• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Has Anyone Ever Had This Before?
0

16 posts in this topic

Hi all.

Since trying to go gluten-free to stop the pain I'm in, I've been missing some of the stuff, like pasta. I found some gluten-free/wheat free pasta (made of rice flour). I got sooooooooo ill from it last night it was unbelievable. I thought maybe it was the pasta sauce (vodka sauce lots of dairy), so I tried rice bread this morning. Same results. Very ill. In pain within a half an hour.

Is it possible to be "allergic" - sensitive I guess is the better word, to other grains? I know I don't get on with soy, and rice and corn were somewhat questionable, but I've never reacted that badly before. I've never really ate a lot of gluten-free stuff, so to be fair, this was really my first major intake of anything other than white flour/wheat flour.

I feel really defeated right now as I just don't know what I'm doing. :(

Thanks for listening.

Beth

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It is possible to be intolerant or allergic to other grains, but there are other options as well. First, does regular rice cause this problem - not just processed rice? Also, was it a gluten like reaction or very different? How long have you been gluten free; sometimes things can bother you for a while until you heal? Have you identified other food intolerances?

0

Share this post


Link to post
Share on other sites

Beth-

I agree with Tiffany... and I note I am intolerant to a ton of foods, and that some foods procedure worse "noticeable" reactions in me than gluten--like turkey, corn, some dairy, coffee... Might want to check into other food intolerances. Have you tried other gluten-free breads, like corn bread or a bean flour bread? Also, you should make sure when you're cooking that your not cross contaminated your gluten-free food with utensils, pans etc that have gluten on them... Hopefully you'll figure out the culprit soon. It takes some of us a while to work out all the kinks !!

0

Share this post


Link to post
Share on other sites

Thanks for replying. The reaction was similar to gluten (nausea,dry heaves, then pain) but more pronounced. Gluten usually just goes to blinding pain within a half an hour. Rice in and of itself could be a problem. I was told to avoid rice and soy by my nutritionist, but corn should be ok every once in a while. Except for sushi, I was never a big rice eater. Never really liked the stuff. :)

I never thought about gluten being in the pans. I use a dishwasher and figured that would blast about anything off. :) I'll check into that.

Bean flour? I've never heard of it. What kind of beans is it made out of? Is it any good?

Sorry to be asking so many questions. :)

Beth

0

Share this post


Link to post
Share on other sites

FYI - there is also tapioca bread. That's what I eat and I like it better than rice bread.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I'll definitely give that a try and see how it goes. Thanks Abby!! :)

0

Share this post


Link to post
Share on other sites

Beth-

Questions are always welcome :) Bean flour can be made from several types of beans, some products will have a bit of a bean taste if there is much bean flour, but it leads to good texture. You can buy these flours in many places, but here is one example of Bob's Red Mill bean flour. I have this at home: http://www.bobsredmill.com/catalog/index.p...&product_ID=200

You could ck out this bread--very good texture and taste. One of the ingredients is a rice grass. Not sure if that is related to rice or just a name... THis bread is a favorite of many. http://www.glutenevolution.com/products.html

If you're using a dishwasher, I bet your okay. I just ask b/c its an issue for some. Ie:--sharing a toaster, muffin pan that has crusted on bread or something... I know there are other non-rice breads, but would need more time to look for some. I bet Abby's tapioca bread is bread. Ab--what brand do you get?

0

Share this post


Link to post
Share on other sites

Jen - I think the brand is EnerG

I'm not saying Tapioca bread is the greatest in the world. But I've liked it better than the rice breads I've had. And it may be an option if you can't eat rice. ;)

0

Share this post


Link to post
Share on other sites

okay-i'm an idiot! i just read my post where i said

I bet Abby's tapioca bread is bread

Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

:blink:

0

Share this post


Link to post
Share on other sites
Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

It's easy to make mistakes, I have to edit my posts a lot because I make horrible mistakes all the time. That is pretty funny though :lol:

0

Share this post


Link to post
Share on other sites

LOL :lol: ...we understood :)

0

Share this post


Link to post
Share on other sites

I'm trying to go off of all grains but am happy to consider tapioca bread, etc for some foods. I'm thinking of ordering some of the raved about Chebe bread for that reason. Nice to have a grain free option.

Stephanie

0

Share this post


Link to post
Share on other sites
Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

:blink:

lol... I don't know... I think with gluten-free bread, there may be a fair amount of sense in that statement "I bet her bread is bread". some of it really isn't bread, you know. it's ground up cardboard held together by a vacuum package, unless it's actually just a porous rock. :lol:

0

Share this post


Link to post
Share on other sites

Kinnikinnick has a very good Tapioca Bread as well, also they have a real nice English muffin which is mostly Tapioca I believe. I think there is a bit of rice flour in there as well, but when I was having trouble with rice both the bread and buns didn't bother me. I do hope that you find something that really agrees with you and tastes good too :rolleyes:

0

Share this post


Link to post
Share on other sites

I totally agree, most gluten-free bread is NOT bread!

