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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
Guest Zmom

Grandparents And Celiacs

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Guest Zmom

Anyone else have to deal with grandparents who refuse to wash their hands after eating gluten?

Even after my Doctor wrote them a letter? Even when their Grandson asks. They think we are exaggerating and his Grandmother even Grabbed and held my son's hand after eating a piece of bread when he asked her to wash her hands. totally frustrated. Any suggestions?

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How rude(if it is on purpose)....I can't believe they would not follow something to help their grandson. This may make them mad but personally I would say..."This can make him very sick and if you can not respect that, as much as we hate to do this, then we will not be allowing him over anymore."

At this point they are blowing it off like its nothing. If they realize that this is serious and if they don't follow it then they won't get to see him then hopefully they would change.

This is just my opinion...there are other ways you could approach it.

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Guest nini

Shoot, I have a HUSBAND that forgets to do that...

as far as grandparents go... that's a whole "nuther" can of worms... I don't think they do it intentionally, but they def. expose my daughter to gluten by some of their actions... My mom's house is SOOOOO Not gluten free, even though I've stocked her up with safe snacks and such, they still have an abundance of gluten laden goodies laying around and they will munch them, not wash hands OR MOUTH and will hug and kiss her all the time I'm just wigging the entire time. I feel like I can't relax.

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Guest taweavmo3

My parents were alot like that, unitl Emmie got really sick a few weeks ago. They never intentionally gave her gluten or anything, they just didn't understand the seriousness of it. If Emmie broke out in hives or had trouble breathing, it would be easier for them to "get" I think.

Last time Em's spent the night, the next day she was very lethargic, was crying/screaming all day, and wouldn't eat. This lasted for nearly two weeks. So, now they totally get it. They are so good now......she spent the night again last weekend and my parents made a special trip to the store to load up on gluten-free goodies before their outing.

I don't know what I would do if my parents actually refused to comply with washing of their hands.........I guess I'd have to tell them that my kids couldn't come over until they took the disease for the seriousness that it is. My parents didn't do anything intentional, they really just didn't know or they would forget. As hard as it was seeing Emmie so sick, at least it opened my parents eyes to the disease and how much havoc it can cause on such a little body. That was really the only thing that worked.

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Okay guys, listen to this...I am Dakota's 60 year old grandma, and it was I who sent away for the $378 spectrum of tests which identified that Dakota has gluten intolerance and allergies to milk and dairy. It was I who spent his first 11 months of life as his primary daycare provider, watching like a guard-dog to make sure he stayed on his diet. Then at 1 year of age his parents put him into preschool and stopped his special diet after a Kaiser doctor gave him a blood test and said he didn't have Celiac. Now I'm keeping him again 1-2 days a week, and can't help but feed him gluten-free, milk and dairy-free foods (I have had the same intolerances since the age of 8).

I am once again creating special foods for Dakota and even leaving them in special containers in the refrigerator at his family's home. I know that no one else in the family realizes that Dakota's eating forbidden foods can have truly drastic effects, but since my symptoms are asthma and wheezing when I eat those foods, they realize that I must stick to my special diet.

It is a day-by-day journey. We must do what we can, no matter how big or small, and these family members are looking ultimately to us for patience, steadfastness, understanding and TOLERANCE. Lord help us to be the examples we can be! I am so glad you are all there. Welda Lou

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    • Hi Matt,  Thanks for taking the time to reply!  I completely agree haha.  Thanks for the links - I'll give them a read over!  I think it was a mixture of the first time travelling with being gluten-free and the added bonus of the language barrier, it made me dread meal times when usually food is the first thing I think about when travelling to new places! Again, I think the planning element was also a factor, not being able to walk past a nice bakery without walking in - why do most Berlin train stations have bakeries in everyone?!?! THE SMELL!!!  Haha, good excuse! Could have used that in the hotel restaurant (arrived late the first night) and the only avail dish was a dry chicken Caesar salad (literally 3 thin slices of chicken, 5 cherry tomatoes and a plate of lettuce).  I am I'll give the website a look over too - thank you! My app's with my consultant are every 6 months, basically was just sent away with no info/advice given and feeling the struggle now that reality has set in that this is for good!  Hope you are well! 
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      https://www.celiac.com/gluten-free/topic/118842-freezer-paper-for-safe-prep-surface/?tab=comments#comment-979071 https://www.celiac.com/gluten-free/topic/120402-gluten-free-food-alternative-list-2018-q1/  
    • It sounds like your hives resolved.  I had a six month bout with them.  Antihistamines really helped.  My doctors are not sure if Mast Cell or autoimmune is the root cause.  
    • My kid has Raynauds.  It freaks her classmates out.  She wears shoes and wool socks all year round and we live in a warm state.  It is autoimmune.  She manages it by layering, turning up the heat, use lots of blanket throws.   I have Hashimoto’s and celiac disease.  So, having multiple autoimmune issues is common.  
    • Well, you do need to replace some things because they are too porous or damaged to remove gluten.  Things like old wooden spoons, scratched non-stick pans, toaster, colander, sponges, etc.  Honestly, the list is long, so try getting a few celiac books at the library or Amazon.  Consider reading through the Newbie 101 thread under the “Coping section”.    You should see some minor improvement soon.  It does take time to heal.  Most  around here will say it takes a year!  
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