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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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mandigirl1

Eating The Same Thing, Over And Over

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Has anyone else ever experienced this before? :blink:

You find one food you can have, particularly a food you love. And then you eat it over and over again?????

I get into this food "rut" where I cant get enough of something, I eat it all the time...for example, nuts, rice pudding, chocolate (dangerous), peanut butter, chocolate rice cakes......

Its like its an addiction......and I never get that "full" feeling. I could just go on and on...

Is this related to Celiac, do you think or is it just me, happily enjoying a gluten free food????

My stomach is like a bottomless pit!!!! I never feel "full" or satisfied that Ive had enough.....my nutritionist told me that its psychological.

What do you fellow Celiacs think about this?

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Shoot, if nuts don't fill you up it MUST be psychological. Seriously, most of the foods you listed are very low in protien, so you can eat a lot without getting the "I'm full" signal. Try eating hard-boiled eggs and see if your full mechinism is working. I think you'll find it is.

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I am having the opposite problem (for the first time in my life). I don't have any appetite. I have to eat to take my meds and I am having to force myself to find something to eat. Nothing smells or tastes good. That is way out of the norm for me. I usually have a wide variety type of diet.

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Donna -

That doesn't sound like much fun! Do you know what's going on? Possibly a side effect from your meds? Are you worried? :huh:

I am worried! Be sure to take care of yourself & get enough food in that bod! *hug* :)

- Michelle :wub:

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I get on food kicks, a lot.

Try eating a little bit of food more times a day. Like, eat just some then wait until later to eat some more and so on.

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My coeliac Daughter has the same thing. She fixates on one food and will eat and eat it until someone stops her. I thought it was just because the food she has to eats wasn't filling her up enough. But perhaps it is related to coeliacs :huh:

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Guest gfinnebraska

I get full, but I do tend to get in a "rut" with my eating. I went through a phase where I CRAVED grapes... ate grapes every single day for lunch!! Couldn't get enough grapes!! Now I don't want to see another grape... ;) Right now it is blueberries. :) I am also bad about hamburger patties. I make nice, big thick ones and grill it. YUMMY!! I just bought a side of beef, so I could eat a hamburger patty every night!! But, I do feel full. Like another post said, try adding more protein into your diet and see if you feel full then. If not, something is going on other than craving the same foods.

Take care!!

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I think it's a combination of being Celiac and a Psychological thing. We are limited in the things we can eat so I tend to obsess about or enjoy a particular item (Rice Pudding for example) for several days at a time. It then manifests itself into an emotional state (almost like a protest) against everything we can't have anymore. I know I am doing it but must allow myself a few days to get the emotion out of my system before coming back down to earth.

Personally, when I am feeling well is the most dangerous time for me because I then want to wander and eat different foods (gluten-free foods but things I haven't eaten in a while). Last week it was Ice Cream. I have learned (the hard way) that I need to steer the straight-and-narrow course until my intestine heals up.

Best Of Luck To All!

Cleveland Bob B)

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Mandigirl,

Are your intestine's healed yet from your gluten-free diet? Before I was diagnosed with Celiac, I would eat and eat and eat and NEVER get full (which of course makes sense since my body was not digesting any of the food I was consuming). After being on the gluten-free diet for some time, I started to get "full" after eating. I do get on HUGE food kicks though and that will be all I eat for months on end. For instance right now I am on this soy crisps and casabe rain forest cracker kick. I can't get enough of either. I will be in trouble if one of the foods I get "obsessed" with happens to get minute amounts of gluten in the production process!

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You find one food you can have, particularly a food you love. And then you eat it over and over again?????
I was like that before I went on the gluten-free diet but once I went on the gluten-free diet, it got worse (I think I have a super high metabolism). I find it really hard to feel "full" and it doesn't seem to matter what I eat. Before I went gluten-free, the only thing that really made me feel full was bread or "big" dinners (Wheat bread can give you a fasle sense of being full, I guess that's what it worked!) Now I have to eat a ton of food to feel full :)

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My stomach is like a bottomless pit!!!!

