet , and antibodies were still going up .  The study wasn't about that, so I think that is why they didn't go any further.   So... looks like 2 months gluten free?  If we think that antibodies are still being made at least two weeks gluten free.... account for the fact that most people need a few weeks to actually figure out and eat gluten-free...I would say it was a bit soon to re- test antibodies.     Edit it to add- if you were tested sept 12 and ate gluten for 6 more weeks before going gluten-free - who knows how high it got.  Shame on your doctor for doing the re- test so soon and discouraging you!  
    • Your numbers should not be going up at all. You are getting gluten somewhere. Do you eat out? Have you read the Newbie 101 at the top of the coping section? That will help you to ferret out how you may be getting glutened. Do you have a gluten free household or is it a shared household? Do you read ingredient labels?
    • Thank you so much!!!! I have a severe allergy, I can not even walk through a grocery store without getting a migraine. I have always used dreft but now I know for a fact that it is safe.
    • I’m 62 and have just now been tested for Celiac.  My Titer was negative, I have zero IGa and too much IGg (16) which is an indicator of intolerance at the very least and may indicate the need for another endoscopy. He also tested for EPI (exocrine pancreatic insufficiency) which was negative.  I just had a colonoscopy/endoscopy last year as a part of being diagnosed w/ Gastroparesis. I also have (among other things which I’m not sure are as relevant) - T2 Diabetes, Hashimotos Thyroiditis (late 30’s) Chronic Kidney Stones (since age 40), Osteoporosis (way before Menopause and not well controlled), and Gallbladder disease.(was removed) I’m discovering that all those I listed may be related in some way, and related to Celiac.  I haven’t seen the gastro doc for followup since the testing (obtained results from lab) so I’m not sure what he’s going to recommend.  Here’s where it gets scary... my daughter has many of the same things. She was just diagnosed with EDS (Ehlers-Danlos Syndrome) at 32.  She was diagnosed w/Glucose intolerance at 15, had her Gallbladder removed at 20, PCOS at 22, and Gluten intolerance at 30 (no testing, just her gastro’s recommendation). She’s been diagnosed w/Gastroparesis, POTS,  MAST Cell Activation Disorder, Peripheral Neuropathy, (lost use of her bladder and has a neuro stimulator) - all in the last year.  Too much coincidence for me.  This has to be all related. I keep reading more and more studies linking all these things (like EDS and Celiac) together. My daughters  geneticist is blown away by the multiple overlapping and co-morbid conditions we have and tells us it’s not uncommon. She also says research is expanding.  Sadly, the specialist docs seem baffled and can’t even begin to address our issues, and only help to manage the symptoms - sometimes. And every “Disease/Disorder” has a “diet” or protocol, and they are all at odds with each other - very frustrating.  I guess the moral of this story is to let others know that there’s a lot more to all this than meets the eye. Don’t let anyone tell you you’re fine if you have what seem to be strange unrelated symptoms. You’re not crazy. Keep fighting for understanding and knowledge. Be an advocate for yourself, you’re loved ones,  for us all.      
    • Nice to know that Disney makes an effort to take care of people with allergies or special diets (like gluten free!): https://publicaffairs.disneyland.com/walt-disney-parks-resorts-receives-honors-allergy-friendly-fare/
  • Upcoming Events