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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Mythbusters Gluten Submission Campaign
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Someone on another site brought up how cool it would be to see cross contamination and gluten featured on mythbusters. My kids love the idea and asked me to get everyone I can to submit myths about gluten to mythbusters. I started a thread on their site and I hope folks will post their gluten related myths as well.

Here is the thread I started: http://community.discovery.com/eve/forums/a/tpc/f/7501919888/m/43019274701

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Someone on another site brought up how cool it would be to see cross contamination and gluten featured on mythbusters. My kids love the idea and asked me to get everyone I can to submit myths about gluten to mythbusters. I started a thread on their site and I hope folks will post their gluten related myths as well.

Here is the thread I started: http://community.discovery.com/eve/forums/a/tpc/f/7501919888/m/43019274701

The person who responded to your thread on there needs some serious Celiac education!

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The person who responded to your thread on there needs some serious Celiac education!

Yeah. I wrote this back:

domesticactivist

Junior Member

Registered: 01-10-11

Posted 01-10-11 05:31 PM

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Wolicki    39

That guy's post really irritated me. Made me (just for a moment) wish that he was a very sensitive celiac being told that his actions seem extreme. Butthead :angry:

Just to be clear, the butthead is the guy arguing on the thread about destroying gluten, not this forum :P

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kareng    1,992

I registered as gfKaren. He just wants to argue. It had nothing to do with the question really.

"Why are you being so argumentative? Questioning the ladies illness? All she and her kids wanted to know was at what temperature a wheat gluten protein incinerates. We have heard that it is a big sturdy molecule that can withstand temperatures that would destroy other proteins. Debating with us whether 1 molecule can make us sick has nothing to do with the topic and request."

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FooGirlsMom    30

Yeah I noticed that response or two you got was pretty grouchy. I have never heard anyone bicker with someone about a diagnosed medical condition - let alone completely miss the point of the post. All you wanted to know is how hot does the water have to get to destroy gluten and can it hang around with normal washing & still contaminate someone.

Brother!

FooGirlsMom

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kareng    1,992

Just to be clear, the butthead is the guy arguing on the thread about destroying gluten, not this forum :P

No...none of us here are ever butt heads! :P

I think everyone should go on there and back her up! C.com against Buttheads!

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gary'sgirl    28

I just posted a comment under the name gfSarah. I'm afraid after I posted I saw that I was a little long winded and preachy, but, oh well. :rolleyes:

I wish people would be more understanding and encouraging about what we have to do to stay healthy. It's not like it's easy or something we do just cause we want to.

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BeHappy!    1

Wow. What's his problem? Does he even know what Celiac is?? Some people need to find a hobby... Just ignore him. Don't even give him the negative attention. He doesn't deserve it. Let's all just keep writing that we have seen some serious regression. Some people.... Sheesh.

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modiddly16    48

That guy is a total creep. I had to stop reading because I was getting ready to post something pretty fierce.

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kareng    1,992

I looked around. The guy is an "expert" on everything. He gets his info from Wikipedia which is not always accurate. He must be pretty old because he said "wet hen party". I'm not sure anyone under 80 would use that term.

Anyway, ignoring him will probably frustrate him the most.

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kareng    1,992

You know what? I'm so impressed to have finally found a forum (this one) where people know how to deal with trolls!

Don't you get a really big Billy Goat to head butt him off the bridge? :P

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Dixiebell    109

A quote from lynnelise that speaks volumes to me:

"I think one reason that people like to think that stuff like this only exists in our mind because to admit that it's real would be admitting it could happen to them."

It irritated me. My son and I are not 'offically diagnosed' but we know we can't eat it.

This may be this guys hobby. Maybe he likes to stir up $h#t.

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kareng    1,992

I thought about saying this but decided not to engage him anymore.

Do you have a food, like green peppers (for example) that you have figured out disagrees with you. Everytime you have an omlette with gps, you have gas and belch all day? If you have the omlette without the gps, you do fine. You have figured out GPs are bad for you and you try to avoid them.

