Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

This Is Disgusting.....


Canadian Karen

Recommended Posts

Canadian Karen Community Regular

Okay, I had my follow-up with my GI specialist down at St. Mike's in Toronto. He is sending me to an immunologist to see if he can figure me out..... He did mention something about maybe an enzyme syndrome (I forgot the name of it) that he said is quite rare, but wanted to look into it further....... He did a few more blood tests. But here is the worst part: He wants to measure the fat content of my bowel movements for 48 hours (normally, it is 72 hours but he said since I go so often, 48 hours will suffice for me.....). I have to basically poop into a paint can (yes, you read correctly, a paint can.....) I went down to the lab in the hospital and they actually give you a paint can to collect all your bowel movements!!! Actually, they gave me two, due to the number of bowel movements I have in the span of one day...... All I have to say is: THIS IS THE MOST VILE THING I HAVE EVER HAD TO DO!!!! It is so unfair to have to put my family through this! I have basically told them that the downstairs bathroom is OFF LIMITS for two days, and Terry and the four kids have to put up with sharing one bathroom for the next two days!!!! I will be sooooo glad when this is over!! Add on top of that the fact that my back is killing me and you can just imagine (sorry for the visual, lol!) me trying to get down onto a paint can on the floor without toppling over!!!! I am having nightmares about falling over and knocking the can over!!!!

Wish me luck that I will get through the next two days without losing my sanity!!!

Hugs,

Karen

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

You are a braver woman than me! I just gave up with the doctors and went gluten free. I think the test results I got up to this point should be recycled to make toilet paper.

Good luck, and I'm sure your great sense of humor will kick in any second now. Just don't start laughing so hard you fall of your can. (Can you imagine if somehow your sample was sent to the wrong place? The I.R.S. in the U.S. does get a lot of that kinda stuff in the mail.) It could be worse... you aren't the person who has to open that can!

Laura

Link to comment
Share on other sites
celiac3270 Collaborator

I think I could already hear your terrific sense of humor seeping in by the end of the post. Try to think of it as positively as possible. And like Laura said, you have to put up with it now, but then someone else has to open it up.

I'm just sorry that it came at such a bad time--with the back being an issue, too.

Just try to make light of it and think of us thinking of you thinking of paint cans.

Link to comment
Share on other sites
KaitiUSA Enthusiast

Hang in there...it's good you can at least have a sense of humor about it. :D I'm sure it could definitely be worse

Link to comment
Share on other sites
Carriefaith Enthusiast

Karen! You are not alone in this! I had to collect mine for 24 hours and put it in an ice cream container 2 times! :lol: Once before I was diagnosed and once afterwards. I call it the 24 hour Poop-A-Thon :lol: There are so many words to describe it, annoying, gross, degrading yea..... Carrying it into the hospital and giving it to the lab is interesting. When I do that I'm thinking "have fun with that!"

Link to comment
Share on other sites
Guest imsohungry

I'm sitting here at work just laughing at this thread...not to make fun of you...but because I've been in similar situations...Hang in there! :huh::blink::P

One year, during the holidays, my rheumatologist had me saving my urine for 48 hours. He gave me a bright orange jug with a skull and cross bones on it. Well, I had to REFRIDGERATE my pee between fill-ups! :o:D It being the holidays and all, I was forced to carry my jug of urine in a cooler with me, twenty miles to my in-laws house for dinner! :rolleyes: Well, I sat down to pee, forgetting my jug...and called to my hubby to bring it to me in the bathroom...right through the kitchen he comes running (all the relatives watching), with a big orange refridgerated jug of pee with a skull on it. :lol: Let's just say that nobody will forget Thanksgiving that year! :P;)

Link to comment
Share on other sites
mommida Enthusiast

Had to open a can of paint this morning to finish a project. I definately had some mixed feelings. Is this why paint smells like sh*?

Laura

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I'm sorry you have to do that, but at least two days is better than three. Good luck getting through it!

Link to comment
Share on other sites
jenvan Collaborator

Oh boy Karen--good luck! Sounds like your family is pretty supportive ! :) Once, when my husband was fixing our toliet I had to go bad, and told him--hurry! He told me like 10 times--just a few more minutes! Finally I told him I couldn't stand it (which surprised him for some reason ?) and that I was going down in the basement to go in a bag. He was so grossed out--he was like "Nooooooooooooooooooooo!"

Link to comment
Share on other sites
jenvan Collaborator

And Oh--he did get the toliet fixed like right then!

Link to comment
Share on other sites
Canadian Karen Community Regular

Jules, thanks for the laugh!!! I thought those things only happened to me!!!

Hey, maybe I will invent a new colour for Behr or something. Let me see.....