I know exactly how you feel. I've only been gluten-free for a couple months, so I am probably still looking at some intestinal damage. I was a vegetarian before, so I wasn't used to heavy foods anyway. Now, however, I get hungry again about an hour after I eat. I've just tried to adjust by eating much smaller portions more frequently. I try to keep a wide range of fruits and raw veggies on hand. I suggest just buying a couple of each fruit/veggie you like that way you'll have a big supply, but it will be varied. If you don't have much of one thing in the house, it's easier to try to eat something else once it's gone.

Everyone laughs at me because I am always eating and still so skinny. I ditto what others have said about upping the protein though. That's about the only thing that makes my stomach quit it's whinning for more food.

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I know where you're coming from. For me, going gluten-free has made me lose my sense of control when it comes to eating. When someone tells you you can't have something what do you want? You want that thing the most! So I feel like I've begun eating to gain back that control. It's only at dinner time and it's mostly on healthy things like huge quantities of fruit. I eat until I basically can't move and then I'm overcome by guilt. I quickly came to realize that I had a problem. I don't know if it's as serious for you... maybe you just really really like something, in which case I can also relate because I used to eat oatmeal once or twice a day every day for like a month because I loved it!

My solution was to start going to Overeaters Anonymous meetings and to make small changes in my habits. I don't keep much easy to eat food around my apartment. Most foods in my kitchen either need to be dethawed or cooked (I've begun freezing everything to make it hard for me to grab for something). Some other things that might help... sit down at the table with a plate and silverware (mindless eating happens for me in front of the TV), take a walk when you feel yourself reaching for more, keep a food journal.

And if it's not as "serious" as it is for me, then disregard but hopefully my advice will help someone. Good luck!

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Thank God - I was beginning to think I'd gone off the deep end. :lol: Tostios, my safe food. I was diagnosed about 2 months ago and I tell people they should have taken out stock in the company. It has replaced my bread; in the morning with coffee, for my snacks during the day, at lunchtime and at night. But now it seems to have gone away (the craving) ... but I am angry about not being able to eat what I want, which is a new emotion this week. I actually drove to the store last night with the intention of buying what I want and eating it, the hell with this stupid disease. Yes, my gut is healed (I don't think I was that bad listening to some of the other stories on this board). The only thing, and I mean ONLY thing, that kept me from doing it was the fact that I know that beer made me itch like crazy before I was diagnosed. Other then that, I can almost convince myself that the doctors have made a mistake and I can eat anything and everything. I was diagnosed with a IgG and IgA blood work .... so no real "proof" to me. There was 2 months ago .... but a distant memory at best.

I don't know how I'm going to do this for the rest of my life. How do you all go out to eat? You can't be sure that the mayo in the tuna plate is safe .... or anything else, for that matter ... do you just eat it and hope for the best?

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I do the same thing sometimes. Try to avoid that, though, not only because you eventually hate the food, but because that's a surefire way to develop allergies.

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Guest Viola

Boy, I can sure relate to this. I'm one of the ones that goes in streaks. I eat and eat and eat .. and then I'll go a week or so where I totally loose my appetite. And you're right, it's usually about one or two foods until you get sick of them eventually ... although I don't think I'll ever get sick of chocolate :lol:

But I've been on the diet for over 16 years, so I'm healed as well as I'm ever going to heal. Perhaps it is a phycological thing. :rolleyes:

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I am the exact same way. I really think I could eat, and eat, and eat. I really do have a pit for a stomach. I believe that since my mind knows it can't have gluten anymore, then it will focus and "crave" all of the other things it CAN have. I could eat fruit until the cows come home, but I will never get that 'satisfied' feeling like okay that is enough. Not really sure what the problem is, but it is a good guess that it is part mental because being diagnosed with celiac isn't exactly a small bump in the road.... it is a complete lifestyle change which can be very discouraging at times.

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Discouraging isn't even the word for it ... lunchtimes are the worst. I am so freakin hungry ... all I want is a BLT on Wonder Bread. I cannot tell you how close I am to giving in. I think that if my 22 year old daughter wasn't here - she would be SO upset if I ate the wrong food - I would say the heck with it and just chow down. She goes back to college in September, so this had better pass by then!

