• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Has Anyone Ever Had This Before?
0

16 posts in this topic

Hi all.

Since trying to go gluten-free to stop the pain I'm in, I've been missing some of the stuff, like pasta. I found some gluten-free/wheat free pasta (made of rice flour). I got sooooooooo ill from it last night it was unbelievable. I thought maybe it was the pasta sauce (vodka sauce lots of dairy), so I tried rice bread this morning. Same results. Very ill. In pain within a half an hour.

Is it possible to be "allergic" - sensitive I guess is the better word, to other grains? I know I don't get on with soy, and rice and corn were somewhat questionable, but I've never reacted that badly before. I've never really ate a lot of gluten-free stuff, so to be fair, this was really my first major intake of anything other than white flour/wheat flour.

I feel really defeated right now as I just don't know what I'm doing. :(

Thanks for listening.

Beth

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It is possible to be intolerant or allergic to other grains, but there are other options as well. First, does regular rice cause this problem - not just processed rice? Also, was it a gluten like reaction or very different? How long have you been gluten free; sometimes things can bother you for a while until you heal? Have you identified other food intolerances?

0

Share this post


Link to post
Share on other sites

Beth-

I agree with Tiffany... and I note I am intolerant to a ton of foods, and that some foods procedure worse "noticeable" reactions in me than gluten--like turkey, corn, some dairy, coffee... Might want to check into other food intolerances. Have you tried other gluten-free breads, like corn bread or a bean flour bread? Also, you should make sure when you're cooking that your not cross contaminated your gluten-free food with utensils, pans etc that have gluten on them... Hopefully you'll figure out the culprit soon. It takes some of us a while to work out all the kinks !!

0

Share this post


Link to post
Share on other sites

Thanks for replying. The reaction was similar to gluten (nausea,dry heaves, then pain) but more pronounced. Gluten usually just goes to blinding pain within a half an hour. Rice in and of itself could be a problem. I was told to avoid rice and soy by my nutritionist, but corn should be ok every once in a while. Except for sushi, I was never a big rice eater. Never really liked the stuff. :)

I never thought about gluten being in the pans. I use a dishwasher and figured that would blast about anything off. :) I'll check into that.

Bean flour? I've never heard of it. What kind of beans is it made out of? Is it any good?

Sorry to be asking so many questions. :)

Beth

0

Share this post


Link to post
Share on other sites

FYI - there is also tapioca bread. That's what I eat and I like it better than rice bread.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I'll definitely give that a try and see how it goes. Thanks Abby!! :)

0

Share this post


Link to post
Share on other sites

Beth-

Questions are always welcome :) Bean flour can be made from several types of beans, some products will have a bit of a bean taste if there is much bean flour, but it leads to good texture. You can buy these flours in many places, but here is one example of Bob's Red Mill bean flour. I have this at home: http://www.bobsredmill.com/catalog/index.p...&product_ID=200

You could ck out this bread--very good texture and taste. One of the ingredients is a rice grass. Not sure if that is related to rice or just a name... THis bread is a favorite of many. http://www.glutenevolution.com/products.html

If you're using a dishwasher, I bet your okay. I just ask b/c its an issue for some. Ie:--sharing a toaster, muffin pan that has crusted on bread or something... I know there are other non-rice breads, but would need more time to look for some. I bet Abby's tapioca bread is bread. Ab--what brand do you get?

0

Share this post


Link to post
Share on other sites

Jen - I think the brand is EnerG

I'm not saying Tapioca bread is the greatest in the world. But I've liked it better than the rice breads I've had. And it may be an option if you can't eat rice. ;)

0

Share this post


Link to post
Share on other sites

okay-i'm an idiot! i just read my post where i said

I bet Abby's tapioca bread is bread

Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

:blink:

0

Share this post


Link to post
Share on other sites
Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

It's easy to make mistakes, I have to edit my posts a lot because I make horrible mistakes all the time. That is pretty funny though :lol:

0

Share this post


Link to post
Share on other sites

LOL :lol: ...we understood :)

0

Share this post


Link to post
Share on other sites

I'm trying to go off of all grains but am happy to consider tapioca bread, etc for some foods. I'm thinking of ordering some of the raved about Chebe bread for that reason. Nice to have a grain free option.

Stephanie

0

Share this post


Link to post
Share on other sites
Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

:blink:

lol... I don't know... I think with gluten-free bread, there may be a fair amount of sense in that statement "I bet her bread is bread". some of it really isn't bread, you know. it's ground up cardboard held together by a vacuum package, unless it's actually just a porous rock. :lol:

0

Share this post


Link to post
Share on other sites

Kinnikinnick has a very good Tapioca Bread as well, also they have a real nice English muffin which is mostly Tapioca I believe. I think there is a bit of rice flour in there as well, but when I was having trouble with rice both the bread and buns didn't bother me. I do hope that you find something that really agrees with you and tastes good too :rolleyes:

0

Share this post


Link to post
Share on other sites

I totally agree, most gluten-free bread is NOT bread!

