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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

The What's For Dinner Tonight Chat
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9,867 posts in this topic

I get a note from the General Manager of the stadium first - if bringing in food is an issue.

Really...I never tried that.

I have doc notes in all of our wallets....never needed to pull them out

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Trying to decide what to eat.  I'm thinking ribs again??  It's nice out so I want to take advantage of the grill as much as I can :D.  Hubs has some fish he's been meaning to grill, maybe he can do that and I'll do chicken breasts??

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Ribs sound good, strawberry +alcohol sounds good... Im hungry now!!!!!!  Today, I will make nachos for lunch, for dinner will either be burgers and veggies or if my husband wants to go out to eat we will, it is hard to plan for weekends so I just keep things around I can toss together.  Sunday I am going to make a ton of grilled chicken to freeze for work lunches this upcoming week.  Money Money Monaaaayyy!

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I threw some pork cube steaks in the fridge to thaw for tonight. I think I'm going to make some plum sorbet to go with it and... I don't know. Other stuff. I'm sure I'll think of something.

 

I stopped at Wal-Mart to get yarn. (the lady told me they had a particular color, she was wrong... I really hate Wal-Mart employees and yes I know how ironic that is since I'm married to one, but mine isn't a moron) When I couldn't get my yarn I consoled myself with a box of Annie's mac & cheese. Maybe it'll go with tonight's dinner, maybe not. Who knows? But the cashier was all "gluten free?" I was like "yup. Celiac?" "Yup." But the person behind me in line noticed my totally awesome Rainbow Dash wallet and we talked about how awesome My Little Pony is. Between celiac and MLP guess what I'd rather talk about?

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This is my new favorite drink! The first one I made didn't have much strawberry flavor. So I muddled the strawberries ( that means squish them a little) in the bottom of a glass and added the wine and let it sit in the fridge while I drank the first one . That was even better! Raspberries, watermelon, peaches, oranges, really lots of fruits would be good this way.

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I've been drinking grapefruit juice with a little lemon juice and Triple Sec.  It's supposed to be a Margarita but I just skipped the Tequila.  Very good!!

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Today we went to a pizza place that is a reasonable drive away and it was really really good.  Then I came home and grilled up a bunch of chicken to freeze for work lunches for this week.  Will make french toast for dinner later.  Of course I have some leftover pizza in the fridge that seems to be calling my name.... may have to eat it as a bedtime snack!!

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Well, the woman at the ball park said that the hot dogs were gluten-free and they only grilled the meats on the grill.  So far not symptoms of being glutened so maybe she was right.  She was about 19 years old but seemed to at least have a clue.  She took off her gloves before dishing up my hot dog.  The woman at the beverage stand thought I was nuts asking her to change her gloves before getting me water, but they serve tap beer too and after watching them grab the water bottles out of the fridge by the caps, thought it was best not to have beer all over the spout.  I'm not a baseball fan but it's one of those "have to put in an appearance " things.  We made it 3 innings.

 

I took out a steak to grill tonight.

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Really...I never tried that.

I have doc notes in all of our wallets....never needed to pull them out'

i bring food everywhere, and, ditto - never had to pull out my 'prescription note' lolz - usually, if i've never been there before, i ask if it's ok and i get somebody's name to drop at the door.  i've brought my own beer into clubs and bars, too.  i try to be discreet (until i get a good buzz on hahaha) 

 

if you need to call somewhere, and they start giving you a hard time about bringing your own, start asking them a kazillion questions, then tell them what you need them to do if you're not allowed to bring your own.  they give in pretty easily.  (i talk real fast lolz)

 

tonight is mini crab sliders (the oldest is in town with her hubs and 3 y.o. AND my soon to be born grandson #4!!!!  - which will make 5 grandbabies for us.  big sis maddie says his name shall be called:  red bird :)  lololz)  and fresh corn on the cob.  going to try that peeling trick - supposedly shucks the corn without leaving any pesky silk)

 

the other night we made zucchini lasagne - it is truly delicious - and so easy.  just have to remember it takes longer to bake than regular noodles.  hubs sliced the zucchs with a Janky Mandolin.  so totally jankified - plastic + dishwasher = warped.  but it still works.  i should get a decent metal one...   <_<

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New word for the day....jankified :)

And just decided dinner will be KFG zucchini lasagna :D

Thanks!

