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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Celiac15

Does Anyone Get Upper Back Spasms When Glutened?

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Hey there -

I am new to this site and it is so helpful. For years, I get upper back spasms when I am glutened and it lasts for about a week. It is so strange considering nobody else seems to have these symptoms. Of course, I get the headache, stomach bloating etc...but its the upper back spasms that are sometimes unbearable and make me so irritable. I use heat, ice, bengay, advil.

If anyone has this symptom, have you found anything that really works to alieve the symptoms? Thanks!

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I get all over back spasms. In fact its funny that you should ask because I'm having them now. <_<

Got glutened by soap that was mislabeled at a friends house tonight. Didn't eat anything or touch my mouth afterwards but I've got all the symptoms now, achy back spasms, foggy brain, headaches, cold hands. :( Within minutes of washing them too.

But you know...gluten can't get through the skin or anything... :rolleyes:

I've found that eating an apple sometimes helps alleviate some of the symptoms. Apples are detoxing fruits.

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Yes, I get spasms too, but more in the mid back area and usually after the bloating and diarrhea have subsided some. Interesting!

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I get them too. What helps me is to keep my back really strong with exercise. Also to keep it well supported by strong stomach muscles, also exercise, and limber, stretching exercises. I get lazy and stop doing all that and then go back to the back problems when glutened.

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and here I thought I was nuts! I get mid back pain so bad when glutened. That was one of my big 3 glutened symptoms.

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and here I thought I was nuts! I get mid back pain so bad when glutened. That was one of my big 3 glutened symptoms.

lower back for me... Massage, lots of water, and heating pad help me

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Hey there -

I am new to this site and it is so helpful. For years, I get upper back spasms when I am glutened and it lasts for about a week. It is so strange considering nobody else seems to have these symptoms. Of course, I get the headache, stomach bloating etc...but its the upper back spasms that are sometimes unbearable and make me so irritable. I use heat, ice, bengay, advil.

If anyone has this symptom, have you found anything that really works to alieve the symptoms? Thanks!

Not now but I used to before I went gluten-free.

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I get muscle spasms too and mostly in the back. I used to wonder what it was when I was still eating gluten. My mom has a lot of spasm like that but she isn't excited to go for the test. I think I will end up paying the test for my whole family if I want them tested :)

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I had this happen to me really bad this week. I was getting back spasms for 3 days when I thought about taking an allergy pill. Just store brand chloriphenirine maleate, and it started relieving the spasms. I took it every 4 hours, and it got better and better. When I would forget, the back spasms would start up. After about 3 days of the allergy meds, it is getting to the point where I don't get the spasms when I forget a pill. Saved me big time! I thought I was going to have to go to the hospital.

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I am newly diagnosed as celiac and have gotten mid back spasms 3x in 2 weeks. The 1st time I ingested something I knew was gluten my mid back actually locked.  That was one of the reasons I went to my GP for it in the first place. This week I went to my chiro twice for it.  When I asked him how it could be connected to celiac he told me your duodenum which is right below your esophagus in the front has nerve endings that go to the vertebrae in the middle of your shoulder blades.  That was how I found out that the 2 are connected.  Chiropractic helps with immediate relief every time...

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Hello,

I am so relieved to be reading this post. I really thought I was losing my mind. I just had fried chicken from a take-out and pretty sure the batter had gluten. 5 minutes later I was in excruciating pain!! Still am:( 

I haven't been tested but amtrying to eat grain free as per recommendation of book: No Grain, No Pain.

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2 hours ago, LiseJoy said:

Hello,

I am so relieved to be reading this post. I really thought I was losing my mind. I just had fried chicken from a take-out and pretty sure the batter had gluten. 5 minutes later I was in excruciating pain!! Still am:( 

I haven't been tested but amtrying to eat grain free as per recommendation of book: No Grain, No Pain.

Unless the fried chicken says it's gluten-free and you know they fried it in oil that's only had gluten-free foods in it, you can rest assured your fried chicken had gluten.

welcome to the board!

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