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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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jess_gf

The What's For Dinner Tonight Chat

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Holy Guacamole!!!! (actually one of my frequent exclamations - much to my children's dismay) :ph34r:

 

At least I actually made Guacamole today :P

 

The flipping icing for the Margarita Cake smells like a Margarita!  Guess it should with the citrus, triple sec and tequilla, but still...fun stuff :)

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Only tools inside this house are mine and they are not allowed to migrate to the shop!

 

Cobbler's kids had no shoes.....Contractor's wife does all minor repairs (otherwise I have to hear either A: why blankity blank is not needed or B: get right to it - contractorease for one day in the future if I remember the conversation)

 

Luckily when things are leaking flooding or floating away he does spring into action dragging the boys in tow :wub:

 

 

Have to reply to myself because all joking aside, my man is wonderful about taking care of business.

 

Multi-talented, he does electrical, plumbing, woodworking, fixes cars (HUGE motor head! he had a '68 corvette when we met and he let me drive it!!) and he does fix everything. He taught me how to lay hardwood floors, plus our beautiful slate floors back in NY --around the woodstove, etc, etc,

we made that house pretty special.

 

OOH and he can get a cork out of a wine or champagne bottle in a few seconds flat. whoohoo!! (and we say whoohoo! every time it pops) 

 

I was just joshing. I always give him credit for being the handiest guy I know. 

Even if I find golf tees, nails, and other assorted things in his pockets.(do not ask)...and in the washing machine.  :lol: I have only one little boy but he's a handful LOL

AMEN, girls!!!  

 

i have been calling around to painting contractors:  thank your lucky stars your guys can fix stuff!  holy crap.  worth their weight in gold....

 

i had one paint contractor call me and tell me they couldn't touch the level of workmanship my husband has done (trying to get the reallllly reallllly high upper parts of the house finished)  (he would rather fight a saber toothed tiger than climb a ladder, i think)  one gave me an insane price and most of the house is already done................... <_<  wth  :(

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Everyone begged for Mexican food and that is what they are getting!

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We had chicken tacos. I made the meat in the........wait for it.......the Crockpot!

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AMEN, girls!!!  

 

i have been calling around to painting contractors:  thank your lucky stars your guys can fix stuff!  holy crap.  worth their weight in gold....

 

i had one paint contractor call me and tell me they couldn't touch the level of workmanship my husband has done (trying to get the reallllly reallllly high upper parts of the house finished)  (he would rather fight a saber toothed tiger than climb a ladder, i think)  one gave me an insane price and most of the house is already done................... <_<  wth  :(

 

mine does not paint -- unless I'm in 'amoeba' state -- he builds, I paint

 

hmmm...do good painters network -- I'll check my cali-guys -- never know.

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We had chicken tacos. I made the meat in the........wait for it.......the Crockpot!

 

Adobada is history...also in KFG...in fact the day got away from me so had both kids jumping to help get it in the crock by 3:30pm -- record prep -- maybe I'll wait until the last minute more often ;)

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Spaghetti with chebe cheese rolls on the side!  I love those cheesy rolls so much, I could have just them for dinner.

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Baked Chicken

French Green Beans in Cream of Celery with Green Onions and Cheese on top -- pseudo traditional thanksgiving green bean cassarole

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Pork ragout with taglietelle. (but not in the crock pot)  :D The jovial brand is pretty terrific. I mean, even the foodies at 

America's Test Kitchen rave about it--and they're WEs.

A review from Cook's Illustrated:

 

"Winner: Jovial Gluten Free Brown Rice Pasta, Spaghetti

Thanks to a relatively high combined total of fiber and protein and a low, slow drying process, these “delicate and thin” brown rice strands were “springy” and “clean”-tasting with none of the gumminess or off-flavors that plagued other brands."

 

 

 

spaghetti.gif

Wednesday is pasta day. Always was, always will be. 

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Haddock with balsamic-roasted bell peppers.

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Welcome Jody -- Dinner sounds great :)

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Haddock with balsamic-roasted bell peppers.

As I  was born in Boston, haddock was often  our Friday night special!  :D  YUM!!

 

Welcome, Jody!! 

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I'm always off by a day I guess. Sunday night we had tacos, which was a day early. Last night we had pasta. Day early again. At least I'm ahead of schedule instead of behind. :P

 

I think we're having burgers tonight. I didn't make plans and it's getting kind of late and I still haven't made plans. That sort of turns it into burger night. Some sort of veggie or something with it and it's dinner. I'll try to be better tomorrow, but I never make promises I can't keep.

