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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone Gone Through Patch Testing
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TPT    8

My biopsy for dh came back negative. (I am still questioning my negative celiac disease results, and am planning to further investigate.) I gather many of you have gone through allergy patch testing in search of a reason for your rashes.

Just looking for experiences. What things did they test you for and how bad was the process? Were you able to shower at all? It takes 5 days total!!

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drgoogle    0

An allergist I saw suggested patch testing but my dermatologist made me cancel the appointments because he said I'd just get "angry back" since my skin is hypersensitive right now. Thing is, I think it's hypersensitive because of the DH and skin trauma relationship.

They did say it'd be a bunch of patches on my back, then I'd have to come back in a couple days. I'm sure it's not fun or convenient, but if it helps give you some answers it's probably worth it!

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TPT    8

An allergist I saw suggested patch testing but my dermatologist made me cancel the appointments because he said I'd just get "angry back" since my skin is hypersensitive right now. Thing is, I think it's hypersensitive because of the DH and skin trauma relationship.

They did say it'd be a bunch of patches on my back, then I'd have to come back in a couple days. I'm sure it's not fun or convenient, but if it helps give you some answers it's probably worth it!

It's over a 5 day period. I'd have to go to the doctor Monday, Wednesday and Friday. Not looking forward to the process, but hoping I'll get some answers.

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ravenwoodglass    1,218

My biopsy for dh came back negative. (I am still questioning my negative celiac disease results, and am planning to further investigate.) I gather many of you have gone through allergy patch testing in search of a reason for your rashes.

Just looking for experiences. What things did they test you for and how bad was the process? Were you able to shower at all? It takes 5 days total!!

Did they biopsy the lesion or the skin next to it? If they biopsied the lesion itself then the test would be a false negative as the biopsy needs to be taken from intact skin next to the lesion.

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TPT    8

Did they biopsy the lesion or the skin next to it? If they biopsied the lesion itself then the test would be a false negative as the biopsy needs to be taken from intact skin next to the lesion.

They biopsied the lesion itself AND the skin next to it.

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drgoogle    0

Did they biopsy the lesion or the skin next to it? If they biopsied the lesion itself then the test would be a false negative as the biopsy needs to be taken from intact skin next to the lesion.

Does it always have to be completely normal skin? 2 docs biopsied me with a punch, taking a lesion but in addition a tiny bit of surrounding normal-ish skin. One of those docs is a dermatologist specifically looking to rule out DH. Surely he would know what he was doing? I even asked if he had to take some normal skin and he just said "no no this is fine for now"

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ravenwoodglass    1,218

Does it always have to be completely normal skin? 2 docs biopsied me with a punch, taking a lesion but in addition a tiny bit of surrounding normal-ish skin. One of those docs is a dermatologist specifically looking to rule out DH. Surely he would know what he was doing? I even asked if he had to take some normal skin and he just said "no no this is fine for now"

It does need to be intact skin next to the lesion. Just because the doctor that did the biopsy was a dermatologist doesn't always mean they know how to do the biopsy correctly. I suffered greatly from DH for almost all my life and saw many derms. I was told it was everything from 'poison ivy in my blood stream' to 'pickers acne' to 'contact dermatitis'. The only doctor to biopsy was supposed to be the best in my area and he biopsied...the lesion. I have had the clearest skin in my life now in my 50's after suffering with DH since the age of about 5.

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