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You might find, if you decide to go ahead and have that sandwich, that it will be the last gluten you ever intentionally eat. I was gluten-free last September and October and then decided to "cheat" on Thanksgiving. After spending the next day running to the bathroom, and feeling the glutened brain fog, I decided it wasn't worth it.

You do get used to the diet. But I binge on favorite foods too. "I can have M&Ms? Great! I'll eat a giant bag myself!"

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Hi Sharon,

Eating the wrong food was taken out of my hands .... I changed shampoos and, you guessed it, the new one has wheat in it. I have been in the bathroom for the past two days. So YES - I do believe I have Celiacs and NO - I will not intentionally eat the wrong foods. I was feeling so darned good up until two days ago ... and now I'm sleeping and, well, you know what else!

:rolleyes:

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Mandigirl - the anger has passed. I'm still at a loss as to what to eat for lunch (besides butterfingers, the only thing I really want) and my stomach was feeling well enough tonight to have some chicken and a baked potatoe. Although I tend to stay away from the taters; I gain weight just looking at them and can ill afford that. I thought a salad would just upset an already shaky stomach. I'll have to look for the pizzas; I do like Food By George's muffins.

And I know the potential seriousness of eating the wrong stuff ... I've already been checked for lymphoma (now THAT'S a wake up call). I was just venting .... I don't know what I'd do without this board. My family is trying - my daughter is really good and watches what I eat like a hawk - but my mom is having a difficult time with what I can and cannot eat.

Ann

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Foods by George makes a very good frozen pizza. And I like the Chebe breadmix for a pizza crust the most.

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Hi mandigirl and everyone,

I also get cravings even though I 100% know that I am completley full. A few people

suggested eating more protien. Absolutely! Eggs, red meat, and fish, (like salmon) are great. If you don't like salmon, try it again...grilled is great, also bake it with a horshradish mustard...yummm.

Somtimes I think we get cravings and keep eating because our bodies are trying to tell us that we need some specific nutrient. Try taking a multi vitamin, and try eating more green leafy vegies.

Also, if you keep having cravings but you don't want to eat. Try drinking a glass of green tea. It has antioxidants and is very good for you. It also has a natural appetiite suppressant. Plus the act of sipping something warm is very satisfying. You can also try drinking a glass of milk (if your not dairy intollerant). The milk will fill you up quickly, and will satisfy some cravings, as it is rich in protein and sugar.

One last thing...check on this site for the safe and forbiden lists of foods, you can also get a list of mainstream foods that are gluten-free. You will see that there are hundreds of items we can get even from our local grocery stores. You may find a gluten-free substitute for your favorite foods or maybe even find out that some of them were gluten free all along!

