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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Lectin Lock - Product Review
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mushroom    1,205

Those of you who have been around for more than a few months will know that for some time now I have been yammering on about lectins, and my suspicion that they are at the core of my other food intolerances. This 'gut' :blink: feeling was reinforced over the summer when I consulted Krispin Sullivan, a nutritionist, and by a cardiologist after I went into atrial fibrillation from one of my food episodes. I had been reading about this product called Lectin Lock and Krispin thought it would be good to try it. It is expensive, but a-fib is something I don't want to mess around with.

Basically, the problem with lectins (if you have a problem with them, and you can have a problem with one, or two, or several :o ) is that (to give a simplified explanation) they are a key, which key is attracted to certain kinds of sugar on the surface of cells in your body, let's call them keyholes. If you happen to have the right kind of keyhole that the lectin fits, it locks on to that cell and causes havoc in the body. The idea of Lectin Lock, is to provide in the gut the sugars that the lectins are attracted to and encourage them to lock on to those instead of the sugars on the cellular surface of the body. The gut can then process them through the intestine as waste.

Now obviously, I don't go around eating the foods to which I am intolerant when I can avoid it. There was one occasion (our book club meeting) where the hostess had gone to the trouble of making everything gluten free just for me, and I thought I should eat one of her mini-quiches. Upon biting into it I found tomato, and instead of panicking and making what could have been a scene, I ate it and said to self, 'Time for Lectin Lock.' I took two caps, and had no problems.

Yesterday, we had our Probus end-of-year Christmas lunch, and there three of we gluten-freers (in a group of 80 - that skews the stats a bit, doesn't it?) We all sat together at their request and they served us first with special meals which was very kind of them. Two problems - I think there might have been some lemon juice in the mustard sauce on the ham, and there was mandarin orange in the fruit salad. I ate everything, (including a tiny piece of roast potato) and waited to see what happened. Well, the familiar bloating, stinky gas and other problems started to rev up about 6 hours later, so it was time to test Lectin Lock again. Within an hour, the symptoms were gone, no a-fib, had a great night's sleep.

This product is for real in my book. It certainly passed both tests, the preventive - before symptoms got going, and the cure - once they started. It was amazing how the gas just.... went away :unsure:

I don't care what it costs, it's worth its weight in gold to me.:D

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mushroom    1,205

No, you have to order it online. Just google it :)

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cassP    175

i actually have a lectin blocker pill from a doctor that i will just refrain from naming. it has 2 of your ingredients (N-Acetyl Glucosamine, and Fucus Bladderwrack) i feel better when i take it- but it can get pricey, so i dont take it regularly.

yours however also has the D-Mannose (which my personal favorite doc has said gluten has an affinity for and may bind to it).

btw- i overdid my last cheats on corn during thanksgiving- and I AM paying for it BIG TIME... no more corn for me :(

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Lisa79    1

Thats great news, I will check google now :D

I have been seeing a homeopath for about 7 months and my lectin intolerance has improved, I still try avoid everything where I can but If I slip up I am not suffering as much as I used to.

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mushroom    1,205

Update: I did have some problems (because of the delay) with hives after a day or two, not bad, but no GI problems from the citrus and potatoes

BUT THEN: :ph34r: Hub wanted potato salad (yearning for it and potato doesn't bother him) so I decided to make some for him. After I had put the dressing on the warm potatoes I just automatically did what I normally do, the cook by taste test :P , and actually did it a couple of times before I realized what I was doing. GAAAHHH. Rushed out to the car (because that's where the Lectin Lock lives - normally need to use it when I'm away from home) and took a couple of caps. Hey!, no problemo :D This stuff is for real.

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Gutsy Girl    12

Through keeping a food journal to the T, I realized I was reacting with brain fog and zombie-ness and bloating, among other things...to POTATOES. Of all things, I would have thought potatoes were pretty safe, bland, etc.

A few weeks ago, I cut white potatoes and all white potato products out of my diet entirely, and I'm happy because I feel clearer-headed now than I have for at least two years. Still not great and I sure do realize it when I mess up and get potato cc.

Then I had a friend send me this link about lectins: http://www.krispin.com/lectin.html

I read it and had an ah-HA! moment. As I'm one of those Celiacs who isn't healing (I've been gluten-free since 7/28/09 with a few disasterous cc incidents that landed me in the hospital), I know there's a lot more behind my problems than just "simple Celiac's" where you go GFD and feel great in a year or so.

I'm MISSING SOMETHING BIG.

But you guys seem to be in the know and some of you are veterans here, so here's my shout out. :)

There are so many directions I could go in. I'm ADHD and feel overwhelmed at the prospect of changing my diet YET AGAIN. I'm seriously considering an elimination diet, but HOW to do that is the question. Do I eliminate lectins? Or oxalates? Or salicylates (sp?) or...........I'm soooooo lost. I mean....I have to eat SOMETHING, right? :?

Please...ask me questions, guide me as you can with what you know - I am open to hearing suggestions and greatly appreciate any help ya'll are willing to give! :D In return, I'm glad to help especially along the gluten ataxia lines where I tend to know more. And I have a background in Occupational Therapy Assistant so I'd be glad to give practical suggestions about how to adapt and problem solve daily life sorts of things. :)

Thanks, ya'll!!

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Gutsy Girl    12

Is Rachel-24 still around?

She sure had some great ideas. I'm divulging an incredibly long thread very slowly (the "OMG...I think I'm on to something" one). It's like a billion pages long. LOL. :D

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mushroom    1,205

No, Rachel-24 no longer posts on this forum.

I have to go make Christmas cake (the British kind - fruit has been soaking in brandy) but will get back to you later.

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Lisa79    1

No, Rachel-24 no longer posts on this forum.

I have to go make Christmas cake (the British kind - fruit has been soaking in brandy) but will get back to you later.

I also look forward to your reply, Lectins are still of great interest to me too :D

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mushroom    1,205

Just got back on the board today and posted the following response to another poster on some of my experience with lectins, obviously not the same as yours, but it may be of interest. Fire back with any questions you have. You will find it at

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StephanieGF    3

I was just wondering if anyone else has tried this product? I am looking for something to help with Corn CC when eating out...

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