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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Good Doc In The Chicagoland Area
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I was just wondering if anyone knew a good Doctor or treatment facility. I have had continual stomach problems and no one is managing my celiac disease. My stomach doctor asked me how to spell celiac the other day, and then when I told him I was worried about how damaged my Villi are and he said he was not familiar with the terms I was using. Ummm...what? Are you a GI specialist? I heard there is a Celiac disease center at the University of Chicago, and I was wondering if anyone knew if they were good or not. I am midway between Chicago and Indianapolis, so I can go wherever the best are. I also need a full auto immune work up and someone to help me feel better already. I just want answers at this point! If anyone has any suggestions, I would really appreciate it.

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Hello Applegirl03. I am here searching for help for my 24yo daughter who was dxd with gluten intolerance in 09. In 05 she was dxd with Hashimoto's, had half her right lobe (thyroid) removed due to growth - no cancer, has been dxd with PCOS and a possible parasite! I make the kitchen and her foods all gluten-free but her father is not helpful. :( So I must de gluten the kitchen before she enters!!! It is becoming habit now, I just wish her father would help but he has his own issues.

We began seeing Dr. Alan Bain in Chicago. He was the one that had her tested for gluten intolerance. The doctors here where we are from, IN, don't truly believe there is any "intolerance" and no bona fide proof unless the biopsy confirms it. Well, I am hoping we don't have to go that far. And she has experienced IMMEDIATE relief by removing those items her blood work claimed a sensitivity/intolerance/allergic reaction to: Gluten, soy, dairy, etc. It seems to me, I can only find those doctors that are of the "write a prescription", CT scan, or surgery only types. In fact, I have seen them personally, in the past, and have many regrets (gallbladder removal/ulcer treatment/cancer). You live and learn. I hope I can share some of my, and my family's experiences here. :)

There is a nutritionist we are working with - but since daughter no longer has insurance due to full time college and part time work, we can only afford so much. She let her COBRA ($400) monthly elapse so we are looking for new coverage. The nutritionist is Sarah Leep, Griffith, IN. She has suggested a Dr. Myrna Trowbridge of Valparaiso, IN

Optimum Health Center: Trowbridge Myrna D DO

Ste C, 850 Marsh Street, Valparaiso, IN 46385-6239 (219) 462-3377 ‎

I have called recently and she is on limited new patients due to her own health - arthritis. I may call again, make an appt for my daughter to see her as soon as possible since she has been very ill recently with severe constipation, and put it all on my charge account. What else can I do?????

I hope you find someone that takes the time to listen to you and will do their best to bring you comfort and restore your health. I am finding those doctors to be elusive for this area. But I will do anything -- internet consult -- with a doctor that recognizes this malady and treats ALL the symptoms with proper nutrition, herbal remedies, homeopathy, whatever it takes - before grabbing the script pads and saying "BYE".

Good luck and good health to you!! (I made spelling corrections to Dr. Trowbridge's name, so this may appear as a duplicate post)

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I was just wondering if anyone knew a good Doctor or treatment facility. I have had continual stomach problems and no one is managing my celiac disease. My stomach doctor asked me how to spell celiac the other day, and then when I told him I was worried about how damaged my Villi are and he said he was not familiar with the terms I was using. Ummm...what? Are you a GI specialist? I heard there is a Celiac disease center at the University of Chicago, and I was wondering if anyone knew if they were good or not. I am midway between Chicago and Indianapolis, so I can go wherever the best are. I also need a full auto immune work up and someone to help me feel better already. I just want answers at this point! If anyone has any suggestions, I would really appreciate it.

Why don't you email them and ask? Don't make it more than 1 page. Tell them the GI has never heard of Celiac. It's a place for Celiac so they should be able to help.

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Hello Applegirl03. I am here searching for help for my 24yo daughter who was dxd with gluten intolerance in 09. In 05 she was dxd with Hashimoto's, had half her right lobe (thyroid) removed due to growth - no cancer, has been dxd with PCOS and a possible parasite! I make the kitchen and her foods all gluten-free but her father is not helpful. :( So I must de gluten the kitchen before she enters!!! It is becoming habit now, I just wish her father would help but he has his own issues.