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I'm always off by a day I guess. Sunday night we had tacos, which was a day early. Last night we had pasta. Day early again. At least I'm ahead of schedule instead of behind. :P

 

I think we're having burgers tonight. I didn't make plans and it's getting kind of late and I still haven't made plans. That sort of turns it into burger night. Some sort of veggie or something with it and it's dinner. I'll try to be better tomorrow, but I never make promises I can't keep.

 

Can't remember when my frig ever met a set schedule...tacos, etc and burgers sound perfect!

 

You sportin' any Gelato?   teasing...there is another thread you should join...

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Can't remember when my frig ever met a set schedule...tacos, etc and burgers sound perfect!

 

You sportin' any Gelato?   teasing...there is another thread you should join...

 

 

I was kidding about the pasta every Wed. thinger anyway. I had to go a long long time without sauce (all that "GERD"  and all) <_<

 

Tonight's looking like pork tenderloin with an easy fig jam and mustard glaze, sweet potato for J and "zoodles.". I just saute them quickly in EVOO and herbs. I'm cutting back on carbs and (ahem) ge-lahh-to.

 

Still lovin those zoodles, Ski. 

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I don't have any gelato right now.

Crying-Smiley.jpg

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I don't have any gelato right now.

Crying-Smiley.jpg

 

Come on over quick -- I'm not going to trial mine any time soon -- but you have to be fast -- just told son he could have it!

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I don't have any gelato right now.

Crying-Smiley.jpg

i have a VAT of it in the freezer, addy, help y'self :)  (sea salt & caramel, plus i have gluten-free SUGAR CONES om nom nommmm!)

 

last night was crab cakes, roasted brussels sprouts, and baby potatoes <hells yeah, i'm using those pricey suckers up, lolz :D

 

not cooking tonight, not cooking tomorrow night (going to one of our satellite kids grad party)  then, heading up to the university MY KID IS GRADUATING SATURDAY YAYYYY!   i'm going to take everybody out to eat......  maybe not ME, lolz, i might just be out to drink HAHA !!

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i have a VAT of it in the freezer, addy, help y'self :)  (sea salt & caramel, plus i have gluten-free SUGAR CONES om nom nommmm!)

 

last night was crab cakes, roasted brussels sprouts, and baby potatoes <hells yeah, i'm using those pricey suckers up, lolz :D

 

not cooking tonight, not cooking tomorrow night (going to one of our satellite kids grad party)  then, heading up to the university MY KID IS GRADUATING SATURDAY YAYYYY!   i'm going to take everybody out to eat......  maybe not ME, lolz, i might just be out to drink HAHA !!

 

oh cool...i forgot about the cones I had stashed -- will give them to the kids with Double Dark Chocolate hanging out in the freeze.

 

Another attempt at man-sized flour tortillas -- if they work out -- Carne Asada Burritos -- if not it'll be taco salad tonight :)

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Tonight I am venturing up to a restaurant that serves GLUTEN FREE FRIED CHICKEN!! :o

 

Technically I am taking my stepmom out for a mothers day dinner soooo... can't make it about me.  But I have a feeling I will enjoy it very much.  Making crock pot red beans with ham and cornbread for when my hubby gets home, I will probably nibble on that for lunch tomorrow.

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Double dark chocolate and sea salt caramel... in cones? Yes yes yes please!!! My neuro doubled my gabapentin and it had the most god-awful side effect ever. I'm going off it but the only joy left me right now is probably gelato so I gotta get some until I'm off these meds. I did see my pain doc today though and he got me on an accelerated titration for getting off of it.

 

Gratz on the graduations! That's so exciting. :D :D :D :D My baby's last day of high school is tomorrow. My baby baby. And I know she doesn't live with me but she's going to a college five hours away from home. What's she gonna eat? How will she ever get a decent meal? How will her laundry get done? FIVE HOURS?!?! My oldest is heading off from her community college to a "real" college an hour away from home in the fall and has a truck so she'll be able to go home on the weekends for real food at least. My babies are pseudo-adults. :blink: How did this happen? Where did all the time go?

 

I think dinner tonight will be some sort of chicken something. Not sure exactly what. For now until it starts to manifest we'll call it chicken surprise because it sounds exciting. Last night I made french onion soup with my dinner. It was divine. I read like 5 recipes and then just cooked. Naturally the recipe with the most influence was the one with the most wine. :lol:

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Chicken surprise is becoming buffalo chicken dip because apparently all it took was once to get my husband hooked and that's what he wants. I know it's not exactly the most appropriate food for me with the ranch and the Frank's (not a gluten issue, I have other issues) but I'll have a little because it's delicious! Maybe I'll stuff myself with a big fat bowl of fried green beans.

