• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Endoscopy Thursday
0

9 posts in this topic

Hi everyone. After 2 1/2 months of D that I could not make stop, I finally went to the doctor who ran standard blood tests and stool cultures and ordered an ultrasound (suspecting my gallbladder). All were negative, so I was sent to the gastro who immediately asked me if I were of Irish decent. She suspects celiac and after poking my nose around here and other sites seems to make the most sense to me too. It certainly would explain years and years of digestion issues for me.

I've never had a test like this before and I must say I'm pretty nervous. Biopsies of your small intestines? That's gotta be unpleasant. I've been off gluten for 2 days (I know, I know--back on the bad stuff starting Saturday). I'd just like to know what to expect.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

Hi everyone. After 2 1/2 months of D that I could not make stop, I finally went to the doctor who ran standard blood tests and stool cultures and ordered an ultrasound (suspecting my gallbladder). All were negative, so I was sent to the gastro who immediately asked me if I were of Irish decent. She suspects celiac and after poking my nose around here and other sites seems to make the most sense to me too. It certainly would explain years and years of digestion issues for me.

I've never had a test like this before and I must say I'm pretty nervous. Biopsies of your small intestines? That's gotta be unpleasant. I've been off gluten for 2 days (I know, I know--back on the bad stuff starting Saturday). I'd just like to know what to expect.

I asked to be put to sleep and they did. It was not bad at all.

0

Share this post


Link to post
Share on other sites

My Irish descent was a clue for my doctor too. Please don't be afraid of the endoscopy! It's absolutely the easiest test I've ever had. You'll lie down on a gurney w/ nice warm blankets. They'll put in an IV so they can give you the anesthesia thru it. They'll shoot some lovely sleep medicine in there and you'll wake up when it's over. You might have the tiniest bit of a sore throat from the tubing going down, but it's really nothing! You won't feel where they've taken biopsies of your small intestine and you'll might want to take a lovely nap when you get home. There's NO prep... just keep your diet light for a day or 2 before and eat nothing after the time they tell you.

0

Share this post


Link to post
Share on other sites

Of all the things the medical community can dream up to do to you, that doesn't sound terrible. Thank you for responding. I was anticipating feeling sore in the intestinal area. I must say I'm NOT looking forward to eating gluten again. I'm just sick and tired of being sick and tired.

I've got the best family in the world who have agreed to have the house be gluten free if this is positive. With 3 sons, there's too much chance for cc. I'm sure it wouldn't hurt my son, who has autism, to be gluten free. I've always shied away from this diet because it was such a large commitment and he showed no gastrointestinal issues (like so many of them do), but does have stained enamel on his teeth. Perhaps a clue? Only time will tell.

I forgot to ask, how long until I get results?

0

Share this post


Link to post
Share on other sites

Hi everyone. After 2 1/2 months of D that I could not make stop, I finally went to the doctor who ran standard blood tests and stool cultures and ordered an ultrasound (suspecting my gallbladder). All were negative, so I was sent to the gastro who immediately asked me if I were of Irish decent. She suspects celiac and after poking my nose around here and other sites seems to make the most sense to me too. It certainly would explain years and years of digestion issues for me.

Hi TooManyHats! Your story sounds like mine only I have to wait till end of January to get my endo. (and they didn't ask me about Irish although I am part) Let us know how it goes,

Best wishes,

0

Share this post


Link to post
Share on other sites
Ads by Google:


Make sure your doctor takes at least six samples from different areas in the small bowel. Damage can be patchy so multiple samples will help up the odds they get what they need.

0

Share this post


Link to post
Share on other sites

I'm having an upper and lower endocopy on Wednesday, so we can feel nervous together! I've heard it isn't so bad, as everyone has stated - but I'm still nervous ;).

Mine is coming after years of issues, and I finally found someone to listen to me! A nurse practioner at a GI's office - and she thinks its possibly IBS, probably Celiac's and/or Crohn's. Yay...

Oddly enough, I'm VERY Irish. Like, 2/3rds Irish :0). Is this common among those with Irish descent?

0

Share this post


Link to post
Share on other sites

The lovely snowstorm we got here in the NE has postponed my colonoscopy, which was originally scheduled for tomorrow. Both will now be done on Thursday.

Could someone please tell me when I might expect to hear results on the endoscopy?