LOL, Susan

0

Share this post


Link to post
Share on other sites

ha ha ! maybe i was "wise" in what i said then :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,805
    • Total Posts
      932,567
  • Member Statistics

    • Total Members
      64,299
    • Most Online
      3,093

    Newest Member
    Lauren Leon
    Joined
  • Popular Now

  • Topics

  • Posts

    • It won't let me attach a picture. It's the Pure Beef Protein Isolate French Vanilla with vanilla seeds in the front.  
    • Thanks everyone!  The L-Glutamine is from Nutri-Dyne and the Paleo Protein is from Dynamic and is sold by Nutri-Dyne. Is this the brand you got sick from? 
    • Hi kelzz..........the only way you will find out if the increase is from gluten exposure is to have your doctor run the correct test.  I have said this a million times on this forum but I will say it again.....the DGP/IgA tests for reaction to gluten ingested. The tTg/IgA tests for intestinal damage and that can be elevated from other autoimmune diseases, or from ingested gluten.  So you are either being glutened in sneaky ways OR you may have another autoimmune issue going on. Sorry my answer is so late but I have been on vacation. I hope this information helps you!
    • Ok, so long story, but I'm hoping some knowledgeable folks can chime in and tell me if a) I'm not crazy for thinking this sounds a lot like celiac and not a lot like anything else and  are the tests being run the right ones? I had malabsorbtion symptoms my whole life, rashes on the inside of my elbows and knees, chronic constipation, chelisis, brittle cracking nails, my hair sheds a ton, irritation on the edges of my scalp, blistery rashes on my hands, low iron, low blood sugar, bloating, painful gas (like bring me to my knees type). I pretty much just accepted it as my normal, and when I went to get the skin issues checked out in my early 30s, I was just told it was eczema and sent away. The rashes on the insides of my elbows and knees went away when I was about 15 or so, but in my 20s I started seeing a blistery, itchy rash on my elbows occasionally. Fast forward to 2015, and I have a terrible outbreak of GI symptoms (always constipation with me, with the occasional horrible D experience sprinkled in) along with a pretty bad itchy rash on both elbows. I start researching and find that a lot of what I have experienced sounds like DH/celiac. By the time I get my referral in and appointment to the GI doc, I've decided to cut milk out of my diet. I thought back to when I had the last period of time where I had no GI symptoms, and it was when I was last deployed. The dairy in the chow hall was either expired or near it, so I lived on eggs, rice, and chicken, and hot sauce. ;p. Once I cut out milk, and I saw a pretty impressive relief of most of my symptoms. The chelisis is gone, my rash disappears, bloating is much better, gas pains are gone. I get tested for celiac- negative, lactose intolerance- negative, SIBO- positive. Two rounds of antibiotics 6 months apart and my SIBO (methane type) clears up. Basically they said I had IBS-C and my skin issues were likely unrelated. I'm pretty sure my issue with milk is casein-related, because my son has the same issues with casein, and I sure have GI issues when I drink it. (TMI... mucousy rabbit poo). So I figure most of my issues have cleared up, no active rashes, good right? Nope. Since then, I had a couple outbreaks on my elbows, but they went away fairly quickly, My scalp rash thing ebbed and flowed, and my hair still sheds a ridiculous amount. About a month ago, I had another rash outbreak on both elbows, a couple blisters on my hands... and it stayed. After a month of rash, I finally contacted my doc and said "look, this rash is active, please take a look." Just as if it sensed it, the rash started clearing, that same day. :-< By the time I saw her a week and a half later, it was gone, save for a couple scabs. So, good news is my doc disagreed with the GI doc and said it sounded auto-immune to her. I'm military, so I get what I get for referrals, labs, and doctors, but she's luckily very good and knowledgeable. She ran the following tests: Complement Panel: Awaiting results C-Reactive Protein: Awaiting results Celiac Disease Ab IgA Panel: Awaiting results Tissue Transglutaminase Ab IgA: Awaiting results
      Gliadin Ab IgA: Awaiting results Endomysial Ab IgA: Awaiting results Rheumatoid Factor: NEG Comprehensive Metabolic Panel W/eGFR: Normal with the exception of a higher than normal Urea Nitrogen/Creatinine (indicates poor kidney function or bleeding in intestines (ding ding ding) My GFR was normal, so kidneys are probably okay. ESR: 9 (normal is 0-20) Indicates inflammation  
    • I've tried 3 shampoos and a skin cream, sorry can't recall names! It can keep it under control but I want to know why it happened in the first place. I was already gluten-free, and never had it in my life beforehand. Just looking for a magic cure
  • Upcoming Events