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I think I'll throw noodles, sauce and meat in the KFG and see if it becomes a spaghetti  -_-

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I made chicken fried steak and potatoes Saturday to mimmick the birthday dinner for my boyfriends Grandpa. Apparently it looked so similar people were asking if I was cheating. HA never! I brought everything over and heated  it up in the microwave and ate with the folks like I was one of them. Moosie for the win!

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M is going to college on Wed.  We are going with some of his requests.  Last night he didn't care what we grilled as long as I made him a baked potato with cheese. So last night we had steak, grilled corn, salad and steak.  Tonight he wants regular chili mac - hamburger , black beans & pinto beans & corn mac to put it on.  Might be a corn and rice mac?  I got the Barilla one this time, not sure, I think it might be rice and corn.

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My kids started classes today...they have been helping with freshman orientation for the last week.

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Made some Chebe cheese gut bombs....yum.  Will go good with the Spaghetti  :)

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I just realized we are eating really well this week so I thought I'd share what meals we had so far.

Chicken fajitas with lots of bell peppers onions and chipotle sauce. Side of mexican rice made with cilantro, lime, corn, onions and peppers

Penne with vodka sauce with a side of zucchini (im pretty sure i ate a zucchini and a half, it was so good)

 

Tonight im making chicken satay with a plain rice and I need to find some veggies.

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Other than a little over extending of my neck, my energy level has been amazing and I have been feeling amazing overall.

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Road/travel meals this week:

 

Bonefish three times (MD, NY and VA)  Once was grilled chilean sea bass, one was tilapia and one was filet. All excellent.

 

Dinner with friends at Joe's Crab Shack. (NY) Excellent. All 5 of us G F (3 celiacs, 2 supportive hubs) DELICIOUS crab/lobster, corn, potatoes.

 

Dinner at my cousin and his wife's house (NH) She is also my dear friend... I made his birthday cake: Flourless choc with ganache and I made a caprese salad. She made grilled steak tips & chicken and a potato salad. (they are G F too) 

 

Dinner with Mom and sister at Not Your Average Joe's (MA). Good burger, so-so roll. meh. lol

 

Had a late lunch today, and we are road-weary (plus we walked all over Jamestown today) so we may just have salad with nuked Purdue G F chicken tenders in the hotel.  Good selection of safe foods in the local Food Lion. First time for me in one of those grocery stores.

They also had good Toufayan Gluten Free Wraps.

 

 

who says you can't travel when you're G F? >>not this girl<<

 

PS ADDY
THINKING ABOUT YOU TODAY...
I GOT TO HOLD A GIRL'S PET BUNNY TODAY. SHE WAS ANGORA AND SHE WAS PURRING.

MADE MY DAY, WEEK, YEAR. :) :) 

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bunnies purr?????

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Road/travel meals this week:

 

Bonefish three times (MD, NY and VA)  Once was grilled chilean sea bass, one was tilapia and one was filet. All excellent.

 

Dinner with friends at Joe's Crab Shack. (NY) Excellent. All 5 of us G F (3 celiacs, 2 supportive hubs) DELICIOUS crab/lobster, corn, potatoes.

 

Dinner at my cousin and his wife's house (NH) She is also my dear friend... I made his birthday cake: Flourless choc with ganache and I made a caprese salad. She made grilled steak tips & chicken and a potato salad. (they are G F too) 

 

Dinner with Mom and sister at Not Your Average Joe's (MA). Good burger, so-so roll. meh. lol

 

Had a late lunch today, and we are road-weary (plus we walked all over Jamestown today) so we may just have salad with nuked Purdue G F chicken tenders in the hotel.  Good selection of safe foods in the local Food Lion. First time for me in one of those grocery stores.

They also had good Toufayan Gluten Free Wraps.

 

 

who says you can't travel when you're G F? >>not this girl<<

 

PS ADDY

THINKING ABOUT YOU TODAY...

I GOT TO HOLD A GIRL'S PET BUNNY TODAY. SHE WAS ANGORA AND SHE WAS PURRING.

MADE MY DAY, WEEK, YEAR. :) :)

Yum, yum, yum, yum and I want to pet an angora bunny!

