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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Disney World Theme Parks
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I appreciated other people's post prior to my trip so I figured I can return the favor. They were very accomodating and knowledgeable every food place followed protocol by getting a manager or showing me the ingredient labels. At every sit down the chef came out personally and took my order (order all at once). My plate was brought out separate and was usually covered.

Epcot: quick meal: Sunshine Season (beet and goat cheese salad and Enjoy Life dessert chocolate bar)

sit down: Coral Reef (Tapioco Rolls, risotto with seabass, and a delightful flourless torte)

sit down: Le Cellier (Tapioco Rolls- I started to decline them because I don't like them but I'm sure it is a personal opinion, filet with wild mushroom risotto and ice cream with chocolate sauce)

Magic Kingdom: quick meal: Cosmic Rays Starlight (cheeseburger with gluten-free bun *it was not good, again probably just my preference, grapes, and gluten-free brownie)

quick meal: Pecos Bill Tall Tale (caesar Salad with chicken, and was offered gluten-free brownie or cookies)

sit down: Cinderella's Royal Table (appetizer was served family style but they brought me my own plate minus the brushetta, it has artichokes, asparagus, olives, cheese, and grapes *delicious, main meal vegetable casserole *very healthy I'm sure but not real good and for dessert caramel creme *not worth the calories

more continued

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Magic Kingdom: sit down Grand Floridian Cafe (salmon with leeks *delicious, and fondue was replaced with chocolate Hershey's syrup served with fresh fruit/marshmallows)

Hollywood Studios: quick service Catalina Eddies (caesar salad, gluten-free brownie, and hot cocoa)

Pizza Express (Amy's gluten free veggie pizza *it was huge and took 10-15 minutes,Chocolate milk, gluten free cookies)

sit down: Mama Melrose Fantasmic (risotto with tuna, and a delightful flourless cake *my family was jealous and wanted my dessert!)

sit down: 50s Prime Time Cafe (salmon *but could of had the meatloaf, green beans, wild mushrooms, mashed potatoes)

Animal Kingdom: quick service: Pizzafari (best pizza didn't wait too long, gluten-free brownie, and grapes)

sit down: Yak and Yeti's (ordered the pad thai but they had to subsitute the noodles for rice)

My family was on the meal plan that is why I had all the desserts/appetizers! All in all I was very happy and felt like I could eat at most places. I never got sick!!!

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YAY !!! this makes me happy :lol:

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Thank you for the information I take my family down there every year :D

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We are going this month. I can't wait. We are going to do most meals in the airstream, but hubby and I want to at least have a dinner out one night by ourselves while the grandparents watch the kids.

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    • Yes you are correct. Interestingly my genes in the US are thought to be more associated with RA. Which is something they thought I had prediagnosis. In the Middle and far East they are more likely to be associated with celiac and they are rare genes in Caucasians which I am according to my parents known heritage. I always caution folks not to take the gene tests as absolute proof they can't have celiac because I had one child who had positive blood and biopsy, did well on the diet, then got genes tested in young adulthood and was told they could never be celiac. Of course that resulted in her abandoning the diet. I worry but hope someday doctors will realise we still have a lot to learn about the genetics of this disease. PS While I still have some deformity in my hands my joint pain resolved after a few months on the diet.
    • It seems like you really need a concrete or near concrete answer so I would say maybe you ought to get the gene testing. Then you can decide on the gluten challenge.   Thanks! I am convinced our dogs are there waiting for us. Meanwhile they are playing, running, laughing, barking & chasing. I have another favorite quote dealing with dogs: "If a dog will not come to you after having looked you in the face, you should go home & examine your conscience."  ~~~ Woodrow Wilson ~~~
    • I can't help thinking that all of this would be so much easier if the doctor I went to 10 years ago would have done testing for celiac, rather than tell me I probably should avoid gluten. He was looking to sell allergy shots and hormone treatment, he had nothing to gain from me being diagnosed celiac. I've been messing around ever since, sort-of-most-of the time being gluten free but never being strict about it. I really feel like three months of eating gluten would do my body a lot of permanent damage. I've got elevated liver enzymes for the third time since 2008 and no cause can be found which might be good, I guess. I wonder if it would be reasonable to do the HLA testing first, to decide if I really need to do the gluten challenge. If the biopsy is negative, that is. Squirmingitch, love your tag line about dogs in heaven. We lost the best dog ever last December. I sure hope all my dogs are there waiting for me!
    • Most (90%-95%) patients with celiac disease have 1 or 2 copies of HLA-DQ2 haplotype (see below), while the remainder have HLA-DQ8 haplotype. Rare exceptions to these associations have been occasionally seen. In 1 study of celiac disease, only 0.7% of patients with celiac disease lacked the HLA alleles mentioned above. Results are reported as permissive, nonpermissive, or equivocal gene pairs. From: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/88906  
    • This is not quite as cut & dried as it sounds. Although rare, there are diagnosed celiacs who do not have either of those genes. Ravenwoodglass, who posted above, is one of those people. I think she has double DQ9 genes? Am I right Raven?  My point is, that getting the gene testing is not an absolute determination either way.
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