Either way I'm gluten-free starting Thursday. We're doing an overhaul of the kitchen next weekend. :rolleyes:

0

Share this post


Link to post
Share on other sites

It sounds like we are in very similar situations- I have my endoscopy on Thursday too. I've been back on gluten after a 4 or 5 day hiatus for 2 weeks now, and it is miserable. In fact, I felt worse going back on gluten after being off for even a few days than I ever did just eating it solidly (that's finally starting to get better). However, if it means a good test result, then it'll be worth it in the end. I'm surprised you didn't have to start eating gluten sooner- I was going to have to wait until much later for my endoscopy had I not gotten back on the gluten right away. I only went off to see if that would help me get through finals and a wedding without being sick; it did. 4 or 5 days isn't enough time for any damage to heal, so that's why I'm still good for the test. I'm sure you'll do fine though, your doctor certainly knows a lot more than I do. I hope Thursday goes well for both of us- the sooner we get it over with the sooner we get to eat gluten free! I plan on celebrating with a big pan of gluten-free brownies

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,099
    • Total Posts
      928,912
  • Member Statistics

    • Total Members
      63,489
    • Most Online
      3,093

    Newest Member
    Reeda
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yes I made it  Welcome Lakme, you've found a great community and resource and I'm sure myself and Ennis won't be the only ones that recognise elements of our own experiences in your account.  In addition to the links Ennis sent you above and the stickied forum faq, I tried putting down some info that may be useful to people just realising they may have an issue with gluten, you can find it in this thread:    Reading your account you do tick a lot of the boxes and perhaps you have found the underlying cause. As that thread explains however, we can't diagnose you, if you want answers you'll need to be eating gluten in order for the tests to work. I know this is probably the last thing you want at the moment, but do read the thread and think about it. You're young and that diagnosis could prove useful for a number of reasons in the years ahead. The longer you leave it, the more of a challenge the gluten challenge may prove.  Out of interest how long since you started on the diet and have you noticed any change in symptoms? You may want to consider keeping a journal, it can be very difficult to track the neuro type symptoms in particular, a written account helps you do that and tracking progress can help with anxiety issues and depression too. I get these too. It's not formally diagnosed, like you I had a physical exam of the eye which failed to show anything, but I believe it to be optic neuritis. It's vastly improved since my diet change, as has an awful lot of other stuff.  So if you're celiac or non celiac gluten sensitive you will hopefully see similar improvements in the weeks, months and even years ahead.  I wish you the best of luck.  Matt
    • Lenbh- I was diagnosed last year and I have wondered that very question. Not too long ago (before kids) I traveled quite a bit. The idea of traveling now with celiac is a bit overwhelming.  I am pretty strict at home to avoid gluten and almost never eat in situations where CC is even possible- and as far as I can tell, I don't really get any symptoms of glutening.   I have definitely heard that it is easy to travel to Ireland with celiac. In fact, many restaurants have 2 menus - a regular and a coeliac. They often cook the food in a separate kitchen as well.  I can't wait to take my kids to Italy and am already thinking "how in the world will that ever work???" I have decided so far that I will do my best, not knowingly eat gluten, and try to buy food in stores or eat in "safe" restaurants -but understand that the more often I eat in restaurants, the more likely it is to be exposed to gluten. I guess it's just a risk I'm willing to take every once in a while so that I can explore the world with my kids.  And, yes, Gelato! At least twice a day while in Italy...:)
    • They do not work for prevention, they might help with getting over the gut pains. But will not stop the antibody reaction, or the damage. At $100+ a bottle your better off investing in Nima or EZ gluten strips and testing foods.   Other thoughts for quick alternatives. They sell microwave cookers out of plastic and silicon for eggs, bacon, etc. Might be worth getting and doing dishes that way. Steam bags and fresh veggies also to avoid pans and pots that could have issues. I been looking at MRE type stuff allergen friendly myself for trips and emergency's. Things get expensive at $6-7 a meal compared to bars or shakes.
    • I would not use these as prevention, but maybe they would help a post-glutening.  In my case, I travel with lactose tablets and digestive enzymes.    When glutened, I become lactose intolerant again.    Would hate to miss out on some gelato.  Do not forget any meds you normally take too.  
    • Thanks for the help! I didn't know Bacardi was gluten-free; that's a great option. 
  • Upcoming Events