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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Wishing A Cc Free Christmas!
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17 posts in this topic

Here's to all my wonderful celiac friends. Wishing you a Christmas with no CC and a quiet tummy! Hopefully we can all post that we survived without getting glutened by Christmas hams and yams and such.

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So far we made it. I was very worried though because there were three pies and my mom kept passing plates of pie over our fudge and cookies. But nothing fell.

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The same to you and all here. No chance of CC here as I am cooking at home. I gave my furry children their gifts a short while ago....and started a kitty greed war before I could even get their toys out of the bag. Lots of get back..swat...no me first..swat...no me..swat..no me.. and of course the little dog prefers the catnip mice and noisy balls over his stuffy. :lol: Off to referee, show the dog that his toy makes noise, grab the catnip and play chase around the house.

Merry Christmas to all.

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We had our Christmas Dinner yesterday at my daughters .She eats gluten free but her husband does not. :unsure:

I was a little concerned but we made it thru with no CC yeah :D

Merry Christmas everyone :D

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MERRY CHRISTMAS, one and all! Thank you for being here, thank you for this site, and mostly thank you for all your generous posts and advice. You all are spot on!

This is my first celiac Christmas. Pretty much sucks, huh? I have 4 invitations for sumptuous feasts with friends but won't partake in any of them. I will, however, go and have fun and visit with them and deliver presents and enjoy the day. . .then I will go home and eat. I am only 4 months gluten-free. Doc says I shouldn't eat anything that was not prepared by me in my gluten-free kitchen for the first year. sigh

Just knowing you all are here makes me feel so much better.

Thanks to Gluten Free Girl and the Chef and a few others, I am eating amazing, gluten-clean, meals and feeling like I haven't felt in years!

All the best for a healthy 2011.

Marilyn

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It's my first gluten free Christmas as well! It's also my first Christmas with my fiance's family, which makes it a bit trickier. I am eating before we go, bringing my own food and then probably eating again at home later!

Good luck to all and thanks so much for the advice and support! It really helps!

Diane

PS- I got the Gluten Free Guide for Dummies- it seems pretty good! :)

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It's my first gluten-free Christmas (last Christmas was my unofficial gluten challenge/last hurrah) and so far, so good. I've survived two restaurant lunches (the second in an awesome restaurant with a big gluten-free menu) and Christmas Eve dinner at my parents' house (my mom has been super awesome about gluten-free cooking and roasted a whole beef tenderloin). I made four batches of candy and four batches of cookies, all gluten-free. Now the real challenge will be tonight's dinner with my husband's parents (although they have been asking all sorts of questions about safe foods and food prep and husband had food allergies as a kid, so they do understand the complications) as well as husband's big family party tomorrow. His celiac uncle is hosting, but considering the menu includes the line "cheesecake from [local bakery], crust not gluten-free", I'm thinking I should bring my own food. I'll definitely bring a big dessert plate.

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Had a great non-cc Christmas picnic in the park - two sets of couple friends (who have never cooked for us before) and their various assorted family members. Barbecued venison (freshly hunted by the chef) along with the mandatory sausages of which we did not partake although he thought the venison ones were gluten free (stuffed by the butcher from his own venison). I made oven fried chicken which the kids all hoed into, along with potato salad for DH and the others, a shrimp, avocado and bacon salad with a creamy garlic dressing, asparagus salad with balsamic vinaigrette. There was oodles of food which everyone had been instructed to make gluten free and they all told us how they had made it :D - I declined the dish where she wasn't sure if she had used malt or apple cider vinegar, although DH decided to risk it and is no worse for wear. It was so sweet of them to do this for us. The kids played cricket and flew kites, the adults indulged in champagne and wine (and thermos coffee), we had berries in all different combinations coming out our ears but mostly into our tummies, pavlova, other meringues and cream, pineapple and mango, not to mention all the appetizers we started with . Temps had cooled down to 72 degrees and we had reserved a spot on the banks of a stream under big spreading trees. The biggest problem was keeping those sneaky mallard ducks out of the food basket - they ate half of the Christmas mince tartlets :lol:

All in all, a very successful and enjoyable gluten free Christmas.

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Here's to all my wonderful celiac friends. Wishing you a Christmas with no CC and a quiet tummy! Hopefully we can all post that we survived without getting glutened by Christmas hams and yams and such.