Some people try no gluten for a couple of weeks and feel much better. They donot want to make themselves or thier child feel sick again by eating gluten to get a blood test.

An endoscopy done right away might be informative. The main problem with that procedure is that it isn't a good diagnostic tool for someone in the early stages unless they are lucky. According to your beloved Wikipedia, the average adult small intestine is 16 feet. If 20% is damaged and most GIs take 3-6 biopsies, what are the odds that the GI might miss and only biopsy healthy tissue? I don't know. Someone can do the math. (Never heard of a decent GI doc, musch less a pediatric one, that can get you in in less than 1 month, just my observation)

The problem with the "little bit won't hurt you theory" is that little bits add up. Wikipedia says we can consume 500 units(?) per day and not cause any immune rsponse. Great! That becomes the standard for gluten free. Now we have food labelled gluten-free at 400 units per serving, below the Govt standard. I eat a sandwich of gluten-free bread for lunch - each 1 slice serving is 400 units. Silly me, I use 2 pieces to make my sandwich. I am already over the limit for my day. I didn't even eat 2 gluten-free cookies (2 cookies = 1 serving, gluten 300 units) for dessert yet or figure in the accidental crumb from my kids whole wheat sandwich. This is why it is so important to eliminate every crumb you can, because they add up. This is also why a much lower standard of gluten-free is important.

That's all I'm going to say.

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GFinDC    609

Well, here's my MB show suggestion. A little sexiness should help get people interested in the topic.

****************************************************

Ok, here is one I'd like to see MB test. Can a person be exposed to enough gluten to get sick from kissing a gluten eater who hasn't brushed their teeth? Say your significant other just drank a heavy German beer and wants to smooch you up. Can a celiac get sick from kissing them? Celiac sites I have read suggest the answer could be yes, if the beer drinker hasn't brushed and rinsed/gargled first. But is there enough residual gluten transferred from a kiss to make a celiac sick?

The US FDA is still considering their rules for labeling foods gluten free although by law they were supposed to be final years ago. Their proposed standard is less than 20 ppm to label a food gluten free. So, does a gluten kisser transfer 20 ppm or more to another person? Of course this test doesn't have to be done with real celiacs. If a method of collecting the gluten from the kissee's mouth and measuring it is used, it doesn't matter if the person is celiac or not. The amount of gluten transferred is the question.

We all know lipstick can get transferred during a kiss, why not gluten (gliaden)?

****************************************************

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kayo    37

Wow, talk a about a troll fest over there on the mythbuster's thread. That one person needs a hobby! I cant take anyone seriously when they condescendingly start a reply with, now ladies...

I just registered so I can also request they tackle how easily, or not, gluten can be destroyed on cookware and utensils. I think that would make for a very interesting experiment. How happy would we all be to find out hot soapy water does the trick?

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Wow, talk a about a troll fest over there on the mythbuster's thread. That one person needs a hobby! I cant take anyone seriously when they condescendingly start a reply with, now ladies...

I just registered so I can also request they tackle how easily, or not, gluten can be destroyed on cookware and utensils. I think that would make for a very interesting experiment. How happy would we all be to find out hot soapy water does the trick?

Personally Myth Busters only want things you can crash, drop, burn, make explode, float, fly and gluten doesn't fit into any of those catergories.

There are 2 Hopes of getting anything to do with Gluten featured.

1. Bob Hope

2. No Hope

David

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It's a long shot but I have seen episodes where they had segments that didn't involve crashes or explosions. The tight jeans come to mind. I imagine they could incinerate stuff for this one. That could be fun. The thread I started has well over 1000 views and three checks for ratings. Which is way more than most threads. That plus a troll test indicate controversy around the subject. Seems there is interest.

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GFinDC    609

I agree, explosions are something MB always find a way to fit in. Big kids get big explosions! They could blowup a truckload of wheat and test the remains for gluten. I wouldn't cry over some destroyed wheat. :)

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