• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Jnkmnky

Fitness Mag Article

Rate this topic

Recommended Posts

I bought the new Fitness magazine because someone here posted that it contained an article about celiac disease. It did--

I had a problem with how negative the article ended. The woman whines that she can't go out to eat among other complaints. Yes, she's happy that her symptoms are lessened, but you're left feeling that her life is barely worth living due to the social implications of celiac disease. I don't like it when celiac disease is portrayed as such a negative diagnosis. I'm fond of telling all who find out we have this disease in our family that it's an autoimmune disease and then list all of the top know auto immune diseases to make them see how FORTUNATE we are to have a kid with celiac disease. I'm not being a Pollyanna either here. I know it's tough initially. I know it's a shock to the dynamics of your daily life. We discovered our 3 year old had it, so I might as well have been the one with it. It was essentially my responsibility. I don't want to undermine the initial shock of the diagnosis--but I don't want to pretend that celiac disease is the big downer the article painted it as. It's simply NOT that bad. And once you find your favorite foods, get into a comfortable rhythm of living with it...it's fine.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi jnkmnky,

All I can say is "RIGHT ON!!!"

I get so tired of all the negatism <_< I feel lucky that if I have to have an autoimmune disease that it's celiacs, one that we can easily (yes I said easily) manage. Iv'e been yelled at on this board before, for saying that it was easy, but I truly believe that it is. :) And why are they always talking about these so called "negative social implications"? I've never had anything negative happen socially. The disease is what you make it! You go!!!!

Wendy :)

Share this post


Link to post
Share on other sites

I feel that negative publicity about celiac disease could cause people to put off being tested. Who wants to find out they have an awful, life-altering disease?

Share this post


Link to post
Share on other sites

I was actually pretty happy to see the article...

I know several of my friends read that magazine and will read about someone else who has celiac and about the dire need for strictness on the gluten-free diet. They will finally see that I am not a crazy woman making all this stuff up! :)

Share this post


Link to post
Share on other sites

I get the "see I'm not crazy" benefit. But I feel that a bit of 'it ain't so bad' would balance the sentiments expressed in the article.

Share this post


Link to post
Share on other sites
Ads by Google:


Jnkmnky-- I like the new avatar :) (I recognize him).

Share this post


Link to post
Share on other sites

celiac3270-- Thanks! I laugh every time I see it. :lol:

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,948
    • Total Posts
      943,635
  • Member Statistics

    • Total Members
      67,302
    • Most Online
      3,093

    Newest Member
    Archer42t
    Joined
  • Popular Now

  • Topics

  • Posts

    • It sounds like your hives resolved.  I had a six month bout with them.  Antihistamines really helped.  My doctors are not sure if Mast Cell or autoimmune is the root cause.  
    • My kid has Raynauds.  It freaks her classmates out.  She wears shoes and wool socks all year round and we live in a warm state.  It is autoimmune.  She manages it by layering, turning up the heat, use lots of blanket throws.   I have Hashimoto’s and celiac disease.  So, having multiple autoimmune issues is common.  
    • Well, you do need to replace some things because they are too porous or damaged to remove gluten.  Things like old wooden spoons, scratched non-stick pans, toaster, colander, sponges, etc.  Honestly, the list is long, so try getting a few celiac books at the library or Amazon.  Consider reading through the Newbie 101 thread under the “Coping section”.    You should see some minor improvement soon.  It does take time to heal.  Most  around here will say it takes a year!  
    •   When I woke up from my Endoscopy and was told I definitely had celiac disease the first thing I asked my doctor was do I need to get all new kitchen stuff? He assured me that I did not, and as long as my pots and pans and everything else was washed after being used to cook gluten I would have no problems. Well, I'm 10 weeks into my gluten-free diet and still feeling crappy as ever.  I have not been eating out unless the restaurant is 100% gluten-free (I'm lucky there are several near me).  I am very careful that everything I use to cook my food is thoroughly cleaned at home, but is this really enough?  Did you guys need to replace most kitchenware in order really avoid being cross contaminated?   I'm curious to get some opinions before I spend a bunch of money on new/separate stuff.  Thanks!  
    • They have all given you good advice. Like Ennis_Tx said this is not medical advice. Just some observations. Ennis_Tx mentioned already a good B-complex. But people who have Perncious Anemia low B-12 have "Pens and Needles' feeling in their extremities. Mine was much more pronounced when sleeping. . . while sleeping my nerve ending would go to sleep. This would wake me from my sleep.  I would shake them awake/loose much like a leg that had fallen asleep while awake.  We have all felt that feeling before except the whole side of body's nerve ending would tingle/fall asleep enough to wake me from my sleep. Once taking a homocysteine tablet (B6,b12 and folic acid) tablet call FABB for the abbreviated ingredients under doctor's supervision this "pens and needles' went away. This also happened in my finger and toe tips while awake as if I had pinched a nerve in my back. These sensations are now in remission. Also if you think it is Rynaud's then try Niacin or Niacinamide.  It is a natural vasodialotor and the 'warm sensation" people take when using Niacin especially in a work out supplement is Niacin they add to enhance athletic performance for body builders.. . . because this opens capillaries approx. 10 % more allowing more air into the muscles thus improving their work out. This flushing goes away after a couple days of using Niacin.  The Niacinamide form does not flush the way the Niacin form does but provides the same benefit. Both Niacinamide and Magnesium each lower blood pressure approx. 10% each this way.  But if BP is a real problem for you  take the Homocysteine tablet mentioned above or just Folic Acid by itself. My BP is now normal after taking Folic Acid because it controls' how/what triggers constriction in our blood vessels thus effectively controlling BP. These are some times that I have used to improve my circulation. *** again this is not medical advice just things that have helped me with similar issues.  I hope this is helpful. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
  • Upcoming Events