Good luck, Wendy

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    • I am sorry that I was not clear.    I only mentioned  your diagnostic background, not to discredit you, but because without any lab results (other than a positive gene test), how can you be sure that gluten (shampoo containing wheat protein) was the actual culprit (not a guess) of your symptoms?  It is common for celiacs to receive follow-up antibodies to monitor their dietary compliance.  This is not perfect, but it is the only tool in the toolbox for now.   My husband has been gluten free 12 years prior to my diagnosis.  He went gluten free per the poor advice of his GP and my allergist.  So, I am not trying to discount your diagnosis at all.  I am just trying to see if other lab tests (e.g. liver tests that were elevated previously for you when you were still consuming gluten) were measured after your shampoo exposure.   I am curious because I have had issues over the last year.  I was glutened last January, had the flu, a tooth infection, a cold and a tooth extraction, three rounds of antibiotics (verified to be gluten free) within a month or so.  Like, you, I am very careful.  I have no idea as to how I was exposed.   The last time I ate out was a year ago and even then it was at at 100% gluten free restaurant.   My hubby did not have any symptoms at this time.  He is like my canary.    I went to my GI and my DGP IgA was off the charts even some three months later.   My celiac-related symptoms diminished in three months, but I struggled with autoimmune hives for six.  My GI offered to do an endoscopy in the summer.  Instead I chose to follow the Fasano diet.  I still was not feeling well.  In December, my antibodies were 80.  They were either on a decline or they were increasing again.  I opted for the endoscopy.  My biopsies revealed a healed small intestine (you could see the villi on the scope too).  But I was diagnosed with chronic gastritis and had a polyp removed.   So, all this time I thought my celiac disease was active, but it was NOT the source of my current gut issues.   Again, my apologies.  I just wanted to know how you know for SURE that hydrologized wheat protein from someone else’s shampoo and conditioner could reach your small intestine to trigger an autoimmune reaction.  Maybe, like me, Gluten was not the actual culprit.    
    • The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's been doing this for years now and I've never been glutened from within my home. The previous week I hadn't eaten out, I cooked all my food, I don't eat processed food and I never eat something from a shared facility.  Usually if I get glutened it's a single dose sort of thing and it follows a very predictable course, to the point where I can estimate when I got glutened within 24 hours of when it happened. However, this time, I was feeling achy and arthritic and moody for about a week before it got bad enough for me to recognize it as the result of gluten exposure, at which point we went searching and found the shampoo (and conditioner, which does leave more of a residue than shampoo), which he immediately stopped using. Within three days I was feeling back to normal (which is the usual course for me).  Sure, it could have been something else, but I know how sensitive I am, and, as silly as it sounds, it was the only thing that made sense. The other thing you said: You're correct, mine was not a rock solid celiac diagnosis, but I have no doubt that gluten is the problem. I was SICK. I went through two different gluten challenges in an effort to get a more straightforward diagnosis during which I was a barely functioning human being. Consuming gluten may not have given me blunted villi or elevated antibodies, but it did inflame my gut, and actually started to damage my liver. If you look at my diagnosis thread, I had elevated liver enzymes, which have been correlated with celiac disease in the past. There was no alternative explanation for the liver enzymes, he checked EVERYTHING.  I too am a scientist and I have spent a lot of time with the literature trying to make sense of my condition.  https://www.ncbi.nlm.nih.gov/pubmed/26150087 I also have no doubt that gluten was damaging my intestines in some way, as any prolonged gluten exposure in the past has inevitably been followed by a severe FODMAP intolerance that goes away once I've eliminated the gluten and given myself a month or so to heal.  I also had a very fast diagnosis following the onset of symptoms (~1 year) so it's possible that the disease never had a chance to manifest as full celiac. I wasn't willing to eat gluten long enough to find out. As a result of my diagnosis, hazy as it was, I am *meticulously* gluten free. It is not a fad for me. I don't occasionally cheat. It is my life, for better or worse. All of that being said, I'm not sure what my diagnosis has to do with your question. You say you're not trying to be rude, but when you bring up my diagnosis in a thread that has nothing to do with diagnostics, it seems like you're trying to undermine the validity of my disease or the validity of my input in this forum. If I'm being hypersensitive, I apologize, but that's how you came across on my end. I'll admit that the fact that my diagnosis wasn't more straight forward does make me a bit defensive, but I promise that even if I didn't have a solid diagnosis, I interact with the world as though I did, and I'm not out there giving people the wrong idea about celiac disease by not taking it seriously. If there was a connection between your question and my diagnostics that I missed I would appreciate you giving me the chance to better understand what you were asking. 