Happy Christmas! I'm doing well so far, it's far exceeded my expectations (first visit to my mum's place since I went gluten free) And my fussy sister even enjoyed the gluten free yorkshire pudding, and I'd expected grumblings. So yay!

Wishing everyone a happy and healthy holiday!

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Merry Christmas, Happy Holidays and Happy New Year everyone! I'm so thankful for this site and for all of you!

This is my 2nd Christmas gluten-free (as well as lactose and soy) and I didn't get sick. I did get sick my first gluten-free holiday, likely from CC. This time I brought food everywhere we went. Dinner for me to warm up and food to share. I did a lot of cooking and baking this year. Some successes and some busts and some things were so yummy we ate them all before the holiday got here!

This year we hosted Thanksgiving too. Everything gluten-free, lactose and soy free. Everyone cleared their plates and said how yummy everything was. At Christmas yesterday people were saying how that was their first Thanksgiving they felt satisfied but not over stuffed or lethargic after. This led to a conversation about how gluten seems to affect everyone in some way and maybe we could all do with less of it n our diet. (not us gluten-free full timers of course). It's nice to see gluten eaters accepting the way we have to live and even experiencing it's wonderful side effects.

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Happy Christmas! I'm doing well so far, it's far exceeded my expectations (first visit to my mum's place since I went gluten free) And my fussy sister even enjoyed the gluten free yorkshire pudding, and I'd expected grumblings. So yay!

Wishing everyone a happy and healthy holiday!

gluten-free Yorkshire Pudding ? Oh please, oh please share recipe or product name

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I survived! My in-laws roasted a safe ham and served it with spinach salad (homemade dressing, all safe ingredients), mashed sweet potatoes and homemade cranberry-walnut sauce. I brought food from home for breakfast and lunch, and the extended family dinner main dish was gluten-free homemade sloppy joe meat with either buns or corn chips. Couldn't eat all of the sides, but there were a couple of bean-veggie salads and a fruit-jello dish that I could eat safely. I ate my own cookies and candies for dessert both nights (as did many gluten-eaters, and they all raved). Yay!

So great to hear others' success stories, too. Here's to a happy, gluten-free new year. :)

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gluten-free Yorkshire Pudding ? Oh please, oh please share recipe or product name

My mum just made it the regular way but using gluten free plain flour. We use the White Wings brand plain flour (I'm in Australia) I'll ask her for the recipe and I'll post it later!

update: ok, she came back and I got her to tell me:

1 cup flour and a pinch of salt. Make a well in the flour and mix in 2 eggs, then alternate with milk and water until the batter makes the consistency of runny cream.

Let batter stand (say, half an hour to a few hours. Mum makes the batter when she puts the roast in but doesn’t cook the Yorkshire pudding until after the roast is out so it sits for a few hours).

Pre heat baking tins for Yorkshire pudding while roast is still in the oven. Take the roast out and turn the oven up to 400F. Put enough fat in the tins to cover the base of the tins when melted and allow to heat until smoking hot. Check batter is liquidy enough (add more liquid to return to runny cream consistency if needed) then pour to cover bottom of tins about 1 cm deep. Quickly return to oven and bake for about 45 minutes, until golden brown (though colour varies) and a skewer comes out clean.

The gluten free flour we used is White Wings brand and the ingredients list says: Starch (maize, tapioca), rice flour, vegetable gum (464). And usually I loathe tapioca but this flour tastes fine and works pretty much like regular white flour. We noticed the Yorkshire pudding was a bit more doughy than usual but still very tasty. Enjoy!

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gluten-free Yorkshire Pudding ? Oh please, oh please share recipe or product name

Our recipe, which we have been using for years:

Yorkshire Pudding (Gluten-Free)

Persons served: 2 4

chick pea flour 50g 100g

rice flour 50g 100g

eggs 1 2

milk 200ml 400ml

salt pinch pinch

Use a regular muffin pan.

1. Half an hour before the pudding is to go into the oven, combine ingredients in a mixing bowl. Beat for 2-3 minutes. Use a good pinch of salt as this helps set and raise the pudding. Allow to stand and thicken for 15 minutes. Beat again for 1-2 minutes. This adds more air to the mixture and makes a nicer pudding.

