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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long Did It Take To Start Feeling Better
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15 posts in this topic

I have been on a gluten free diet for a week and I still have a constant pain in my lower stomach. The diarrhea has stoped through. I still get alot of gas to.

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Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

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Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

Hi Dennis, welcome to the forum.

I was dx'd in April. I felt worse for the first few months after going gluten free. It's like your system is screwed up and it takes time to peak before the auto immune response starts to settle down. So just hang in. One week is only the beginning unfortunately... but i am doing SO much better but it took until the 5th month mark.

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Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

My Docter did some blood test last Wednesday and called me on Friday. He wanted me to try a gluten free diet for two weeks and gave me information on Celiac Disease. So I'm not 100% sure that it is celiac. I do have alot of the sysptoms though.

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My Docter did some blood test last Wednesday and called me on Friday. He wanted me to try a gluten free diet for two weeks and gave me information on Celiac Disease. So I'm not 100% sure that it is celiac. I do have alot of the sysptoms though.

If it is celiac or gluten intolerance, healing will take a while. It is not like just flipping a switch off. It took a while to get where you are and it will take a while to recover.

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Does any one knwo what the doc may after the two weeks are? Or what I should ask him.

Thank you.

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Welcome Dennis429!

It is good that you have had some relief. Everyone is going to heal at a different rate. Be patient it will come.

Were you diagnosed with celiac?

One of the things you might need to do in the beginning, while you are healing, is to remove dairy and possibly soy too and don't eat too many processed gluten free foods.

Make sure to come here often and ask lots of questions.

if you avoid dairy and soy what do you eat for breakfast? i love cheese and use soy milk for cereal.

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Well you can always have scrambled eggs, or a fruit salad, or, if your like me and your not picky, I'll make a tuna salad-yes, for breakfast-I just don't really care if I have lunch/dinner food for breakfast. Maybe even google some breakfast ideas :) Personally, i love having a mix of fresh fruit for breakfast

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Dairy and soy are common offenders, that is why they are suggested to be removed.

Almond milk, coconut milk, rice milk and hemp milk. There might be more.

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Don't hate me: It was a full 6 months before i had one completely symptom free day. But... I did see improvements. A few things improved right away like my anxiety attacks. But other stuff took awhile. i went through many weird phases too. Like there were a couple of weeks where I could not eat anything without feeling sick. Then it passed.

Give it time and read about withdrawals on this board so you know it's "normal."

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I pretty sure dairy products cause a problem now I had a bowl of rice check's with milk and it caused gas and DH I also had broccoli and cheese yesterday and it caused the same problem so I'm pretty sure I will have to lay off dairy for a while.

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I could tell a difference within three days (but that's not always the case, as many have noted), but it was almost a year before I felt the full benefits of the diet.

There were so many benefits that I didn't know enough to hope for. I just thought I was getting older (even though I was plenty young).

It was just a slow gradual improvement, until one day I realized "Hey, I don't get canker sores anymore" or "Wow, I feel good in the mornings" or "My joints aren't hurting like they used to" -- and one day it was "I feel better than I've felt in 10 years."

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It was a full 6 months before I had ONE completely symptom free day. I did get small increments of healing and relief over time. I'm 11 months gluten free and a completely new person!

Celiac is an autoimmune disease which means your intestines look like a war zone in Iraq right now. It takes time to heal all that damage and destruction. You will go through phases and your body is working overtime to heal that mess.

Give it what it needs to succeed. Eat a clean healthy diet and get every speck of gluten out of your diet and out of your soaps and things. Soap and lotion get into your mouth somehow some way. You will get better but it takes time. Be patient and it WILL pay off! I promise.

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The panic attacks/anxiety/depression stopped almost immediately :) It took a few months for the d and nausea to go away, because I kept accidentally getting gluten from seemingly "gluten-free" items, or at restaurants from ignorance/miscommunication. But even then, it was a lot better, usually something like 3 days feeling great, then "oops I got glutened again :(" and feeling sick for a few days until I recovered.

It took a while for some other random food intolerances to go away.

I still get very sick when I eat soy, but dairy is not a problem for me.

If you're keen, you can do a mini elimination diet - take out dairy and soy for a week, and then re-introduce only one of those for a week, and see if it makes a difference. If you're sensitive to soy, it should be *very* obvious ;)

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I'm the exact opposite as Marz. My nausea and D pretty much went away in a week but all the mental symptoms took more like a year. I had no idea the gluten was even causing them until I realized I was getting anxiety attacks when I got glutened.

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