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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Cholesterol
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7 posts in this topic

I was wondering if anyone with dx of celiac has ever had high cholesterol? from my research it shows that cholesterol is alway low in celiacs-Just out of curiosity Thanks

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Mine is moderately high. My celiac symptoms are mainly atypical, though. My body is just weird for almost everything!

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Mine is very high and also my triglycerides. I cannot take most of the meds for it either. I now use Welchol, fiber, and have had to start drinking a small glass of red wine regularly. This teetotaler is not used to that! At lest the numbers are looking better.

Apparently the celiac disease can cause problems with the liver and the cholesterol does not get handled properly in our bodies. That was the explanation that was given to me by the docs. My family history also has high cholesterol in it.

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I am non-Celiac gluten intolerant and have had high cholesterol. When I have taken supplements that benefit my liver (licorice, turmeric, milk thistle, artichoke, bitters) I have improved my cholesterol levels. I was 240 total and my doc wanted me to start on a statin but I didn't like how it made me feel so I started taking supplements for my liver. I was already taking a good amount of fiber (psylliam, flax). 6 weeks after I started taking liver supplements, I got my cholesterol tested again and the total was 200.

I'm curious as to what it is now but have other, more pressing things to spend my health care dollars on so will probably wait until next year when my insurance budget is better.

Stephanie

PS my triglycerides, however, were awesome, under 70 each time.

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Moderately high cholesterol...but nothing that needs to be medicated.

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:o

My cholestrol was 259.................... and my triglycerides where triple what the norm is. My medical docor did put me on Zetia 10 mg daily and now it's down to 200 6 months later.

Terry Dumon, NJ

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I've always had low cholesterol...my dad has high cholesterol but he is working on bringing that down and is doing well with that(he is not a celiac)

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    • Alessio Fasano at Mass General.  or Maureen Leonard.  Mass General has a Celiac disease program at the Children's Hospital there in Boston. You literally could not be any closer to the best. Google it. Good luck.
    • You need to get a full celiac panel including ttg, dgp, ema and overall iga.  all of those should be ordered I would be suspicious of a doctor who did not order the entire panel.  a lot of people on here including myself started off with a GI doctor who was not too Savvy with celiac disease and ended up having to get second opinions.   you may want to consider getting the genetic tests as well however know that 30 to 40% of the population carries the gene it does not mean it will be activated. If you do not carry the gene It practically rules out Celiac. If you do carry it you will need to undergo further testing.  do not stop eating gluten until all the testing has been done. a lot of folks make that mistake as well. Keep us posted.   you should probably get some vitamin levels done as well iron, vitamin D, B12 to start.
    • These results, assuming you have been on a gluten free diet since the original tests in 2015, likely mean you are still being exposed to gluten which is why you still feel shitty.  Go see a GI or go on a non processed gluten free no going out to eat strict diet for 3 months and see how you feel. 
    • Kitty!  Thank you so much!  Reading these words is so reassuring....  I've had a horrid weekend googling 'white spot on tongue'  - so many horror stories about such a symptom.   I then read a few more articles which were more balanced and gave other things - such as teeth grinding and sharp teeth being a cause, which for my sanity's sake I'm trying to focus on!  Esp. as said sore is remaining stubbornly on my tongue! I must thank you for the links, too. Fascinating: In one it talks about 'Crazy muscle cramps in the form of stabbing pains in toes, calves, arches of feet, and backs of legs.' The Deficiency: Magnesium, calcium, and potassium. "If it's happening frequently, it's a tip-off that you're lacking in these,"  That's absolutely incredible - I never knew that, as at night I am being woken by these pains in my toes and feet.  Thank you so much.  I did used to supplement these things and have stopped.  I will look into this and try to eat more healthily and supplement too in the short to medium term while I recover.   I'm off to see my doctor tomorrow so having this information that you have sent in mind will be so helpful.   My tongue is the weirdest colour - my dentist spotted it straight away and said, 'Wow, you are anemic'.  So if my ferritin is low - which I know it is  - I'm probably running other deficiencies too.  Thank you so much again for taking the time to post. Cristiana x
    • If you need any suggestions for gluten free equivalents just ask. Lots of different opinions on foods here.
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