2. While the mixture is standing, prepare muffin pan with Pam or any other spray vegetable oil. Don't be light handed with the spray. The more spray there is, the easier to remove pudding from the pan (easier to clean up, also). If not using all the muffin cups put

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I had a wonderful Christmas which was gluten-free and no cc! It started with my son's college graduation party which was TOTALLY gluten-free (and no one could tell the difference). At my mother's everything was wonderful and almost all gluten-free (Even calling me from the grocery store to ask about a couple ingredients). I brought things to my MIL so I knew some were safe. Best feeling Christmas I have ever had, and my first since going gluten-free. My sister noted that after the graduation party she never left a party not feeling bloated. (She has been tested now, too, though she has avoided gluten so much her test results were inconclusive. I think she will be going gluten-free regardless)

Just imagine what 2011 will bring! :D

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I survived my Christmas trip. I ate out at more restaurants than I have eaten out at since I was diagnosed. My family's dinner was naturally gluten free until the pie came out. (they made a custard for me.) It was really great that everyone was careful to make sure that I didn't get sick. Yay.

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Merry Christmas everyone! :) Also my first Christmas gluten free.

A good friend invited me over for supper during the week - I made a big green salad for myself ("to share"), and just took the bits and pieces she was serving that I knew was definitely gluten free. Same for family Christmas at my mom's - large portion of my own salad, and pieces of gamon and other salad I knew was safe. No fuss, no hassle :)

Made it through mostly without getting gluten-ed - the exception was a gluten-free muffin mix I made that was somehow not gluten free.... Made an awesome large mince pie (the little tarts were way too fiddly with the soft dough, so I said stuff it and made a big pie for myself). Wooo mince pie and cream!

Raven- Christmas with the furry children are always the best! Ours spent the day splayed out on the tiles because it was way too hot, and enjoyed getting snacks throughout the day since I was on leave :)