Yay for safe travels!

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bunnies purr?????

And they can scream (not a pleasant sound). Much better to have them pur/grunt. ;)

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Road/travel meals this week:

 

Bonefish three times (MD, NY and VA)  Once was grilled chilean sea bass, one was tilapia and one was filet. All excellent.

 

Dinner with friends at Joe's Crab Shack. (NY) Excellent. All 5 of us G F (3 celiacs, 2 supportive hubs) DELICIOUS crab/lobster, corn, potatoes.

 

Dinner at my cousin and his wife's house (NH) She is also my dear friend... I made his birthday cake: Flourless choc with ganache and I made a caprese salad. She made grilled steak tips & chicken and a potato salad. (they are G F too) 

 

Dinner with Mom and sister at Not Your Average Joe's (MA). Good burger, so-so roll. meh. lol

 

Had a late lunch today, and we are road-weary (plus we walked all over Jamestown today) so we may just have salad with nuked Purdue G F chicken tenders in the hotel.  Good selection of safe foods in the local Food Lion. First time for me in one of those grocery stores.

They also had good Toufayan Gluten Free Wraps.

 

 

who says you can't travel when you're G F? >>not this girl<<

 

PS ADDY

THINKING ABOUT YOU TODAY...

I GOT TO HOLD A GIRL'S PET BUNNY TODAY. SHE WAS ANGORA AND SHE WAS PURRING.

MADE MY DAY, WEEK, YEAR. :) :)

 

 

Sounds like you are eating well!

 

I don't think my bun purred.   He did a lot of other silly things.  

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Bunnies are the best. I really wish mine was a cuddly bunny. Brat. <_< Angoras are gorgeous but way too much work, the little fuzzballs. They're all like *POOF* all over the place! ^_^

 

Apparently I've decided to be allergic to something. Sometime Saturday I started to sprout hives. Everywhere. My legs are covered and I have them a little bit all over the rest of me, my arms, shoulders, my head itches but I can't exactly see my head under my hair. I've gone over every facet of my life. Every. Last. Thing. Nothing changed. Until I remembered Thursday night. I don't know if an allergic reaction can take 1 1/2 days but I don't know what else it could be unless I've turned up suddenly allergic to something common around the house. At any rate, I saw my doctor today and he gave me a steroid pack which I am ever so thankful for. I knew what he'd prescribe, with all the research I've done in the last 5 years of health issues I swear I'd barely have to study to be a frickin' NP at this point. I'd do it too except the whole not liking kids and fainting at the sight of blood thing. Puts a real cramp in working in the medical profession I hear. :lol:

 

Until tomorrow morning when I can start taking it I'm drugged up like I don't even know on Benadryl. That stuff messes me up bad so dinner is one of those boxed hamburger helper deals which is also on my list of don't care if it's actually food or not. I do have some homemade shiro plum sorbet in the freezer and some rainbow carrots I can steam to make it seem more like food. :) Until I feel better, I'll lay in bed and stare at my bunny since she doesn't give cuddles.