LOL, Susan

0

Share this post


Link to post
Share on other sites

ha ha ! maybe i was "wise" in what i said then :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,761
    • Total Posts
      932,251
  • Member Statistics

    • Total Members
      64,226
    • Most Online
      3,093

    Newest Member
    FionnualaDH
    Joined
  • Popular Now

  • Topics

  • Posts

    • I live in a house where some people eat bread.  I do not use the toaster that toasts regular bread. All sandwiches are made in a special area of the kitchen and I do not prepare any of our other food there. If you have touched bread, you have to wash your hands before you touch anything else in the kitchen.  After you eat bread, the dishes go directly (and only) into the sink.  I rinse any plates and forks extremely well that have had bread on them and then I put them in the dishwasher (they essentially get washed twice). Then I rinse out the sink.  I have a separate dish scrubber that I use when the plates have had anything with gluten on them.  We don't cook with flour or bake with real flour(except once a year when I let my kids make their birthday cakes). The flour goes everywhere and coats the surface of countertops.  Do you make all your soups from scratch? A lot of soups have flour as a thickener. Also Nuts are often times made in facilities that process wheat. Planters nuts seem to be pretty safe or shop at Nuts.com - they have quite a few options. Hope you feel better soon!
    • If you're like me, you've already tried all multiple options without very good answers, thus the reason you are on the boards...
    • Yes, I was. I had two weak positive blood work, then an endoscopy not for celiac but was very inflamed, and one positive genetic for celiac. My diet is very limited right now. I am almost paleo. I am really struggling to find food that I can eat and not bother my stomach. I eat a lot of nuts, peanuts, beans, chicken, veggies, fruit, and soups. I have cleaned out the house from gluten (except for my dad's rolls  ) I can not change out pans and cookware. I could try to get my own personal but it would be hard. How did you get glutened? 
    • thleensd, If you have POTS you should look into Magnesium. Here is a thread started by Ennis_Tx that talks about some of it's many benefits. Also see this link from the affibers.org website that mentions specifically Magnesium Taurate's role in arrhythymia's. http://afibbers.org/resources/taurine.pdf I also recommend trying some some Niacinamide and/or a 100 B-complex 3/day.  B vitamins help us manage our stress. If it (Niacinamide) or the B-100 or B-50  causes you to burp in 2 or 3 months (which has Niacinamide in them) then your symptom's could be caused by co-morbid pellagra. Knitty Kitty has given you good advice as well since Celiac's are low in many nutrient's often. Here is my blog post that explains what I believe happened to me. I hope it helps you thleensd the way it did me. Take a B-complex for couple months to see if it helps. Frequency is more important than the amount. 2x day of of a b-complex will allow your serum levels to stay high throughout the day helping you recover 2x as fast as once a day.  Do the same with Magnesium Glycinate or Magnesium Taurate  (2 to 3 times a day in divided doses) and I think your fatigue will greatly improve or at least your energy levels will increase greatly. I hope this is helpful. ****this is not  medical advice only some of the things I did to help myself. I am too sharing in hopes that other people will hear my story and believe . . . 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • First were you diagnosed with celiac? Second what is you basic diet right now, there are some other common issues that go along with celiac food intolerance wise we might be able to narrow this down. Third did you read hte 101 and make 100% sure that nothing is contaminated? This sounds like you might have contaminated a common used prep surface, utensil, pot. Or have a contaminated spice, condiment, or something new in your house like a cleaner, hygiene product. etc that might be leading to more issues. I can only say if you can get your antibodies checked to see if still elevated to know if it is gluten or something else. Imodium will help with the D, Anise (the spice) and gas X can help with bloating, pepto bismal can help overall. These can help to make it more manageable. \ I might suggest trying to eliminate the chance of it being cookware by getting some cheap new microwave cook ware like a steam tray and omelette maker and just having steamed veggies, eggs, and perhaps a baked sweet potato. Avoid condiments and spices for a bit and see if you can clear it up taking it down to whole unprocessed foods. I find doing this and resetting helps after a issue (I got glutened this last weekend and did the egg and veggie diet with avocado and almonds). Bonus of cooking in the microwave is you get softer end product that is more moist, less burnt and oxidized making digestion easier in my opinion.
  • Upcoming Events