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    • Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “nearly 84% of the gluten- free placebo group showed a significant improvement in symptoms compared to just under 26% for the gluten consuming group.  This study confirms that a large number of patients diagnosed with irritable bowel syndrome are sensitive to gluten.  The team (of doctors) suggest that the term of IBS might be misleading (you think) and may change or delay an “effective and well-targeted treatment strategy in gluten sensitive patients”. “ This is in IBS patients already who fulfilled Rome III (lesion) criteria.  They should at least be considered Non-Celiac Gluten Sensitivity (NCGS) but that would be to admit NCGS is a real condition. If you are having NCGS symptom’s (Marsh Lesion) aka Rome III lesions then why is the diagnosis not NCGS instead of IBS?  The problem is most NCGS (apparently 84%) is misdiagnosed as IBS in a large number of cases or possibly SIBO in your case Feeneyja. Even when 84 % of those with IBS show sensitivity to gluten the diagnosis of Non-Celiac Gluten Sensitivity is not confirmed by a simple gluten antibody test and people  consider Non-Celiac Gluten Sensitive (NCGS at least in the medical community apparently) a myth rather they diagnosis someone’s digestive problems with IBS of an unknown cause instead of admitting gluten is the trigger thus allowing them to avoid what is considered a mythical diagnosis to some in the medical community. By all means if  you have been given an IBS or SIBO diagnosis insist at the least on a gluten antibody test and you may save yourself many years’ of suffering before the doctor’s figure out that Gluten is the trigger then you have hope for recovery if you get the right disease. And I don't mean NCGS. Because even this too is confusing low stomach acid I believe with IBS, NCGS and even SIBO. See my posterboy blog post about why  I think this is. JMG aka Captain NCGS I referenced the Columbia University Medical Center (CUMC)  research on NCGS that I think proves your point and mine. here is the care2 article that I think summarizes it well. http://www.care2.com/causes/new-study-confirms-existence-of-non-celiac-gluten-sensitivity.html NCGS is on the "Celiac Spectrum". quoting dr. hyman from the huffpost 5+ years ago and still people seem them as different diseases (or at least deny the existence of the one over the other) http://www.huffingtonpost.com/dr-mark-hyman/gluten-what-you-dont-know_b_379089.html "When you get these tests, there are a few things to keep in mind. In light of the new research on the dangers of gluten sensitivity without full blown celiac disease, I consider any elevation of antibodies significant and worthy of a trial of gluten elimination. Many doctors consider elevated anti-gliadin antibodies in the absence of a positive intestinal biopsy showing damage to be “false positives.” That means the test looks positive but really isn’t significant. We can no longer say that. Positive is positive and, as with all illness, there is a continuum of disease, from mild gluten sensitivity to full-blown celiac disease. If your antibodies are elevated, you should go off gluten and test to see if it is leading to your health problems." and the columbia research bears this out. ironictruth you want to catch it at the NCGS stage before it becomes full blown (villi burned to the ground) Celiac disease. You are right to run from the burning house (antibodies) causing you a weak but "positive" diagnosis. This concept of the biopsy "proven" diagnosis is archaic at best and barbaric at worse in this age of serology proven diagnosis of NCGS before the villi burns to the ground so to speak. see this online article by dr. rodney ford that discusses why this is today. http://drrodneyford.com/extra/documents/236-no-gold-standard.html and he too (though in minority) is forward enough thinking to diagnose his patients with serology alone. Why would we use a standard 60+ years old when modern medicine can diagnose the disease much better and much, much sooner than what till there is stage 3 marsh lesions. The dgp test you had can diagnose it the intraepithelial lymphocytes (IEL)  stage. That is good news.  The villi are already smoking (using my analogy) of a burning house from antibodies attacking the body. Problem is and I mean this as a complement to SIBO girl and Captain NCGS (I was this in an article about the ZIKA outbreak patients talking how much more they (those affected by the disease) knew than their doctor's who where treating them at the time) we (us) have become doctor's without diplomas'. One of us each has become an expert at recognizing SIBO, NCGS and Pellagra. The question is which one is right??? Maybe we are all right by degrees. I believe NCGS can be confused for SIBO. But I also believe and the research confirms it in my mind that low stomach acid mimics many of the symptom's of both SIBO and NCGS. So that tells me there is still a disease not yet correctly identified. To me the disease that answer's the most questions in my mind is Pellagra. Ironictruth, Freneyja, JMG taking a b-complex can disprove or prove this theory. here is the full paper by Prousky. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml decide for yourself but people routinely get better in 3 months time of taking  niacinamide 2 to 3 times daily or a b-complex and niacinamide 3/day for 3 months. The dosage does not matter.  It is the frequency. And a month will be enough to see improvement (100 count bottle).  I used to recommend to my friends a 100 count bottle because it was the most common way to find either Niacin/Niacinamide or a b-complex but when I found out your body could store 3 months worth in the liver and my experience with b-2 (riboflavin) and angular cheilitis (look it up on google images if you don't know what it is) for years probably 5+ I could not get rid of it for nothing. And I took b-2 (for a 100 count round) once before but learned b-vitamins needed to be taken frequently for best effect. So I bought a 300 count bottle (3 months worth) and took them (b-2/riboflavin) 2 to 3 day and the angular cheiliitis (leaking lips, cracked fissures at the side of the mouth) and it was nice and crusty went away and they have never come back since. but this was after I took the B-3 Niacinamide for a couple months firsts then I was able to absorb the b-2 (riboflavin) now and I put this condition in remission (i did not say cure) because if I get low again it might come back but remission. The same thing happened to my GI problems