Sunset Stool

or

BM Beige

:lol::lol:;)

Karen

Link to comment
Share on other sites
jenvan Collaborator

Sunset Stool--that sounds beautiful ! Like a color I'd paint my den... :lol:

Link to comment
Share on other sites
Canadian Karen Community Regular

I knew there was a reason I am attracted to "earthy" shades!!!! LOL!

By the way, the going downstairs in a bag had me rolling! Now I can definitely see myself doing that!!!! Celiacs are quite familiar with the feeling of "Gotta go NOW!"

Karen

Link to comment
Share on other sites
Guest Viola
:lol: Just really had to laugh at this one, I've been there with both the pee container and paint can. Thank heaven for a sense of humor ... hang in there Karen ... This too shall pass :wub:
Link to comment
Share on other sites
jenvan Collaborator

Yeah Karen, I was shocked at how grossed out my husband was. He was like "I don't want to have to throw your poop out!" And I was like "I'll throw it out--you won't even have to see it !! It's not my fault you've taken the toliet apart !" :lol:

Which reminds me of some funny stories I've forgotten till now. I'll go post under that funny story thread... Good bathroom stories about being overseas !

Link to comment
Share on other sites
celiac3270 Collaborator

lol...there's the sense of humor...both very nice sounding colors :lol:

By the way, the going downstairs in a bag had me rolling! Now I can definitely see myself doing that!!!! Celiacs are quite familiar with the feeling of "Gotta go NOW!"

Sorry, what do you mean by going downstairs in a bag? :huh:

Link to comment
Share on other sites
Canadian Karen Community Regular

The "BM in a Bag" story is JenVan's experience she was relating to me earlier in the thread. It made me feel better knowing I am not the only one these things happen to!!!

Oh, by the way, with regard to someone mentioning "Well, at least you don't have to open the can"....... that's the problem, I do, EVERY TIME I HAVE TO GO!! I am really dreading having to go each time now.......

Oh, here's another shade: Shanghai Specimen

:P:D

Karen

Link to comment
Share on other sites
celiac3270 Collaborator

Oh, of course. Downstairs...it took me awhile to pick up on that, lol. You could come out with a bowel line.

Link to comment
Share on other sites
Canadian Karen Community Regular

Hey, who knows? I could discover/invent this fall's colour trends....... lol!

Karen

Link to comment
Share on other sites
Guest Viola
:lol: Just as long as you don't do any 'scratch & sniff? paints.
Link to comment
Share on other sites
Guest imsohungry

HA! I'm just LMAO here at work. You all have my "warped" kind of sense of humor... :lol:

Thanks for the laugh. Lord bless us all as we "aim" at our jugs and cans! :P

-Jules ;)

Link to comment
Share on other sites
Canadian Karen Community Regular

Yep, that's us! We're just a wild and crazy bunch!!!! ;)

Karen

Link to comment
Share on other sites
celiac3270 Collaborator

How is it going so far? Or are you holding it?

Link to comment
Share on other sites
Canadian Karen Community Regular

I only wish I could hold it! Each time is getting worse and worse. What I am doing is spraying all over the bathroom before I open the can so it is not as overpowering...... This is quite brutal!

Karen

Link to comment
Share on other sites
Guest BERNESES

Hang in there Karen- remember I'm the one who pooped on her own couch! And while you're at it, check this website out:

www.createfarts.com

My personal favorite is Shanghai Specimen- it would be a lovely chocolate brown. :P

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,989
    • Most Online (within 30 mins)
      7,748

    DanielleMM
    Newest Member
    DanielleMM
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TessaBaker
      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
    • trents
      Welcome to the forum community, @Fluka66! Did you realize that the vast majority of all canned soups use wheat starch as a thickener, including such common commodities as Campbell's tomato soup?
    • Fluka66
      Hello. Any help would really steady my nerves right now. I realised recently that certain food left me in agonising pain so eliminated from my diet. I also have a swollen lymph node. My very caring Dr did some blood tests and I went back the other day to see another equally caring Dr . She looked at the test results one result has come back with something wrong. It came very fast so I'm afraid I didn't catch what it was. Anyway the urgent referral to ENT. She did say as I had already eliminated gluten it wouldn't say anything on the results and neither Drs nor I were prepared to reintroduce gluten . I've just had some tomato soup and again in agony only thinking this must have aggravated maybe existing problems. Does anyone know what I'm facing now ? My swollen lymph node , pain when eating gluten and lactose and I'm assuming the acidity of tomatoes triggering pain.  I'm trying to stay calm and to be honest I've been in intolerable pain at times rendering me unable to stand up straight but I've always just got on with it . Guess I'm reaching out and would really appreciate any wise or unwise words at this stage. Wishing you all the very best as you live with this illness. Fluka66  
×
×
  • Create New...