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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Major Meltdown Yesterday

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For about a week now I have been very depressed, I have been gluten-free since September 13th, (funny how you remember the exact day when you finally find a diagnosis) Anyway I don't know if it is the holiday season, or that at times having Celiac is very overwhelming, but yesterday at work I lost it. For no real reason I started crying and could not stop, I locked myself in the bathroom and just sat there on the floor of the bathroom crying my eyes out, after awhile my boss knocked at the door wanting to talk to me, he is very understanding of everything I am going through, he wanted to send me home, but after a chat with him I decided to stay. I did finish the day, and today I have the day off, so I am looking to my new friends here to tell me I am not crazy and this has happened to someone else. So I am asking has anyone else went on this emotional roller coaster that I am experiencing now. I would appreciate any input, thank you all, this forum has become a second home to me.

I totally understand! I'm trying to be positive, but it is hard. Especially when people have different reactions to it. Have you seen the website "Gluten-free girl and the Chef?" She has a lot of amazing recipes. I just went gluten-free at the end of Nov., so I am new to this. I haven't tried her recipes yet. I think we should try to look at all the things we CAN eat, not what we CAN'T. It's also an opportunity to get creative in the kitchen! I am always on an emotional rollercoaster, so I feel your pain :). Hang in there!!

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Thank you Thank you to all that have responded. You have made me again realize I am not in this alone. I think alot of the emotional strain right now is that I have always been the "baker girl", in fact Sundays were the days I made homemade bread, cookies, brownies, you name it I baked it. And I have already tried many recipes and shared them with family and friends with great reviews, but nothing will ever take the place of my mom's homemade bread recipe,:( So with the wonderful support of my new Celiac family here, my amazing husband, wonderful daughters, my sweet grandson, and my friends, I will keep goin, just taking it one day at a time. Every day I feel better, I am on the road to good health again and thats all that matters. B)

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I have been gluten free for a few months now, and I have had several times where I have started crying because it just all seems like too much sometimes!! I am half Italian, and eating pasta, crusty italian bread, pizza, etc has been part of my life for as long as I can remember. I also used to love to cook, and now it just seems like so much work to make sure that every ingredient is gluten free. Sometimes I miss the "comfort" food, grilled cheese, mac and cheese, pizza, and I know there are substitutes, but it just isn't the same. My husband is great, but I know it can get old with me always asking "is it gluten free?" In the scheme of thinks, life could be so much worse, so I do count my blessings every day. I agree with another post that says it is heathy to just cry and get it out. Hope it helps to know you are not alone, I know it helped me to read your post.

This was me 4 years ago. But cooking gluten free comfort foods has become my passion. I even started a blog so I could keep track of all my recipes for my kids, since they inherited bad genes from me, I wanted to make sure they can cook all the foods they love when they grow up and are on their own. Honestly, the home made gluten-free versions of grilled cheese, pizza and mac & cheese are as good as I remember. I was only diagnosed a few months ago, but my kids were diagnosed 4 years ago. SO I had the real thing not that long ago. I did a fair comparison to work out the kinks in my cooking by doing back to back taste testing (something I can't do anymore, but now I make my husband do it.)

If you really like to cook, it's almost more fun, because it's like a chemistry experiment. With wheat flour, it doesn't matter what you are making, for the most part. If you're making bread, add yeast to get it to rise. If you're baking sweets, add baking powder. That's kind of it. But with gluten-free baking and cooking, you have SO many flours to choose from and depending on what you're making, you can pick and choose the ones with the right properties and textures to get what you're looking for.

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    • All the above plus, "oh, so you can't eat bread".  And being oblivious to undiagnosed celiac disease causing myriad organ/nerve damage.  
    • Might help with ease of digestion, and there is studies that show it helps in the breaking down of carbohydrates so it helps reduce gas, bloating, and indigestion, But not really helping much your immune system attacking your intestines trying to kill the gluten, Still going to get damage and stuff in the background.  I use it in making dairy free cheese, and sauces to give it that "bite" I also use it in baking in combination with baking soda subs and baking powder for rising gluten free and yeast free baked goods.

    • If flying I do not know, I normally take a car or train. And I bring chef kit with a griddle, and nordicware cookware. My thoughts, bring meal replacement shakes, jars of nut butters, and protein/nut bars, Perhaps crackers? I know they make some gluten free ones (I can not consume most as I can not have carbs or grains). I honestly make Nut meal/butter porridge out of coconut and almond flour with almond butter. I add extracts and stevia for flavor and sweetener. Other thoughts for cooking in your hotel room. Noridicware makes microwave cookware, grill sheets, steamers, omelette makers (know you can not), rice cookers. etc. You can bring these in your luggage easier and just use the microwave or request one in your room. This way you can say have steamed fish and veggies, bacon, rice, porridge, etc. and fix it safely right in your room.
    • If you are celiac you HAVE to be gluten free no matter how inconvienent it may seem to you.  Your body is clearly telling you to stop cheating on the gluten free lifestyle. If you need help with identifying where you can improve we are here to help in any way we can. You need to go and read the Newbie 101 thread at the top of the Coping section. It has a lot of valuable info for you. I hope your pain resolves soon but be aware that for some repeat glutenings can lead to the development of other autoimmune problems and for some the pain of each repeat glutening can increase as well.
    • Unless you go 100% gluten free it will only get worse, lead to complications, and eventually kill you. I did not know about mine for years and ended up with other auto immune disease, multiple allergies, and  food intolerance issues. I thought I was dying when I figured it out and went gluten free. You can not cheat on this diet as the antibodies will spike for weeks to a month. Symptoms from a gluten exposure can take days, weeks, and months to go away. In the case of nerve damage (mine started effecting my brain and nervous system) years before you start seeing improvement.

      It is quite hard at first, but once you get it down it becomes second nature. there are many gluten free alternatives now days to make it easier. Now with your severe amount of issues and pain ignoring it. You probably already developed other food intolerance issues, and will probably have a very limited diet for awhile til you heal somewhat.

      https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ https://www.celiac.com/gluten-free/topic/119661-gluten-free-food-alternative-list-2017/
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