    • I am just curious.  As a scientist (and I am not trying to be rude), how can you determine if hydrologized wheat protein from your husband’s shampoo was actually the culprit?  If I recall at your diagnosis, you were seronegative, Marsh Stage I, gene positive,  but your doctor still  suspected celiac disease.  You improved on a gluten diet.  Other than observation, how do you really know?  Could it not be something else that triggered your symptoms?   I firmly believe that even trace amounts of gluten (under 20 ppm), can impact sensitive celiacs.  But traces of a protein within a shampoo from someone else’s hair that was rinsed?    
    • I also can't have dairy but through a series of experiments and a lot of research I think I've pinpointed my problem. It may or may not be the same for you, but I thought I'd share.  There are two kinds of beta-casein protein A1 and A2. We'll call A1 "bad casein" and A2 "good casein". The two proteins differ only in a single amino acid, but this is enough to make it so that they are processed differently in your guy. Bad casein is actually broken down into a casomorphin, which is an opioid peptide. That does not mean that milk gets you high, or is as addictive as heroin, or anything like that, it just means that it can interact with opioid receptors (which the gut has a bunch of). It's worth noting that opioids cause constipation due to their interaction with the opioid receptors in the gut, and that a lot of people feel like cheese and dairy slow things down, but any connection between the two is pure speculation on my part at this point.  Now here's where things get weird. The vast majority of milk cows in the western world are derived from Holstein-like breeds, meaning black and white cows. In a few select places, you'll see farms that use Jersey-type cows, or brown cows (Jersey cows produce less milk than Holsteins, but many connoisseurs feel it's a higher quality milk, particularly for cheese).  Holstein-like cows have A1 and A2 casein (bad and good), however, Jersey-type cows only have A2 (good casein), unless their genetic line involved a Holstein somewhere in the past, which does happen.  A company in New Zealand figured out how to test their cows for these two genes, and selected their herd down to cows that specifically produce ONLY A2 (good) casein. You might have seen it in the store, it's called A2 milk. Some people have had a lot of luck with this milk, though it still doesn't solve the problem of cheese.  I have suspected, due to trial and error and a few accidental exposures, that I have a problem with A1 casein, but not A2. In line with this: I am able to eat sheep and goat dairy without any difficulty, so at least I can still enjoy those cheeses! I am also fortunate because I'm apparently not too sensitive, as I can still eat cow-milk butter. The process of making butter removes *most* (read: enough for me) of the casein.  However, if I eat cow cheese or a baked good with milk, I get really sick. It's a much faster reaction than if I get glutened. Within minutes I'm dizzy and tired and my limbs are heavy. I have to sleep for a couple of hours, and then, over the next couple of days, I'm vulnerable to moodiness and muscles spasms and stomach upset just as though I'd been glutened (though the brain fog isn't as bad). I actually haven't tried A2 milk yet, mostly due to lack of availability (and motivation, I don't miss milk, I miss CHEESE). However, last year, when I was getting ready to go on a trip to Italy, I had a thought. Once, in the recent past, when I'd been testing dairy, I'd had a slice of parmesan cheese. Miracle of miracles, I was fine. I didn't feel a thing! I was so excited that I ran out and got some brie to eat as a snack. That did not go so well... Turns out parmigiano reggiano is made from the milk of the Reggiana variety of cow which is, you guessed it, a brown cow (they say red). I did a little more research and found that dairies in Italy predominantly use brown cows. So I decided to try something. As some of you may know, Italy is something of a haven for celiacs. It's one of the most gluten-free friendly places I've ever been. You can say "senza glutine" in the smallest little town and they don't even bat their eyelashes. You can buy gluten free foods in the pharmacy because they're considered a MEDICAL NECESSITY. If travelling-while-celiac freaks you out, go to Italy. Check out the website for the AIC (Italy's Celiac society), find some accredited restaurants, and GO NUTS. While I was there, I decided to see if I could eat the dairy. I could.  Friends, I ate gelato Every. Single. Night. after that. It was amazing. Between the dairy being safe for me and the preponderance of gluten free options, it was almost like I didn't have dietary restrictions. It was heaven. I want to go back and never leave.  So that's my story. Almost too crazy to believe.  TL;DR: Black and white cows make me sick, brown cows are my friends.
    • I'm a scientist, and I did a little research into the study. Looks valid and it was published in a respected journal.  http://www.gastrojournal.org/article/S0016-5085(17)36352-7/pdf The science looks solid. As someone who didn't have a super clean cut diagnosis before going gluten free, I'd love to see something like this become available. Then again, there's no doubt in my mind that I can't have gluten, so any additional testing would be purely academic. But like I said, I'm a scientist. I can't help myself. 
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