We began seeing Dr. Alan Bain in Chicago. He was the one that had her tested for gluten intolerance. The doctors here where we are from, IN, don't truly believe there is any "intolerance" and no bona fide proof unless the biopsy confirms it. Well, I am hoping we don't have to go that far. And she has experienced IMMEDIATE relief by removing those items her blood work claimed a sensitivity/intolerance/allergic reaction to: Gluten, soy, dairy, etc. It seems to me, I can only find those doctors that are of the "write a prescription", CT scan, or surgery only types. In fact, I have seen them personally, in the past, and have many regrets (gallbladder removal/ulcer treatment/cancer). You live and learn. I hope I can share some of my, and my family's experiences here. :)

There is a nutritionist we are working with - but since daughter no longer has insurance due to full time college and part time work, we can only afford so much. She let her COBRA ($400) monthly elapse so we are looking for new coverage. The nutritionist is Sarah Leep, Griffith, IN. She has suggested a Dr. Myrna Trowbridge of Valparaiso, IN

Optimum Health Center: Trowbridge Myrna D DO

Ste C, 850 Marsh Street, Valparaiso, IN 46385-6239 (219) 462-3377 ‎

I have called recently and she is on limited new patients due to her own health - arthritis. I may call again, make an appt for my daughter to see her as soon as possible since she has been very ill recently with severe constipation, and put it all on my charge account. What else can I do?????

I hope you find someone that takes the time to listen to you and will do their best to bring you comfort and restore your health. I am finding those doctors to be elusive for this area. But I will do anything -- internet consult -- with a doctor that recognizes this malady and treats ALL the symptoms with proper nutrition, herbal remedies, homeopathy, whatever it takes - before grabbing the script pads and saying "BYE".

Good luck and good health to you!! (I made spelling corrections to Dr. Trowbridge's name, so this may appear as a duplicate post)

Thank you so much for this information. I myself am 25 years old and I am in desperate need of a decent doc. My HUsband just got a new job, so our insurance is pretty good right now and I would like to get this all taken care of. I do see one doctor who is just wonderful. Her name is Kelli Onie. She actually tested and found my celieac disease after 2 years of horrible symptoms and Docs telling me I was crazy. After going G.F. I was feeling much better, but started getting very sick over the summer. I saw her in November, they ran some test which came back at the beginning of January and it turns out I have a massive fungal infection in my gut. Apparently this is common with celiac disease sufferers and finally now I am on some treatment for it and within the next 3 weeks I should be good as new. I have complete confidence that she can help your daughter and she can get you in like right away...she works out of a Dr. Patterson's office (they share one) and the number and address is

St. Mary Care Network

10607 Randolph St.

Suite A

Winfield, IN 46307

219-663-4007

Trust me, call her and make an appointment...It will be the best money you have ever spent!

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Hey thanks applegirl03, I really appreciate the recommendation and will have her get in touch soon - while she is still on break from classes.

That is interesting about the stomach infection! Did the results of the test have anything to do with a high eosinophils number? Sorry, I am new at this.

I feel Dr. Bain has done all he can and we need to find someone that can treat her gluten issue, her Hashimoto's, hypo, and all the rest. It was really getting expensive - as well as time consuming - for her to be seen by her primary care, gyne and an endo. Oh, and the nutritionist.

It will be nice for her to see someone close to where she works, too! Thanks again :)

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Hey thanks applegirl03, I really appreciate the recommendation and will have her get in touch soon - while she is still on break from classes.

That is interesting about the stomach infection! Did the results of the test have anything to do with a high eosinophils number? Sorry, I am new at this.

I feel Dr. Bain has done all he can and we need to find someone that can treat her gluten issue, her Hashimoto's, hypo, and all the rest. It was really getting expensive - as well as time consuming - for her to be seen by her primary care, gyne and an endo. Oh, and the nutritionist.

It will be nice for her to see someone close to where she works, too! Thanks again :)

No problem...Kelly Oni is sort of an all inclusive...she helped me with my OBGYN stuff (I have severe endomotriosis) as well as testing for Hashimooto's(results were NEG) and she gave me lists of food I could eat and what supplements would help. My test results didnt say anything about high eosinophilis numbers, but I would have to double check. I was just shown the lab results and a copy to take home that showed a massive fungal infection. I would honestly say if your daughter is not getting better than there may be something else throwing everything off. A parasite in her gut could trigger the thyroid, as well as any OBGYN, and other issues. I know I am only on day 11 of 30 in my 1 month treatment and I am already starting to feel better.

Please keep me posted how it goes and I really hope you get some answers. I know how terrible it is to feel sick and have doctors not be able to help you. I remember thinking "what am I supposed to do? Just go home and suffer?" So I know Kelly Oni can definitely help her and hopefully she can figure something out!

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