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    • Hey Matt  thanks for your reply fellow Brit! I this is very interesting... I am very sensitive to cross contamination... e.g. A sieve wasn't washed properly when I lived at my mums so when I had drained my gluten-free pasta .. I hadn't even eaten the dish before I started to pass out and go dizzy and hot .. calling for my bf and mum ( they had a great team going when I would have an episode) it's horrendous!  The fatigue is something I imagine every coeliac suffers with! I have to nap a lot.  Ok so the booze I drink most of is -processo -amaretto -vodka, wine, cider (very rarely)  when I drink at home I'm fine!!!  I wonder if it's cross contamination from the bar or the level of alcohol?!  I also had a jäger bomb shot on Friday (looked it up and a lot of people say it's gluten-free)  it's a hard live but someone's got to do it!!  Thanks for the reply!  When you get poorly from gluten (and the other evil candidates) are you so bad you can't function and feel your body is about to snap?  Kind regards  steph 
    • Hi Steph and welcome I'm yet another Brit, funny how the alcohol threads flush us out I don't drink now but after a big night I used to get truly savage all day hangovers, much worse than those of my friends. They could include splitting headaches, vomiting, nausea, a 'fuzziness' in my head, sweats etc.  After I put the pieces together and went gluten free I had a 'big night' on cider only and the next day was a revelation. What I'd thought was a 'normal' hangover was, for me at least, anything but. With gluten out of the equation hangovers were a breeze! The difference was mind blowing and just one more example of how gluten had been messing with me over the years. So when I read your post my first thought was that there was some trace gluten contamination going on. However: Obviously you've been at the diet for some considerable time now and know the score. I know Coeliac UK are firmly of the opinion that all spirits are safe but some (note some this a contentious one :D) members here will tell you they react to gluten based grain spirits for instance which distillation should render safe.  Then there's the dangers of shared lines if you're drinking say Strongbow in a pub as alluded to above. Lastly it its wine, there's the often cited but maybe apocryphal these days 'flour to seal the casks' possibility. Finally there's bar snacks, maybe a brand of nuts etc that you snack on that may have changed their production process? I'm sure you've thought of these already, but it may be useful if you post your alcoholic drink choices / bar snack of choice up here maybe someone will have some input?.   The second thing which leapt out was: Would you class yourself as super sensitive to cross contamination etc? Firstly that would make the cross contamination theory more compelling. You could test that out by having a drink at home under controlled circumstances to see whether the same issue arises? That could also answer the quantity question. Does one safe drink trigger it, two, three etc? Finally, and this is one that I find difficult, knowing you have the gluten issue may lead you to assume it's that when it could be something else. I tend to attribute EVERYTHING in the world to gluten these days due to it being able to affect me in so many different ways. Crisis in Korea? Gluten. Russian tanks massing on the Ukrainian border? Check their wheat intake. Global warming? etc. So it may make sense to pursue some other ideas at the same time. Try:  http://goaskalice.columbia.edu/answered-questions/suddenly-drinking-alcohol-makes-me-sick http://www.steadyhealth.com/topics/very-abnormal-hangovers-thinking-it-could-be-allergy-to-alcohol and a doctor's answer: http://www.steadyhealth.com/medical-answers/abnormal-reactions-to-alcohol Cheers Sorry, best of luck! Matt  
    • Similarly, I've been vegetarian for 25+ years.  A 2015 Nature study connecting emulsifiers with microbiome changes has me wondering about the processed foods that I ate in the past, and I wonder about the wisdom of eating as much seitan as I did.  I mostly prefer my post-diagnosis diet since it forces me to consider every ingredient and to cook from scratch more.
    • LOL, that might put it into perspective if I explain it that way. 
    • I am very interested in this too. My daughter tested negative for celiac, but has terrible primarily neurological symptoms. Because she tested positive for SIBO at the time and was having some GI symptoms, I was told it was just a Fodmap issue.  I knew better and we have been gluten free for 2 years.  Fast forward to this February. She had a SIBO recurrence that I treated at home with diet and herbal antibiotics because I couldn't get the insurance referral. She was doing great. Then stupid me brought in gluten containing chick feed for the new baby chicks we got.   Feed dust everywhere. Total mess.  Really, no GI symptoms (she was SIBO free by then)...but the neurological symptoms! my daughter couldn't walk for three days. Burning down one leg, nerve pain in the foot. Also heaviness of limbs, headache and fatigue. Better after three days. But unfortunately she had a TINY gluten exposure at that three day mark and had another severe reaction: loss of balance, loss of feeling in her back and arms, couldn't see for a few seconds, and three days of hand numbness, fatigue, concentration problems.  Well, I actually contacted Dr. Hadjivassilou by email and he confirmed that the symptoms are consistent with gluten ataxia but any testing would require a gluten challenge. Even with these exposures, antibodies would not be high enough.  His suggestion was maintain vigilance gluten free.  I just saw my daughter's GI at U of C and she really only recognizes celiac disease and neurological complications of that. But my impression is that gluten ataxia is another branch in the autoimmune side of things (with celiac and DH being the other two).   At this point, I know a diagnosis is important. But I don't know how to get there. We homeschool right now so I can give her time to heal when she is accidentally glutened, I can keep my home safe for her (ugh, that I didn't think of the chicken feed!)  But at some point, she is going to be in college, needing to take exams, and totally incapacitated because of an exposure.  And doctors state side that are worth seeing?  Who is looking at gluten ataxia in the US?
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