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Today is my six week checkup after my hysterectomy. There may not be time for dinner. :lol:

 

Actually, in all seriousness. I went shopping at 1:30 this morning and found skin on chicken thighs on sale. So something thighs, maybe fried with crispy skin. I know I shouldn't but just YUM! Rainbow carrots and mashed potatoes and some sort of yummy sauce with all the bits out of the pan that I'll get off with wine. Making my husband suffer while I make an amazing dinner sounds like more and more fun. ;)

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Some of you know of my quest to make a good large flour tortilla -- it has been over five years since my kids have had a decent sized burrito -- living in the land of Mexican Fast Food makes that beyond difficult.

 

The Quest is over!

 

Thanks to a recipe passed to me by another nonWE -- we now have safe gluten free (decent sized) burritos for the first time in over five years -- was wonderful to see everyone enjoy safe burritos -- I even ate one (potato and rice - tummy's a bit fussy but digestive enzymes should help).

 

http://glutenfreerecipebox.com/thin-soft-gluten-free-wraps/

 

I doubled the recipe and used larger frying pans / 1/2 cup batter for each instead of the recommended 1/3 cup -- they freeze well so will likely make more next time.
 
Have no idea what is for dinner -- perhaps Quesodillas with the works :wub:

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Burrito sounds great!

 

I'm making stuffed zucchini. Cut in half lengthwise and scooped out. Sauteed green onions and mushrooms in a little olive oil (make your own substitutions). Browned ground turkey all mixed together with avocado. I've also used hummus. Stuff back into hollowed out zucchinis and bake. Maybe 20 minutes - if you bake too long they get mushy.