associated with NCGS (serology positive celiac diagnosis) without a biopsy proven (thank God) diagnosis. And that is my story. I would suggest jmg, feeneyja and you too too ironictruth buy a b-complex and see if a couple three months regimen might help put your GI symptom's in remission. we already know from research 5+ years ago that b-vitamins help celiac's with their well being. https://www.celiac.com/articles/21783/1/B-Vitamins-Beneficial-for-Celiacs-on-Gluten-Free-Diet/Page1.html quoting "For 6 months, patients received daily doses of either a placebo, or of B vitamins in the amount of 0.8 mg folic acid, 0.5 mg cyanocobalamin and 3 mg pyridoxine." They summarize quoting "These improvements, the normalization of tHcy levels, together with the substantial increase in well-being, led the research team to conclude that people living gluten-free with long-term celiac disease do indeed benefit from daily supplemental doses of vitamin B, and that doctors should consider advising the use of B vitamins supplements for these patients." So I am just saying what the doctor's recommend when recommending Niacinamide for your GI problems that Pellagra could be mimicking (masking the true cause) hence the 58% of celiac also have pellagra (that a majority) of Celiac's also are known to have. I am not a doctor.  But You can be a professor though with a masters so while I do preach Pellagra as a co-morbid condition of NCGS/Celiac disease it is only because the doctor's with diploma's research bears this out. So I try and make more people aware of this fact. (no I do not have  a master's either though a friend once said who has a masters said my research would qualify me if I had taken the courses) (And yes I know B-3 was not studied in this paper) but maybe now is the time to point out it should bee! Or SIBO girl, and Captain NCGS you can try it (B-3) for yourselves and see if it helps you the way it did the Pellagra kid/posterboy. If you want to study this topic more I summarized many of thoughts in this posterboy post https://www.celiac.com/gluten-free/blogs/entry/2103-why-and-how-pellagra-is-often-confused-with-celiac-disease-andor-other-gidigestive-problems-the-science-of-pellagra-a-hidden-epidemic-in-the-21st-century-presentingrevealing-as-ncgs-andor-possbily-celiac-disease/ I wrote a blog post that also said "I had Celiac disease but developed Pellagra" but I really think it is the other way around. (it is linked in the above post) if you want to read it there so I won't post it again. I was a pellagrain who was diagnosed first as a celiac.  The same way a SIBO might first be diagnoses as a IBS or NCGS patient.  Or the way a NCGS is first diagnosed as a IBS patient 84% of the time. Remission is possible I believe if and when you find the right/correct disease. And any of these GI conditions can be confused for the other and SIBO girl and Captain NCGS makes good points. But it seems to me Pellagra can be confused for not only the SIBO, NCGS, but if the research is right 58% (the majority) of Celiac's and it is easily reversible in 3 months time. You will not know if you are not willing to try it. **** this is not medical advice just deep research and my own experience with taking Niacinamide. But I will say  I am not the only one who has been helped on this board taking Vitamin B-3. I want you Iroinctruth, Feeneyja, Jmg to be the next ones. I know this post is way too long as usual but I had a lot of ground to cover. quoting a friend 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • After my crash and burn gluten challenge of 2016, I wander off yet again Into the land of eastern and alternative medicine to heal. While I am grateful to many (not all) western medicine  Dr s of the past , for the past 2 decades the ones who give me relief for my lifetime ails are the alternative/eastern practitioners. I'm not starting a debate as both branches have their strengths, often the shame is they are seperated in healthcare, for likely humanity and public health imo would be best served by their encouraged collaboration/mutual recognition,but alas not my problem to solve. Much bigger then me and quite frankly, I'm too busy healing to tackle that mountain. Regardless, I now have "shoes that fit my carpet bag " of decades of multiple misdiagnosis /undiagnosis collection. They can be combined and labeled celiac and fibromyalgia. I was shocked at first at the news, I consider those really serious. Is AWOL really that ill? I've read up more  on both disciplines descriptons etc for these conditions, I'm in shock for the "shoes" fit perfectly . I know based on western test results I'm far from textbook/ gold standard celiac (but I failed to get past day 6 of my gluten challenge -likely speaks for itself) and fibromyalgia is quite demeaned/dismissed from my past knowledge amongst the western medicine world and greater society. (Friends /family in western medical fields) Is this still the case? My lifetime gi issues, the 30 plus years multiple chemical sensitivities ( go back to childhood-I keep very close to the vest), 20 plus years symptoms of muscle issues / myalgia, now have the names of celiac & fibromyalgia. Mixture of feelings of relief to be recognized, but also knowing my named illnesses are likely not recognized or are minimised by my western medicine trained family and friends and greater society. Can anyone offer some encouragement to help me cope at this time of healing? My accupuncture visits have been truly helpful, but my last visit is giving me a lot to process chemically, biologically, and spiritually. It's like someone unleashed the flood gates of all the symptoms of both illnesses at once in a combined package for me to experience in a one transparent package.  Very enlightening and to be blunt I feel like crap. So it's time to accept the package names and all, the curtain was lifted and the waxing and waning symptoms of fibromyalgia we're released. Please share any positive support or stories you have on coping with celiac recovery, celiac/fibromyalgia, and  healing by accupuncture. It will be much appreciated. As it is abundantly clear AWOL is here to stay on the celiac.com forums. Thanks  
    • https://www.celiac.com/gluten-free/topic/116482-supplement-and-foods-you-take/ ^ I did this a while back where some of us have posted what we take and eat to get our nutrients. Mines changed a bit since then since I can not eat any grains, sugars or fruits.
    • I take 2 Slice of Life gummy multivitamins and drink 2 Ensure high protein per day. Both are gluten free.
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