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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Success Story
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6 posts in this topic

When I was first dx with Celiac I was wearing a size 3X (tightly) and weighed over 265 pounds... The weight loss has been slow and steady ever since going gluten-free, but I had kinda hit a plateau and hadn't lost any more weight in a while after losing 65 pounds. Well after about a month of not weighing myself and noticing that my size 16's are getting loose I decided to weigh myself... YIPPEE SKIPPEE JOY OH JOY!!!!! I have lost an additional 10 pounds, bringing my total weight loss to 75 pounds in just a little over 2 years!!!! And I'm finally under that dreaded 200 pound mark!!!!! WOO HOO!!! Doing a happy dance all over the place!!!!

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Congratulations nini!!

It is nice to see something positive come from having celiac!!! I know this is a much more healthy way of living and eating but I do still miss pizza <_<

Keep up the good work and enjoy shopping for new clothes.

Sue

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Wow Nini that's fantastic!! You are truly amazing and deserve so many congratulations :) Losing weight is never easy, and anyone who loses a significant amount (more than 20 pounds, in my book) deserves every bit of bliss they get from being thinner! :)

I'm so happy for you :) :) :)

- Michelle :wub:

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Thank You Thank You Thank You!!!!! I think this is even more significant to me because as a child and teenager I was always very thin, and it was so upsetting to me when I started putting on weight and couldn't figure out why. I wasn't eating a lot of food and what I did eat was going straight through me. All those Dr.s that said that I just needed to "cut fat" "cut calories" "eat more whole wheat" "eat more fiber" needed to just be shot!!! LOL! With going gluten-free I am also eating more whole unprocessed organic foods, and staying away from a lot of processed stuff. Plus I drink a ton of water every day. It's about all I drink except for my morning coffee and the occassional gluten-free all natural soda from whole foods.

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Way to go! One thing I noticed when I lost weight is I would go through plateus where I didn't lose any weight but my body shape would change during that time. Slow and steady is the best way especially when you are really overweight. Keep at it, I've been there. Still have some love handles that have a death grip on my waist but that's better than a big huge gut that was killing me.

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    • Yes.  I ate gluten for over a  month.... EVERY DAY!  I had a blast.  I ate all kinds of stuff I never eat.  It was so much fun.... until the intestinal issues came along. And I gained six pounds. 
    • One thing I noticed in your original post is that you said the report refers to "processed meats".  If I'm not mistaken they are referring to things like lunch meat and canned meats.  That's a lot different than buying meat from the meat market and cooking it yourself.  Or am I wrong?  I also second taking care with a vegan diet.  My friend's son went vegan with little research and ended up in the ER with problems they linked to lack to protein in his diet.
    • So.... you had the blood test but you are gluten free?  Or you ate gluten for a month? The blood test requires you to eat gluten for an extended period of time to work.  
    • Back in 2009, I came to the conclusion that I have a gluten issue.  I eat it, I have major diarrhea.  I get away with cheating from time to time.  There are some things that trigger it far worse than others, like beer and bread.  For the most part, I just eat gluten free stuff, and I know what to look for on labels.  All labels.  I feel like despite the fact that I pretty much eat gluten free, that I've been having more problems than usual lately, which means maybe I should not cheat anymore.  But, I decided to ask my primary physician about it, and he sent me to a gastroenterologist in the same office building as him. 

      My initial visit went something like this.  I told her that I have diarrhea issues when I cheat eating gluten.  So I want to know if I'm full blown Celiac or just gluten intolerant.  Her response was that it made no difference.  I would just have to stop eating gluten.  In my mind's eye it makes a ton of difference!!!!  Celiac means I'm destroying my intestines if I cheat!  Intolerance means I'm just causing myself trouble if I cheat.  Her next comment to me was that because I was choosing vegetables over bread and pasta, that was too much roughage and that was causing my diarrhea.  She never asked me if I was eating whole grain rice or rice noodles, or quinoa. 

      ~blink~ 

      So let me get this straight.  Every doctor I've ever spoken to says to eat more fresh fruits and veggies.  I need the extra iron from all those greens, etc., etc., etc. 

      I am not new to this rodeo.  I didn't just fall off a turnip truck.  I told her I wanted to be blood tested, which I'd never done before because I knew  I'd have to eat gluten for a month before the test, and that might mean staying very close to a bathroom for a month.  She had this superiority complex  attitude like I wouldn't want to do that, I guess because she thought I'd jumped on some gluten free band wagon.  I am not gluten free because it is fun.  I like gluten.  I adore gluten.  I worship gluten.  It's not fun being gluten free!  I think when I told her I was in, she was surprised.  I want to put this puppy to rest! 

      Now I am one month later, and I made sure to eat gluten every day.  I gained six pounds despite having diarrhea and loose stools.  Fun.  Just peachy.  Seriously, Doc, I subjected myself to this because I'm a hypochondriac.

      I am never going back to gluten.  It was an interesting adventure, but no bueno.  I go to see this doctor on July 3.  I don't know what the blood tests will show.  But, I'm really not liking this doctor.  She was too condescending.  If she comes back saying the blood test didn't come back positive for Celiac or gluten intolerance, do I seek a new doctor? 

      What annoys me is that I've had female issues that other doctors ignored.  I kept going from doctor to doctor until one finally listened and that was the end of that problem.  Why do we have to go from doctor to doctor?
    • Hi Michelle and welcome I'm guessing you're like me and from the UK? Which means that sadly much of Tessa's list won't be accessible, but don't worry there's plenty to eat here too. I'll go ahead and reply as if your a Brit, if not ignore me Be careful not to scare yourself by doing this. There are a lot of sites that sensationalise or try to scare you into buying their products. You've found a good site here, make use of it, but don't be afraid to turn the web off if its all getting a bit much.  One site you should go to and join is Coeliacs UK. They will send you a book with all the brands you can trust and this will be worth its weight in gold. You can also access it online. Highly recommended.  As above. Go and have a great time. The diet can start on your return. One final thing. It can get overwhelming in the first few months and it's a massive shock, at times you will feel sad and maybe resentful, you will go through a bit of a grief process in other words, but it will get better as you learn the ropes and you will feel so much better once you're on the diet.  As you learn try to let others around you know so that they understand and you don't feel too isolated. Use this site too, there's lots of help and understanding available here Best of luck and enjoy Turkey!    
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