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    • The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's been doing this for years now and I've never been glutened from within my home. The previous week I hadn't eaten out, I cooked all my food, I don't eat processed food and I never eat something from a shared facility.  Usually if I get glutened it's a single dose sort of thing and it follows a very predictable course, to the point where I can estimate when I got glutened within 24 hours of when it happened. However, this time, I was feeling achy and arthritic and moody for about a week before it got bad enough for me to recognize it as the result of gluten exposure, at which point we went searching and found the shampoo (and conditioner, which does leave more of a residue than shampoo), which he immediately stopped using. Within three days I was feeling back to normal (which is the usual course for me).  Sure, it could have been something else, but I know how sensitive I am, and, as silly as it sounds, it was the only thing that made sense. The other thing you said: You're correct, mine was not a rock solid celiac diagnosis, but I have no doubt that gluten is the problem. I was SICK. I went through two different gluten challenges in an effort to get a more straightforward diagnosis during which I was a barely functioning human being. Consuming gluten may not have given me blunted villi or elevated antibodies, but it did inflame my gut, and actually started to damage my liver. If you look at my diagnosis thread, I had elevated liver enzymes, which have been correlated with celiac disease in the past. There was no alternative explanation for the liver enzymes, he checked EVERYTHING.  I too am a scientist and I have spent a lot of time with the literature trying to make sense of my condition.  https://www.ncbi.nlm.nih.gov/pubmed/26150087 I also have no doubt that gluten was damaging my intestines in some way, as any prolonged gluten exposure in the past has inevitably been followed by a severe FODMAP intolerance that goes away once I've eliminated the gluten and given myself a month or so to heal.  I also had a very fast diagnosis following the onset of symptoms (~1 year) so it's possible that the disease never had a chance to manifest as full celiac. I wasn't willing to eat gluten long enough to find out. As a result of my diagnosis, hazy as it was, I am *meticulously* gluten free. It is not a fad for me. I don't occasionally cheat. It is my life, for better or worse. All of that being said, I'm not sure what my diagnosis has to do with your question. You say you're not trying to be rude, but when you bring up my diagnosis in a thread that has nothing to do with diagnostics, it seems like you're trying to undermine the validity of my disease or the validity of my input in this forum. If I'm being hypersensitive, I apologize, but that's how you came across on my end. I'll admit that the fact that my diagnosis wasn't more straight forward does make me a bit defensive, but I promise that even if I didn't have a solid diagnosis, I interact with the world as though I did, and I'm not out there giving people the wrong idea about celiac disease by not taking it seriously. If there was a connection between your question and my diagnostics that I missed I would appreciate you giving me the chance to better understand what you were asking. 
    • I am just curious.  As a scientist (and I am not trying to be rude), how can you determine if hydrologized wheat protein from your husband’s shampoo was actually the culprit?  If I recall at your diagnosis, you were seronegative, Marsh Stage I, gene positive,  but your doctor still  suspected celiac disease.  You improved on a gluten diet.  Other than observation, how do you really know?  Could it not be something else that triggered your symptoms?   I firmly believe that even trace amounts of gluten (under 20 ppm), can impact sensitive celiacs.  But traces of a protein within a shampoo from someone else’s hair that was rinsed?    
    • I also can't have dairy but through a series of experiments and a lot of research I think I've pinpointed my problem. It may or may not be the same for you, but I thought I'd share.  There are two kinds of beta-casein protein A1 and A2. We'll call A1 "bad casein" and A2 "good casein". The two proteins differ only in a single amino acid, but this is enough to make it so that they are processed differently in your guy. Bad casein is actually broken down into a casomorphin, which is an opioid peptide. That does not mean that milk gets you high, or is as addictive as heroin, or anything like that, it just means that it can interact with opioid receptors (which the gut has a bunch of). It's worth noting that opioids cause constipation due to their interaction with the opioid receptors in the gut, and that a lot of people feel like cheese and dairy slow things down, but any connection between the two is pure speculation on my part at this point.  Now here's where things get weird. The vast majority of milk cows in the western world are derived from Holstein-like breeds, meaning black and white cows. In a few select places, you'll see farms that use Jersey-type cows, or brown cows (Jersey cows produce less milk than Holsteins, but many connoisseurs feel it's a higher quality milk, particularly for cheese).  Holstein-like cows have A1 and A2 casein (bad and good), however, Jersey-type cows only have A2 (good casein), unless their genetic line involved a Holstein somewhere in the past, which does happen.  A company in New Zealand figured out how to test their cows for these two genes, and selected their herd down to cows that specifically produce ONLY A2 (good) casein. You might have seen it in the store, it's called A2 milk. Some people have had a lot of luck with this milk, though it still doesn't solve the problem of cheese.  I have suspected, due to trial and error and a few accidental exposures, that I have a problem with A1 casein, but not A2. In line with this: I am able to eat sheep and goat dairy without any difficulty, so at least I can still enjoy those cheeses! I am also fortunate because I'm apparently not too sensitive, as I can still eat cow-milk butter. The process of making butter removes *most* (read: enough for me) of the casein.  However, if I eat cow cheese or a baked good with milk, I get really sick. It's a much faster reaction than if I get glutened. Within minutes I'm dizzy and tired and my limbs are heavy. I have to sleep for a couple of hours, and then, over the next couple of days, I'm vulnerable to moodiness and muscles spasms and stomach upset just as though I'd been glutened (though the brain fog isn't as bad). I actually haven't tried A2 milk yet, mostly due to lack of availability (and motivation, I don't miss milk, I miss CHEESE). However, last year, when I was getting ready to go on a trip to Italy, I had a thought. Once, in the recent past, when I'd been testing dairy, I'd had a slice of parmesan cheese. Miracle of miracles, I was fine. I didn't feel a thing! I was so excited that I ran out and got some brie to eat as a snack. That did not go so well... Turns out parmigiano reggiano is made from the milk of the Reggiana variety of cow which is, you guessed it, a brown cow (they say red). I did a little more research and found that dairies in Italy predominantly use brown cows. So I decided to try something. As some of you may know, Italy is something of a haven for celiacs. It's one of the most gluten-free friendly places I've ever been. You can say "senza glutine" in the smallest little town and they don't even bat their eyelashes. You can buy gluten free foods in the pharmacy because they're considered a MEDICAL NECESSITY. If travelling-while-celiac freaks you out, go to Italy. Check out the website for the AIC (Italy's Celiac society), find some accredited restaurants, and GO NUTS. While I was there, I decided to see if I could eat the dairy. I could.  Friends, I ate gelato Every. Single. Night. after that. It was amazing. Between the dairy being safe for me and the preponderance of gluten free options, it was almost like I didn't have dietary restrictions. It was heaven. I want to go back and never leave.  So that's my story. Almost too crazy to believe.  TL;DR: Black and white cows make me sick, brown cows are my friends.
    • I'm a scientist, and I did a little research into the study. Looks valid and it was published in a respected journal.  http://www.gastrojournal.org/article/S0016-5085(17)36352-7/pdf The science looks solid. As someone who didn't have a super clean cut diagnosis before going gluten free, I'd love to see something like this become available. Then again, there's no doubt in my mind that I can't have gluten, so any additional testing would be purely academic. But like I said, I'm a scientist. I can't help myself. 
    • Update: I have tried calling the company several times and have emailed twice. I have yet to talk to a person on the phone and no one has emailed me back.    I did a little research and they were are already involved with a class action lawsuit about being labeled as salt free and one of the first ingredients is sodium chloride.  I am done with this shampoo because this whole company seems a little shady now! 
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