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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Jacky

Hand Weakness And Reduced Dexterity

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Over the last few months I have noticed my right hand (I am an ambidexterous lefty) has become weaker and less dexterous. I have trouble picking up small objects, turning pages in the newspaper all dexterity issues) and I have a loss of hand/finger strength. It seems to be in my fingers. I have a small spray bottle and I can no longer depress the sprayer with my right index finger. I've read about neurological symptoms associated with celiac disease, but I can't find any descriptions or specific manifestations. Please help!! I became symptomatic in January 2010 and have been trying to maintain a gluten free diet since March 2010.

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It's called Celiac Neuropathy it's similar to Diabetic Neuropathy with most if not all of the same symptoms. But like any other symptoms one may have to gluten they vary with each person.

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It's called Celiac Neuropathy it's similar to Diabetic Neuropathy with most if not all of the same symptoms. But like any other symptoms one may have to gluten they vary with each person.

Thanks so much! I googled that last night and learned so much about celiac disease neuropathy! My family doctor is running tests right now to rule out MS and I've been pretty freaked out the last few days!! I'm feel a lot better now about the whole thing. Over the last 11 months since I became an "active" celiac I have had symptoms like crazy....the rash, mouth sores, now lactose intolerant, 2 sinus infections, a virus infection that relapsed (don't know if these things are related) and now over the last 3 or more months this hand weakness.

Here's my NEXT question: I've been trying to maintain a gluten free diet for the last 9 months (hiccups from gluten containing prescriptions, can't consumed distilled alcohol such as vodka, scotch) but these symptoms have all occurred AFTER I went gluten free. Why is that? Am I going to continue to get other celiac related problems even though I'm gluten free?

This whole thing is scary and I worry if it's ever going to stabilize or if I'm going to end up really disabled from this thing. I see that you said symptoms vary from one person to another, so maybe there's no knowing...but do you know if this will eventually stabilize?

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I wanted to chime in and say I'm sorry for your pain. I get severe joint/tendon issues of late and I know how scary it is to not be able to turn a faucet or press the lotion bottle thingy down or open a bottle. That being said I have fibromyalgia. I'm never sure if it's gluten or fibro but the odd thing is that since I've been trying to go gluten free in April of 2010 all my symptoms have gotten much worse. It's almost unreal to me how much I'm eating better and suffering more. I don't know if there is a reason for that like maybe it's pulling it out of my tissues. I don't know. I'm just rambling here as I limp along trying to type!!

I know aspirin and celebrex (not together of course) help me feel better with the stiffness/pain but they upset my stomach. So if I take 200mg of celebrex I can be normal and open the bottles and use the lotion so I also wonder if it is gluten causing it why would celebrex help in that I don't think it's just masking the pain because the redness from the hot joint goes away too. anyway just thought you might like to know that maybe celebrex might help your discomfort if you wanted to try that path. Just an option for you :)

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Have you talked to a doctor about carpal tunnel syndrome? An anti-inflammatory and a wrist brace might really help. It's especially important to sleep with your wrist in a brace if it's carpal tunnel. Celiacs do have a slightly higher incidence of carpal tunnel problems. Mine have always gone away if I take good care of my hands and wrists.

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Celebrex is an anti-inflammatory as well as a pain reliever - it relieves the pain by taking away the inflammation. :)

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    • Hi Matt,  Thanks for taking the time to reply!  I completely agree haha.  Thanks for the links - I'll give them a read over!  I think it was a mixture of the first time travelling with being gluten-free and the added bonus of the language barrier, it made me dread meal times when usually food is the first thing I think about when travelling to new places! Again, I think the planning element was also a factor, not being able to walk past a nice bakery without walking in - why do most Berlin train stations have bakeries in everyone?!?! THE SMELL!!!  Haha, good excuse! Could have used that in the hotel restaurant (arrived late the first night) and the only avail dish was a dry chicken Caesar salad (literally 3 thin slices of chicken, 5 cherry tomatoes and a plate of lettuce).  I am I'll give the website a look over too - thank you! My app's with my consultant are every 6 months, basically was just sent away with no info/advice given and feeling the struggle now that reality has set in that this is for good!  Hope you are well! 
    • Gluten is a protein smaller then blood,bleach does not kill it as it is not a germ. I would replace scratched pans. baking dishes, tubaware, wooden utensils, colanders, etc. Throw out crumby condiment jars and any non gluten-free spices and condiments. Cast Iron can be saved and some metal utensils by putting in your oven self clean cycle, 500F will destroy the protein. I always tell people easy ways to get started on new cookware, nordicware microwave cook ware, omelette makers, steamers, rice cookers, grilling plates (do not forgot the splatter cover), This way you can have a cheap and easy meals, a new crockpot and use crockpot liners is great for soups, I suggested a combo rice cooker/crockpot/steamer as a great investment. OH if you want a nice clean safe prep area/counter/eating place mat, look up freezer paper/butcher paper. I did a post on where to get it in bulk awhile back. But laying it out is perfects, and makes clean up a breeze. Foil sheets in baking dishes works great for a extra precaution but if you have any with baked on stuff or scratched look at getting new ones. PS took me over  months to start feeling much better. Sometimes the improvement is minor and you have to think back to the worst you had. It does improve but normally big changes are after a year.
      https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/
      https://www.celiac.com/gluten-free/topic/118842-freezer-paper-for-safe-prep-surface/?tab=comments#comment-979071 https://www.celiac.com/gluten-free/topic/120402-gluten-free-food-alternative-list-2018-q1/  
    • It sounds like your hives resolved.  I had a six month bout with them.  Antihistamines really helped.  My doctors are not sure if Mast Cell or autoimmune is the root cause.  
    • My kid has Raynauds.  It freaks her classmates out.  She wears shoes and wool socks all year round and we live in a warm state.  It is autoimmune.  She manages it by layering, turning up the heat, use lots of blanket throws.   I have Hashimoto’s and celiac disease.  So, having multiple autoimmune issues is common.  
    • Well, you do need to replace some things because they are too porous or damaged to remove gluten.  Things like old wooden spoons, scratched non-stick pans, toaster, colander, sponges, etc.  Honestly, the list is long, so try getting a few celiac books at the library or Amazon.  Consider reading through the Newbie 101 thread under the “Coping section”.    You should see some minor improvement soon.  It does take time to heal.  Most  around here will say it takes a year!  
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